Just got diagnosed with Fibromyalgia today. I had alot of emotional childhood trauma in the past. Now that I am a nurse and continue to be post Covid, I find that my pain , fatigue, and depression has increased significantly. I have always been fatigued and my body always felt heavy even when I was in the best shape. I have gained weight again due to my depression trying to always figure out what is wrong with me. Always tired, alot of stiff joints, dealing with IBS, and I am very sensitive to light that I squint alot. Also every time I would go to my PCP and have blood work everything came back normal. I need several naps during the day. Doesn't help that I work nights either, but I am definitely not a morning person. My doctor prescribed me muscle relaxants and told me to do stretches. My upper body and lower body are also increasingly sensitive to touch which was not a thing back then. I can see why Fibromyalgia is hard to diagnose. Also people tend to be judgmental and family just call you lazy.
@lesliedoerhoefer6030
Жыл бұрын
I was diagnosed 3 years ago , But…. Felt bad for years! I have all your symptoms. My eyes are very sensitive to light and I have bad eyelid twitching that drives me crazy. The bad thing is I also have hashimoto and the symptoms are so much the same as fibromyalgia. It drives me insane! It’s a everyday struggle not knowing how you feel each morning. I’m 61 and I feel like my life is over half the time. I keep praying for God to give me strength. Best of luck to everyone who is struggling !
@RainbowGage
Жыл бұрын
I developed fibromyalgia after a car wreck. I get nerve block injections around my eyebrows that help with light sensitivity after a few days. 11 months in I can't believe I can finally not wear prescription sunglasses indoors. Nerve block is temporary, I get the eyebrows needles bi-weekly.
@shelley7209
Жыл бұрын
I’m a night nurse too! After post Covid this shit happened to me, I’m so angry it’s affecting my entire life! Thanks to Covid. The neurologist isn’t even sure if this is Fibro ..She suspects autoimmune disease..
@ebruaydin1345
10 ай бұрын
U r not lazy just u r in PAIN
@larryfroot
8 ай бұрын
Yep, childhood trauma / fibromyalgia here as well.
@tammydietschweiler7852
Жыл бұрын
I’ve lost all friends and family saying I’m crazy and a liar. Well I’m 62 know and I don’t miss these people. I’m very sick with this an other health issues associated with it. It’s pure Hell!
@dellaCHall5823
Жыл бұрын
I'm so sorry 😞 unfortunately I know exactly how you feel. And like you I don't miss any of them ❤️
@celuiquipeut6527
Жыл бұрын
Thank you doctor for explaining it so accurately. One of the hardest part dor me is the fatigue. I feel tired IN MY SOUL. I get frustrated when i say to someone:"I am SO tired..." and they answer ha yeah, me too!. Its not their fault...but i just want to punch them. Lol
@christinesmith7838
2 ай бұрын
It’s a deep weariness in your bones not just sleepy - eyed tiredness.
@goddessgood118
Жыл бұрын
As a woman who’s been diagnosed with fibromyalgia for 23 years…I can confirm that the information in this video is 1000% ACCURATE. Fibromyalgia negatively affects and impacts every aspect of my physical being, health, and subsequently my overall quality of life. It’s exhausting and never ending…painful and extremely frustrating. Only miracles from the heavens keep me motivated to want to push through and have some form a productive, purposeful life. But, even in the midst of all of this…I maintain my optimism.
@DrAndreaFurlan
Жыл бұрын
Wow, that is excellent that you keep your optimism. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@jewelleryaddict
Жыл бұрын
Well said at 33 years of this nitemare I really understand. Hope you are having a decent day.
@woodworkinggirl5525
Жыл бұрын
GoddessGood11, I’m with you❤ I have felt crazy, but I know I’m not. I’ve been told by a doctor if i keep having pain, they are just going to label me has having fibromyalgia. I feel like, well if thats it, then help me figure out how to deal with it. God gets me through 🙏❤️God Bless you
@KimRok636
Жыл бұрын
Thank you so much for the information you give out..I truly believe in you
@yiannayiassemides9677
Жыл бұрын
I've been in the same condition for six years now. Nobody can understand my problem and how painful in no treatment helped me to feek better. Everything is fir temporary relieve. My only support is from God Who keeps me going! ♥️🙏
@dogmom468
Жыл бұрын
Thank you. I have fibro and lupus. Anything can set it off and we look totally normal so no-one believes us. Even my husband thinks it's bs. I'm sick of it.
@ΕυαγγελίαΜπάλτα-β7π
Жыл бұрын
@SimplyflorencemΤη ειναι το ελαιου CBD...μπορειτε να μου πειτε....Ειμαι απο Ελλαδα..( Grecce)Ευχαριστω!❤
@PatMcIlwain-rw6if
9 ай бұрын
Just the difference the opposite go 3 times bowel before noon. Sometimes narrow bowel movement sometmes gas
@Gwen916
Жыл бұрын
To all that have not being believed I feel your pain. I have had fibromyalgia from the age 16. Now that we know more we can help more people. Hang in there. You are not alone even a the very bad days. 💕
@DrAndreaFurlan
Жыл бұрын
Thanks for sharing!! Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@Gwen916
Жыл бұрын
@@DrAndreaFurlan Yes I have been watching your channel for over a year now thank you for talk about fibromyalgia and the different ways it can be for each of us it has been a 26 years with fibromyalgia and the long list of health problems that come with it.
@marywegrzyn506
Жыл бұрын
Hi, I just found your channel at 12:45 a.m. on 5/22/2023. I have had Fibromyalgia for years and battle the pain , insomnia and chronic fatigue, etc .. with no hope for a cure. Im tired of exsisting. Thank you for making this video. You have explained it so well. I had to share this on FB n with my family. I subscribed n hit the bell so I wont miss any of your helpful videos in the future. ❤
@CindyRussi.
Жыл бұрын
I’m tired of existing too😢
@DrAndreaFurlan
Жыл бұрын
Hi @CindyEmmaRussi please talk about this with your doctor or a therapist. There are a lot of strategies and resources to help people like you.
@crybebebunny
Жыл бұрын
@@DrAndreaFurlanI was just telling my husband, that I might want to move to CANADA, because when I get tired there I can get help to end it.😢
@cathygiuliana9089
Жыл бұрын
Thank you Doctor! I have been diagnosed with fibromyalgia since 1995. Basically you just learn to live with the pain and depression. Never can plan ahead for trips or vacation because I never know when I’m going to have “good days.” So I’m 71 yrs old and have never had a real vacation. In 1999 my daughter took me and my son on à vacation down the Jersey Shore for a week but it was so hot that it triggered every nerve in my body and I was in bed most of the week. For some reason heat triggers my pain and depression. I couldn’t wait to come home. So sad, my daughter tried so hard to get me on a nice vacation! Thank you Doctor for a great video! I just subscribed!
@Suefromengland
Жыл бұрын
It is, to me, the most frustrating of diseases. With no "trigger" as such, there nothing to avoid. I do know that stress, whether physical or emotional/mental, however mild and whether I notice or not, seems to be the one thing I can, retrospectively, say was relevant at the time. I also have myasthenia gravis, peripheral neuropathy, afib, and small bowel blockages due to removal of my large bowel, so having fibro as well is just overkill, lol! Unfortunately I'm told I have it at each and every point on my body per the textbooks. When the pain is bad, my skull hurts as well as my neck, my jaw, my eye sockets, my shoulders, my spine, all my joints, my muscles, my ribs, my hands and even my feet and toes. If a medical student wants to study a disease and comes up with a cure for this horrible disease, they must surely be eligible for a Nobel peace prize! Recently I discovered that sometimes, and only sometimes, a lukewarm to warm bath with Epsom salts is helpful, but that's only when I have the strength to climb into the bath!
@deborahbaker9097
Жыл бұрын
I’ve had fibromyalgia for 33 years and it’s not any better. I take Gabapentin and muscle relaxers and pain medicine. It’s terrible because I look healthy and I have an active life with a 16 year old basketball player! I have pressure points and aches like flu! I also have chronic fatigue syndrome. I am blessed to have a caring doctor!
@deedee9312
4 ай бұрын
Gabapentin is horrible ! My daughter is depressed and it’s not a stable drug in my opinion! What’s your take on it?
@elsahoffmann8719
Жыл бұрын
Its the most invasive and life altering non lethal illness and it's terribly misunderstood. We often know more than the doctos do at any given time. It's sad.
@DrAndreaFurlan
Жыл бұрын
Hi Elsa, thank you for sharing your opinion.
@Cyrilmc222004
Жыл бұрын
Thank you so much Dr Andrea, I really really enjoyed listening to you, and may I say, that everything you’ve said is absolutely spot on. My daughter suffers very badly with Fibromyalgia and has done for some year’s now. I could cry for her because she’s in increasingly cute pain, and she suffers in silence. My heart goes out to anyone who is going through this. Please stay safe and well too xxx Mags ❤❤❤
@DrAndreaFurlan
Жыл бұрын
Hi Mags, I'm sorry to hear about your daugther. I hope she finds relief soon.
@patriciabuxton3361
11 ай бұрын
I have fm and so does my daughter. To see anyone going through this is heart breaking but when it's your only child is such worse. The fact that most people don't know what it is so they don't understand it is frustrating. Fm is a silent, hidden story and so not excepted buy most people. We need more people to know what fm is so they don't think you look OK so you are OK and just looking for sympathy and a way out of doing some things. I am the first in my family and my 52 yr old daughter the last. My family would swear on a stack of bibles that I'm now sick, just lazy because they can't see anything wrong and most people have never heard of it The whole country has to be educated so patients aren't treated as unless cry babies I am lucky, I have 2 very great freind who have fm. And understand it and one of 8 family members who took the time and effort to go online to find out everything she could about it and sent all the info she found to every family member. It helped somewhat but one sister still thinks it's made up and is just a convient excuse to get out of doing things. God bless to all of you with fm and God bless those who love their friends and family members and take the time to get all the information that is available not Understanding is one of the major problems we have to deal with. I am not lazy or picky about my food,I am not looking for sympathy or a way out I just want to be believed and understood. If there is something I can do today gladly. But if I can't do it next day, give me the benefit of the doubt.
@joanncoopertroupe3506
7 ай бұрын
I have Fibro I believe both my Adult kids have it my daughter age 47 My son as he 44 they Both Suffer with Chronic wise spread body pain. I have had this since my early 30's Have been told many times it was all in my head. I was diagnosed a few years ago from a Dr who treats Arthritis Etc plus my pain dr
@joanncoopertroupe3506
7 ай бұрын
It's Caused me to miss many things in my life. I suffer to now with Burning Mouth Syndrome it's like my entire mouth gums lips etc . Had been scalded. I also have EOE. I have trouble with swallowing. I have Hypothyroidism.i have trouble sleeping. I deal with Major Depression anxiety. CPTSD. I am blessed regardless. Jo Ann Age 65 North Florida Lake City Florida 😊😊😊 Ty Doctor for your Videos .
@joanncoopertroupe3506
7 ай бұрын
My heart goes out to anyone with Fibromyalgia. 😊😊😊😊❤❤❤❤❤❤
@patriciaparker162
Жыл бұрын
I have been diagnosed recently by a process of elimination. However I have suffered with this for nearly 40 years. I have even been hospitalised when doctors thought I have had a heart attack only to realise that it wasn't my heart that was causing the pain. I have good days and not so good days. Good days tolerable pain, not so good days time off work. I have learned to live with the condition.
@XXLepic
6 ай бұрын
Costochondritis is a insanely scary chest pain that many I've found w/ fibro to suffer from, and feels very similar to what I envision a heart attack pain to feel like, but has no actual danger
@mariestreeting4213
5 ай бұрын
@@XXLepicSo pleased to read your comment. I’m undergoing tests now to rule out heart issues. It’s really scary because I’ve thought a few times ‘this is it’. Best wishes 🥰
@kimberlybordelonthompson2274
Ай бұрын
Fibromyalgia can effect the heart, as the heart is actually a big muscle. As fibro symptoms effect all connective tissues (Muscles, tendons & nerves. The tissues effected are the source of the widespread pain.
@PaisleyLyndon
Жыл бұрын
I wish there was a test so people believe we have it. I have been diagnosed for 3 years now. Have had to give up work etc. Even my teenagers look at me like im making it up. I have forwarded these video's to them ❤
@roserosa8276
Жыл бұрын
I have severe pain all over my body and I was diagnosed with Fibromyalgia and now I am doing PT, respiratory rehab, and take medication. Since I got COVID I never fully recovered I am in so much pain causing so much depression, anxiety, now I am supposed to see a psychologist to help to deal with the pain. Exactly family, friends, coworkers and doctors do not believe in chronic pain.
@DrAndreaFurlan
Жыл бұрын
Thank you Rose for sharing your story. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@jewelleryaddict
Жыл бұрын
After 30 years of this I understand. However a pshchologist will not really undersrand being in constant pain but can help with positive self talk which can help more then anything. Its being your own best friend with constant words of encouragement even on the worst days. And we really need a understanding friend.
@xxxicequeenxxx
Жыл бұрын
Same you aren’t alone Covid triggered a flare and it’s been two years of me being in a flare. You aren’t alone, things will get better in time 💖🙏🏻
@Dionysus_Athena
Жыл бұрын
@@jewelleryaddict depends on the psychologist. Mine is great and understanding with my goals. I informed him that I would be taking DMT once a week and on every other week mushrooms. This has been a huge breakthrough for me. I’m now doing Gym yes is till get tired but the pain is much more easily managed. I’m doing 400kg leg press sets. It all comes down to mindset primarily and the medicine secondary. A weak mind will never get better.
@youknowcrimedontpay9257
Жыл бұрын
@@Dionysus_Athena You do not have FM. You are not even close to being real or accurate. Leg presses of 400 k. We can barely walk or have strength to do enough to care for ourselves nevertheless do leg presses. I suggest you read up on what Fibromyalgia really feels like.
@rositamendes9248
Жыл бұрын
Thank you Dr Andrea, I've had Fibromyalgia for the past 24 years. I got it when my husband past away suddenly, i went through so much trauma & grief. So many times I wanted to end my life. Fibromyalgia is the new technology name it was originally called Fibrositis. It robs me of my sleep, my body is so sensitive, if I knock myself I want to scream. It also has a mind of its own as there are times I don't have bad pains...when my entire body it one mass of pain, I get brain fog. The pain tablets my doctor gives me does Not help at all. Many times I cry like a baby. And pray to Our Lord to heal me...😢
@Empress711
4 ай бұрын
🙏🙏🙏🙏
@elizabeth--thefibrochef
Жыл бұрын
Thank you for posting this!! Excellent video! Of course I have Fibromyalgia-- and the condition is very frustrating-- and so is the medical care that comes with it. I was very lucky with diagnosing. I had severe pain during and after my pregnancy, over 25 years ago. I was sent to a Rheumatologist by an orthopedic doctor. I was then diagnosed right away. I had always been overweight-- and blamed my pain on my extra weight. But the doctor said, "Don't EVER let anyone tell you that!" He explained that my pain was real and the condition could be helped with improvement in sleep. He prescribed amitriptyline-- which I took for many years. But I no longer take it due to it's drying issues-- I now suffer from severe dry eye, so it does me harm, rather than help. I take many other drugs,now, and my condition has gotten steadily worse with each severe injury and with a severe illness I had in 2018. So some of us with fibro, do have a debilitating form of the condition, and have a worsening state of the condition. But most do not.
@DrAndreaFurlan
Жыл бұрын
Hi Elizabeth, thank you for sharing that with us.
@notadumbblond3
Жыл бұрын
Try ginger and turmeric if your doctor says it's ok to do so. Both are blood thinners though turmeric more so. And both can interfere with certain medications. If you can try it, do it at a 4:1 ratio ginger to turmeric. Think size comparison for how much to take. I've seen a lot of people comment that they've tried that combination, but not at that ratio, actually opposite, and it did not help them and just gave them stomach problems. I've tried it multiple ways and found that ratio to be a good starting point at least. I take more like a 5:1 or 6:1. It can take a couple weeks to get used to the ginger, as it can give hiccups, so you might want to do 2:1 at first. I take mine with omega 3 oil or food. Also if you try it, make sure you take the capsules that say ginger root not extract, or take fresh minced with honey, 1 tablespoon worth of ginger. For the turmeric just make sure it's not from India because it's been found to contain lead from there.
@jacquibuckley6015
Жыл бұрын
I would also mention the cognition side of this condition too. For me, this can be more frustrating than the extreme pain and endless exhaustion. My memory is shocking and my speech is often affected when the pain is intense. My general cognition is hugely affected and carrying out daily tasks is almost impossible. I'm so frustrated with people thinking I'm thick because things take me longer or I have to ask for clarification. Ignorance surrounds this condition and it's so unfair.
@deborah9384
11 ай бұрын
I’m sorry you have rude, uncaring attitude people in your life. I spend a lot of time by myself. Most of the time I prefer it. I’m also 100% disabled. Yep, it doesn’t end ever. There was a very small window of time when I felt normal or close to it b4 my body turned on me. I’m not sure which is worse, the diseases or depression, unable to do what others do without thinking.
@joshuadul2631
Ай бұрын
Your not alone. That sums up what is happening to me. Feel lost in my own skin and everyone gives me grief cuz I can't do what I could before. Witch makes it worse. Don't want to leave my house most days to avoid the criticism
@morninglory30
11 ай бұрын
Please remember that people watching may have fibromyalgia and may be sensitive to flashing lights. Please consider not putting these images in your future videos.
@captainbuggernut9565
Жыл бұрын
This is interesting and im possibly at the start of this journey. I have no idea. I started 3 years ago with pain in my chest. Then pain in my back. Then a sore throat that lasted 6 months and still comes back if I talk alot. Then dizziness with tinnitus followed by pins and needles in my hands and sore fingers. A burning in my upper arm and an impossibly stiff neck and now IBS. The last one i had 20 years ago. I've had blood tests, mris, xrays all come up with nothing except mild scoliosis I'm told. I have no diagnosis and all my gp offers is pain killers. Not sure where to go from here?
@DrAndreaFurlan
Жыл бұрын
Hi, have you seen my other videos? I talk about fibromyalgia and other causes of chronic pain.
@danielleleyshon-m9o
6 ай бұрын
Your kind words about fibromyalgia means a lot, ive been battling with fibromyalgia sense 2016 if not b4 that. In an abusive relationship physically and mentally I didn't sleep for 3 months in a row from his horrible behavior towards me and I believe that plus the mentally and physically all took a toll on me. I tried getting help and got shut down and it was very discouraging but after I got him out of my life I could focus more on trying to get help...and finally I found a primary Doctor that believed me and still there for me. Although I have bad PTSD from my x and the horrible specialist doctors I've encountered i shut down for awhile and am now trying again to get help. Hearing doctors like you with kind words means do much thank you.
@MsMatt919
Жыл бұрын
Thank you Dr. Furlan. Your videos are so helpful and full of information. My Rheumatologist recommended your videos to me and between the two of you, I have learned so much about this disease that I am dealing with. I love your exercise videos and do what I can of them. You are A+++.
@DrAndreaFurlan
Жыл бұрын
Thank you for your kind words! It seems you have an excellent rheumatologist 😁
@marialim256
Жыл бұрын
Hello Dr. FURLAN, Do you have a topic on RLS/ Restless Leg Syndrome?
@MsMatt919
Жыл бұрын
@@DrAndreaFurlan I do. I LOVE her. The Rheumatologist I had before her got a promotion to Dept Chair and selected her for me. He trained her and I love them both. I can say anything to her and she responds to all of my questions and is not afraid to tell me what I need to do. I like that she ADVISES me and I try to listen to her. She's awesome!
@KimRok636
Жыл бұрын
I recommended my doctor to watch your videos. She is very intelligent and will be so much more informed by your your knowledge.
@lindab1859
Жыл бұрын
Good morning. Thank you Dr. Furlan for this refresher information. Decades ago, far too many people were dismissed when presenting with symptoms. Now, being understood, and accepted as a legitimate, people can receive a diagnosis that will lead to an earlier treatment program.
@DrAndreaFurlan
Жыл бұрын
You are welcome Linda. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@eviemorgs
11 ай бұрын
The root cause is nervous system dysregulation caused by chronic stress and anxiety, suppressed emotions, and loss of balance in life. The ongoing illness perpetuates the symptom - anxiety cycle. The cycle can be broken and the body can heal.
@christinesmith7838
2 ай бұрын
You make it sound so easy …
@JB-qn9vt
Жыл бұрын
I am almost 100% sure I've been suffering with fibromyalgia for yrs. I'm 48. And it has been soooo tiring. Like hell. I no longer want to live this way. What can someone like me to do without being judged or Drs and other's just blame it on depression, anxiety, Menopause etc...?? 😢
@maxine3587
Жыл бұрын
You could ask for blood tests which focus on autoimmune issues. I made an appointment with the nurse, who was happy to test, and refer me to rheumatology. The doctor had long ago told me my blood tests were fine, and he couldn't help me.
@Tink-wo4yy
Жыл бұрын
I have had fibromyalgia and I have noticed more sleep I get the better I can deal with any pain issues so therefore I am subscribed sleep medication at night and muscle relaxers!
@DrAndreaFurlan
Жыл бұрын
Thanks for sharing!
@beverlypearson5332
Жыл бұрын
Don’t they test for trigger points / tender points anymore? It used to be that you needed to have pain in 11 out of 13 tender points to be diagnosed. I was diagnosed in 1987, following a car accident. It’s a horrible disease and I’m glad to see more medical professionals talking about it. Thanks.
@clarewillison9379
Жыл бұрын
A rheumatologist told me I had fibromyalgia and dictated the letter to my GP. Then he examined me pressing points all over my back asking if it hurt there. After 20 minutes of “no” he started pressing harder and harder, then hard and twisting until I said “ow!”. Then he said “okay, you can get dressed”. I joined the fibromyalgia society and bought the video. Couldn’t get past the warm-up exercises because my neck would subluxate (I didn’t know that then) and I would feel and act like I’d had a stroke including full body paralysis until it naturally relocated (usually 6-10 hours later). Sometimes it didn’t even hurt. But that dx was renamed chronic fatigue syndrome by my GP and has followed me for the last 25 years, hampering every attempt to get treatment for the hyper mobile cervical spine (and numerous other joints). This video was very useful for confirming that I don’t have fibromyalgia. Acute myofascial pain in local areas due 100% to injuries were ignored (GP told me to “push through the pain” but it was sudden and sharp and my reflexes took over so that was not only useless but impossible and would have been dangerous if I’d obeyed). I hope both those with and without fibromyalgia can find someone who understands and helps them. ✊🏼🙏🏼❤️🕊️
@Britesmyls
Жыл бұрын
I developed it after a radical hysterectomy. My life has never been the same. The pain is unimaginable and I never want anyone to feel like I do.
@islandgal500
Жыл бұрын
Sorry to hear that, especially since I am going for one in a few weeks! I know about side effects of medication sometimes being worse than what the pills are trying to correct, but wasn't aware this could be something associated with this too.
@user-tn1in5he4n
5 ай бұрын
I saw your comment and had to comment. I had a full abdominal hysterectomy and pain started about 1 year after this surgery as well.
@cassandragreen733
5 ай бұрын
I'm the same my body aches so bad everyday, somedays I don't know how I make it home from work 😢
@keokeo2402
Жыл бұрын
I had surgery at the age of 18 which I think triggered my fibro but I was not diagnosed till last August at the age of 32 and am now not able to work due to exhaustion more than pain.
@mcm9619
Жыл бұрын
Many years ago I was diagnosed with this . Felt as if I was being diagnosed with a mental health disorder. I really did have a back issue . Doctors sometimes get it wrong .
@DrAndreaFurlan
Жыл бұрын
Thanks for this comment M X. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@tm13tube
Жыл бұрын
I work in the medical field for years. I did not have fibro then. I hadn’t heard of it when I was diagnosed. My response to anything I want to know is get a book. When I wanted to understand more about it the first two or three books published were mostly how to get disability. I wanted to get better not give up. Truth be told it is similar to the beginning. The last time I needed a pep talk I thought of Celine Dion’s illness, “stiff man’s syndrome.” It starts with good and bad days then progresses with frequency and pain level. It gets worse and worse. No known cure yet. It ends up terminal over time. There is always someone who has it worse. Michael J Fox has gotten over a billion dollars donation for Parkinson’s but it hasn’t helped him yet.
@ghengis430
Жыл бұрын
I think Id had it for many years before diagnosis, but doctors had put my symptoms down to stress and mental illness. I love the simplistic way it's apparently described, pain in your hips! I had trauma, then a lot of surgery for breast cancer, then hepatitis C, with hideous treatments, which arent used anymore. One of the most troubling symptoms is itching. This usually indicates a flare up, but is worse at night. It's awful, and nothing topical will touch it. Medication hasnt worked, but if i mind diet and exercise it does ameliorate it. Cold water swimming helps pain and mood/ energy. Thanks for this, I still feel perplexed at times , even after 13 years diagnosed.
@christineshields1714
Жыл бұрын
Thank you for a very informative video. I have fibromyalgia-like pain associated with Sjogren's. Very few medical professionals understand the widespread pain many Sjogren's patients experience.
@DrAndreaFurlan
Жыл бұрын
Thank you for sharing Christine. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@lesleyjackson8163
Жыл бұрын
I too suffer from S.Syndrome, pain & many worsening problems associated with the disease from late 1990's. 😮 On relocating I was changed to a specialist rheumatology unit in Bath, UK & don't know how I'd cope without their excellent care & expertise. Hope you can find a similar hospital yourself & get the needed support in this horrible disease.
@lilianwal2385
Жыл бұрын
Thank you very much doctor for all your very clear and informative videos, they are useful and much appreciated
@debbiebradney131
Жыл бұрын
I've been told by my Doctor that I have Fibromyalgia and my Dad has it and today I found out that my niece has been diagnosed with it also. Can it be hereditary ?.
@ceciliascerbanenco5660
Жыл бұрын
Thanks again for another useful video! I've just got a terrible flare of fibromialgia and I'm very depressed. But your video gave me suggestions to talk again with my doctor. Thank you!!
@DrAndreaFurlan
Жыл бұрын
Hi Cecilia, I hope you feel better soon. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@damarisrodriguez4244
Жыл бұрын
Thanks so much for sharing this informative video. I suffer from Systemic Lupus. They think I was probably misdiagnosed and have Fibromyalgia. Still waiting for answers. Thanks! God bless and stay safe 🙏🏾🥰
@DrAndreaFurlan
Жыл бұрын
Hi Damaris. God bless you too. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@damarisrodriguez4244
Жыл бұрын
@@DrAndreaFurlan No I haven't, but I will definitely check it out. Thank you and truly appreciate you. Stay blessed 🙏🏾❣️
@wolfgirl13555
Жыл бұрын
I’ve lived in pain and chronic fatigue for almost 40 years now. If it had been diagnosed sooner I think it would have been better. I had an unnecessary surgery that was horrible. I couldn’t take pain medication and had my rib removed. I knew it was a mistake almost immediately.
@Modzybear
Жыл бұрын
I've had widespread pain for 3 years, not 3 months, coinciding with severe fatigue that left me mostly in bed for a year. One year of bodyworker. Two years of PT. Numbness in limbs. Pins and needles. 3 years of rashes and itching. Raynaud's that my *neurologist* diagnosed before my PCP. 3 MRIs. Diagnosed with IBS. Given SSRIs and Gaba. Countless tests. Doctor has zero explanation for me. She says I'm fine and "not dying." I think part of the problem is I have an extreme pain tolerance and I cannot describe my pain properly because of it.
@AmandaJYoungs
Жыл бұрын
Such a good video, so clear and succinct. Excellent, thank you Dr Furlan.
@DrAndreaFurlan
Жыл бұрын
Glad it was helpful! This is the best comment of the day. I’m adding it to my stories.
@liebekatz1
Жыл бұрын
I was diagnosed when the Epstein Barr virus reactivated (I didn't know that I had ever been exposed). I began multiple blood tests to check for various inflammatory markers as well as vitamin and mineral deficiencies. I take multiple supplements to boost my immune system and have found this very helpful. My discomfort has been tolerable unless the EBV is reactivated again, like now. People look at you with a blank look when you explain why you're not feeling well at the moment. 😢
@susangiffin4860
11 ай бұрын
My doctor blames every pain on arthritis
@patriciabuxton3361
Жыл бұрын
I was diagnosed with fibromyalgia 45 yrs ago It took me a long time to learn my limits. There is a limit of doing things it seems that I need to do something every day, pain or not but if I do. Too much the pain is worse
@celtdoggy
Жыл бұрын
I wish you would address Central Post-Stroke Pain sometime.
@DrAndreaFurlan
Жыл бұрын
Great suggestion for a future video
@antoinezulewski2806
11 ай бұрын
Hello, I think that I have been suffering from myofascial pain (trigger points in my leg and my shoulder) for several months without getting proper treatment. A few weeks ago I started feeling some mild symptoms of fibromyalgia like fatigue and pain that spreads to different areas of my body (mainly my back). You are telling in the video that this is quite common and that "we have to help them before they developp more symptoms of fibromyalgia". What do you mean by this ? Treating the trigger points perpetuating myofascial pain ? Are there other things I can do ? And what's the outcome for the patients you are talking about ?
@rebeccadunn1690
Жыл бұрын
Thank you for the presentation of this topic. Eleven years ago my husband and I traveled 9 hours to Cleveland Ohio to the clinic to actually see a heart specialist after being told I only had 3 years to live because my heart was over worked. My pain was so horrible!! I was on so many Meds to lower my blood pressure, but didn't bring it down. My pain levels would spike my blood pressure. The heart Specialist couldn't find a problem with my heart and suggested a Rheumatologist and set me up that day and She prescribed Cymbalta and after one week my symptoms subsided. I will not go further, but you are hitting the nail on the head. Your comments are very much reaction of many. Blessings to you!!
@suesmith5746
Жыл бұрын
I was told by my Dr that there is a bone marrow test that shows conclusively if you have fibromyalgia. I was negative on other tests that were available 25 years ago. Because of possible complications we did not do bone marrow test but my Dr agrees I do have fibromyalgia along with several auto immune disorders. About 12 years ago they tried a low dose of gabapentin which helps and is also good because i have complex partial seizures which they were unable to treat due to severe side effects. I find fibromyalgia annoying and at times limits my activities when I have a flare. I have other more painful and physical in nature problems so the fibromyalgia is just in the background.
@rebeccagraves3137
Жыл бұрын
My doctor diagnosed me with fibro basically by ruling out arthritis and a few other things. I really feel like a flue shit brought mine on. I still have flares but mostly I feel pretty good. The weather affects it or getting to tired or overwhelmed.
@Kenzo1158
Жыл бұрын
Any men have this symptoms..pls like
@g-bgcg
3 ай бұрын
Fibromyalgia is one of the most frustrating disorders you can have as most people don’t believe how debilitating it can be. I was diagnosed when I was when I was in my 20’s and now I am in my late 60’s. The first battle is getting a doctor that believes you. I have been on so many treatments, medications and diets to no avail. I suffer in silence because I do not want to tell anyone what I have. So many people deem themselves an expert after googling Fibro just one time. The judgment that comes with Fibro is so mean and cruel so it’s better to not tell anyone. Plus everyone appears to be an expert on what we should be doing to get rid of the symptoms. Sorry keto people but the keto diet doesn’t cure everything. Neither does the zillion other diets out there. So I get up each morning and try to be the most productive person that I can be. But. If I am having a bad day, nobody needs to know about it. It’s my little secret.
@hardeepsingh-yb9kg
3 ай бұрын
Ok
@Kelly-wj7xd
Жыл бұрын
My doctor has still not said I have it, I had to wait for pain management at the hospital to finally say it after ten years. Just in the last 2weeks.
@sharmisthapancholi3109
Жыл бұрын
Very good explanation.as always .so helpful to me. Thanks 🙏🌹💕
@DrAndreaFurlan
Жыл бұрын
So nice of you
@davyg8864
Жыл бұрын
I am waiting to see a rhuematologist, 10 months now waiting. My lower legs are constantly in pain, heavy,aching, cramps, the bridge of my feet ache to the point where i cant walk. My lower back, hip and pelvis are constantly agony and stiff, crunching and popping sounds. My hands and fingers feel like i have had to walk home carrying my food shopping bags for miles, elbows have sharp stabbing pains and stiffness. I Have cervical spondylosis, shoulders pop and click, short term memory loss, itchy eyes every day. Waiting to gastroenterology about bowel and bladder incontinence.Then theres the medication that does nothing, i take amitriptyline, dihydrocodeine, meloxicam, vitamin d, cbd. Absolutely nothing works. Anxiety through the roof and depressed i had a good job that paid well and now i rely on state benefits. Where does it end, the outlook looks bleek😢
@barbc.3093
11 ай бұрын
I was diagnosed with Fibromyalgia in 2011, but I had symptoms that started in 2009. I get the usual nonbelievers of my diagnosis and don't believe I'm in so much pain or tired all the time etc. I have developed depression and anxiety years ago and fortunately I've gotten help for these issues. I'm just getting really frustrated with the constant pain and fatigue. I'm on Gabapentin but it really doesn't seem to help. If anyone has a medication that helps please let me know and I can ask my Dr about it. (I can't take Pregabalin/Lyrica, I can't tolerate it). Thanks for anyone who read this to the end. I don't wish this on anyone but it helps to know others at least understand what I'm going through.
@alathditcomedy491
3 ай бұрын
Ask your doctor about Cyambata
@notadumbblond3
Жыл бұрын
I have both fibromyalgia and arthritis of the spine, knee and a few other more mild areas. It took me a long time to figure out those were 2 separate things I was dealing with. And a flare up of the arthritis can trigger a flare up of fibromyalgia. I also have some nodules of tissue that for decades sat over my sciatic nerve, though I don't know if that's part of the FM. One is the size of a golf ball the other about half that size. They have been a source of pain for decades. I tried everything short of surgery to remove them or shrink them. Luckily I've learned over the decades how to minimize flare-ups though they still happen. And my pain scale has gone from a daily 6-9 to a daily 2-5. I thought initially I had actually reached a 0 or 1 a lot lately with what I had been doing, but I recently did Magnawave therapy for an injury and experienced a true 0 pain that I've not experienced in 27 years. It lasted for 2 blissful weeks. I went again and it lasted a month almost. It truly is amazing. I never realized how much energy the pain takes away. It's time for another session actually. The MW therapy also reduced the size of the nodules to about half, and one of them has broken up and part of it has moved. The bigger one actually moved further up my back for a little bit but has resettled over the sciatic nerve although still half the size. For me, I find diet helps a lot, no processed foods, no gluten, low carbs, and I try to do low sugar as much as possible. I gave up soda over time slowly drinking less and less. I take ginger, lots of ginger. I'm probably made of ginger at this point. I'd say about 2000-3000 mg a day. And 500 mg turmeric. Also omega 3s. At this time I take the capsules of ginger but fresh works best. You can find already minced ginger in the freezer section of the veggies in a perfect size portion. Or mince it up, about a tablespoon or 1 inch of root. Remove the skin first though, and swallow it with raw honey to cut the heat. Or juice it or make smoothie with it and some avocado. Personally I think the fiber of actual ginger is part of what helps with pain control. And it's good for you. When I get the capsules I try not to get the ones that are extract but actually root. I also gave up using Tylenol and Advil because they were killing my liver. I take white willow if needed for pain. I also had to learn to sleep on my back at a 45 degree angle to not wake up in pain after a few hours, though I think that's because of the arthritis in my spine. I've definitely learned that staying still for too long in any position laying down, standing up, or sitting is not good.
@toniajones6888
Жыл бұрын
Very helpful. Thank You
@DrAndreaFurlan
Жыл бұрын
Have you seen my most recent video? I interviewed Fiona, a woman who had fibromyalgia for 25 years, and she is now pain-free for the past 4 years. You may watch it here: kzitem.info/news/bejne/pZeCuYaXoGmmdno
@Wanna.Wander
Жыл бұрын
This video explains very nicely, thank you so much for helping me with my chronic pain and understanding it💜 I subscribed
@DrAndreaFurlan
Жыл бұрын
Glad it helped!
@jennifers6560
6 ай бұрын
I have fibromyalgia. It took 2 decades to get diagnosed. Anyway, I manage it with daily yoga, keto diet, intermittent fasting, weight training, calisthenics, and twice a week runs. Does it hurt? Yes. But I live a pretty normal life, and my pain has settled at about a 3. I also have an arsenal of massage stuff. I have/had severe childhood trauma from narcissistic abuse. Complex PTSD, generalized anxiety disorder, chronic depression, I had autoimmune thyroid disease but beat it after being told it was life long. I also have no social life and very accute social anxiety caused by all of this. It's absolutely worse during my menstrual cycle. I have to brace myself every month for the flare-up and psychological meltdown. It's enough to make you want to just give up. I cannot stop moving, ever, or the pain becomes unbearable. I am not on any prescription medication. It makes no difference. Exercise and diet are #1. I also wanted to add how hellish and horrible it is to try and work any full-time job with this problem. I had NEVER been fired in my life until I started having extream fatigue and extream psychological stress from working a crap job that doesn't pay enough while being in constant pain. I've since been fired from my last 2 jobs because I got fed up with the entire thing.
@Lola-AreaCode212
Жыл бұрын
Can fibromyalgia be misdiagnosed with long covid? Are they similar? Thank you
@DrAndreaFurlan
Жыл бұрын
Fibromyalgia is not the same thing as long covid.
@Lola-AreaCode212
Жыл бұрын
@@DrAndreaFurlan oh I know, but can they feel the same? It's about my 21 year old son. He had the Omicron variant last year (all vaxes) and since then has the symptoms of fibromyalgia. The doctors don't really know what to tell him at this point. He had incredible itchiness even long before the pains started, which I know is a symptom and he (like me) is autistic, which makes us a bit more prone to FM. It's frustrating, sad and scary. Thank you
@jstrum7784
Жыл бұрын
Great question; an answer would be helpful.
@moladhdodhia164
Жыл бұрын
Thank you,much appreciated, so helpful to me,do you have any videos on pancreatic Insufficiency ?
@DrAndreaFurlan
Жыл бұрын
Hi, thank you for this suggestion. This topic is outside of the scope of this channel. This channel is to discuss topics of chronic pain.
@moladhdodhia164
Жыл бұрын
@@DrAndreaFurlan Ok,thank you,my sister suffers with EPI,the pain is really bad on a daily basis,I never heard of it until she got it,it's horrific,to where she's suicidal from it.
@estelleadamski308
Жыл бұрын
A pain clinic gave me pain blockers and when they did not help, the doc got mad and claimed something was wrong w/me. Unbelievably, w/out my approval or knowledge he called a psychiatrist. Imagine my surprise when I answered the phone and it was this shrink. He called himself to make the appt, and already got approval from my insurance Co, all behind my back. I told him something was wrong, I was in pain and how dare he call me and my insurance Co. I hung up on him and never went back to the pain clinic.
@kathycuster1714
Жыл бұрын
I have fibro and I would not wish tt on anyone. My body feels like it's in fight or flight all the time. IBS was diagnosed first. Then it all hit like a truck! I am so stinking tired ALL the time. Don't sleep for.crap at night. Can't think during the day but as soon as I try to sleep it seems my brain kicks into over drive! I am tired of having everything covered by the fibro blanket. It's not always fibro. Had to have 2 hip replacements after Inasked for xrays and found out it was bad osteoarthritis. Life just gets more interesting the older I get!
@azharhussain8127
Жыл бұрын
Excellent presentation 🎉
@DrAndreaFurlan
Жыл бұрын
Thanks a lot
@suzannehofer2541
5 ай бұрын
I have fibromyalgia I also have Degenerative disc disorder with seven of my disk compromised . Three in my low back & 4 in my neck, my whole existence every single day is trying to find ways out of pain. I’ve given up on the medical community because they have completely failed to help me in anyway Significant way for the last 20 years. NowI search for natural remedies to help me with this very real condition. Three different doctors have diagnosed me with this problem, but none of them had a solution.
@angelamonroe7737
Жыл бұрын
2 years ago I got electrocuted in my basement when my basement flooded with water. In a panic I tried to save my Kirby vacuum not realizing it was still plugged in the wall. As soon as I grabbed it, immediately I felt the electricity flowing through my body. The doctor said I fried the outer layer of my nerves. It's now given me horrible neuropathy. The pain is unbearable. Everyday I feel pain throughout my body. My feet and hands and legs are the worst, always numb, tingly, burning, stabbing feeling. it makes it difficult to walk at times I feel like you are describing me in this video with the pain the depression the doctors, the fibromyalgia. Im so depressed I don't know what to do, because the doctors can't seem to help me with the medication they prescribe. The pain is so bad at night, keeping me up. So Im always tired and grouchy, depressed. I feel like all my life's been drained out of my body. I need help and don't know where to turn to.. do you have any suggestions?
@wendyfranco9614
Жыл бұрын
Several women in my mom side of the family have fibromyalgia.
@DrAndreaFurlan
Жыл бұрын
Have you seen my most recent video? I interviewed Fiona, a woman who had fibromyalgia for 25 years, and she is now pain-free for the past 4 years. You may watch it here: kzitem.info/news/bejne/pZeCuYaXoGmmdno
@chatrashreta8440
Ай бұрын
I have beening suffering for 4 years . My doctor advised my to use sigba and sigba medicine. But recently sigba is stopped. Thank you giving about .I hope you you will give diagnosis
@DrAndreaFurlan
Ай бұрын
Thank you for taking the time to write this comment. I don't have the ability to give medical advice here because I am not able to get all the details that I need and most importantly, to examine you. I don't give individual medical advice via social media or by email. This channel is for educational purposes only. Please talk to your doctor. Have you seen my website yet? Check it out www.doctorandreafurlan.com
@melvinpeacock4709
Жыл бұрын
I've had it for a few years everybody treats me like it's all in my head
@unicorn_tears
Жыл бұрын
Thank you Dr. Furlan. This journey has been so hard.. .
@eviemn1
Жыл бұрын
Everything you have said is so true. Thanks for spreading awareness.
@Jade-bf5we
Жыл бұрын
People can recover from fibromyalgia the same as chronic fatigue. You need to turn on the parasympathetic nervous system.
@mommabear943
Жыл бұрын
The problem with this disease is that people can fake it to get out of work. Just read up on it and pretend. Worked with a woman in a factory years ago. She never looked in pain and talked about how she sued people. We all had to work harder because of her.
@pattiprosperoella3244
Жыл бұрын
Did I miss the answer to the question,.. Is there a blood test to diagnose?? All VERY ACCURATE INFORMATION!
@conniehavlovick5263
8 ай бұрын
This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. It helped my sister in law too. Pain levels went from an 8 out of 10 to a level 2 out of 10.
@ronnebulis1922
Жыл бұрын
It's the worst thing to ever happened to me!! It caused a cascade effect of tragedy in my life. It's been so bad I didn't want to live anymore.
@tanyaknowles6335
11 ай бұрын
I have fibromyalga , complex reginal pain syndrome, chronic back pain, chronic headache and looking into Auto immune disease, so I am in constant horrendous pain 24/7 and this was through a assault at work...Before that happened 17 years ago I was 40years and enjoying life, now I can't get out of bed 😮
@bridgetteague5874
11 ай бұрын
Sounds like you could have Bechets disease 🙏
@dianaperez8230
Жыл бұрын
I have Fibromyalgia and lupus with the Immune system I’m on pain management
@JayRazah
6 ай бұрын
My doctor think I have fibromyalgia n she described me Lyrica , am I gonna be taking this for the rest of my life .
@DrAndreaFurlan
5 ай бұрын
I have a new video to answer this question. Watch here: kzitem.info/news/bejne/2Jdsq3yLg6GVgn4
@lemuelwilliams1205
Жыл бұрын
For me the brain fogg is the worst .... its like the pain is there.... but i rather have it with out the brain fog which affect your eyes ears and alertness all together.... its like u cant behold the beauty of life anymore with a wet blanket over your brain
@joeycollantes8307
Жыл бұрын
Thanks dr furlan for the informative video❤
@DrAndreaFurlan
Жыл бұрын
Glad you liked it Joey. Have you seen my website? I have lots of resources there for people with fibromyalgia and/or chronic pain. www.doctorandreafurlan.com
@cin337
Жыл бұрын
Will you do a video about sjögrens? Recently have primary with peripheral nuerothropy also epecleritis of right eye. Mild binary carpal
@christinanihart7598
11 ай бұрын
Thank you so much. I was first told I had fibromyalgia symptoms when I was 35 but no one explained it and nothing was done at the time. Now 20 yrs later I feel I'm being heard and I have figured out what my triggers are for flare ups. I'm still in pain a lot but I'm learning how to do things with less effort.
@robyn874
Жыл бұрын
Very interesting & informative Thankyou
@Mirovanje12
11 ай бұрын
I loved that Dr. Furlan reminds people, at the outset of her video, that fibromyalgia is real. She is absolutely right that patients have often been made to feel like they are hypochondriacs or that they're making things up. Fortunately, with the proliferation of cases, doctors are taking it more seriously these days, but it is still a challenge to explain the condition to friends/family/co-workers and have them believe you. One thing that surprised me was that Dr. Furlan didn't mention the 18 tender points (9 pairs) that are associated with fibromyalgia and aid in making the diagnosis. Even when my fibromyalgia symptoms are so mild as to be almost non-existent, those tender points always elicit considerable pain when they are pressed. Fibro is no fun!
@DrAndreaFurlan
11 ай бұрын
Hi there, thank you for your kind words. Regarding the 18 tender points, we don't use them anymore for diagnostic purposes. We are now using the revised 2016 criteria which eliminated the need to count tender points.
@Mirovanje12
11 ай бұрын
@@DrAndreaFurlan I didn't realize that. Thanks for taking the time to let me know the update. I was diagnosed in 1999!
@debbiewareing1178
Жыл бұрын
I have shared this with my sister who has been diagnosed with Fibromyalgia, unfortunately, she gets told nothing and just has to endure tremendous pain. It is so real and my heart bleeds for her. I’m hoping this will help her make sense of what she is going through. Thank you very much.
@christinadodd5780
Жыл бұрын
😪 doctors piss me off! I always feel like the doctor thinks I'm an addict when I ask for opioids.
@moxanation73
11 ай бұрын
Fibromyalgia is a fraud. It’s used by doctors to stop looking what you really suffer from.
@debbiebradney131
Жыл бұрын
Just sent this to my niece and I've just subscribed, Thankyou.
@chewy5952
11 ай бұрын
Thank you for a great video. I have been struggling with fybro for about 15 years now at least it is how long since I have been diagnosed. Could you please help me what is the best kind of Dr to see concerning it. I now live in constant pain and the fatigue and depression is above the charts. Has been this way since about a year and a half ago when I had knee surgery and well in the last year I have had 7 surgeries causing the fybro to stay off the charts. I cannot take any of the meds that are typically used as they cause me to become very ugly and suicidal. I was thinking maybe there is something new that might help me but not sure. Thank you again for your video
@manojs2382
9 ай бұрын
വിവരം ഇല്ലാത്ത രാഹുലിനെ അല്ല ശങ്കു ടി ദാസ് നെ പോലെ അറിവ് ഉള്ളവരെ വേണം യുക്തിവാദികൾ വിളിക്കാൻ.
@nishadevarakonda3791
Жыл бұрын
Good evening mam I am a medical student from India and my project is on fibromyalgia could please send some of the case, so that I can present it in my college
@DrAndreaFurlan
Жыл бұрын
Have you seen my most recent video? I interviewed Fiona, a woman who had fibromyalgia for 25 years, and she is now pain-free for the past 4 years. You may watch it here: kzitem.info/news/bejne/pZeCuYaXoGmmdno
@nishadevarakonda3791
Жыл бұрын
@@DrAndreaFurlan thank u mam
@haninshuaib7289
Жыл бұрын
I hope someone read my comments and help me out !! I was diagnosed with fm 3 months ago. I DONT have pain I’m stiff the stiffness start in my neck than it’s spread to my whole body after many tests the DR couldn’t find out what’s wrong then I was told it’s fm. I don’t believe them
@moxanation73
11 ай бұрын
Fibromyalgia is the package of debilitating symptoms of autoimmune diseases doctors have always ignored because we are women and hysterical
@alfred576
9 ай бұрын
Hi Dr Furlan, how are you? Thank you for another excellent video. I already purchased your book and am still reading it. My onset of pain came from car accidents in the last 10 years while riding a push bike. There was a lot of bad whiplash, bone fractures, hematomas etc. I recovered each time, got back on the bike but in August 2022 the neck started to hurt badly. I connected with neurosurgeons in Nov 2022 and ended in June 2023 because I was not happy with my progress. The MRI reports showed bulging discs pressing on left C6/C7 nerves, degenerated, dessicated discs, some deteriorated cervical facet joints due to the trauma. The neurosurgeons tried medication, cortisone injections, EMG, nerve blocks but they couldn't find the source of the pain. The medication not only did not achieve much pain relief but caused a series of side effects such as constant drowsiness, impacted memory, concentration and digestive issues. I cut down a lot due to these adverse side effects. The medication was making me feel like a vegetable. I don't have neurological deficits. I can still move my arms, hands, fingers, move my legs etc. In Aug 2023 I went to Florida to have a C5-C6, C6-C7 disc repair to remove the pressure off the nerves. The neurosurgeon also ablated the nerves of the facet joints at C5-C6, C6-C7, C7-T1 on both sides. The ablations were based on the MRI imaging rather than nerve blocks. Since I have come back to Australia my neck has been hurting a lot more, but I also get bad pain on and off all over my body. Not only pain, but tightness of neck, traps, shoulder muscles, pins and needles, numbness spreading into arms, hands, fingers, legs and feet. I regreted havig done this surgery. These symptoms are also set off by the position of my body IE standing (least painfull), sitting (more painful), lying down (the worst pain). I have learned from your book about nociceptive, neuropathic and nociplastic pain. I am starting to think that my pain may also have a nociplastic component in it. The pain has been going for the last 14 months non stop. I am disappointed with my GP and specialists here in Melbourne AUS because when I asked them to check for other pathologies such as fibromalgia, rheumatoid arthritis etc, as explained in your book , to get closer to the real problem, they replied to me that I did not need to have those tests. Unfortunately most health professionals aren't very well trained for nociplastic pain. I don't know if I am also suffering from fibromalgia because I am not getting much help by the doctors here. How do I real know that I have fibomalgia and central sensitization?
@craigk2644
7 ай бұрын
Hi dude :) Read your post. Yeah I am in Au and you are correct in what you typed regarding the brick wall you encountered with the medical profession. I do feel for you. We share similar pain. I hope you get better. I just want to ask you, what medications are u taking and are u doing some type of rehab ? pool or walking. Everyday is an improvement. U might not think so. What you do now in terms of exercise, u will benefit in six months. A pain specialist told me that.
@lumberlikwidator8863
2 ай бұрын
I just came across your channel, Dr. Furlan, and I have subscribed. I’ve had Ankylosing Spondylitis for about 35 years. Ten years ago I was seeing a rheumatologist four times a year, and I told him that I had pain so bad that I couldn’t lie under a blanket anymore, I was going back and forth between being hot and cold, and the pain was moving around in an unpredictable way. He just said my blood work looked okay, and that was all he had to say about it. When I told my podiatrist about it, he got a metal tuning fork, tapped it on his desk, and held it against my instep. He told me to tell him when I couldn’t feel the vibrations anymore. He did this at various points on my ankles, feet, arms and hands. He was looking at his watch and shaking his head. When he was done he said I probably had fibromyalgia too. Next time I saw the rheumatologist I told him what the podiatrist had done and he pooh-poohed the whole thing. He said that everyone with an autoimmune disorder automatically thinks they have fibromyalgia too. I stopped seeing him and found another rheumatologist who has me on two medications that give me some relief. And oh, by the way, I still have the same podiatrist!
@DrAndreaFurlan
2 ай бұрын
Thank you for taking the time to write this comment. I don't have the ability to give medical advice here because I am not able to get all the details that I need and most importantly, to examine you. I don't give individual medical advice via social media or by email. This channel is for educational purposes only. Please talk to your doctor. Have you seen my website yet? Check it out www.doctorandreafurlan.com
@biancaernst5862
10 ай бұрын
I have severe fibromayalgia...and back and neck injuries..it's horrible most days 😢
@DrAndreaFurlan
10 ай бұрын
I hope you can find some strategy that works for you.
@Awakened_warrior59
10 ай бұрын
I have had fibromyalgia for over thirty five years. It feels like being in HELL. I take pain medication. I use sleep pills just to fall asleep. I wake up then I can’t fall asleep again. Thank you for spreading the word.
@DrAndreaFurlan
10 ай бұрын
Sorry to hear that. I'm trying hard to teach my colleagues.
@Alexmarshall15
14 күн бұрын
Ma'am i was diagnosed with fibromyalgia and chronic myofascial pain syndrome after many years of medical gaslighting. And please do let me know why i have a sensation of sone of ny body parts set on fire after physical activity. I had to stop doing exercises because the localized fire like sensation becomes wildfire like. Is this normal?? Kindly let me know please cause doctors here laugh at me as if i am lying cause i am not lying on the floor and crying while saying that to the doctors.
@charliehomer66
Ай бұрын
mine started 9 years ago it started with tachycardia. I've been brushed of for years from my gp but finally 8 years later said its this! 8 years???!! but I've been called crazy and its all my head. I've had depression pills chucked at me like sweets and god know what else. I'm really angry with ym doctors for not listening and for leaving me to rot not being able to seek the helpline needed I'm still fighting them for referrals now as they obviously don't know what they are talking about so i want to go to someone who does
@deboraboylen7132
11 ай бұрын
All depends on the kick backs from Pharmaceutical companies and how much money they earn from filling you full of drugs. I was diagnosed with this 12 years ago. When it started costing my doctor money suddenly i didnt need the drugs anymore.
@NaymitMayne
Ай бұрын
It would be nice if all these scientists had fibromyalgia so they can actually take finding a cure seriously. I’m ready to die multiple times a day and I don’t even think that way until this happened. I also love how doctors laugh in their videos thank you for not laughing it helps. The Mayo Clinic radio was laughing half the time
@manaa119
8 ай бұрын
My doctor told me he saw the pain point in MRI scan There is active in brain pain center in MRI scan for fibromyalgia patient brain 🧠 😢they don’t use MRI to diagnose fibromyalgia
@wandaburnsworth1588
11 ай бұрын
I kept on having tennis elbow and my doc said have you heard of Fibromyalgia? I said please don't say that. That was 5 years ago and I have fibromyalgia. I have lots of symptoms and I do research. He was right
@cathydanies5072
24 күн бұрын
My grandson was using weights and his arms got so much pain he couldn't left his arms . His urine looked like coffee. Taking him to hospital they said he had torn some muscle in his arms and his body was putting out to much protein to heal his muscles which his kidneys was in overload. He had fibromyalgia in the hospital a week pushing lots of fluids though him.if we had taken him home that night he would have died . Its very serious so watch your urine most of all and severe pain
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