Today we've just started 10th at row
3mo. cycle of the #Novartis clinical trial on safety and efficacy of #Branaplam drug 👊🏻
Oskar is participating in the study since June 11, 2015 when he received his first dose of #LMI070
Who would have thought, that it's already more than two years and three months since we regularly visit #Rigshospitalet in #Copenhagen where Oskar gets his experimental medicine.
We've counted more than 116 times when our little warrior has taken his life-saving drug and this drug has never shown any side effects ❤️
We keep our fingers crossed for further study 👊🏻
#Oskar #TheBoyWithDragonHeart #DragonBoy #LoveHasNoDisabilities #NeverGiveUp #SMA #SpinalMuscularAtrophy - pod wrażeniem z użytkownikiem Ela Minkowska w: Sail4SMA - Spinal Muscular Atrophy - Sail for SMA.
Негізгі бет 2017.08.27 Oskar SMA Warrior 1st. sitting & reading attempts
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