Today would have been my son's 34th birthday - he died in 1992 of MLD. To see that Hunter's Hope is available now, brings tears to my eyes! I'm so very happy that there is hope & help for leukodystrophy families now. ❤
@HuntersHope
3 жыл бұрын
Thank you so much for your kind words, Jill. We are thinking of you and your precious son on his birthday -- your family is in our prayers.
@angrajsingh9590
6 ай бұрын
Waheguru
@kellyleblanc183
2 жыл бұрын
Is there actually a Lorenzo's oil?
@rupashree-bm8ho
Жыл бұрын
My daughter is 12 years old she is suffering for leukodytrohy I'm Indian please help me out or give any solution
@HuntersHope
Жыл бұрын
Hi Rupa! When you have a moment, please register with us here: www.huntershope.org/home/hope-for-families/get-support/affected-family-registration/ This helps us to learn more about you and your daughter and how we can best help you. Once we receive your registration, we'll be in touch!
@ramyasree3210
Жыл бұрын
I'm also from India my baby is 9 months old he also has hypomyelinating leukodystrophy 2 how is ur baby now
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