Thank you Dr Mathur for translating these technical developmets between the researcher and the community!
@norahrbaxter580
Жыл бұрын
😊😊😊😊
@gottesmanpc3472
Жыл бұрын
It is exciting how much more optimistic this conversation is c/t 3 years ago.
@TheOnBoardLife
Жыл бұрын
Useful information. Okun is an able communicator.
@sharonmaplethorpe9168
Жыл бұрын
Great webinar as always- useful information 👍
@kendrapatterson4629
Жыл бұрын
I love these updates
@angelakindon9839
Жыл бұрын
Thank you!
@lmcleme
Жыл бұрын
Great video. Too bad other people don't have the same Outlook as he does. Very honest. Larry Clemens
@TheLittleEconomist
Жыл бұрын
Thanks. Wondered when the stem cell trial by Roger Barker in Cambridge wasn’t mentioned. I’m big into exercise and know different exercise has different results for me. HIT and boxing increase energy, alertness and reduce tremor. Dancing and Tai Chi have the biggest impact on brain plasticity. Running, walking and cycling just make me feel relaxed and often after all tension is gone and dystonia gone. Also I know that major research programmes are not including many people like me (a fit menopausal woman), so many therapies that could work do me may have already been dismissed.
@angelakindon9839
Жыл бұрын
Me too!
@hwy6163
10 ай бұрын
My wife has vicious Parkinson’s break downs. It’s getting unbearable. I wish there was a Parkinson’s emergency line I could contact and get some help when she goes nuts. I’m deaf and my speech is destroyed from medical errors. So I’m really screwed when she flips out. Usually at least once a week. A Parkinson’s 911 - I would pay for this service. I live in San Diego
@davisphinneyfdn
9 ай бұрын
We're sorry to hear you and your wife are facing this challenge. Your idea is a good one: on call support would be extraordinarily useful. Do you participate in our care partner meetup? You might find value in doing so. There are live captions available. davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/ Also, consider reaching out to us at blog@dpf.org if you have any questions we might help with.
@cuppatea6635
9 ай бұрын
Call the Parkinson’s Association of San Diego to inquire if they have any resources to help you and your wife.
@wamexart
11 ай бұрын
What about HIFU, I am currently Spain for an evaluation of my condition for HIFU. It seems that it is formidable nonenvasive procedure.
@davisphinneyfdn
11 ай бұрын
Focused Ultrasound is an exciting treatment possibility for some people. While it is non-invasive, it is also not reversible, which is a factor to consider. Here is a blog post we produced about focused ultrasound in 2022: davisphinneyfoundation.org/focused-ultrasound-therapy/
@cherylginsburg-smith3375
Жыл бұрын
Dr Mathur Idk how you do it I’ve only had PD since 2012… I’m not coping well, esp with my husband now being my care giver. Can you recommend anything ? A PD couples / chronic illness therapist? Thnk u in advance
@deborahd.7281
10 ай бұрын
Did you include Red Light Therapy or Photobiomodulation for the treatment of Parkinson's?
@davisphinneyfdn
10 ай бұрын
We look forward to seeing results from larger clinical trials researching photobiomodulation in the future. At present, efficacy data is not conclusive.
@johnp.2614
Жыл бұрын
Disappointing that after 50 years, along with billions of dollars, and C/L is still the “Gold Standard.” 90% of the “Parkinson’s Pipeline” is a sham with the only intent is to obtain paychecks by way of grants and donations. If one examines the reporting of some campaniles, financials are clearly of more importance than candidate product performance.
@chinko1953
Жыл бұрын
Agree
@robshore2114
Жыл бұрын
Agree
@TheLittleEconomist
Жыл бұрын
Totally agree. I think researcher are looking in the wrong places and playing it too safe so they can get funding.
@princeorakzai2784
10 ай бұрын
Please help me im 31 years old parkinson's disease
@davisphinneyfdn
10 ай бұрын
Please send us an email at blog@dpf.org if we can help with any particular questions you have.
@splashesin8
Жыл бұрын
:)
@gottesmanpc3472
Жыл бұрын
Great conversation. Can we say that not all "PD" is "progressive". It sounds like ALOT of what we know from old studies needs to be reexamined.
@davisphinneyfdn
Жыл бұрын
Our collective knowledge about Parkinson's changes almost daily, and there are many exciting developments, it's true! At present, though, there remains no proven way to alter the progression of the degenerative process of Parkinson's. That said, Everyone's path is different, and people living with Parkinson's, their families, and their care teams continually find new ways to adapt to the changes they face because of Parkinson's.
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