This vlog was so much fun to enjoy + make! Come and spend 24 hours on a weekend with us. No big plans + tried to focus on the little moments + memories with my babes.
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
♡ Please SUBSCRIBE to our channel.
♡ IN THIS VIDEO:
- LARGE BEANBAG CHAIR:
www.amazon.com/dp/B07QPBMKC4/...
- PROFESSIONAL HOMEBODY CREWNECK:
www.shelbyreslerphotography.c...
- SLEEP SACK:
www.amazon.com/dp/B09YKX25ZK?...
- BABY LOVEY BLANKETS:
www.milkbarnkids.com
- (A FAVORITE) 'WE'RE NUTS' BEDTIME BOOK:
www.amazon.com/Nuts-Bedtime-N...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Owen’s Story on Facebook: / owensmpsstory
Негізгі бет 24 Hours With Childhood Alzheimer's, Baby + Toddler
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