It really is beginning to be like a 24 hour job without pay. So hard to do when you have your own family to provide for and your the only one taking care of your Mom.
@jelizabethpetrie6656
9 ай бұрын
Exactly…Now I’m going to bed at 8-9 at night. To check on her camera to see is she is still cleaning her kitchen again at 2:30 0r 3:30 am, since she insists on living alone (5 min’s away) as she was a very detailed oriented librarian (94yo). It’s only come on in the last year, more neurotic tendencies.
@gayledaniel5901
9 ай бұрын
Yes. Absolutely overwhelming.
@DeannaWiley-x8o
7 ай бұрын
It is hard but worth it...consider it a privilege instead of a burden...she took care of you now return the favor. I did it...
@DeannaWiley-x8o
7 ай бұрын
I learned nothing from thus
@karenmcgarry7798
7 ай бұрын
thanks for putting it simply! am resonating.💐
@rondaleistiko1227
2 жыл бұрын
Mom had 8 cups full of pens/ pencil none of them worked and needed. Sharpening when I asked her to sit down and scribble on the paper to see if they worked or not and throw the ones that didn't work away, She got all peed off at me and told me she wasn't a kindergartner. But she watched me as I sorted through them and sharpened the pencils herself. I dumped all her earrings that was mixed up in a box on the table with a new earring holder and she actually sat there over a few days and matched every single earring set up.
@honeybnoir824
Жыл бұрын
What if they never had any hobbies or were always homedbodies that didn't like to go out much? That's the kind of person my grandma is. She didn't have a very active life. She could socialize with others fine, but she mainly went out when she needed to do errands. Of corse, she doesn't anymore because she can't. In any case, your explanation on sunsetting helped me understand why she acts like this. Thanks for that. I just hope the first suggestion will at least work.
@nathalie4154
8 ай бұрын
Excellent advice thank you! I would also like to add that having your loved one take a nap, early afternoon and making sure they have snacks throughout the day also helps. Ever since we put my mom on a strict nap schedule (right after lunch, for one hour) the sundowning has disappeared. She hasn't had an episode in several months. We also take her out for a walk before lunch to get her outside.
@douglasradcliffe981
2 жыл бұрын
Your strategies are extremely effective. Please consider Virtual Reality in order to address all 3 solutions you have offered. You are doing what all people have been put on this earth to do (some aren't aware) and that is helping your fellow man. You are a credit to the aged care industry. thank you.
@dochubbell
10 ай бұрын
I am caregiver to a lady with early stages of Alzheimer's. She sometimes sees things when it gets dark outside. Examples: an open door when it's closed. A person outside the window or sliding glass door looking in. Seeing animals that are not there, (like two baby bears playing in the yard). I try to keep them busy with simple games she likes to play or adult coloring books with colored pencils. I also turn on room lights to make the house brighter. I tell her her mind doesn't know exactly what it is seeing, so it gives her an answer even though it may be wrong. I try reassuring her and show her nothing is there. Sometimes it works, and sometimes it doesn't. Any suggestions for addressing things that are not there?
@fiddler32
3 ай бұрын
I’m been researching this because of my grandpa’s recent problems… as the sun sets, turn on lots of lights. Also, try to arrange furniture so it’s not casting weird shadows. Seems to reduce the number of weird hallucinatory visions he sees… Also if your person wears glasses, having them on helps reduce visual clutter.
@dochubbell
3 ай бұрын
@@fiddler32 Thanks for the feedback. One thing I never do is try to argue them out of seeing what they are seeing. I simply say, "I'm sorry, but I do not see what you are seeing". Sometimes I do not respond to their pointing out something that is not there unless they won't let the subject drop. Then I simply say, "Lets go take a closer look". Once they see what they were seeing is now gone she usually is satisfied and we go on to other things. I have a greater appreciation for those going through the sundowning events. It is a 24/7 hour job for sure, and it helps if you like the person you are caring for and they like you.
@AldoSchmedack
2 жыл бұрын
My mom is starting the sun downing phase. I fear for her safety. She has ventured outside at night in the Winter's cold. She wanted to take a cup and "pick up leaves" on "the farm". My family refuses to help take care of her. I am disabled and can't do it all as she is getting much worse quite quickly. I can't take care of myself, let alone her. My dad drinks and he too is getting dimentia. But they have time for their woodworking, sewing and train layouts covering the whole of their huge basements. But they dump all the work on someone who has been disabled since 10yo. I'm almost 40 now and have trouble just going up the stairs. Let alone take care of her. I don't know what to do about it either.
@josmelser9869
10 ай бұрын
I heard about dementia daycare. There is none in my area, but what helps me is 1st talking to my doctor about my situation & is there anything he can do to help me? I am 75 and have disabilities and my husband is 85 with dementia. My doctor got hold of my husband’s doctor and pre visits were instantly made as his doctor was in same building. Or call her doctor. My doctor has social service person call me & tell me what I could do. I pay a trusted friend 3 x a week to give him showers. Also there are healthcare workers who will take out out of pocket a fee for the same. It is $25 a visit but they shower & do all personal care which helps a lot. Keep a record of expenses. Is she on Medicaid? They have so much to offer. My husband is unfortunately on Medicare which has limited help. Any friends to take her for a walk or spend an hour while you go shopping,etc. I offer $10 an hour for a 2 hour reprieve. It is worth it! Keep good record of all cost. There is a program called Respite through healthcare program allowing you to get away for awhile. I feel for you. I had to suggest to my stepson about Thanksgiving and he pick up his dad for a few days as his dad has a short span left and he should be helping. As hard as it is…you must have a serious talk to your family. Not being resentful but making them understand that this is their mother too, and asking what can each one do to help me? Get a commitment from each one. God bless you, which He will, that you love your mother and are making such sacrifices because of that love.
@sherylmouton446
3 жыл бұрын
Very difficult to help my husband keep busy. Everything he loved was outside. Hunting, Tree cutting. Skiing, Swimming. I'm hoping for some suggestions. I take him outside, walking and rides, which he enjoys but I can't do that all day..
@kristinamullen4066
3 жыл бұрын
Thank you for your tips.I work with memory care patients, doing activities.I. have noticed that they become calmer while doing art and craft projects.But many of them refuse to do anything or are unable physically to use their hands.So sometimes we are at our wits end trying to find an activity that works.
@brian-qo8dn
2 жыл бұрын
VR has hand contollers that jsut require you to move your arms. Maybe that will give them a user interface they can deal with.
@mzfestus
2 жыл бұрын
Have worked with dentia clients for over 20yrs. I always ask family of pre dimentia behavior. Personality, career or hobby are my top 3 questions in determining appropriate activity to help calm, entertain or redirect.
@jhutch1681
10 ай бұрын
My mom was an artist. When she could no longer do her art, she would watch me doing art instead. Sometimes she was quite captivated, sometimes critical, and sometimes disinterested, but usually it was helpful, and we could chat while she was focused.
@lyndseyanne4022
9 ай бұрын
Ive been thinking of cutting out some collage papers for my mum to see if we could do some art together. I looks like it would be simple but the glue bit might get tricky.
@carolcollins
Жыл бұрын
My husband suffers from Sundown Syndrome every day, and while your tips are very useful for those who are relatively mobile, there is little to help people who are bedbound and need help with feeding, etc. He says he feels trapped. He sometimes feels claustrophobic and becomes even more agitated and frustrated. Sundowning can sometimes last from about 3.00 pm until well into the evening. I bought an activity mat with play hammers, chisels, etc. (he used to be a carpenter), but unfortunately, he is unable to use his hands to grasp anything.
@theaweavers8576
3 жыл бұрын
I take my loved one for a walk outside in the afternoon which helps both of us as we enjoy a change and fresh air xxx
@dementiasuccesspath2239
3 жыл бұрын
That’s great!
@hellenpeterson8004
3 жыл бұрын
This works sometimes but my husband is blind as well!! Its very hard because he doesn’t see
@kathyfann
2 жыл бұрын
1. He looks for his dead relatives. He looks for His home he owned 40 years ago. He wants to go outside and walk around in 32 degrees at 12:00 2:00 and he can walk great so he is mobile. This is hard
@dementiasuccesspath2239
2 жыл бұрын
100% it is so hard.
@kathyfann
2 жыл бұрын
I did find an answer for A few days a week. 2 Valerian about 9:30 PM the twice I have tried it with an evening Sleepy Time tea we had good sleep I may just Keep it up.
@dementiasuccesspath2239
2 жыл бұрын
@@kathyfann yay! That is amazing!
@AldoSchmedack
2 жыл бұрын
Same thing here! It is so hard. I try to take care of my mom. I have been disabled since I was ten, yet the load to take care of someone with PD is dumped on me. I'm not able. Meanwhile they have time for their woodworking, sewing, computer games and train layouts spanning the whole basement, but never to help my Mom. Now she is going outside to "pick up leaves" in a cup in the middle of Winter at night. I know not what to do!
@AldoSchmedack
2 жыл бұрын
I feel for you Kathy!
@shaunasteele2704
2 жыл бұрын
Going to use some of your videos for training for my staff, for a memory care facility
@marcysikes
3 жыл бұрын
Thank you for this information! My sister-in-law is in early stages of dementia. She is seeing a neurologist. We have noticed increased confusion late in the afternoon. Some of your suggestions may help!.
@nancywhiteman8484
3 жыл бұрын
Been here with my mother, now with my brother. Appreciate the tips and reminders of helping his family travel through this journey.
@jhutch1681
10 ай бұрын
God bless you. I just went through it with my mom, and now my husband...
@homecheftee3601
3 жыл бұрын
Thank You so very much Kristina. I’ve subscribed as this was my first time viewing your channel and enjoyed it . I have a few new ideas as our loved one previously was a great cook. She grated the cheese for me and I could tell that she felt very helpful and there was a familiarity to this activity. Can’t wait to get her some crotchet needles and yarn too- she was an awesome Afghan/blanket creator 😊👏🏾☀️ Thanks again for sharing your recommendations and experiences.
@dementiasuccesspath2239
3 жыл бұрын
I’m so glad that helped!
@gloriasitterle6116
2 жыл бұрын
These are some excellent suggestions!! I wish I had known some of this a few years ago!!
@rosasalvereodique4121
2 жыл бұрын
Very clear explanation and very informative..
@dementiasuccesspath2239
2 жыл бұрын
I’m so glad!
@bernadetteschroder5947
3 жыл бұрын
great video.....concise and to the point
@dementiasuccesspath2239
3 жыл бұрын
Thank you!
@joshuawolterding6344
10 ай бұрын
Thank you Natalie Portman, most youtube channels are so useless but this is so helpful and informative and kindly. You are an inspiration. (Hope you don't mind the natalie portman joke, you just really look like her in this video)
@julias.4980
8 ай бұрын
Ha, ha! You said what I had been trying to figure out - that "she looks so familiar" but I just couldn't "place the face". Puzzle solved!
@JennyjuiceReal
2 жыл бұрын
Thanks for sharing my mom also has dementia
@songbirdmedows
3 жыл бұрын
My client was a lab technician I’ve never dealt with sundowners before. I am hopeful to learn more. I’ve hit the subscribe and notifications bell thanks
@dementiasuccesspath2239
3 жыл бұрын
Hey there, that’s awesome, I have a new video coming out next week and weekly videos from now on
@jackson1arm
2 жыл бұрын
WOW ! You hit the nail on the head with this one-thanks so very much, my wife will surely benefit from your video.
@dementiasuccesspath2239
2 жыл бұрын
My pleasure, thank you for watching
@Smedley-gr3gm
29 күн бұрын
do you understand that patients are violent and cruel to caregivers? how long am I supposed to live this way?
@maryellenmccarthy577
3 жыл бұрын
Great video Very helpful.
@M1kemac1
2 жыл бұрын
Thank you so much. This was an excellent video very concise and informative!
@izdor71
3 ай бұрын
Thank u so much... all the infos are very helpful❤
@Lezahardy
2 жыл бұрын
Thank you for sharing this video.
@kathleencockburn8118
21 күн бұрын
What do u do with d love one who can nearly walk
@leighmccormickstudent6190
2 жыл бұрын
These are great tools .. thank you
@JulianaAndersson
2 ай бұрын
What is “sundowning”?
@mayrarivera336
Жыл бұрын
Good advice
@roseswearingen7119
3 жыл бұрын
thank you very helpful
@dementiasuccesspath2239
3 жыл бұрын
Rose Swearingen my pleasure!
@googull4778
10 ай бұрын
Would doing a mini-book club be beneficial? My mom is possibly showing signs. She was an English teacher. Now she and my dad are retired in the woods with not many social interactions. Her mobility has worsened after a couple joint replacements. It would get me reading more too I suppose. Anyone out there, think twice before surgeries. I urged her to talk to a professional about stem cells. If that did t work then irreversible surgery can be done.
@haystephanie8279
2 жыл бұрын
Thank you
@dementiasuccesspath2239
2 жыл бұрын
My pleasure thanks for watching
@ednatropicales9334
3 ай бұрын
Thank you so much for these tips. Please keep them coming.
@chanweiming5501
3 ай бұрын
Drink 🥃? 😅
@lorettaveney8678
3 жыл бұрын
Great video Krista!!
@dementiasuccesspath2239
3 жыл бұрын
Glad you liked it!! While things like "taking them outside" and "keep them busy" are things you hear a lot, it took a while to dig into the why and specifics.
@carlapreyer1174
3 жыл бұрын
@@dementiasuccesspath2239, My husband, is not going through sundowning now, but he does randomly get agitated during the day. We usually exercise early in the morning. I'm going to try to see how it will work in the afternoon
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