Introducing our new campaign, #DayInTheLife, following the lives of those affected by rare diseases or conditions.
In this instalment, we meet Lea Jabre, who lives with #StiffPersonSyndrome (SPS). Lea is a fierce advocate for her community-raising awareness even when going through severe pain and stiffness. Here, she takes us through the highs and lows of her treatment day and how she often feels let down by healthcare professionals.
You can also read Lea's SPS story on our website here: bit.ly/lea-jabre-sps.
Thank you to Lea for sharing her day with us. You can follow Lea's SPS journey on Instagram: @broken_not_bent_autoimmune.
If you would like to submit your day with our audience, email rpender@rarerevolutionmagazine.com for more information.
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Негізгі бет A Day in the Life with Stiff Person Syndrome (SPS) Advocate, Lea Jabre
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