An interview with parent ‘Teresa’ on her journey with having premature twins @32weeks and then being informed of her son’s diagnosis of a rare syndrome called ‘Kabuki syndrome.’
Such an inspirational interview that shows courage, strength and determination of one parent.
Teresa’s Socials:
KZitem - “Family Twin & Kabuki Vibes”
/ @familytwinandkabukivi...
Instagram- instagram.com/laviniereinteri...
#kabuki #kabukisyndrome #raresyndrome #disability #parents #deaf #deafcommunity #deafawarenessweek #premature #prematurebaby #interview #specialneeds
00:00 Intro
01:17 Q1: Tell me about yourself & your family
02:05 Q2: Tell us more about Jacob’s syndrome?
03:16 Q3: What were the challenges?
06:45 Q4: How did you manage?
08:38 Q5: What were your most challenging times?
09:55 Q6: How’s he doing at school?
11:39 Q7: What would you like other’s to know?
15:06 Q8 Good mental health tips
Music from Uppbeat (free for Creators!):
uppbeat.io/t/ill-kitchen/food...
License code: QZV5OECVXYYNA68X
Негізгі бет A parent’s journey with Kabuki Syndrome
Пікірлер: 19