Thank you very much for this video. I have had PBC for 25 years and I have never had this good of an explanation of the disease.
@mariavanderlugt3670
7 ай бұрын
What meds are you on? Have u gain weight how u feeling? I just being diagnosed😮been bumm out
@mariavanderlugt3670
4 ай бұрын
Have u gained weight on ursidol how u feeling n what side effects have u had
@elizabethmefford7200
4 ай бұрын
@@mariavanderlugt3670 I am on Urso. I don’t really have any symptoms and don’t think I gained weight when I went on Urso.
@elizabethmefford7200
4 ай бұрын
@@mariavanderlugt3670 I don’t think I gained weight when I started raking Urso. I do sometimes get diarrhea from it.
@kimmie869
4 ай бұрын
I absolutely love how thorough and empathetic this doctor is in his presentation.
@Troy-McClure81
3 жыл бұрын
40 years old and got my confirmation few weeks ago,and brought me to this video.Ive already lost my gallbladder and have been experiencing so much pain,this video has helped me understand this more and explainin it better to my family and friends.When the doctor goes woo to your M2 test you know its not good..im also male and live in las vegas,nv ,im most definitely exhausted, itchy,and have a constant floater in vision,ive gone down to 4days at work
@misiek7676
6 ай бұрын
in 27:25 min i think (my hypothesis) that the root cause of PBC is too dense bile, which get stucked in smallest bile ducts (something like ink in rarely used inkprinter. this very dense bile contains obvioulsly toxins - hence the immune system starts attacking it. Then there may be light inflammation. My questions are 1) how to make bile more LIQUID 2) how to increase the pressure in the hepatocytes - so the bile is pushed out with more energy trough cholangiocytes (gates in the medieval wall trough which bile gets out of the castle (hepatocytes) into the bile ducts.
@serenityct2
Жыл бұрын
Excellent. Thank you.
@joanmcnulty2221
3 жыл бұрын
Excellent information!!
@odettehokemeir4425
7 ай бұрын
Very helpful information
@karens6888
3 жыл бұрын
Has anyone with PBC experienced scalp issues? For eg: drying out your scalp. Symptoms include bumps on your scalp as well as scaly, dry patches of skin underneath your hair.
@lilitudeamnocte248
3 жыл бұрын
Yup!!
@RhetoricalMuse
2 жыл бұрын
Psoriasis
@JessicaMorgan29
2 жыл бұрын
No but I have a rash spot int the top of my shin on my right leg that never goes away
@mariavanderlugt3670
4 ай бұрын
Are u taking ursidol medicine have u notice gain weight
@shelleyfoulkes7462
4 жыл бұрын
I was diagnosed in 2019,,, my gp is not very up to date with it which is crap🙈 thank god for these videos
@Yulvatarot
3 жыл бұрын
Contact dr Agbi health care for chron's disesase cure and you will get cured as i am a living testimony of his good work….. Here is his contact number +2347081902547 Email dragbiherbal@gmail.com
@olafiasigurardottir3289
2 жыл бұрын
Thank you very much for this video. though it is not brand new it is very helpful. I want to tell you about my good experience of the medicine pregabalin for the pruritus (itch). It does not take it all, but it is much less irritating. I wish I could use your service but as I live in Iceland I dont think it is possible. Here there is no support from the health system in my case.
@lynnemayo7514
2 жыл бұрын
I haven't eaten since 6/17/22 until today 6/20/22 I finally ate tonight sherbet..
@dcartist1367
3 ай бұрын
I have bent over and passed out! The second time, I bent over to pick something up, I got dizzy and my legs gave away 😢 they have been checking everything else nothing shows 😮
@marcellacyrus5201
2 ай бұрын
Wish this was explained to me the Caribbean is very backward
@lynnemayo7514
2 жыл бұрын
I have cirrhosis At first it was fatty liver but Dr's did nothing now cirrhosis..I have bouts of nausea, fatigue, weakness after vomiting, lasts for days, hot and cold chills, pain and bloating. Stress and anxiety may bring it out but I can't eat much and I've lost from 190 to 160 in 3 months..any ideas on what I can do It's miserable been going thru it since I was 37 and I'm 55 now Please help me My husband got a heart pump last September 2021 and I have a 14 yr old and two other older children..I can't be sick..thanks God bless you all
@lynnemayo7514
2 жыл бұрын
Cirrhosis Caused by medications Nash
@lynnemayo7514
2 жыл бұрын
I too had my gallbladder out in 96 50 or more pellets..
@lynnemayo7514
2 жыл бұрын
Never eat after 8pm ..found out the hard way
@brendajohns007
2 жыл бұрын
Why what happens
@justinjames2898
Ай бұрын
I’ve had psc for 12 years, why wouldn’t she get listed For a transplant? Living donor?
@katelomnes9999
3 жыл бұрын
Can one diagnose by ANA?
@3rin817
10 ай бұрын
Do y'all have an updated version of this video that uses the term Primary Biliary Cholangitis instead of Primary Biliary Cirrhosis?
@livernorth7778
10 ай бұрын
We're waiting for Prof Jones to do a new video. We've got the funding and the people, just waiting for a slot from him. The new video will of course use the term Cholangitis but in the meantime, this is all we have.
@3rin817
10 ай бұрын
@@livernorth7778thank you for replying. I appreciate it. I'm new to all this. This is a very good video, but will wait to share the new one.
@misiek7676
6 ай бұрын
@@livernorth7778 great news !! Maybe Dr Jones could explain what to do when AMA is positive but AMA M2 is negative?
@ronaldohernandez3680
3 жыл бұрын
Hi my name is Pedro H. And I have been diagnosed with PBC in the pass year, I have work as a spray painter for the pass 23 years worked with paints and toxic chemicals I would like to know if the environment factor has to do to trigger with PBC.
@livernorth7778
2 жыл бұрын
We are currently funding research into environmental toxins and the instances of PBC. Early signs are that there COULD be a link but we will have to wait for the paper to be published.
@ronaldohernandez3680
2 жыл бұрын
Thank you very much for your info.
@rajivjain4383
2 жыл бұрын
If I send my AMA m2 report will you confirm is it pbc in india all doctors are saying me that I have IBS but it never goes even after so much of medicine so may you check
@mariavanderlugt3670
7 ай бұрын
From what i know yes chemicals are a factor
@mariavanderlugt3670
4 ай бұрын
Have u gained weight on ursidol medication
@scarletredmagic6724
6 ай бұрын
13:04
@odettehokemeir4425
7 ай бұрын
Do you recommend Tudca?
@misiek7676
6 ай бұрын
good question !
@lynnemayo7514
2 жыл бұрын
Does it make you have mood changes? With toxins I mean
@joannastanden5816
2 жыл бұрын
I have Autoimmune hepatitis with PBC .my hospital and doctors have told me nothing about my PBC .This is very upsetting for myself ..Very poor care from Bournemouth hospital.
@livernorth7778
2 жыл бұрын
Hi Joanna - you do know that you have a right to be referred to a hospital of your choice?
@missal7717
2 жыл бұрын
I do too hon.. had this for over 10 years.. you got this.. lots of struggles and I'm still learning ... stay strong
@vivriddell6121
5 жыл бұрын
why has no one told these people the name has changed? it is Primary Bilary Cholangitis.
@livernorth7778
5 жыл бұрын
Thank you for your comment - we will update the description as soon as possible. The disease was called Primary Biliary Cirrhosis when this video was recorded in 2011. Although the name has changed, the disease and the symptoms have not and therefore we hope that the DVD still has a relevance for those people who are newly diagnosed with PBC. A new DVD is under development, again funded by LIVErNORTH, however as we are run entirely by unpaid volunteers, we have to rely on the generosity of people like Professor Julia Newton who give us their time and share their expertise free of charge.
@vivriddell6121
5 жыл бұрын
thanks it does look like a great informative video, but it worries me that the name was the old name. (I couldn't see the date) I will look forward to the updated version. I have to say this is such a high quality informative video I did not realise this was run by volunteers and I do understand the difficulty in accessing time and expertise from professionals on a voluntary capacity. Sorry the comment may have sounded a bit harsh. Thanks for your reply.
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