Reminds me of the man with an iron lung. My heart goes out to her, makes you feel grateful for what you have.
@claudiarobinson587
Ай бұрын
I don't know if you know but he died a month or two ago. He was amazing.
@simonebittencourt8251
Ай бұрын
The same thought came to me. Both of them, extraordinarily inspiring human beings, such positive and loving souls.
@MaddenCau01
Ай бұрын
@@claudiarobinson587yea 😢
@YaeGalvus
Ай бұрын
Yeah but he only got the iron lung cause of having polio
@watermelonwishes4193
Ай бұрын
@@YaeGalvus Yes-that 's what they invented it for. Paul Alexander was amazing. I binge-watched videos of him a few years ago and learned that he was a lawyer. I was so glad that he was able to live his life to the extent that he did. 😊
@nathanempty
Ай бұрын
holy shit this woman is so much stronger than most people who have ever existed
@Uteria_888
Ай бұрын
You're telling me! 💀💀
@salzburg18
Ай бұрын
She's incredible ❤
@VincentGroenewold
Ай бұрын
The thing I find so sad is that the answer of everyone on this channel is always; "I'm just a human being". Which means many people, apparently, react negative on their appearance in the general public.
@mistydayremainsofthejudgment
Ай бұрын
people with disabilities get stopped and asked/told the most ridiculous, rude things in public. it definitely feels dehumanizing.
@yoshisarethebomb
Ай бұрын
And the fact that disabled people existing around people makes ableists rage, and they’ll say “You’re inconveniencing us” and “Just stay home”
@PicoAndSepulveda
Ай бұрын
Absolutely. She is a human being and nothing but.
@Madamegato
Ай бұрын
Not to mention the people that always want to offer "helpful" advice, as though your doctors know nothing. And then they'll caveat that the know someone who had something kinda like sorta what you have and they took vitamin A and cured it. Well meaning, but oh so unhelpful and demoralizing.
@kodakoala
Ай бұрын
Yah I used to work with adults with varying special needs, people need to take a damn class in high school that introduced them to people that are different. The ignorant poor behavior from adults when we were out always floored me. I think this channel is great and I appreciate all they do!
@Peelios
Ай бұрын
I have FOP too, and have met Ashley several times. She's amazing and a wonderful soul. This disease sucks but you've got to make the best of the life you're given. Her mom is incredible just like mine. Love you, Ash, hope to see you again soon!
@olivedog1880
Ай бұрын
🤟🏼🙏🏼❤️
@e.delano7285
Ай бұрын
❤
@jessicahagard8185
Ай бұрын
❤
@xChimkin
Ай бұрын
bless you
@hoosiermomma7
Ай бұрын
❤ God Bless you both
@saftis5304
Ай бұрын
She said "obviously I'm adopted" right after I thought that they look so alike❤
@Patrycja149
Ай бұрын
had the same exact thoughts!
@feefkeef
Ай бұрын
thats what i thought too!
@audsrose
Ай бұрын
same here… she looks just like her mama. beautiful ladies. 🩷
@stellasullivan110
Ай бұрын
Thank you great interview. ❤ Much love
@user-sm7iv5wl4l
Ай бұрын
Yes, I agree she looks like her mother.....
@DrakulaBambaataa
Ай бұрын
I’m in bed pouting like a child over the end of a bad relationship and you’re remaining a smiling bad ass! You are amazing.
@blackavar5723
Ай бұрын
Your pain is also valid, friend. I hope that peace and comfort find you in this time ❤
@hilariecalijo4643
Ай бұрын
It’s ok for you to be sad. You can’t help how you feel . I hope you feel better soon .
@NicoletteLeeNoble
Ай бұрын
Right? Great reminder of perspective
@elizabethstephens8801
Ай бұрын
I feel that! I bet it takes a lot of time and resilience to get to where she is now
@lavendardust
Ай бұрын
Emotional pain is a horrible weight to carry. You have to grieve, it's part of the healing process.
@mirandastephens4586
Ай бұрын
She said "obviously I'm adopted" but when the mom first came on screen I thought they looked so much alike.
@annerobards3078
Ай бұрын
I agree! And Mom is also so beautiful❣️ 🥰
@user-fc7pr5yc8c
Ай бұрын
I thought the same thing. 😊
@helenhines2712
Ай бұрын
Why did she even have to mention that she was adopted? She is your mom, period!! Your biological mom was just an egg donor.
@kwiatowska
Ай бұрын
Me too. They definitely appear very similar.
@Mary-momof8
Ай бұрын
Me, too!!😊
@Truth_Always_Wins_7
Ай бұрын
FOP affects only about 400 Americans a year! Median life expectancy is 56 years. I saw a new FDA (first one ever) was approved in 2023 for FOP. The drug, palovarotene, reduces ossification of connective and soft tissues. I was so happy to read about this since this condition is ultra-rare. What a beautiful soul ❤ ❤
@terryfilkohazi2237
22 күн бұрын
I bet it's unfortunately very expensive and not covered by Medicare and Medicaid for sure.
@JenneferTinsley
Ай бұрын
Ashley is a wonderful lady. I would love to have her as a friend. I have never seen a bedridden person so full of life and so vibrant 😊
@kevinkeener3216
Ай бұрын
She's a great person. I'm so glad to call her a friend. She is like this off camera. So sweet and genuine.
@kel28324
Ай бұрын
I kept thinking, “wow, she sounds like she’s a great friend” especially when she was talking about being there emotionally for her friends & wanting them to feel comfortable telling her about their own struggles.
@JenneferTinsley
Ай бұрын
@@kevinkeener3216 thanks for the reply. I hope Ashley reads these comments and sees just how awesome everyone thinks she is 😊
@jeannie1592
Ай бұрын
I do not intend to say anything seemingly negative because I love this channel and these people are absolutely wonderful. Regarding your comment she did say she is on Anti depressants, which makes a profound difference in attitude, every level and overall outlook. She says she would likely cry a lot more if she wasn't on them. I just don't want others thinking -what's wrong with me why can't I be more positive she's in a worse situation than me.- maybe if they were prescribed medication it could help them with that. Serotonin, dopamine and oxytocin are the key to happiness and all regulated by the brain, which sometimes needs a little help. I have a friend who was on anti depressants and had to stop taking them to get pregnant and have her baby, and her whole outlook on life changed. Her energy level was way down, she was overall sad and experienced more negative thoughts. So please no one get down on yourselves for not being as positive as her in your situation. 🤍
@alyssa6975
Ай бұрын
I’ve followed Ashley’s story for yikes 15 years? Since I learned about FOP. She was one of my inspirations to study genetics. I’m so glad to see her still going strong!
@AnneloesF
21 күн бұрын
All the best wishes for your study, Alyssa!
@fraserkatie
Ай бұрын
Awww Im so glad to see Ashley again , even if she is bedridden now. Bless her.
@amritheamriandshermanshow7777
Ай бұрын
What was the other vid with her in it called
@fraserkatie
Ай бұрын
@@amritheamriandshermanshow7777 It will be on here on his bio.
@elainenicholls7648
Ай бұрын
I would also like to see that video.
@arneedlund8512
Ай бұрын
@@elainenicholls7648me to
@annasala957
Ай бұрын
@@amritheamriandshermanshow7777, she was on an episode of Mystery diagnosis
@Sohollywood1000
Ай бұрын
“They weren’t old they were my age” love it !!!! ❤❤❤ she’s blessed to have a mother with a great sense of humor and a nurturing heart ❤️
@roachdoggjr45
Ай бұрын
That part made me a bit sad. If the mother didn't say anything, then she would have thought they were old, and her reasoning for giving them a pass is valid. But because the mother maybe felt forced to make that joke, or was self conscious, she said "they weren't old, they were my age!". It's little things like this that cause a feeling of "disconnect" between people. They make it clear they appreciate each other, probably because they know they cannot communicate perfectly, as the disconnect is there. This also explains why she won't even talk to her for a couple of days when she is in a funk.
@guardianangel9517
Ай бұрын
@@roachdoggjr45 oh for gosh sakes lighten up.. Ashley does. Carrying resentment and negativity makes you old fast😮
@mandyb2245
Ай бұрын
This woman is the definition of "look on the bright side". She's awesome!
@casualobserver77
Ай бұрын
What an amazing woman. Her mother is amazing too. This is humbling to say the least.
@Happytimes111
Ай бұрын
Ashley, the most positive person ever with a beautiful Mom. Love and hugs to you both.❤
@PicoAndSepulveda
Ай бұрын
♥️
@alexishayman4235
Ай бұрын
I loved that she casually mentioned that anti depressants have a very critical use during traumatic or difficult periods of our lives. I am so grateful for how lexapro helped me past some of the worst months of my life ❤❤❤
@carriefawcett9990
29 күн бұрын
Lexapro did absolutely nothing for me.
@tallic967
24 күн бұрын
@@carriefawcett9990 It's different for everyone, just because it doesn't work for you doesn't mean it can't work well for others
@MeganGarzaWellness
14 күн бұрын
@@carriefawcett9990 not to mention the withdrawal symptoms can be disabling and even permanent for some people. For me, getting off antidepressants was the worst experience of my life... Never again.
@louise8752
Ай бұрын
"She's been my number one human my entire life."-Ashley "I like that"-mom. I like that too...what a beatuiful relationship they have!!
@tinaterlaje483
28 күн бұрын
She's your *FULL-TIME MOM* ...I was blessed to be a *FULL-TIME MOM* when my eldest son became paralyzed and bedridden after he fell ill with bilateral pneumonia at age 31, fell comatose for a month on life support and awoke a month later - paralyzed from the chest down. I immediately quit my job ( I had retired 6 years prior and started a 2nd career with a community college) and became a *FULL-TIME MOM.* God allowed me twelve years with my beloved son, even after doctors told me to take my son off life support (they said he was brain dead) when he was in a coma...but I refused since we had just lost his father to cancer three months earlier. I miss my son tremendously...but I relish the 12 years of memories I was graced with in being a *FULL-TIME MOM* . ❤
@Purpie_Slurpie
21 күн бұрын
"full-time mom", I really like that phrase
@cindypowell6358
12 күн бұрын
God bless you. You’re one very beautiful soul for sure & your heart is so loving. I’ve lost so MANY loved ones including my mom & sister both only 4 weeks apart. My infant brother when I was only 8yrs old. Life is definitely challenging. I can honestly say love continues to grow more inside me, regardless of all the pain & tragedies I’ve endured. God reminds me he’s got me. I miss my mom beyond any words. She was my best friend too. Her daily hugs were everything to me. I know your son cherished EVERY SINGLE MOMENT he had with YOU without a doubt. Much love to you. 🙏❤️🙏 ♾️
@bloodyhellism
Ай бұрын
What an amazing woman. Her mum is also an angel. Takes a special person to be a full time carer
@mercedezkenzz
Ай бұрын
For a lot of my patients, “care partner” instead of “caregiver” feels more positive and emphasizes least restrictive care ❤
@cbgbstew4072
Ай бұрын
Never heard this term before, but I love it! Thank you for sharing ❤
@BrightSoul736
Ай бұрын
Thanks!☺️
@RiLee-j3b
Ай бұрын
I'm bedridden from a different condition and not as limited. You made me more grateful. Thank you for sharing your story. I'll be your friend if you want.
@janesweetman9890
Ай бұрын
Blown away by this lady's courage, resilience and personality. Plus the strong love between her and her lovely mum.
@jennybeanSMC
Ай бұрын
I remember first hearing about her on the show "Mystery Diagnosis". I'm sorry to see that she is bedridden now, but she still seems like such a strong and positive person.
@laramaaike3050
Ай бұрын
Thank you, that's why she looked so familiair. All the time in this video I thought: I know a woman with FOP and she lost her arm also bc they thought it was cancer.
@tmf1222
Ай бұрын
I remember that episode
@sillyslicker1
Ай бұрын
This is why I clicked on the video! I so vividly remember watching that Mystery Diagnosis episode when I was little. I'm so sad for her loss of mobility, but so happy to see her again and get an update on how she's doing. I'm also glad that she's fine with having lost that arm, because that mistake was so gut-wrenching.
@Fgurs
Ай бұрын
i shouldn't be surprised that there are so many of us sbsk viewers that also watched mystery diagnosis!!
@Bicth97
Ай бұрын
@@FgursMy fave show as a child for some reason 😂
@SuperSpooky
Ай бұрын
Soulmates dont always have to be a romantic thing, these two were destined for each other.
@kellykim4515
Ай бұрын
Attitude is everything - what a great attitude this woman has, we could all learn from her. Beautiful ❤
@PicoAndSepulveda
Ай бұрын
Isn't that the truth !
@karyne826
Ай бұрын
She’s got a wonderful role model in her lovely mum.
@rphawx
22 күн бұрын
Wow, her adoptive mother is literally an Angel. God bless her.
@angelfishluva291
Ай бұрын
What a special momma and a special lady.
@kimlashai
Ай бұрын
She literally just gave me insight on how much I should be happy. I love this lady. Id love to meet her. Beautiful soul
@cooperfreckles
Ай бұрын
What an amazing lady. I have a rare autoimmune disease Dermatomyositis. That disease causes me to have Dysautonomia. Which is my autonomic nervous system to go haywire. I can not cool myself off so in spring and summer I have to hibernate in my freezing cold room. I try to keep a positive attitude. I will not complain about my not being able to walk very well. My disease is a muscle and skin disease. At least I can walk and get to my many doctors appointments. So sad but glad she has lived way longer than the Doctors predicted!!! I am glad her family knows her worth! She is such a prize to this Earth! I wish she has many more years with her family.
@PicoAndSepulveda
Ай бұрын
You said it all
@lauralove00
Ай бұрын
i know what thats like , my mum has it on her leg and i have a little bit of it on my finger and the heat makes it worse. mine looks like its not there when i dont itch it, will look like its got better then the heat comes and ahhhhhhhhhh its bleeding itching and wont move. ours is only skin disease, not muscle but it's an autoimmune disease. I believe it's cureable because I used to have it on all 4 fingers now just 1 and my mum used to have it on both legs, now just 1 leg.
@thatcreepyxmastreeinyourat8950
Ай бұрын
I wonder if I have that...I cannot stand being in the sun/])heat. I've been checked for literally everything and nobody can figure it out. They were actually thinking I was pre menopause at... 20...!Apparently not, because I just had a surprise baby at 44😂 I always have the air conditioner on me and I have to be very careful to bundle my baby so she is comfy and warm (which means I'm uncomfortably hot most of the time!) People think I'm crazy walking around half dressed while picking up snow and rubbing it on my forehead 🙃
@helenhawi8249
Ай бұрын
I salute your mom she is what every human should aspire to be. I wish you the best and strength. God bless you.
@trolllover8573
Ай бұрын
Someone who struggles with a disease that slowly losing my sight. Hear your life story and how you still dealing with life. The positive attitude you have is such a fresh breath of air cause I feel the same way as you. Thank you so much sharing your story.
@PicoAndSepulveda
Ай бұрын
♥️
@AndreaRihm
Ай бұрын
@@PicoAndSepulveda
@carolsaylor6151
Ай бұрын
You will be thanking and praising God soon 🙏🙏🙏🙏
@sharim
Ай бұрын
@@carolsaylor6151 Why would someone thank and praise a ‘god’ that causes a disease that leads to blindness?
@Lowwski
Ай бұрын
❤
@jordangrice3565
Ай бұрын
She snd her mother both are wonderful ❤️
@claudiarobinson587
Ай бұрын
She should write a book. I want to be her friend.
@PicoAndSepulveda
Ай бұрын
Me too!
@jeremiahallyn4603
Ай бұрын
Me too! 😊
@marthaglad7631
Ай бұрын
Me too!!❤
@MoZayik-jq7nj
Ай бұрын
Same here
@df-majik1331
Ай бұрын
Spot on❤
@mama_j1629
Ай бұрын
She’s so empathetic to her mom, it’s beautiful really. She’s not even upset she lost her arm she’s appreciative that not having it makes it easier for her mom to dress her. She’s one amazing human, if only everyone could be so grateful for life and those around them the would would be a much better place
@TwoTrees777
Ай бұрын
amen
@vital11122
Ай бұрын
That Mom is a true Hero!
@courtneyb.9249
Ай бұрын
Ashley is too.
@hamishpatel6775
Ай бұрын
I wanted to take a moment to express my heartfelt gratitude for your tireless advocacy for those of us living with FOP. Your courage, strength, and unwavering commitment to raising awareness about our rare condition have made a profound impact on our community. Your voice has not only educated others about FOP but has also given hope and inspiration to those of us facing the same challenges. Thank you for showing the world that our condition doesn't define us, and for fighting to improve the lives of everyone affected by FOP. Your dedication to advancing research and support for our community is truly admirable. Ashley, you are a beacon of light for the FOP community. Thank you for being an incredible advocate, role model, and source of inspiration for all of us. 🙏
@olivedog1880
Ай бұрын
❤🤟🏼🙏🏼
@elizabethbaird3604
Ай бұрын
Wow! What a beautifully written tribute. You’re obviously a very smart and articulate fellow. I hope you have as many supportive friends around you as Ashley seems to have. I pray that you will have the least amount of bone for the longest amount of time. 🙏 Much love to you from New Zealand. 🥝🇳🇿😎
@TheBeetrootman
Ай бұрын
I've met one person with FOP before in my career as a doctor, extremely rare. I feel so sorry for this woman but she has strength!
@kellyb.3600
29 күн бұрын
Miss Ashley is the definition of the phrase An attitude of Gratitude ❤ Simply Beautiful
@RealityTrailers
Ай бұрын
What an amazing human being she is. Glad she decided to be interviewed.
@nurnaz5794
26 күн бұрын
She is full of love ❤❤ positive vibe despite the difficulties god bless her awesome soul ❤
@mirandastephens4586
Ай бұрын
I wish there was a way to do a SBSK pen pal program. I guess you'd have to be mindful of weirdos (maybe screening by SBSK and then SBSK forwards?). I'd just love to tell these people they are loved and special and continue on the blessing.
@SabrinaAdelina
Ай бұрын
I feel like it could work like those online bill pay systems. (Someone pays their bill online, a check gets issued and mailed on their behalf IRL to pay that bill.) a viewer could type out their letter, it gets reviewed and approved by SBSK (or an approved person), a physical letter is printed and mailed to the SBSK Friend!
@mirandastephens4586
Ай бұрын
@@SabrinaAdelina I would love to be a part of that. These special people have helped me through my own problems!
@Whatisthiseh
Ай бұрын
I love this idea! There could be a place people could submit their po box or something if they wanna connect with people and anyone who's interested can write to them
@terripalakie5287
Ай бұрын
She's on Instagram
@jobdylan5782
Ай бұрын
shes an adult you can just contact her
@lisalawson7750
28 күн бұрын
Stay STRONG, GOD GOT you always!! ❤️🙏
@carolmorris2705
Ай бұрын
Those are two strong women. 💪🏻 I am so impressed with their honesty, courage and determination. Positive thoughts and best wishes to them both.
@wildflower1397
Ай бұрын
"I can't live in your invisible plastic bubble." Profoundly true on so many levels. ❤
@littleogeechee223
Ай бұрын
Awwwww! Ashley is wonderful! She’s so sweet, and her beautiful mom is the very best! God’s blessings, Ashley. You have my prayers. Sending you so much love and light.
@CYGNIUS
Ай бұрын
The humility and deep love that her mother harnesses are beyond commendable. She wins mother of the year every year. I wish everyone could be like her. ❤️
@AnnaZverina
Ай бұрын
I’ve been following Ashley’s story for ten years. Thanks for sharing and keeping us up to date on her!
@a.j.marcantonio153
Ай бұрын
I remember watching Ashley on the show “Mystery Diagnosis” many years ago. It’s sad to see how FOP caused her to be bedridden, FOP is a such a horrible disease!
@AnnaZverina
Ай бұрын
@@a.j.marcantonio153that’s where I found her too!!
@monaj.6004
Ай бұрын
Shes a very strong woman! God bless her.
@ea91
Ай бұрын
What an amazing love between mother and child ❤
@ninahongkong5362
Ай бұрын
Ashley, her Mom, and Chris are unbelievable people. ❤️
@EmmaBakesCakes
Ай бұрын
One brave lady living her best life. Wonderful to see xx
@seed.meditation
Ай бұрын
Truly
@tudorpopescu7191
Ай бұрын
This breaks my heart...I have no response, i'm just crying....Why does this exist?
@carolinabelmontedossantos543
Ай бұрын
Everybody have this mechanism (for example when you break a bone and it heals). Ours activates like a defense mechanism for everything, and the bones grow through all our bodies and in every shape. That's why FOP is considered autoimmune.
@Uteria_888
Ай бұрын
Be appreciative for what you have! I have a broken hand (right) deviated septum... TMJ etc. etc... but this woman dude! she is an inspiration to be completely honest.. I was feeling like crap earlier because of the cards I've been dealt but this lady again had worse cards played and yet doesn't complain like me and others... makes me grateful to be in the position I am now.. still upset about my small conditions but overall still thankful/grateful I am breathing and able to move around and stuff :')
@dadycreations100
Ай бұрын
I saw Ashley few years ago here in YT during one of their FOP meeting, I listened to her story and seeing her again today makes me glad. She can be bedridden but she has not lost her love for life. She's definitely a warrior! Ciao Ashley and mom from Florence, It.
@rosemarywessel1294
Ай бұрын
What an amazing outlook despite her condition! She's the kind positive that lifts people up. I also love her fashion choices. Red glasses, plum lipstick and green suit - bold and beautiful.
@tasha_111_
Ай бұрын
I absolutely LOVE her spirit!! We can all learn a thing or two from this sweet and brave woman 💯🙏💕👌
@areanaangel8964
Ай бұрын
wow. this gives me hope i can have happy days again. i have chronic, hard to treat depression with 1.5 decades of therapy and many meds. Having a bad afternoon. This gives me hope.
@diosadeamore
Ай бұрын
Wishing you strength. 💕
@haleybice4763
Ай бұрын
wow just wow. her attitude and gratitude for life is so inspiring 🥰
@asian6oy
Ай бұрын
the individuals on this channel always remind me of how grateful I should be for what I have as despite their limitations they never seem to give up. thank you! 💕💪🏻
@PicoAndSepulveda
Ай бұрын
Yes absolutely! I have limitations but nothing in the world like Ashley's!
@laurachiar6086
Ай бұрын
@@PicoAndSepulveda❤🙏
@df-majik1331
Ай бұрын
💯❤️😊
@sarahwatters-mm1ix
Ай бұрын
What a beutiful soul. Amazing human.
@KristenBodhi
Ай бұрын
What an incredible and resilient woman. Sending Ashley and Tickles an abundance of love ❤️
@Krbymcd
Ай бұрын
Oh my goodness what a strong woman with an amazing attitude and outlook on life
@weejohnoo
Ай бұрын
Wonderful to meet Ashley, what a superb example of a human being. An inspiration.
@HomerSimpson85
Ай бұрын
You're not only a human being, you're a decent and strong one. ❤ 💪
@Elaine-br4lw
Ай бұрын
Love her! She is an inspiration! As well as her mom!!🙌
@seed.meditation
Ай бұрын
True
@trumpgirl9291
Ай бұрын
Wow! Ashley is amazing. Her spirit and heart are contagious. I would love to meet her. I am adopted too! 🩷
@Amanda-vl5ud
Ай бұрын
What an amazing mom she has!
@tatianaflores1926
Ай бұрын
This women is beyond inspirational
@Tranquility32
Ай бұрын
Just wanted to say hello to Ashley and her dear Mom. I think Ashley is so positive and upbeat. It’s interesting to hear about her life and how she lives with FOP. One of my dear friends was diagnosed with a progressive form of ALS. Ashley reminds me very much of my dear friend. How Ashley tells her friends it’s okay to be sad or upset over things that happen in their own lives. My friend wanted to hear about our days, how we were doing, what made us happy, what made us sad. It’s easy to see that Ashley is an amazing person and a precious friend to all lucky enough to be in her circle. Wishing her & Mom and their loved ones all the best!!!
@LyingInAGreenBed
Ай бұрын
Thank you Ashley for showing that a life in bed can be a good life! I wholeheartedly agree with that - I basically live in bed too and only get in my wheelchair 1-2 times a week, sometimes even less. Still, all in all life is good and I’m glad to be here.
@shoshannafachima1306
Ай бұрын
Ashley is warm and positive.i have seen her on youtube and no matter what is going on she keeps going and always looks to the future
@Pinkkermit17
Ай бұрын
I use to work at a day center and one of the people I helped had this condition. She was in a lay down wheelchair but had functions with her hands. She did live at a county hospital but we would pick her up every day to take her to the center. She had the same thought of life, and postive spirit.
@petunia2008
Ай бұрын
Come on, old age is not an excuse to be rude. And doesn't earn respect automatically. Ashley and her mum are AMAZING!!! ❤
@mercyr6105
Ай бұрын
I was laughing bc her mom said she wasn't that old they were my age 😂....I don't see my parents as old I don't like to
@seamarie3111
Ай бұрын
Yep! Age is no excuse. My mom's great-aunt fostered a bunch of kids with disabilities for a time in the 1960s or 70s when her own children were grown. I remember my mom telling me how fiercely my great-aunt looked after and loved those kids. I also remember my mom telling me how when my mom was a kid, in the 70s I think, my grandma worked in one of the facilities they had back then for disabled children that some of those parents back then washed their hands of. Mom told me how attached she got to them. I think that work was extremely emotionally difficult, and she didn't do it for more than a couple of years at most. My grandma also raised a daughter with cerebral palsy, who lived independently in an inter-abled relationship as an adult before dying too young of cancer, and didn't blink an eye at me, her blind granddaughter. A far cry from my paternal grandmother who was definitely more distant and reserved. Anyway, my maternal grandma was born in the late 1920s and my great-aunt sometime in the 1900s or early 1910s I think. All I am getting at here is that there's absolutely no reason, not even age, to be an ignorant, ableist bigot.
@brandee_anniee
Ай бұрын
What a positive amazing woman! 🥰
@rhiannonm8132
Ай бұрын
ashley, if you’re reading this i love your glasses, lipstick and cane, i can tell you’re creative and have a great sense of style! everything is carefully chosen, coordinates and shows your personality! thank you for sharing some of your life with us, you seem like a joy to be around. i have MDD so it’s like a constant fistfight in my brain to try and be positive about anything, my brain chemistry simply hates me, but i’ll think of your happiness and strength next time im really struggling to embrace life and accept things. one of the bad things about this channel is seeing people i would love to be friends with irl haha, but glad i could at least meet you this way :-) hope you have a great day :-) thanks also to ashley’s mom, you seem so kind and i hope you have a great day too! ❤💜💚
@jeanetteh.9240
Ай бұрын
Hello! What is MDD?
@shawnaburns5158
27 күн бұрын
This lady is a true hero!!!! Love her mom too❤
@blessedsabbathbelievers3428
Ай бұрын
God bless you precious! Will be praying for you and your family.
@monicasuissa2026
Ай бұрын
What a remarkable woman! She has a great attitude and great style! Love the glasses and lipstick 🤩
@darak4187
Ай бұрын
Ashley, you have the outlook on life that everyone should have. Thanks for sharing your story with us.
@elineff2791
Ай бұрын
Ashley you're a lot braver than I ever would be
@passingby-t7r
Ай бұрын
I have the utmost admiration for parents/family members who are caregivers of people with special needs. The love they have to have to basically devote their life to take care of them. May God bless them greatly.
@Trogdor1365
Ай бұрын
The last time i saw her she was still walking. 😢 I'm so sorry she's going through this. What a horrible and devastating disease. I can't believe she's still do positive. She is so strong.
@tracymay1749
Ай бұрын
She has the absolute best look out on life! I can't imagine having to go through what she has to do everyday. Bless her heart! What a beautiful lady!
@kc1512
28 күн бұрын
Man, I would love to just sit down and have a conversation with her. I’d be glad to have her as a friend!
@HeavensAngels1111
Ай бұрын
What an amazing mother! ❤
@monsenanna13
Ай бұрын
This lady has a better outlook on life than I do, I wouldn't still be here if I were in her shoes..
@semperlaeta73
Ай бұрын
💕Sending love to Ashley and her mom!💕 As a fellow chronically ill but positive person, I admire her strength, she is such a role model and her mom an absolute hero! And I would be more than happy to be her friend - this world needs people like them!
@laureljenkins1208
Ай бұрын
I am so inspired by this amazing person...She is super articulate, as well as brave, inspiring, funny and caring. I sure hope she has lots of time to visit with friends, watch great movies and snuggle with Tickles. Thank you to her and Mom.
@webg03
Ай бұрын
one of the most inspirational things I've ever seen, god bless this woman and her beautiful caring mom
@keyplayer5
Ай бұрын
Wow. Amazing lady and so is her Mom. Even more amazing is seeing Gods preparation for her to live out her life. Thanks for sharing. 💕
@jeannefurey6338
Ай бұрын
God bless you, Ashley! And your precious mother! You two are bright lights! Thank you so much for sharing your inspirational story and reminding us of the importance of faith and attitude!🙏🏻🙏🏻
@bobcharlie2337
Ай бұрын
43 in December. She's amazing, and her mom is so incredible. I'm really glad they talk about the struggles they have, its very encouraging.
@tawnykf2722
Ай бұрын
THANK YOU for bringing her story to us. She and her mom's spirit is truly an inspiration! I have watched most of the videos on this channel, and so many people with different lives can still be happy and appreciate every moment. These are the kind of people I like having in my life, even briefly. ❤❤❤
@lisav834
Ай бұрын
She looks like her mom 🥰 twins 🩵🩵 Two amazing ladies 🩵🩵
@Sumsum2000
Ай бұрын
It's so good to see you are now interviewing adults and not just kids. It's tough for anyone with a rare or poorly understood condition as a child but it's even harder on the adults as resources for assistance fade away. People need to see what it's like through all the stages of life! I can't imagine how Ashley feels slowly turning into solid bone. I do know what it's like to live with chronic pain though so I can sympathize realistically in that aspect! I hope they find a way to stop this mutation's effect on people very soon and Ashley goes down in the books as a pioneer patient forever!!!
@cheriesvansson5117
Ай бұрын
What a beautiful and courageous woman! Thank you for sharing your story Ashley. Count your blessings everyday!
@carolblackwood5752
Ай бұрын
Ashley, I love your "no regrets" attitude and, also, your ability to let yourself be angry. It's so beautiful to witness you and your mom. What beautiful humans! Thanks for sharing your story!
@tracyschundlemire2586
Ай бұрын
Wow!! She is an amazing woman! What an inspiration! God bless her‼️🙏🏻♥️
@nilsperry8124
Ай бұрын
This disease is the one that scares me the most, and I really hope a cure will be developed for victims of this disease. I really hope her the best, and she is an inspiration. I will try my best to be more positive :)
@sameoldsonganddance
Ай бұрын
She is a delightful woman….. way more positive than most people.
@karenthompson4596
Ай бұрын
A beautiful lady with a amazing Mom and so very positive about life. Thank you for sharing ❤❤❤❤
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