"It's probably not Acromegaly because it's rare."
How often have we heard this sentiment in the field of rare disease? I am sure @medics4rarediseases-m4rd11 will have plenty to say about this!
In this episode of Acrotales we meet Thomas from Switzerland. Thomas was diagnosed towards the end of 2023 and had surgery only a few months ago. Thomas talks about the symptoms and visual problems he experienced, diagnosis and complications - including the challenges of being rare, CSF leaks and being left with a non-functioning pituitary gland.
Негізгі бет AcroTales: Thomas | Real Stories of People Living with Acromegaly
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