A recording of a multi-stakeholder online conference held on December 7, 2022 and organised by Partnering4PNH, a global multistakeholder policy initiative which brings together PNH specialised healthcare professionals, nurses, patients and patient organisations from Europe, Canada and Australia. Confirmed speakers will include:
* MEP István Ujhelyi (S&D, Hungary)
* MEP Stelios Kympouropoulos (EPP, Greece)
* Dr Morag Griffin (Haematologist PNH Specialist, Leeds Teaching Hospital, United Kingdom)
* Barry Katsof (President and Founder, Canadian Association of PNH Patients, Canada)
* Cindy Anthony (Executive Director, Aplastic Anemia and Myelodysplasia Association of Canada, Canada)
* Louise Arnold (PNH Specialist Nurse, Leeds Teaching Hospital, United Kingdom)
* Michael Brown (PNH Clinical Nurse Consultant, The Royal Melbourne Hospital, Australia)
* Emelie Persson (Head of Global Medical Affairs and Clinical Science Pegcetacoplan, Sobi, Sweden)
Негізгі бет Addressing PNH unmet medical needs: a policy roadmap to aspire for change
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