Chief Scientific Officer Jana von Hehn, PhD, and our team of "Cure Community Ciitizens" share what we’ve learned so far from the Rett digital natural history study. Our guests are Bernhard Suter, MD, medical director of the Rett Center at Texas Children’s Hospital; Cary Fu, MD, medical director of the Rett Syndrome Clinic at Vanderbilt Children’s Hospital; and data scientist Kristina Hone. Monica Coenraads also shared her experience as a digital natural history study parent and how joining can enhance your loved one’s care. A Q&A session follows the presentation.
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The Rett Syndrome Research Trust is singularly focused on a cure for Rett syndrome. Achieving success takes a deep understanding of the relevant science, an environment built for scientific collaboration, and experience with drug and business development. Today we are building on incredible scientific and industry momentum by implementing six genetic-based strategies that tackle Rett from every angle. Every single company pursuing a cure for Rett is able to do so because they leveraged discoveries and resources that were generated with RSRT funding. RSRT is the home of the Rett cure community, and we are confident that together we will cure Rett syndrome.
Негізгі бет An Update on the New Rett Digital Natural History Study | Rett Syndrome Research Trust
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