This amazing webinar tells the story of Ann and Ioana Atkin's - a mother and daughter's journey with Cavernoma.
Ioana is a very special young lady who developed Cavernoma after having treatment for another rare condition.
She is a true inspiration and a wonderful advocate for our charity. We are so proud that she is willing to share her journey with us alongside her wonderful Mother Ann who has helped Ioana every step of the way and will give her perspective of being the parent of a child with unique medical needs.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people - enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit cavernoma.org.uk/
This is a recording of one of our webinars given by our members, guests and medical experts throughout 2020.
Негізгі бет Ann & Ioana Atkins - A Mother & DaughtersJourney with Cavernoma
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