This is exactly my same experience. I am glad to not feel so alone in this.
@BrookeAllyceHuntsman
2 жыл бұрын
In school, test taking was difficult--especially oral exams
@Progressive_Alien
3 ай бұрын
I struggle with this regularly and what I hate the most is sometimes I have to completely restructure a sentence because I can't remember a word ugh it's so frustrating. Not being able to get your understanding out of your head into words is so hard for me because I process and understand and express information through Visual thinking and spatial processing.
@sacramedicina
7 ай бұрын
Oh yeeeeeah. I often feel stupid when i’m making a point or something, because people act like I know nothing when I forget words or have a really hard time connecting thoughts to sound.
@mammabear379
3 жыл бұрын
This is me exactly I feel like the words just left my mind and I can't find it. Other times I say something completely wrong and I don't notice. I have told my daughter that I ate the garage because I was thinking about putting something in the garage. I went to a neurologist and they just said oh you tested fine. It isn't easy to explain that it doesn't happen every time I speak, it's worse when I am stressed, hurried, tired, in noisy environment etc. I guess it wasn't important to them but it effects my ability to have conversations daily.
@TheBlackCat1337
10 ай бұрын
yeah same. by the time I can get the right words together it can be minutes or days. I sometimes use google to help make the paragraphs make sense.
@ellenh278
3 жыл бұрын
You have such a gift with words on one hand, and a real struggle on the other hand. Really puzzling.
@DanTheTortoise
3 жыл бұрын
I find myself being very repetitive because my brain doesn't find the relevent words. With a list written down I am better able to keep looking at words. I make errors and can often cover them by making them part of stories etc, so if I call something a wrong name etc I can just have it that that is what it now is even if that isn't what it was meant to be. I can also try to cover up my error and in some situations I just re-ssy what I said wrong or I cut it later. I think the thing is that it isn't a problem with vocabulary or ability but it is a problem with specific types of information like objects and names etc. When doing things like the meditations I normally have objects etc as the suggestions and so can look at these and I don't seem to forget things like that a tree is a tree, but can struggle with a worm being a worm or a chicken being a chicken etc.
@ellenh278
3 жыл бұрын
@@DanTheTortoise Does that fact you are IN a meditation make the words flow out easier? (Versus when you are trying to explain something or recount an event ) Outside looking in it seems so. Maybe its just the slower speech but it also just seems 'easier'.
@DanTheTortoise
3 жыл бұрын
No, being in a meditation makes no difference, it helps that I'm not in real-time conversation and can pause while I try to think of the word and then because it was an unintentional pause I just delete the pause in editing and if after a few moments I still can't find the word then I will just say anything because I need to and will try to continue without what I was going to say. I don't think I have a problem with creating a description of something, so sometimes I'll do that instead. So if I can't remember what a trapdoor is called I may talk about finding something in the ground and if there are words which do come to me I can use those, so I may say that it is like a lump sticking out of the ground attached to wood that this slightly when tapped, the person lifts that (not saying what) to reveal a tunnel... So because I'm talking slowly and not at real speed and because I don't have to get it right because no-one knows what I'm saying or trying to say and there isn't too much importance on me being right (like there might be in real-life), and I'm doing something make-believe where it is fine if something is unusual etc, even if it was unintended and only because I couldn't think of the word, and I'm not in conversation, so I don't have feedback or engagement going on where it would be more important to say the right thing in real-time. So the experienced problem is the same, but it is easier to cover it up. It isn't a problem of not knowing what things are, but a problem with shortly not knowing that label for that thing. So if I see dog poo and want to tell Abbie not to step in it, I see it and know what it is and know I don't want Abbie to step in it I just suddenly don't know what it is called and so have to point and make a note or just shout stop or point and say a random word or phrase to describe or label it my way and hope Abbie understands and responds.
@ellenh278
3 жыл бұрын
@@DanTheTortoise Interesting. I thought you describing a trapdoor without ever saying the word 'trapdoor' was your creative way of doing a 'slow reveal' and allowing our brains to work to create the image and eventually realize what it is. I know sometimes you do this intentionally also. Roadblocks overcome through creativity can result in wonderful things.
@DanTheTortoise
3 жыл бұрын
@@ellenh278 I do frequently do this intentionally as well while trying to help absorb people in the experience of what is going on and to deepen curiosity, this again makes it much easier to hide this specific challenge I face at times, which is probably why I'm okay at doing meditations or the eyes closed part of hypnotherapy sessions etc. And for therapy, as the therapists role is generally to listen and acknowledge and talk minimally just to guide a client I don't encounter this problem too often in that context.
@Gshkent
3 жыл бұрын
Preplanning what you need to say... it takes longer to process and honestly I feel like I truly process when I’m alone again. I feel like I talk all the time but it’s me thinking to myself. Any conversation I have has been brewing in my head for some time as I try to understand how to best get my point across. Writing is much easier to do and after that it’s a bit easier to verbalize it all.
@janetcw9808
3 жыл бұрын
I'm the same, I have been saying to people for years that I have lost my words, this happened after I had chemo. I say for example microwave instead of greenhouse. If I pause for breath anybody else (I'm dying to say Bstds) fills in the blanks that they think I want to say but really they want to talk
@dianeqinlv
Жыл бұрын
OMG- me too! It’s especially difficult when talking to someone who is angry at me! New to your channel & happily subscribed. Thanks!
@introvertedfox6826
3 жыл бұрын
Similar instances can happen to me at times. I think partially just because of how my brain works but also because of mild social anxiety, so I too find myself rehearsing what I’ve to say or writing it down. For example, if I call a company I get help etc where I need to give them info I often write it down beforehand so I don’t have to worry about remembering it, or write what I need to say when leaving a voicemail so I don’t ramble.
@oftenpotter
Жыл бұрын
Thank you so much for this video! I've just come to realise that I'm almost certainly autistic (thingy demand avoidance type) and as you can tell I also have pronounced aphasia. You have described it exactly! In school people made fun of me for speaking slowly and monotonous! Such a relief to hear of similar experiences!!
@oftenpotter
Жыл бұрын
And also the whole nonsense talk. I often replace normal words with the words 'thingy' or 'doobry' 😄
@misssing77
2 жыл бұрын
Thank you for posting this. I had a very confusing conversation with my partner who was talking jumbled sentences. And it was so confusing for me, and likely very frustrating for him trying to communicate…
@TheBlackCat1337
10 ай бұрын
yeah it is like carrying a stack of feathers and when you try to use them they float off.the method I chose is to start back with is that of being a baby again and going that way. every day or so, its an extra word to my pocket.
@heatherrogers548
3 жыл бұрын
I’m not autistic and this happens a lot with me but it only occurred when I’m anxious
@reneeelizabeth302
3 жыл бұрын
Yes! To me too. It’s infuriating. I’m not autistic either.
@dianabay971
3 жыл бұрын
I just found your course on hypnosis on udemy and decided to see more info about you :) At first I clicked on a course listed on very top, taught by a woman, and then listened to your presentation next, which I found more interesting, because I liked the pauses in your speech. I thought you were using them on purpose like actors get to do in order to make their performance more purposeful and create a stronger effect of drawing in the audience. Pauses are a strong suit of dominant characters actually, as taught in acting :-)) Funny enough, I just learned a new word thanks to your bedtime stories channel - 'reverie'. So cool, nice sound, never heard it before.
@DanTheTortoise
3 жыл бұрын
Hi Diana, Reverie is a word I've loved since being a teen, and I always get surprised when I find out from people that almost no-one seems to use the word and people often say they have never heard it before (so I am always glad to have introduced them to it!). My pauses (as taught in my hypnosis courses) are on purpose and not on purpose... There are times they aren't (for reasons described in this video) and many times, especially in my bedtime stories or in therapy and communication when they are on purpose, and because I prefer to speak slowly and measured and I use pauses, often this hides the times it is aphasia, it also gives me time to find and potentially use different words or descriptions that I think of during the pause, which is why sometimes my descriptions or words for something can sound odd or 'creative' because they are me unable to find the simple thing I wanted to say and so instead end up saying something which might actually appear better/more creative, but that is a consequence of being unable to think of the word I needed...
@jacquewells3359
Жыл бұрын
I Agee so much. I always talk slow but I can’t do it faster. People also jump in over the top of me as I’m going so slow. I also when speaking say the wrong word, transposing one word for another, saying the wrong word,my brain is going too fast or my mouth too slow. Anyone know what this is? Would greatly appreciate help.
@Gdad-20
Жыл бұрын
My grandad was famous for calling a hammer, a Gadonka lol 💙🧡
@cyberiad
2 жыл бұрын
I think that if someone you're listening to but not looking at were to say, "I need the, um..." and trail off, you'd instinctively look at them to see what gestures they're making. 😄
@cathyx7202
9 ай бұрын
Did you sustain an acquired brain injury? Because for what I have studied, the term ‘aphasia’ is used for people who have an acquired language disorder. For example, some people have anomic aphasia after a stroke in their left brain hemisphere. If you have word-finding problems that are caused solely by your autism, it wouldn’t be called ‘aphasia’ because autism is a developmental condition, not an acquired condition. - An autistic SLP student
@DanTheTortoise
9 ай бұрын
This is how I had it told to me as the label for the experience by the psychologist when I had my autism diagnosis. Prior to this I would just describe the experience and not label it, (I used to also describe the experience of being autistic but not label myself as autistic until I was diagnosed) because although it was a term parents I worked with used, saying they were told this, training on autism I had received (prior to diagnosis - for most of the last 25 years I've worked in roles where I had to frequently attend training on autism and neurodiversity as part of training in working with children and families) never taught about this experience or that label, but then every single autism training I was given stated it was incredibly rare for girls to be autistic and that autistic people lack emotions and empathy. Following the assessment when I was told that this is the label for this experience I was describing, I started using the term so that people interested in looking up more information about it will know a term to research, or who have also been told they have this can connect with the video to hear another person's experience. In 2018 my mother in law had a stroke and has this to a more pronounced level to my experiences, but it has been helpful to be able to share our experiences and how we cope with it, etc... It may well be that there currently isn't a better term for this specific experience when it is related to being autistic and so the psychologist, and other professionals I've encountered use this term as the closest current term to explain this experience in a single label, although what we experience isn't caused by a brain injury, but likely by some function of how our brain functions, and maybe a dedicated term will be used in the future and that will then be what I'll use. Many other autistic people I've encountered in my work, talks and online have also stated that they had been told they had aphasia and use this term to describe the experience and others recognise the experience and are happy when they discover a label for the experience that they can use to find out more information about it and what they can do to help themselves... As far as I'm aware this isn't something with a lot of research, yet this experience seems to be very common (just anecdotally from the number of autistic people I've encountered and parents of autistic people and the number of these who seem to share this experience) and I don't know if there is any research into this taking place that would lead to perhaps having an alternative label used as being a label to better explain some of the areas that specific autistic person struggles with, for example I have sensory processing problems and so being able to clearly say that in a single phrase is very helpful...
@caroletrapp3226
3 жыл бұрын
Me exactly.
@zamzamwater8749
Жыл бұрын
Can I send you a video of my aphasia difficulties to your email? I see myself when I watch this video?
@christinadonnelly781
Жыл бұрын
Have you always had this challenge or is it something that developed? I am most certainly in Autistic burnout and this is a huge issue for me. It gets worse in the evening when I am tired but it comes up other times too. Acronyms at work have been particularly challenging. I describe the thing round and round..like I know the concept but I can't remember the words that label the actual system or process.
@DanTheTortoise
Жыл бұрын
For as long as I can recall this is something I've struggled with...
@compuroni
5 ай бұрын
Excuse me The Tortoise, before suffering from anomia, did you have a stroke or a physical accident or something similar or did this anomia appear progressively? I hope your answer.
@DanTheTortoise
5 ай бұрын
This is how I had it told to me as the best label to use for the experience by the psychologist when I had my autism diagnosis. Prior to this I would just describe the experience and not label it, or just call it losing words. This was also the term parents I worked with used, saying they were told this term as the term to use to describe this trait in their autistic children (I know epilepsy is common among autistic people, so I don't know how common it could be if this trait is directly linked to perhaps having undetected seizures?). Following my assessment when I was told that this is the label for this experience I was describing, I started using the term so that people interested in looking up more information about it when they get told this label in relation to their own or a child's autism diagnosis will be able to find this video to learn more about how it impacts others, and hopefully this is helpful to them. In 2018 my mother in law had a stroke and has this to a more pronounced level compared to my experiences, but it has been helpful to be able to share our experiences and how we cope with it, etc... It may well be that there currently isn't a better term for this specific experience when it is related to being autistic and so the psychologist, and other professionals I've encountered use this term as the closest current term to explain this experience in a single label, although what we experience isn't caused by a brain injury (or at least, unless it is caused my something like small, unnoticed seizures or epilepsy. But if that is the cause in autistic people, I've not seen research to back that idea up), but likely by some function of how our brain works, and maybe a dedicated term will be used in the future and that will then be what I'll use. Parents and others are generally more likely to find this information labelled as it is, rather than my previous label of 'losing words'. Many other autistic people I've encountered in my work, talks and online have also stated that they had been told they had aphasia and use this term to describe the experience and others recognise the experience and are happy when they discover a label for the experience that they can use to find out more information about it and what they can do to help themselves as well as a label they can use to help explain the experience to others... As far as I'm aware this isn't something with a lot of research, yet this experience seems to be very common (just anecdotally from the number of autistic people I've encountered and parents of autistic people and the number of these who seem to share this experience) and I don't know if there is any research into this taking place that would lead to perhaps having an alternative label used as being a label to better explain some of the areas that specific autistic people struggles with and maybe the neurological mechanisms within autistic people, for example I have sensory processing problems and so being able to clearly say that in a single phrase is very helpful... This issue is mentioned in books like the Is This Autism? book, but it doesn't give it a label in the book, just has autistic people describing having this challenge and some of the potential reasons for this. So I am autistic and to my knowledge I've never had a stroke. I've been hit by a truck and hospitalised, but had this challenge before that and I would say it has been pretty stable my whole life, although more noticeable to others and more of a problem since adulthood when I've had to do a lot more talking and interacting with people where I need a shared language. It isn't like I don't know what something is, it is just that I sometimes don't know what it is called. An analogy could be like being able to only speak English and finding yourself in China, if I need to use a hammer I can find and use a hammer. If I need to mention the hammer I won't know what to say. Obviously the analogy isn't fully accurate as in the example I still have a label of hammer that I may use for myself, when in reality I might just say to myself that I need to find the hitting stick and I know what that means, I then find the hammer and can use it, so it isn't a problem. It is if I am asking others for the hitting stick, or in work, asking for the line maker because I need a pen, or asking who lost the hat, because someone has misplaced my pen lid, or if I have to tell a manager I've done the tappy, tappy, click, click thing to tell them I've input my note on the computer system they need to be recorded on, or the child has been reported missing to the nee-naw people, to let a manager know the child has been reported missing to the police, or when out for a meal, like my wife's work meals and saying I want cups with my food because I can't think of the term Yorkshire Puddings. These sorts of things get me in far more trouble as an adult and I find myself in far more situations where these sorts of things happen than was ever the case as a child or teenager who could just largely remain silent and avoid interacting with people...
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