You've had this 4 years and I can't see any progression. No speech issues, hands are working fine. I would think every ALS clinic would like to study you.
@tallskinnywith6shots1
2 ай бұрын
I have been in ALS and Genetic studies since the onset of disease. I am currently with Houston Methodist ALS Clinic, one of the best in the world so grateful. I decided if I had to have this disease the best thing I could do is allow them to study me. Research is needed to find disease treatments, and hopefully eventually a cure.
@jackyeferreira5039
10 күн бұрын
Which protocol are you doing? Thanks
@SoundGGirl
2 ай бұрын
Gosh, I remember you from ages ago on my old KZitem account. I am so pleased you’re doing ok. You’re looking gorgeous as ever. I’m very sorry for your losses. Keep going ❤
@tallskinnywith6shots1
2 ай бұрын
Welcome back! Thank you so much for the sweet words
@helenaanderssen6862
2 ай бұрын
Great video, much love to you
@tallskinnywith6shots1
2 ай бұрын
Love right back to you thank you, Helen❤
@adv.satadrusovonghosh.bhar8090
2 ай бұрын
How are you now? What are your symptoms now? God bless you ❤ My prayer is with you
@teresa2638
2 ай бұрын
Thanks for the update. Self care and self compassion really is so important and so is hope. Also, we should definitely all vote and try to be good citizen role models for the next generation. It may sound strange but I used to take my children to the polling station. I'd show them the ballot paper and then say ,ok, Mummy is going to go into the secret booth now and put a cross beside the person I like the best. My son is now 26 and he says he still remembers this and both my kids always vote.. Take care of yourself and thank you. Your messages are meaningful and I'm sure you help a lot of folk without even knowing it. xx
@tallskinnywith6shots1
2 ай бұрын
Thank you Teresa it is so important for kids to learn how to be good citizens it’s our future. Self-care with compassion so important.
@sherylduncan9568
2 ай бұрын
Why do people have to being politics in to everything. Voting has nothing to do with this! You’re a dumbocrate for sure!!
@striveinfinity7149
2 ай бұрын
IDK HOW YPU DO IT BUT GOD BLESS YOU AND KEEP FIGHTING YOU ARE A BEACON OF LIGHT ❤😭🙏
@tallskinnywith6shots1
2 ай бұрын
Thank you I just do until I can’t prayer and meditation
@striveinfinity7149
2 ай бұрын
@tallskinnywith6shots1 sounds about right more power to you god bless and may the lord be with you and give you strength peace and comfort especially in your darkest days your last moments and breath may your beautiful soul be shielded with all it can be to avoid any fear discomfort or pain you are strong you are loved and you are saved take care and god bless everyone❣️🙏💯😞
@tallskinnywith6shots1
2 ай бұрын
God Bless you always 🙏
@striveinfinity7149
2 ай бұрын
@tallskinnywith6shots1 thank you so much Random question What does the 6shots1 in your name mean? Lol
@tallskinnywith6shots1
2 ай бұрын
when I was in college and in nursing school before a big test and even now when I want, I get a latte a tall with six shots of espresso. When I started my KZitem channel I was nervous so trusty drink. KZitem added the 1
@TrixtyEdits
2 ай бұрын
I lost my only sister to ALS in 2019, she was only 44 years old…. Diagnosed in 2015
@tallskinnywith6shots1
2 ай бұрын
I’m so sorry for the loss of your sister.
@qedqed110
2 ай бұрын
A Texas sheetcake? Of course a pound of butter! Love butter
@qedqed110
2 ай бұрын
I can't figure out how to send you a pic of the "butter shack" which is like the sugar shack!!
@qedqed110
2 ай бұрын
Bacon too? Pig heaven!
@qedqed110
2 ай бұрын
Frontporchtalker sending you 😂 pg
@tallskinnywith6shots1
2 ай бұрын
lol it was yummy
@mwbro123
Ай бұрын
Lost my dad to als 6 years ago
@tallskinnywith6shots1
Ай бұрын
I’m so sorry for his loss 🙏
@rickydalebradford3384
2 ай бұрын
This is Darlene. My husband is in late stage ALS. It has been 5 years since symptoms and 3 1/2 years since diagnosis.
@tallskinnywith6shots1
2 ай бұрын
Darlene I will keep your husband in my prayers
@AbdulMajeed-hr1gp
Ай бұрын
Are you also have twitching on your body
@tallskinnywith6shots1
Ай бұрын
Yes I have a form of twitching and cramps. Something to remember not all twitches are ALS most likely they are not ALS in almost all cases
@AbdulMajeed-hr1gp
Ай бұрын
@@tallskinnywith6shots1 but I have along with fine movement and some time things drop suddenly from my hands
@tallskinnywith6shots1
Ай бұрын
@@AbdulMajeed-hr1gp Please see your doctor and discuss your concerns and follow up with testing and recommendations. Dr Google is scary and physicians can evaluate and give you a diagnosis Of what it may be
@AbdulMajeed-hr1gp
Ай бұрын
@@tallskinnywith6shots1 ok thanks friend for good suggestion
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