"What are we supposed to worry about?" Recently Kate spoke with a Father whose child was newly diagnosed with NF1 and this was his primary question. In this video, Kate reviews three common manifestations of NF1 that generally are not a sign of a more serious issue: freckling, large head size, and lisch nodules.
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What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
Visit our website at www.ctf.org/
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