As a parent of an autistic child myself, I completely sympathize and understand everything your family goes through. It isn’t easy, I pray everyday for families going through this. Watching this channel has helped me out over the last several years. Thank you for continuing sharing your experiences.
@carmelserle425
Жыл бұрын
Thanks so much for sending me a like on my like
@hinaxyujeongbias_sumit444
2 жыл бұрын
I was Diagnosed with autism at a young age and I had trouble interacting with others, and I had some problems but as I got older I improved myself and in doing good!
@ariaslegacies341
2 жыл бұрын
I’m the same age as Ian and I suffer with autism as well. I know you probably remind him of this every single day being the supportive parents you are, but please let him know he’s not alone
@PraveenSrJ01
2 жыл бұрын
I wish when I was Ian’s age there was better treatment for autism back in the mid 1990s
@vanessalang2018
2 жыл бұрын
@@PraveenSrJ01 me too.
@Yeet_Foot
2 жыл бұрын
Ya!
@deannahenry8925
2 жыл бұрын
What age is Ian because I'll 17 now and have high functioning autism. Is Ian 17 to?
@avagreene-taub9710
2 жыл бұрын
I believe he is around 13-14 years old
@afollowersfight5266
2 жыл бұрын
I knew immediately those weren’t stims when I saw them, but I thought they were tics because some autistic people also have tic disorders. I’m glad to see you guys jumping on this new term so quickly. You guys are wonderful parents.
@reneawallen7616
2 жыл бұрын
Tourettes Syndrome (Tics, uncontrollable movements) My daughter had it as a child.
@saidohn8126
2 жыл бұрын
@@reneawallen7616 my son is 6 and he developed these tics now , if you don't mind plz does your daughter stopped and when thanks
@reneawallen7616
2 жыл бұрын
@@saidohn8126 She stopped when she stopped medicine @ 19yrs old.Still has ADHD tho. Don't take any meds now just Tylenol only.Hates taking pills at all.She has Hbp and don't take nothing for it. Her daughter born March10,2020 was a Preemie cause pre-eclampsia.Praying baby not Autistic.Tourettes is inherited but medication I think was cause of her issues mostly.she still has night terrors from PTSD.Daughter is 29 now. sometimes they get better with age.
@Infinity-lo1ov
2 жыл бұрын
Lol I have turrets syndrome, ADHD, autism, and OCD and I'm only 11
@Jitmommy33
2 жыл бұрын
@@Infinity-lo1ov me too. Plus anxiety depression and PTSD, agoraphobia etc.
@minervasanchez8431
2 жыл бұрын
My child is Autistic also, and we opted out of medication because we knew we wanted to take a different approach, and it's been our luck that it works for us. For parents with no other choice, they do what's best for their children. Because it's like being between a wall and a sword. I'm glad that you chose to be transparent even when you didn't owe anybody any explanation, I dont understand why people still have that 'one size fits all' mentality.
@mohaklondhe3020
2 жыл бұрын
Which medications?
@vinaykambli8298
Жыл бұрын
There is no such medicine
@alialmansour541
Жыл бұрын
Buspirone good for autism
@billybandyk0720
7 ай бұрын
@@alialmansour541Get real, buddy. Psych meds r "chemical pacifiers" (i.e.:designed 2 silence u when getting abused, bullied, & harassed--a.k.a.: TRIGGERS--by others). Can u please tell me how Buspirone addresses & resolves those a4mentioned triggers?
@villaricajoy
2 жыл бұрын
Such a brave family to open up their lives to help educate other families dealing with autism. Much more admiration as they are also very open to hearing out input (constructive and not conspiracy), that takes a lot of character. Kudos to this family. Sending you all much love and prayers!
@Jovviial
2 жыл бұрын
no families "deal with autism". you have an autistic child/sibling/parent. when you objectify autism like that you objectify the person. we ARE autistic, you cannot separate us from it. please mindful of your language and how you refer to autistic people! hope you you have a good day 😊
@rawmilkmike
2 жыл бұрын
I agree 99%. Because we need to be careful what we call a conspiracy. The previous response to your comment is a perfect example. I agree with people like that in so far as we all want to be accepted and you should never talk about an autistic child in front of them. I would never tell my daughter she's autistic. I make sure we have healthy animal-based foods like steak and eggs in the house and try to discourage exposure to plant-based junk foods pancakes and oatmeal. It's amazing how that alone can make such a difference.
@PecanBaby...
2 жыл бұрын
As a single parent raising my autistic son alone can and has been sometimes challenging but so much more rewarding for us both. I have never had my son on any medication but I was never able to afford it so we manage without it. I dislike where others try to tell us how to raise our children, especially since every autistic child acts differently with their own personalities and there parents really know them far better, than people just watching there videos do, that's why I don't push my opinions on anyone else. I just love being part of a community that understands what I am going through and that is a great comfort to me in itself. God bless all the parents bringing up there children with special needs you are all amazing in my humble opinion. ❤❤❤
@arosad
2 жыл бұрын
Being an autism parent comes with constant research and yet, it’s never enough. Melatonin has side effects with long term use (insomnia, mood swings, aggression). I thought I had done a good enough job researching side effects and spoke to our pediatrician and neurologist. Both initially recommended even higher doses than I chose to give my son. When he turned into a raging pre-teen that was almost my size, I had no idea until I took a deep dive into his meds and started the research process all over to try an pinpoint a potential source. We are just parents trying our best and you guys are doing a great one. I’m happy to hear the med change is being handled well and continues to be well into the distance future. Thanks for sharing.
@epic_rshutterbug9226
2 ай бұрын
My son is 3 a recently put on melatonin 1mg? Is this a bad idea?
@tiaryan1350
2 жыл бұрын
You guys are doing the best you can as parents. Were all learning humans... 🦋 Bless Ian's heart.... I wish him the best.
@littlejonathorn6860
2 жыл бұрын
Its Simple: Your Ian’s parents and you choose what’s best for your kids! Don’t let anyone tell you differently!!!
@JD-zh5nv
2 жыл бұрын
That's a simplistic attitude to a complicated responsibility. It's about what is actually best for a child (not the adult). Just because a parent decided something is appropriate for a child it doesn't mean it is.
@littlejonathorn6860
2 жыл бұрын
@@JD-zh5nv Ok
@beanj580
2 жыл бұрын
But Ian cannot chose for himself, so his parents make the best, most informed decision they can. That's the point
@games_bond7221
2 жыл бұрын
Hey guys, I have commented on most of your videos. I suffer from an anxiety disorder as well as atypical autism. Watching your channel makes me feel more "normal" and I appreciate that very much. You helped me through many tough times and I want to thank you for that. I wish Ian all the best, he is a very nice guy!
@iCUBAnitaStar
2 жыл бұрын
I’m a single mom of an autistic child. It’s hard but I have chosen to not medicate him. I hope Ian is doing well. You are great parents because you’re doing everything for your kids well-being.
@JZGreengo
2 жыл бұрын
Jeez
@winterdream5710
Жыл бұрын
@@JZGreengo "Jeez" what
@serendipitysisters84
Жыл бұрын
Everyone is different 😊 some are so very different 😮 I have been lucky enough to have a number of autistic children in my school at the same time, and my goodness it’s crazy how different each one is! People are already so different as it is, it blows my mind haha
@yasemindag1958
Жыл бұрын
Hi from Turkey. Mother of 4,5 years old autistic boy. We started abilify today. I was questioning the use of meds for a year, with so many doubts and sadnesses. I am well informed that this isn’t a cure for autism but that it helps the self-regulation and that way, accelerate the learning process. I forced my son, myself and our therapists to do all with education but at some point, I felt blocked with the increasing aggressivity of my son, with also his increasing physical strength. I am not dreaming of miracles with medication and I feel still sad and I am still questioning the destiny. But… watching your video reminded me that I am not alone. Thank you, thank you very much.
@AutismFamilyChannel
Жыл бұрын
You are very welcome
@mizgalles817
2 жыл бұрын
So we had to immediately take my son off Abilify after he experienced significant TD like movements. He's 8. I took him to the ER after my aunt(Nurse) saw a video I took of him sitting in my van. She said get him to the ER before he has a heart attack. I never really gave much thought about someone saying "something will make your heart explode", until I saw what the Abilify did to my son's heart rate and blood pressure. We were able to stop the TD movements and switched him to Guanfacine ER which is an extended release. Consider looking into it. He takes Guanfacine for the behaviors and we added Sertraline to help with mood and anxiety. Both are much easier on the child body.
@kristinal.4285
Ай бұрын
Apologies for asking only now, as two years have passed since you commented, but was wondering if you remember what was your son's daily dosage of Abilify? Thank you
@kayleighkuhlay
21 күн бұрын
I would also like an update and dosage. This was a useful comment.
@shortsauce
2 жыл бұрын
I personally find the short meltdown clips extremely helpful. My first born has autism and I honestly never knew whether he was having a tantrum verse a meltdown when he was younger. I sometimes would discipline meltdowns when I definitely should not have because of not having any other autistic kids to compare to and just not knowing. Your videos have helped me so much in such a short amount of time. Thank you💕
@aveRywired
2 жыл бұрын
I believe I have TD as well. A few years ago I was prescribed some brand new antidepressant with a booster when I was not actually depressed, just had a bad period of anxiety. I had random laughing and crying spells at the time which I'm pretty sure were seizures, and I still have jolts in my head/neck, arms and hips with occasional tremors. It can't be confirmed but all I know is that I never experienced these before that medication. Glad you guys are advocating for Ian on this and I hope everyone is doing well.
@Fierce_Faerie
2 жыл бұрын
As a child who was in that situation, all people helping always said meds were better for me. They made me a shell of a person. My anxiety was inseparable to who I was; any little thing would trigger my ocd or normalcy causing meltdown. I have tried using all the meds possible that Fda approved, they made me and my anxiety worse daily, as well as made me hate this earth and my life. But on the other hand, PRN meds for anxiety is what works for my meltdowns. I pray for you and your fam during this major developmental time.
@Mistressillyanna
Жыл бұрын
What wonderful parents. So calm and genuinely looking to share and help educate others. I've suddenly been plunged into this with my 15 year old who has always shown signs of being different but due to a recent health scare has developed health anxiety and spasms/extreme tics. I'm in tears as its been 3 weeks of dealing with him in a constant panic. I've never been so worried in my life. The whole family is exhausted. Thank you for your videos as I know I'm not the only one and that hopefully one day we get our children comfortable and happy x
@marjanvermeulen9753
2 жыл бұрын
Hi family! Thanks for the video! I don't jude about what is good or bad for Ian. You are the parent and you know what the best is for him. Autism is an every day struggle. I know that, because I have autism. I hope that the children, you and your wife are very well. And thanks for what you do. Making the video's and everything to educate about autism. I look forward to the next video. A big hug from the Netherlands! 🇳🇱😃❤🇺🇲
@angcruz5635
2 жыл бұрын
My son was taking that medication as well. I noticed him having tics and tourettes. He started meds at about age 6 then weaned him off by age 10. The side effects stopped after a month. His behavior worsen before it got better. But I worked with him all day to help him live without meds. He never had to take meds for ADHD/Bipolar after that. He is a grown adult now. I worked hard to teach him how to handle his temper, meltdowns and tantrums. He is a grown independent father now. He is living a normal productive life. He went to school and now works. Doctors are too quick to put our kids on meds instead of trying other methods. Each case is different but I believe many kids are put on meds when they shouldn't be. Risperdal, lithium, and other meds to treat ADHD,Bipolar, Autism.. can cause serious side effects.
@aliviacarter8926
2 жыл бұрын
Special needs teacher here- I have been watching your families videos for 3 + years and want to give you an applause for the work you both do when your children. A lot of my students have been getting off the same med bc years on it have led to involuntary twitched and even causing stuttering when speaking (this is very common) also as you mentioned the growth of breasts is another effect. Abilify seems to have less harsh effects so I hope it works out for you guys!
@rewatchme7365
2 жыл бұрын
I just read this and my eyes had tears now.. I had 4 years old son same situation... Thanks for appreciation its give us more hope
@NickyJohnK219
2 жыл бұрын
You are great parents with great boys you’re awesome 🤩
@NickyJohnK219
2 жыл бұрын
@Dr Yuching Lee ok
@meanyapickles
2 жыл бұрын
I can't imagine how scary that would be to find out that the meds that were helping so much may have been causing a whole _new_ problem. That must've been terrifying... I'm a student, and I'd just like to thank you for all the resources you've put out here with your experiences. The footage is fascinating and very educational
@gigischaumburg4289
2 жыл бұрын
Yeah. My son with autism was prescribed 8 different meds. One day at a restaurant when my son took one new pill...I witnessed clear cut immediate dyskinesia! I ordered our food wrapped up and went straight to the ER. Some time later my son asked me if he could go off his 8 meds. He said he "felt like a zombie." I weaned him off gradually. Now he only smokes medical cannabis (California). Some kids with extreme behaviors need meds. It takes a good shrink to work with finding the right med, or combo of meds. It is an art. I think most docs are essentially still clueless about autism, and just throw whatever med they have at the diagnosis. Basically they are all psych meds. I will never risk tardive dyskinesia again...watching that happening to my son was it for me. He is fine self regulating with cannabis most of the time. A therapy animal, also a tremendous help
@carolinebeckwith948
2 жыл бұрын
Absolutely love you guys, as parents all we try to do is help our children to be their best self, to have a happy and healthy life. Clearly sometimes children have to be medicated there is no choice as they are not happy and can't live a good life, i hope you manage to fine the mix that works for Ian. My asd boy is 12 and currently not medicated at school he normally keeps it together quite well but sometimes he's a bit out of control at home, medication is always in the back of my mind but for now we are doing ok mostly, sending love to you all from the uk❤
@emilyt.2317
2 жыл бұрын
I hope that the new medication works for Ian. I can relate to having a adverse reaction to a medication, mine was to an antidepressant. Hang in there Ian you’re doing just fine, and we’re all proud of the young man you’ve become.
@zeldagamelover24
2 жыл бұрын
I agree with you on this but please do be aware that if a child is on medication for a long time, not only can their bodies get used to it, but going through hormone changes can also have devastating consequences i (now 26) was actually on the same med set Ian was on for most of my childhood, when i got older about 13-14 ish, I was having bad side effects from the meds and we had to switch meds and made sure it wasn't a name brand switch. plus new interactive toys to keep stimulation distraction frequent. it helped me a lot and has helped a lot of the people i know on the spectrum as well, puberty and meds effects everybody differently as well as doses like half a pill to a whole, liquid form vs hard gel pills, environmental, seasonal, surroundings, etc. It just takes time to figure out which is the best way to effectively help redirect negative into positive, as much as us autistics don't like change, its actually a lot more healthy for us to have change. wish you guys all the best on your journey
@josevladimiraustria2736
2 жыл бұрын
I’ll pray for Ian so he’ll get better.
@joshuhamiller8891
2 жыл бұрын
I am thankful for your family, the information you disperse, and showing how you are navigating the A-life. God bless your family in Jesus' Name!
@cheriedodd9358
2 жыл бұрын
Much respect to you and your wife! I admire your resolve not to quit, but continually try to make the best life possible for your children. Please know that your videos are a huge help to others. One thing we have had to learn through our own experiences with autism.... We did the best at the time with the knowledge we had! It took a therapist to tell me that to get over the guilt!
@patosborne9014
2 жыл бұрын
I love your family, I understand the trials and tribulations you as parents go through having children with autism. God bless you all. ❤️❤️❤️❤️❤️
@derekaldrich4887
2 жыл бұрын
I hope ian is doing OK
@katherinekeller4149
2 жыл бұрын
Just want to say I'm finding these videos helpful related to the possiblity of working closely with a high-functiong austistic college age student for my job. They give me some ideas of what to expect in terms of quirks, how to explain things, how to set boundaries, how to redirect to a task, ect.
@justsomerandominternetuser6379
2 жыл бұрын
My input (Autistic, 24 year old female here) is: -Set a routine (we love our routines, it reduces anxiety) -Make rules clear -Give him/her a few breaks -Refrain from using idioms, sarcasm, etc until after you get to know your student on the Spectrum. -We tend to take things literally, so that’s why I say that in the last ‘bullet.’ (I’m guilty and have a hilarious story about that if you want to know) -You might notice repetitive motions or speech (hand flapping, rocking, biting/chewing, etc.) don’t stop them from doing these behaviors unless it’s hurting them or others. Those behaviors help us calm down and cope with sensory overload. -Sensory sensitivity (light/brightness, noise, touch, smells, etc can be too much. Everyone is different. Ask your ASD student what sensory input bothers them. Sensory overload happens when there is too much of one or more senses becoming overwhelming. -There may be one or two areas of interests (trains, cars, science, math, TV shows, etc) that they know pretty much everything about, and would be ecstatic to tell you everything about it. These are referred to as ‘autistic special interests’. (My special interests are medical science and music.) -Some to most of us ASD people don’t understand social cues like facial expressions and body language. Some of us don’t understand our own feelings too. (Guilty of both) I have more, but I don’t want to overload you haha. Please reach out to me if you have questions. I’m not a doctor or therapist, but I have autism and I’d be happy to help. Have a fantastic day, friend!
@Ginabina76
2 жыл бұрын
I am an avid comment reader because sometimes I pick up 1 thing...1 tiny thing that helps me with things im dealing with my kiddos. I never made the connection our daughter is on this med and she's having more severe of the common side effects you mentioned. In all the looking into i did before letting her take the med I never saw td. Never. I didn't want to play the medication game with her but we had to. We would love as parents to not have to have our daughter take them but with her issues its just not possible. I feel for everyone dealing with this. Its not easy but we can all help each other! 💙💙💙
@billybandyk0720
7 ай бұрын
Ginabina76; U did NOT have 2 have ur daughter on psych meds. U blindly trusted the mental health system & the so-called "chemical imbalance" philosophy. Had u taken the time & done research RE: psych meds (especially in "treating" autism), u'd have a better idea of how toxic psych meds really r. It's also called "informed consent".
@ksthoughtpalace3042
2 жыл бұрын
I am an adult on the spectrum and very much appreciate your channel. For over 20 years I've gone through the medication issue...For me I've had to weigh the following: Effectiveness vs. Side Effects vs. Organ toxicity vs. Compliance vs. Desire to 'not need help' and on and on and on. Right now I am in a semi-Non compliance phase. However, of all the best for me regarding outbursts, anger and extreme irritability was Trileptal. Like you say about Ian, it was night and day for me. Only when I stopped taking it did I realize it was, or seemed to, buffer my sound sensitivities which are a huge source of anger and irritability. I could say a lot more about all of this. But will just say Thank you again for your work here on the channel.
@laiyinko5814
2 жыл бұрын
You and your wife are great parents!You do the rights to your kids!Add oil!(meaning is endeavour)!God bless all of you💪🏻
@doctordavidchan1044
2 жыл бұрын
I'm 19 and I've have ASD, ADHD and other disorders. I've been on medications since I was 11 (the UK mental health services are really bad and it takes years to get any form of support). I used to take anti-psychotic medication along with some other ones, I was then given ritalin which turned out to work a lot better, especially since weight gain was a side effect of the anti-psychotic. I think you're an amazing KZitem channel and family and I wish you all the best.
@AutismTwinsUs
2 жыл бұрын
We’re in England , and my twins both on the spectrum, it’s a very difficult situation and as you say the mental health service in the uk isn’t the best, can I ask do you personally feel medication is useful for you ! Regards Adam
@doctordavidchan1044
2 жыл бұрын
@@AutismTwinsUs the medication has helped a lot more since it was changed from an anti-psychotic to ritalin, in addition to sertraline and other medications.
@joecardona3809
2 ай бұрын
You guys are amazing parents. I have two boys with autism. I understand completely. I have done many medications 💊 but I have chosen to go natural approach. Herbs. Natural juices. It’s not easy but we are trying Never give up. We are the best doctors for our children. They are blessings
@Oulaya96
2 жыл бұрын
I just want to say…You and your wife are amazing parents, I have so much respect for both of you…And your son’s are lovely 😊 Stay strong 💪 and positive 🇲🇦
@Sarah.Stringer
2 жыл бұрын
We have a a high functioning autistic son who is 9 and is on multiple medications. It is so frustrating when it doesn't react to him well and causes more aggression. We are really struggling right now :( we so badly want the same to not have him on medications but we would constantly live in fear of what he could do or would do to himself and others. My son also takes a quick release risperadone when needed but is on Invega for his aggression and his dose was just increased today. We are praying it helps. Thank you so much for your videos they are so helpful!!! You guys are doing incredible!! Also we are going to try a brain balance assessment at a Brain Balance Center to see what they say about our son because we are out of options.
@AutismFamilyChannel
2 жыл бұрын
We will pray for you. All the best.
@andrewditch1658
2 жыл бұрын
A lot of medications had effected me and my communication problems and involuntary movements and many side effects. Rersparadal gave me bad side effects. Most of antipsychotics had overestimated me. Abilify had caused me body Jenkins, problems communication, problems responding to me and my environment. Abilify helped me with my anxiety, behaviors and actually it had the only medications that had helped my sensory problems that no other medications ever helped my sensory problems.
@andrewditch1658
2 жыл бұрын
Can you try Numanda it really helps me. I take benadryl, help me. I really want to help you. Ean is so much like me. I feel so awful that your son goes through the same things I go through. I want you to know, I am doing good and getting services to help me. I don't want you upset about what I am going through. I have my parents help. I didn't know I had dads help but my communication problems I learned differently. I also agree with ean, life is difficult for us, we feel bad about upset others and after we calm down to realize that we did something bad. Ben there done that. Its just not fair for us to meltdown. My communication problems effects my behavior, namanda helps me with this. My doctors are looking into an anxiety medication for me too. Unlike ean, I have tourrets disorder too. My anxiety effects my tourrets. My autism effects my anxiety and depression. My being in diapers and self care and not having anyone listening to me and my needs effects my depression. I have a lot of support and dad is helping the professionals who want to help me. They have a lawyer who is working on getting me opwdd services again. I had dd services as a child, I also learned recently that opwdd hads records from 1992, 1994, 1997, 1999 on me and because I had providers who sent me to mental health system after getting dd system services i lost my dd services. New York state actually hid that information from my workers when trying to fight to get me services. Now a lawyer is involved i may be getting services again.
@alliefoss1432
2 жыл бұрын
I know all too well of the lifestyle that you're writing about with your son my sister and I have been doing it with her second oldest for 22 years now it's like having a 6-ft 3 two year old tantrums and all split second attitude whole day shot broke out a car window last summer with a shovel because they sent a different worker to his group home the best advice I can give you what you probably might already know is routine inconsistency I find that is so important with these kids so important my son has issues with transitioning from one thing to the next even if he loves both things all he hears you say is we're done doing the one thing that he's doing that at that moment total meltdown it's tiring scheduling picture schedulings visual scheduling knowing what you're going to be doing from one minute to the next ahead of time it just makes so much difference sometimes. The other advice I'm going to give you is too read my comment that I made a few minutes ago about the MTHFR chromosome that's a big contributor to a lot of kids that are like that it causes more aggression things like that look into it not everybody has it but it's quite interesting and it could possibly be exactly what he has going on that's what happened with my nephew and you just recently got tested for it cuz it's pretty new out there well kind of basically some medications more than others and especially multiple ones at once are making them ticking time bombs because their bodies can't process it toxins the way ours can
@autismmomjoy
2 жыл бұрын
I'm trying Bacopa naturally right now HOPEFUL
@allisonmiller6883
2 жыл бұрын
You DONT need to apologize to ANYONE..my god...all you do for those boys...I admire and respect both of you!
@klass6xx
Жыл бұрын
THANK YOU SO MUCH my brother is autistic and also takes carbamazepine and risperidone. In Canada Ottawa the only doctor has a 1 out of 5 rating that treats “autistic adults” neurologically and I’m not so smart with this since he’s my brother. But I can’t take seeing him change and it’s been years and my mom isn’t giving him the meds & I know she’s helpless (I live in a different city - Toronto) but after seeing your video and you sharing this: it gave me strength to know I shouldn’t make my mom feel helpless because my brother will never be. Not when there’s information out there, a sister like me, and amazing community and people like you. That took time to share and post this. For someone that might be curious or on the same road of research. THANK You I might be all over the place with this message but it’s cause u opened that door that I needed the extra push to not lay back and hear but to reach out and speak !!!! Thank you going to find him an MRI doctor and pay out of pocket to start but also get him a doctors app. With his physician asap because similarities in attitude, and even behaviour is so a like in a negative way it’s defiantly the medication (which I know) but just signified it!!! Thank you and hope your family is blessed and healthy!
@mrsmuffinman
2 жыл бұрын
Been a follower of your videos for a few years now, also with three special boys on the spectrum :) Tricky thing with our situation that “trial and error” things like diet and meds will always be a one way thing… always moving forward. We can’t turn back time and have a do-over, or “back to square 1”. Majority of the time it will take months, even years, before seeing any changes and we always pray that they are for the better. You guys are doing an awesome job, your patience is #goals 🙌😁 Also, have you guys considered looking into neurofeedback? We did the recommended number of sessions for our two boys (alongside their therapies) and it helped a lot! We didn’t mention it to their speech therapist and she commented on the marked difference without knowing they had started NF. There’s plenty of videos on YT about it to start you off if you want to know more about it. Lots of love and prayers from us, from the Philippines 🙏
@blackness123445
2 жыл бұрын
thank you so much for posting this video. i know how hard this is and you are the best parents for him actually. its unavoidable side effect of medication which means its never your fault. your main goal was and still keeping your lovely son calm. and by the way there are some medications that manage these symptoms called "anticholinergic agents" you can discuss this with your doctor.
@shawnasipherd9264
7 ай бұрын
02/10/24. I just recently found your channel and I am so thankful. Every single video you post I need to see including the meltdown videos. In fact the meltdown videos have helped me more than anything because I can see so many similarities with my son that it is helpful to see how you deal with it as well know that my child isn’t the only one that acts like that. I don’t know why people have complained about you posting meltdown videos because they are very helpful. My son takes Risperidone all throughout the day and just started Tenex. I super appreciate you referencing medication’s your children take, side effects you’ve noticed and other medication‘s iCan mentioned to his psychiatrist. Again I appreciate every single video you post. Have an amazing day and please keep posting. 🙏😘
@chelseaaragon5657
2 жыл бұрын
My daughter is seventeen and been on Abilify for three years, so far she is ok. She does struggle weight wise, but when she can eat right, she does okay at maintaining a healthy weight. One thing to ask your doctor that I had done for my daughter is genesite test, basically it tests your genetics against all mental health medications including ADHD, antipsychotics, depression medications and it helps understand the absorption and whether it's a compatible drug. It's really helpful and insurance pays, you can ask your son's doctor about submitting one.
@lorainewith1r599
2 жыл бұрын
Nicely said! Our 16 yr old son truly struggles without medication (0.5 mg risperidone & 5 mg abilify) we never wanted him to be on risperidone but it absolutely works for him even at a tiny dose. Unfortunately, he did gain some weight and has "man boobs" but it's a worthwhile trade off so he's happy and calm vs in a constant rage destroying classrooms. You have to do what works for your child.
@ericg808
2 жыл бұрын
Totally relatable here. My daughter is asd. We stayed away from pharmaceuticals thou and chose a more natural route and lots of therapy. it's a long tough road but it's get better. hope you guys find a treatment that works for him. Thank you for your upload!
@deannkennedy1747
Жыл бұрын
God bless your family and Ian! I'm just starting my son today on Latuda for his recent agressive outbursts! He is just started high school and had a very bad outburst in a class so I knew it was time to start a medication so he could feel better! I pray he gets the relief he needs from his anxiety!
@campevergreen777
2 жыл бұрын
I'm autistic along with several other diagnoses related to my autsim. I have been fortunate enough to find the med combo that works for me and the side effects are mild enough that I would rather be on them than off them.
@phincopheles
2 жыл бұрын
don't blame yourself for maybe choosing the "wrong" medication for ian. every single one of these drugs has sideeffects and sometimes it's better to have those than going through life without the good effects of the drug. also diffenrent people react differently to things. it's always a process of finding out what is the best option for each individual. i never took abilify myself but i knew a few people a couple years ago who took it at that time or have taken it at some point in their life. one thing they all had in common regarding side effects was that they were extremely restless while taking it. some ran around a lot, went on long walks in the middle of the night, when sitting tapping their feet non stop, standing up abruptly because they couldn't sit still and so on. i'm not saying this is not worth trying abilify but the restlessmess seems to be a very common side effect which can probably be very stressful over a longer period of time so it might be worth watching out for this. i wish you the best of luck in finding the right medication for your son and hope he feels better soon and can experience life with less stress and anxiety!
@Lisa-gz1dg
2 жыл бұрын
As a parent of children with health problems I know how hard it is to make the decision to medicate or not medicate your children. We can only make the best decisions with the information we have and that’s exactly what you did for Ian. God bless your family.
@carolinaeberstadt8535
2 жыл бұрын
I have a 26 year old adorable Son with Autism, he takes 2.5 milligrams of Risperdal at night. He has take this for years. The doctor checks his liver every year and that is it. This medicine has made a difference in our lives. Can you tell me how many milligrams you would give your dearest Son. Thank you so much for charing.
@maiacushing5543
2 жыл бұрын
Well said. You have very sweet boys.
@AspenPaigeGarfield
2 жыл бұрын
You guys are so amazing to share so much information as you go along and are learning. I’m so proud of my big bro and his beautiful fam! I love you guys! Biggest hugs to Ian for all that he is going through. ❤️
@lori750
2 жыл бұрын
Just wanted to say...the fact that you guys took the comment into consideration rather than responding defensively....says a lot about you both as people and parents. 👍 I pray the road to finding a successful alternative is a pretty smooth and timely transition for both y'all and Ian. Remember to give YOURSELVES some mercy by not feeling too guilty....all parents can do is try....and it's obvious you both try your very best! 🥰 Our "children" are all grown up (30's)😉...I remember what it was like ....giving myself a hard time.... for not ALWAYS KNOWING EVERYTHING. 😏😇
@davef2975
2 жыл бұрын
Having followed you for some time, I am comfortable in saying you most definitely did not make a mistake. One can only act on the information they have access to. As long as effort is put forth to make your best call, it is not a "mistake". A mistake would be either not doing due diligent research or acting on only internet/social media "opinions." As you appropriately stated, every person is unique. Not everyone responds to medications the same way or experiences the same (or all) side effects. (Just as every Autistic person is unique.) If there is a failure, it would be both the pharmaceutical company and the prescribing physicians for not informing patience of new previously seen effects when or as these new findings surface. This would include the tendency to only mention the higher frequency issues and withhold lesser ones. Yes, there will always be potentials for side effects. As a parent, you are fulfilling your obligation by weighing the benefits against other potentials. As Ian gets older, I am sure he will be contributing to those decisions.
@7777Noris
Жыл бұрын
My son is 15 autistic, non verbal. This past summer we saw a change in his behavior and talking to his neurologist, she mentioned guafasin, risperidon, but we opted for Medical cannabis. We are thankful that in Texas, it has been approved for autism. We knew that traditional meds would probably have a more negative effect than the medical cannabis. I hope your son is doing better.
@vanessaperalta5340
Жыл бұрын
Good evening Nora H I have a question What kind of medical cannabis can they prescribe for kids with autism?
@juniormako6184
Жыл бұрын
Your herbs has work wonders in my family. Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
@DerekChristiePhotos
2 жыл бұрын
Just wanted to reach out and say it’s ok mate. It’s ok to have doubts about what is right and what is wrong when it comes to meds. We had the same thought process and ultimately the same outcome last year. Blair has gained huge weight since starting resperidone around 7 years ago. It’s a common side affect. Before lockdown he started supported living but due for poor staffing we brought him home again. The next 18 months were great. He was a joy to be around. We did loads of trips on (vids on this channel) and we looked forward to the future. Then I read about weight gain issues and the meds. So we very slowly weened him off them. First couple of months were ok. This was during lockdown. He’s has several massive meltdowns during lockdown. Routines smashed, shops closed, day centre closed etc. I figured maybe the meds made no difference. Month three of meds the violent attacks ramped up. He looked very unhappy almost all the time. We had to have e police assistance three times. He’s a big lad. He’s back on meds and much happier. He’s still his happy self but they don’t make him weird or zombie like that some have suggested to me. Just a happy boy. Sure we still have the odd outburst but it’s a few seconds of temper because it’s time to finish something or the shop was closed etc. Anyway, just wanted to share as a long time viewer, first time commenting as we’d gone through this too. Take care, love to the family.
@laynielenz2k
2 жыл бұрын
I, an autistic woman who btw used to take risperidal/risperidone, will keep y’all in my mind and prayers
@tylerpatmore6975
2 жыл бұрын
I'm autistic and your doing really great for your sons
@jeffreymarcum9053
2 жыл бұрын
I work in a group home for men with autism Days are rough lack of communication skills makes it difficult to understand needs and wants when you get in the meltdown period things feel lost or just overwhelming but patience is key and that continued attempts at communication to figured out what can help It's extremely exhausting just to be a full time worker there and I couldn't imagine not getting atleast 10 hrs of silence in my house after work bc of how loud it is
@cmoney1111
2 жыл бұрын
I appreciate your videos so much. My (just turned) 6 yo was diagnosed as epileptic at 6 months, severe ADHD at 4 years, dyspraxia at 5, and just within the past two weeks, he received a level 1 ASD diagnosis (which we KNEW was coming). While i am so thankful that NOW we will have better access to resources to help him adjust to life…it’s overwhelming. What would you recommend as a “first step” to parents of newly diagnosed kiddos? Ours is having such a hard time at school, and we are at a loss. We have no idea how to help him regulate his nervous system, emotions, anxiety, etc. and we do t really know where to go to ask for help. Any advice is welcomed. Thank you for these videos, truly.
@dfresh229
2 жыл бұрын
Hi. I am profoundly autistic but have finally thrived pretty well. A doctor prescribed me haldol when I was in a serious shutdown/meltdown in a major life transition in my early 20's. I had very severe tardive dyskinesia within maybe 24 hours. I figured it was the medicine and symptoms stopped right away when I quit taking. I was thrown around like demon posssessed. Worst day of my life. So frightening and devastating that I could not pull out of the shutdown for quite a while because of the severe trauma that caused. I would say severe PTSD from that trauma. I am 71 now and still refuse to take any pharmaceuticals at all. I do understand the need for something for uncontrolled disruptive and destructive behavior in school and elsewhere. Some can tolerate the anti-psychotics and show some improvements. I just cannot. I know you do best you can and boys are well taken care of. I see you watch any meds you try very closely and will change course if it looks negative with a particular drug. God bless you. It's tough. You and wife show a lot of love and caring.
@juliaowens7864
2 жыл бұрын
I have autism also
@nancyalmasaood2955
Жыл бұрын
Hi as the mother of a 29 year old autistic man , I to had to learn as we went along. ABA worked until puberty then we had to put him on medications. Each person is different so each medication is. We went through 3 different meds until we ended up with Zoloft . This medication comes with terrible stomach pain for the first month but now after 10 years it’s still working to reduce his severe anxiety . Good luck and my thoughts are with you daily.
@hap9915
2 жыл бұрын
I know you dont think this, because you just keep doing your best for the love of your child. My life looks so easy when I see such bravery in battle.
@missmaggsmaloney
2 жыл бұрын
You are wonderful parents and definitely not to blame for these side effects. Like you said you don’t know what you don’t know. The meds are doctor recommended. God bless you always.
@XxXfromEmily
2 жыл бұрын
I dont have kids with autisme nor have any kids at all I Just think you guys do a great jib tk educate People alot and I have huge respect for the way you deal with it. Thank you
@amberallen4181
Жыл бұрын
Everyone tries to judge parents for trying these medications but don't have to take care of the child daily. And your exactly right there is no perfect medicine. Our son is 9 and he's getting stronger by the day Im worried.
@MariahDedeaux
2 жыл бұрын
Hi I have a couple question for you guys my first question is why do kid with autism run away for school and or home is it because they are curious about stuff and one more question how can you explain or tell your parents you think you have autism and one more why when Ian was young or with all of you kids have you ever considered getting and autism service dog and I just want to say I love you guys KZitem channel and your family and I hope things get better with your family love you guys.
@AutismFamilyChannel
2 жыл бұрын
They run away oftentimes because they get overwhelmed. We thought of a service dog, but we are doing our best to put food on the table for our kids without worrying about food in a doggie bowl. We love dogs though ;)
@keithfloydjr4014
Жыл бұрын
Risperidone in the beginning for our 15 year old Autistic son worked surprisingly well- we put him on it to reduce his aggressive behavior, which became a problem at his school and at home. For the first couple months it really did a good job, he was less anxious, less irritable, and not aggressive at all. That was then, NOW he's developed a strange swallowing problem, where he barely wants to drink or eat anything, almost like he doesn't have feeling in his throat. His doctor has advised us to take him off immediately, this was yesterday and were waiting to see what happens when the drug clears his system. Has anybody else seen this from Risperidone? Thank you for your channel, it's good that we're all in it together- God bless
@Sanjorii
2 жыл бұрын
That was not a poor choice, 2nd generation antipsychotics are less likely to cause TD as the 1st ones, but it is always possible. Alas, there are not so many approved options for children. Keep in mind that Abilify alone can cause or worsen agitation, aggressive or sexually inappropriate behavior. You are great parents, God bless your family.
@darmihebanks2178
10 ай бұрын
I agree with everything you said as an austic adult I understand 100% but yes when you stop does drugs it will definitely give the individual withdrawal symptoms which will definitely be worst than before and while using the medication but it's just for sometime, I advice you to introduce his best music, more frequent cool bathing, realxed environment with less noise and isolation, you can't be going through withdrawal symptoms and send him to a gathering,he needs excess love, watch over, care, attention at that period and most Especially stop giving him these foods containing excess sugar or salt, carbonated drinks, soda, ice cream, fermented foods, cocoa, coffee or beverages, excess milk, cheese, bread and banana. Processed and fast foods, gluten rich foods thank me later. Do this first will tell the rest later 💋🤗
@ashleyo7
11 ай бұрын
My son has been on resperidone for about 4 or 5 years old. In the beginning I though this medication changed him so nicely. He was so much happier etc. but for the last couple years we have been dealing with this same thing. I honestly started to think my son had tourettes. I took him to the hospital once and they doubled his resperidone dose. I am now with a specialist and she has been helping us get off resperidone. My boy is practically constantly jumping out of his skin. I am so happy I found this because I am 98% sure this is what is going on. This will give me that little more push to continue on with his taper. I just hope my son can go back to normal. It’s so hard to watch him like this.
@ashleyo7
11 ай бұрын
Has there been any update videos I can find on this. Have things improved for your son?
@jalcal2460
2 жыл бұрын
I hope you saw my Facebook comment. Education never hurts !
@rachellewhite4054
2 жыл бұрын
Thanks for the video. I have two on the spectrum. Both boys exhibit physical aggression, and self injurious behaviors. One son is on Abilify (we keep upping the dose), and the second son is on Risperidone. We still haven’t found that one medication that we felt gave us the most reduction in physical aggression. I’m not expecting anything to take it all away completely. Hopefully one day. One of my sons has PDA autism. Trying to figure out how best to approach him has been a huge learning experience.
@clFer777
2 жыл бұрын
we are starting with risperidone in my boi (7 years) , two months, entrance dosification.. and meltdowns got better.. but sometimes I see him with some "stims" I am almost sure never saw before.. as some sequences of repetitive short head movements.. But as you said if we just take them off, he will be having 5? crisis a day? (he is still discovering that) I'll be on the watch 👍
@joycerivera8133
2 жыл бұрын
Yes .. I go though the same thing with my daughter...I'm glad I read this message.
@angiekarr3648
2 жыл бұрын
My daughter is autistic as well, she went through all of the antipsychotics out there. She is now 18. She has opted out of medication. She resents the fact that she was treated with antipsychotics when she is not a bipolar, schizophrenic, or otherwise mental health impaired person. She is autistic which is a neurological disorder. I do not know the answer for Ian. I understand meltdowns 100%. My daughter still has them. I deal with them every time she has any type of an emotional situation, such as a change in the household, moving furniture, new visitor, when I have to leave, knowing she's going to have a doctor visit, if she has an accident of any type dropping something, spilling something, etc. The way that I have learned to handle her emotional outburst situations is to let her take her time to work through each episode by bouncing, we're taking time in a room, putting on her headphones and listening to music, drawing on her tablet, paper and pencil, etc. Medications were Band-Aids for her. However they caused her to gain weight lose weight cry have worse depression withdraw from everyone and eventually School. I ended up having to homeschool her because she did not learn to handle the situations she only learned medications. I would be happy to give you some more ideas on how we learned to deal as we have learned a lot throughout her lifetime if you are interested feel free to message me at amkarr99@gmail.com unless I have frustrated you
@ariana____grande3861
2 жыл бұрын
I have a 8 year old girl with autism and nonverbal and I totally understand you you guys are a great parents god bless you all
@jeanmorgan5410
2 жыл бұрын
We have gotten our grandson on a lower dose of his medicine and doing ABA he is doing better now
@mikenapoli6798
2 жыл бұрын
I have a nine year old boy severely autistic with Jevones syndrome and I believe medication makes my son's aggressive behavior worse!!He used to be such a loving care free person and now sometimes his aggressive nature is very bad!!Thanks for sharing the video and God Bless!!
@caitlynmarks2680
2 жыл бұрын
I completely understand about meds I am on 3 different meds one is for adhd and one is for anxiety which is new and one is for my mood so yeah
@MarinaLopez-db3bb
Ай бұрын
Awe I feel sorry for Ian and why he's off of medication and having a hard time I feel bad and sorry for him😔😢
@vanessalang2018
2 жыл бұрын
You guys are doing great. On the medications, I would say give it time for it to work, especially when switching medications. I’m autistic and have been on medications so I completely get where you’re coming from. Also too, maybe let Ian’s teacher and school know why his symptoms are worse. Just a thought. You are great parents (I wish my father had been as patient with me as you are with your boys).
@vanessalang2018
2 жыл бұрын
Add puberty to the mix and it makes it hard on them and everyone around them.
@emmy6830
2 жыл бұрын
How is Ian doing? I hope he is doing well! Sending best wishes to your family 🙏🏼
@thescorpion360
Жыл бұрын
I'm coming back to this video because I'm concerned about my son's behavior and I'm considering putting him on medication. He's 7 years old now.
@thescorpion360
Жыл бұрын
I'm always thankful for your videos. It gives us hope that things will get better. God bless you and your family.
@AutismTwinsUs
2 жыл бұрын
As a parent to twins on the spectrum we’ve had issues with medication, even actually taking it is a nightmare for all involved. It’s hard enough to even decide to use medication especially when it doesn’t seem right
@denises3779
2 жыл бұрын
He was being bullied it's a normal reaction to defend yourself. My daughter is autistic. The kids loved her but then they knew who her mother was. I never put her on meds. I put her on alot of therapy sessions at the age of 4 til 16. She had behavioral, occupational, and speech. The therapies helped her learn how to engage. She's 19. The symptoms are much better BUT she has to have things to do or she relapses. The kids she were around didn't bully her because alotof them had siblings or family members with disabilities. They were taught respect. Kids who bully most times have parents that's the same way. If will continue to happen as along as we stay quiet and keep allowing the abuse
@nathanjw940
2 жыл бұрын
I have been there when you are on edge little things set you off. It's like winding a top and knowing anything can set it off. Sometimes social media comments are great no doubt spot on. The joke is I am the hulk most of the time I am calm but when I am not you and everyone else knows. My roommate knew our internet was down from the driveway mind you the doors were closed.
@ahtreh
2 жыл бұрын
They tried resperidon for my son, after a week of it, (low) he became really aggressive and his breath went weird. The doctor told me i should give him double the dosis and see how it goes. I told him to puck off and stopped the medication right away.
@AutismFamilyChannel
2 жыл бұрын
dang, sorry that happened. So far Ian is doing well on the meds
@ahtreh
2 жыл бұрын
@@AutismFamilyChannel That is great to hear. Everything about this Channel is btw. You are wonderful. Sad you couldn't continue with the CBD. Tons of hugs and love to your family
@elainewhitelock5347
2 жыл бұрын
My niece was autistic and was on medication from childhood . .She hadno other ailments sadly she passed away before her 23rd birthday. So please take very real care when giving medication. Structure/compromise as u know works wonders and exercise can help sleeping. At least for some.
@mavm6757
2 жыл бұрын
Chanced upon your Channel, just wondering when you have the time you might want to have a look at Adam’s Autism Family (Malaysia Family) where I think they took their boy off meds and using EO to help with his mood. Thanks
@ronnoron3004
2 жыл бұрын
As I commented in another video,I have aspburgers among other mental stuff and I'm on anti psychotics,like depakote,Seroquel,hydroxide,lithium, melatonin for sleep.etc And my wife is on some anti depressants,and was on ability,I was on abilify but it was too expensive and it made my mind feel like it was sinking into sluggish mud.and me and my wife have aspburgers. Yet my dad who is type 2 bipolar (I'm type 1). He said abilify is a lifesaver for him. I think it's just down right crazy for anyone to tell people what they should do with their child,cause nobody sees what life is like with a family and the family dynamics as a whole.i feel that you guys like other trying to do good families are being very humble and very vonerable to let us in on aspects of your life and for that we as watchers should respect. Your privacy,your decisions and be greatful that you are willing to share your story and the ups and downs.
@estibirnbaum3236
2 жыл бұрын
We are starting my son on abilify/aripiprozole can you please post an update how your son is doing with his change from reapidole to abilify. Also how do you control his hunger pains. Is he always asking for good looking for his next meal… also when do you give the medication at night or morning. My other son was on abilify for years started seeing some muscle ticks and lowered his dose seemed to work. It’s a hard balance. I much appreciate your channel so much knowledge and information. Learned so much from you guy. You are incredible parents keep doing what your doing
@CiscoCastillo2015
Жыл бұрын
thanks so much for sharing my son is 9 and his bahavior at school is very aggressive now and hes not a mean kid he cannot help it when he is over stimulated or has no access and gets a no on his request for junk food routinely daily even.
@sealladybug
2 жыл бұрын
Ian is so big now! I remember when he was so young
@osteopathichomeopathicking6154
Жыл бұрын
Hi, I can't comment on autism, but I can comment on prescription medications and doctors & pharmacists who do not have any knowledge of side effects or choose to completely ignore them. I was put on a blood pressure medication in my late teens, and it completely fatigued me, I couldn't focus, I felt exhausted all the time. I read the pamphlet from the drug store and found nothing; I asked the pharmacists if it was a side effect to be sure. I returned to my doctor who didn't know what it could be but suggested I could be depressed. Long story short 20+ years later I was in the middle of moving and forgotten my blood pressure pills. Withing a week off of them I felt like I was 19 again, tiredness completely gone. I did an internet search and found the product monograph and there it was a 3.8% chance of extreme fatigue. I asked the pharmacist in my new town, my new doctor, and NONE had a clue, they even suggested that I did not know what I was talking about. I had to tell them look, I'd rather be dead then go back on that medication, before ANYONE would listen. I have had a plethora of side effects since then with multiple medications since I've had an organ transplant. I can tell you the doctors deny, deny, deny, and the pharmacists are completely useless. It's not your fault with regards to your sons medication. It happened to me, it can happen to anyone. You really are completely on your own and it is a harsh lesson. I lost years of productivity, my life of what were supposed to be the best years of my life to the sheer incompetence of doctors. Some search terms anyone can use in google are "post marketing reports, FDA, product monograph, + the name of the drug" usually that will bring up what's known. As for Psychoactive drugs of which I've been on 3 for my "depression" and I can verify that theey all made me violent and aggressive. Sure enough, the doctors, pharmacists all denied it, but in the post marketing reports ono the product monograph I found "violent and aggressive" in all 3. Here is just 2 lines from the product monographp for Cymbalta: • new or worse irritability • acting aggressive, being angry, or violent Yes, all the doctors and pharmacists denied, it, I thought I was crazy, until I saw that, other thought i was nuts, and rightfully so. I almost killed someone while I was on this drug. You know those high school shooters from Columbine? You guessed it, one of them was on another type of SSRI. They psychoactive drugs are dangerous, in particular the SSRI's and the doctors will just deny, deny, deny and leave the patient holding the bag. Be careful with these scumbags, and best of luck for you and your family. Much love.
@janalewis
2 жыл бұрын
I completely understand. I am a psych major and have high-functioning autism. If it weren't for my medication, I would be having panic attacks every day from intense anxiety. But, unfortunately, because of how my family and I try to change my medications, I would go into a deep depression. And because of taking medication for years, I can not sit still anymore, I can not stop shaking. Tardive Akathesia is no joke.
@loverainthunder
5 ай бұрын
You're certainly not to blame. We depend on doctors.
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