Charlie is described as a loving, nurturing, and caring girl who brings light wherever she goes. She loves makeup, glitter, and outdoor activities. Taylor, Charlie's mom, shared the initial symptoms that led to her brain tumor diagnosis, including loss of balance, headaches, and early morning vomiting. Taylor emphasized the importance of having a doctor who listened and took her concerns seriously. Charlie underwent a successful tumor resection surgery and was diagnosed with Medulloblastoma, specifically the Sonic Hedgehog subtype. She received chemotherapy and had an Omaya reservoir placed for direct delivery of chemotherapy into her spinal fluid. Taylor highlighted the challenges of the posterior FASA syndrome and the importance of home-based therapy for Charlie's recovery. After Charlie's initial treatment, she started to feel better and had clear scans. However, in November, she became irritable and her scans revealed tumors all over her cerebellum and spine. She underwent surgery to remove the tumors and then received radiation therapy. The surgery was successful, and the radiation helped clear the remaining tumors. Charlie had a period of no treatment and enjoyed trips and experiences. However, in June, scans showed tumor spots on the rest of her brain. The medical team discussed options, but the prognosis was not optimistic. They decided to focus on oral chemotherapy to maintain Charlie's quality of life. In this final part of the conversation, Taylor discusses the importance of seeking second opinions and finding a medical team that is willing to fight for their child. She shares her experience of switching to a new hospital and how it has made a significant difference in Charlie's treatment. Taylor emphasizes the value of community support and offers advice for parents starting the cancer journey. She encourages never giving up hope and being present for families in practical ways, such as offering help with household tasks or providing emotional support. Taylor expresses her gratitude for the community and the strength it gives her.
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Brain Tumor Awarenesss | Charlie's Story
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