I had a long-distance friend who had mitochondrial disease. We met online, and we talked about once a week for nearly two years, until one day, I stopped hearing from her. Then I googled her name one day, a year later, and found out that she’d died from her mitochondrial disease. She apparently passed peacefully in her sleep. I knew that she was in bad health, and she had mentioned that she couldn’t work or go to school because of her condition, but she never told me what it was. RIP Sarah. I hope one day, we can read fanfiction together again, in another life.
@luansteinberg-cole9925
2 жыл бұрын
My grandson and granddaughter have mito. They are doing wonderful.
@janbaldwin1189
2 жыл бұрын
In my role as a special education teacher in the early 90's, I worked with a child with this disease. She was delightful, happy, intelligent, curious and hungary for every bit of knowledge she could access. As she grew, she slowly lost her ability to move independently, as well as the disease affecting sight and hearing but this did not affect her zest for life. She had the most wonderful parents and brother who supported her in any way they could. I retired in the late 90's as she moved onto high school and I moved to another province. This the 1st time I have every heard about this disease outside of the amazing child I worked with. I pray everyday that research can assist children with this disease lead a full and active life. Thank you for sharing this video.
@stevenpryer5880
Жыл бұрын
PLASHET WARD LONDON 18TH JANUARY 1933 19TH FEBRUARY 2003
@george_2172
Жыл бұрын
Thank you for contributing help to children with special needs 🙏
@yy5380
Жыл бұрын
Sending positive thoughts. What a beautiful family. Thanks for sharing to help others.
@katherineayers5586
Жыл бұрын
Am so glad you've moved to the Seattle area! THAT has probably saved your little boy's life AND your family life together!!
@george_2172
Жыл бұрын
God bless you Caylum 🙏
@souldawn2187
2 жыл бұрын
What a cutie pie 😊God Blessed you 😍
@sarahmoore268
2 жыл бұрын
Hi God bless you to all your family love you
@jenaanderson9558
2 жыл бұрын
My 5 year old nephew is being tested for this now he’s been having seizures for 4 weeks 🙏🏽
@kharhhy
2 жыл бұрын
Beautiful guy 🤗
@lindapearson3411
Жыл бұрын
Jesus still heals today! My family have all been healed!
@lela8081
2 жыл бұрын
My niece die:( also had this.. she was born healty and then after two month she started to have seizure:( She was three years old and extremly sick. Wish you all the best
@emileelloyd9588
Жыл бұрын
My 5 year old nephew is being tested for this now he has been having seizures for 4 weeks.
@richardtucker5686
Жыл бұрын
Try pre-mastication. Any mitochondrial disorder will have missing enzymes, and incomplete digestion. Pre-mastication can replace those missing enzymes with a healthy donor's saliva in the food.
@katiebuerk6913
Жыл бұрын
My son’s name is CaylEm but pronounced the same he is 15 yrs now
@kymclinton3140
Жыл бұрын
They spelt his name wrong they meant Callum
@terimills6191
Жыл бұрын
They know how to spell their own child's name. FFS
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