This guy Ricardo is so clear and open with information. I wish he was my Neurologist.
@TorieRobinson
Ай бұрын
Awww!! I shall pass that on! Thank you!
@CarolynFahm
Ай бұрын
Thanks Torie.
@TorieRobinson
Ай бұрын
Pleasure, Carolyn.
@davidkalyuta2304
28 күн бұрын
Thank you! You’ve explained things in a very easy way! 🤓
@TorieRobinson
28 күн бұрын
Glad it was helpful!
@RickyCranefield-nc8rb
16 күн бұрын
Can anyone share experience of tiredness gets any better as time goes on.
@ValerieHardy-y3y
Ай бұрын
This has been the only pill that’s been able to keep my seizures at bay and I’m so happy to have found it. I take 100mg a day along with Topamax. It does make my anxiety a little high, but I’ll live with that in order to not have seizures. It’s been a blessing honestly. It took a little while to stop everything (as in my non epileptic seizures as well) because I was still having auras too, but that stopped as well. 💜
@TorieRobinson
Ай бұрын
This is wonderful to hear!!
@DeirdreLennon-vk5hc
Ай бұрын
Hello Valerie what type of aura do you have? My auras are my hands will shake. My heart starts beating fast. I feel like I'm having deja voo. I feel like I'm looking outside of my body. My legs will start jumping.
@lizziewhite9339
Ай бұрын
Nhs fail me yet again... neurologist started me on 50mg I compared to the leaflet that says 15.5mg I emailed them but trusted the specialist.... didn't get back to me for a week I felt awful!!! I was like a zombie no quality of life compared to when I did have seizures.... turns out they made a mistake... why am I always a mistake of the nhs..... I've been told this will not stop my epilepsy but they want to try reduce my seizures while I wait for surgery..... I wouldn't rather not be on this and have seizures I recover better....
@lizziewhite9339
Ай бұрын
Sorry 12.5mg
@kayleighclark2831
Ай бұрын
I got started on 50mg also. Been told my epilepsy will never fully in control though definitely don't need extra anxiety as I'm trying to fight off non epileptic siezures just now. Glad you are capable for surgery good luck 💜
@TorieRobinson
Ай бұрын
Gosh, good luck with the surgery!!
@kayleighclark2831
Ай бұрын
Great video! I tried this 4 years ago with no change in mynl other meds that I got so dizzy (walking into walls) so I refused to keep going and am only on 50mg of it now. In a few weeks I'm going into epilepsy quarries to try it again they have already reduced my clobazam so i now feel more confident this time around👍
@Sydopath
Ай бұрын
Silly question - what is epilepsy quarries?
@TorieRobinson
Ай бұрын
Thanks for sharing! Fingers crossed it all goes well!!🤞🏻
@kayleighclark2831
Ай бұрын
@@Sydopath It's scotlands Epilepsy Centre. Definitely not a silly Qu. The word 'Quarries' makes me think of a prison 😂
@kayleighclark2831
Ай бұрын
@@TorieRobinsonThanks so much 😊 💜
@Sydopath
Ай бұрын
@@kayleighclark2831 Thanks. Funnily enough I’m from Cathcart, Glasgow. But been living in Bristol for 20 years. Good luck with the meds, it’s hell when you’re dizzy. I had to go to A&E 2 weeks ago when I thought I was going into a tonic-clonic They gave me that Clobazam and a potassium drip, and I was recovered in 2 hours. That’s why I’ve got it prescribed now.
@lizziewhite9339
Ай бұрын
It definitely has worsen my anxiety I had a non epileptic seizure since starting this and I haven't had one since December I guess they are going to claim it untill they can't anymore
@DeirdreLennon-vk5hc
Ай бұрын
Hello I have absent generalized seizures. I take Lacosamide 200mg and Keppra. Do you think it Cenobamate will help my absent generalized seizures?
@TorieRobinson
Ай бұрын
For any medical advice you need to speak to your qualified clinician. We do not provide advice on this channel.
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