I hate being so tired I want to have energy and sleep doesn’t help. I miss everything before this… it all hurts so bad
@samoshaman9399
7 ай бұрын
Are you recovered
@mxsjshs777
5 ай бұрын
Same, how are you doing now?
@samoshaman9399
5 ай бұрын
@@mxsjshs777 maybe you use too much phone if you feel pain behind your eyes then it might be one of the reason of tiredness
@TheDetoxCureGuide
4 ай бұрын
I recovered so you can too.
@tahasabry6942
3 ай бұрын
@@TheDetoxCureGuide how
@dancer49lives6
Жыл бұрын
I'm so debilitated by fatigue. I fight depression just from the stress of not understand why I feel like I'm dying just to do VERY simple tasks. I was so hyperactive almost. Everything he said in this video to help, I am doing except possibly the healthy eating bc most times I am too tired to either shop for food and def too tired to prepare it. I'm always worried. I'm in my 50s but I shouldn't be helpless.
@6inthestix
Жыл бұрын
Shop online hun xx I hope you are doing ok ❤
@memoriessomeonewewillnever732
Жыл бұрын
I have a similar issue. 😔
@connor9899
Жыл бұрын
Im sorry know the feeling 😢 I’m only 25 and exactly the same. Waiting around for doctors appointments not knowing why you feel this way. It’s so frustrating 😞
@patriciamartin6756
Жыл бұрын
DearDancer. I have chronic fatigue syndrome too , dear. In my case it was years of stress. I was a caregiver to a patient. Just as he was recovering from organ failure, I got sick. Now he takes care of me. I spend hours every day sleeping or resting. I have NEVER DONE THIS BEFORE. I NEVER LET ANYBODY DO ANYTHING FOR ME. MAYBE I SHOULD HAVE. BEST ADVICE IS GET SOMEBODY TO SHOPP FOR YOU ONCE A MONTH. MY LTR HAS CHRONIC FATIGUE TOO. I HE STARVED HIMSELF FOR 3 YEARS BEFORE I MET HIM. HIS ORGANS FAILED. NOW WE ARE TRING TO EAT HEALTHY. LOTS OF VITAMIN SUPPLEMENTS. YOU WILL RECOVER
@barbaraferron7994
Жыл бұрын
@@6inthestixI get too much brain fog to shop on line.
@marcusdoolette1547
7 ай бұрын
Latest research shows that graded exercise therapy and cognitive behavioral therapy are NOT helpful in this disease, and especially GET can cause serious relapses that are either permanent or take an extremely long time to recover from. Pacing is the recommended technique for dealing with CFS, though it is not a therapy as such. You really should update this video. I have to say as someone who has has this illness for nearly 25 years that this video is a bit glib and does not even mention the roughly 25% of patients for whom it is so severe that they can never leave their bed and need full time care. Please do some real research if you are going to try and explain CFS to people. Its a disease that takes your active life away and leaves you in limbo, alive but not alive. It needs to be taken very seriously.
@Jennith777
2 жыл бұрын
I think it’s important to note for people that graded exercise therapy can make many of CFS/ME patients worse, especially if we push ourselves too hard, too soon, which is easy to do. A better recommendation may be strictly aerobic exercise (and perhaps stretching and/or mild weight training keeping heart rate within aerobic range), to tolerance. Tolerance may increase very slowly over time, but do not push it, or the post-exertional malaise will kick in, and be difficult to settle down again. I find following exercise recommendations for POTS to be very helpful. So far, I hve worked my way up to short and gentle walking, though I still struggle with tachycardia and post-exertional malaise from taking a simple shower. I hope that the walks will eventually help me with showers. Easy does it, going slower means getting better faster. Good luck, everyone!
@darkunicornblood5140
2 жыл бұрын
Omg showers are soo difficult! I totally understand that.
@that_dam_baka
Жыл бұрын
I have a plastic stool for when I'm washing my hair in the shower. My tolerance dipped. Like, I can do "regular" stuff for a day (exams) but then I crash for 4-7 days. It's like I'm running purely on willpower. I also lose vision temporarily and my head always hurts. Can't tell if it's this, my existing conditions, or a neurological condition. Or a combination. I'm not diagnosed though. How does testing work? Can rhuematologists evaluate me?
@worldview730
Жыл бұрын
True dat, like yin yoga, or hatha yoga, Ti chi, , etc.
@ryanodonnell4184
Жыл бұрын
Graded exercise was based on fraudulent data and is now contraindicated for CFS. NOBODY who has ME/CFS can benefit from GET. It makes the condition worse.
@mopaditi1737
11 ай бұрын
I used to run up and down a mountain 4-5 days a week. It was my meditation, fun, passion. With ME I haven't even been outside for months at a time.
@philipancell516
2 жыл бұрын
Nobody wants to believe you're sick with it.
@EddieLancelot
6 ай бұрын
This is so true. It's one the least glorious illnesses to have, and there's an element of shame for not being able to contribute like you want to. I was in denial for 10 years, and when I couldn't make it through the whole work day anymore, I could no longer deny it. I hope everyone with CFS has as supportive a family as I do; otherwise, I don't know how you can handle it.
@kimberlydavis5034
2 жыл бұрын
Chronic fatigue syndrome isn't fun at all and it's not a joke. We're not lazy people. It's our bodies just don't want go. I already have had rheumatoid arthritis for almost 19 years now and osteoarthritis and other medical conditions. Hereditary disorders believe me I know all about that. I feel like a medical experiment in a cage because I have so many medical conditions and disabilities and limitations already. I don't even want to be diagnosed with anymore. It's stressful enough with everything I have and being in excruciating pain and suffering from the minute I wake up till the minute I go bed. Then I roll over and the pain in my spine and hips wake me up. I'm overwhelmed with everything and sometimes I get tired of fighting to just stay alive. Straight truth.
@donna7926
2 жыл бұрын
Hi Kimberly, I'm sorry about your health issues! Your probably sick of listening to doctors but I'd like to tell you about Dr Berg, he's on KZitem and he's made some short videos about chronic fatigue that helped me, hoping the same for you! Love from Australia!🌼🦘🌼🦘🌼🦘🌼🦘🌼🦘🌼
@kimberlydavis5034
2 жыл бұрын
I'm slowly loosing my ability to walk completely. I have accepted that I can no longer walk anymore. I walked as long as I could. God knows also that I can't keep trying to walk. I've had 46 falls already. Everyone expects me to keep doing everything like I use to be able to years ago and I can't do everything anymore. I'm waiting patiently for my motorized wheelchair that their building me. I laid this heavy burden at the feet of Jesus Christ. I'm stuck in bed in excruciating pain today and my hips, spine and knees don't want to hold me up today so I'm in bed trying my hardest to rest and not think about the excruciating pain in my bones.
@mazterx1204
2 жыл бұрын
@@kimberlydavis5034 I pray that the Lord Jesus Christ would heal u. Believe and trust that he died for ur sins was buried and he rose again the third day. his blood washes away all ur sins. He’s coming soon and u will get a new incorruptible immortal body
@mazterx1204
2 жыл бұрын
@@kimberlydavis5034 try cutting out gluten
@mazterx1204
2 жыл бұрын
@@kimberlydavis5034 try cutting out gluten
@cecehughleynoel
2 жыл бұрын
Boy, is this information outdated. CBT anD GET have been debunked. Double check the CDC website for more updated information. And BTW, you gloss over the term, “ malaise”, but the feeling of unwellness is more like having the flu; sore throat, swollen lymph nodes, fever, severe myalgia and “weak as a kitten”.
@DrakeN-ow1im
2 жыл бұрын
Indeed. This video is quite unhelpful in so many ways and quite wide of the mark in others.
@gumogumonopistol7491
2 жыл бұрын
It took me over 3 years to recover from it. But I still need to get enough sleep. Otherwise symtoms come back.For those who are suffering, stay strong and get well soon Friends!
@laureldodd1867
2 жыл бұрын
I have it & it sure is hard
@danielolugbodi6504
2 жыл бұрын
What did you do to treat it
@deansanton
2 жыл бұрын
🙏
@mihakavcic7237
Жыл бұрын
"Lucky Lucky you" Me too from 8.5.2019 to 20.10.2022. We are so lucky that we come out of it...
@alien9209
Жыл бұрын
@@mihakavcic7237 how to come out of it please help me
@cjv5690
2 жыл бұрын
I've had fibromyalgia/chronic fatigue for years. I'm now 65 years old & I seriously don't have the energy to delve into studying reports.......
@kitdriscoll1288
3 жыл бұрын
Most (or all) the people I know who have suffered from CFS also have fibromyalgia and have a history of prolonged trauma and stress. THAT is the underlying factor and the link. Adrenal fatigue is also related. See Dr Berg on naturally supporting the adrenals. That's what has helped me. Eat healthy, adequate rest, build joy, destress as much as possible,.and support/nourish the adrenals ....prayer is also very helpful.
@kcam3683
3 жыл бұрын
It is unwise to generalise so greatly. “THAT” may be the the underlying factor and link that you can see in the group that you know. However, that is not relevant to ALL sufferers of CFS. HPA axis malfunction, together with immune system problems, serotonin imbalance, and viral infection (plus others mentioned in the video) play a hugely relevant part too. Prayer could be grouped into anything that brings positivity and joy to someone as a useful tool - such as walking in nature, building joy as you say etc etc or a placebo effect. Long Covid is a newly discovered condition creating many CFS type symptoms and it may be that CFS is broadly related to a viral syndrome from some point in a patient’s history.
@kitdriscoll1288
3 жыл бұрын
@@kcam3683 it's true across the board of dozens of trauma survivors I know. And I watched the video ....it verifies what I've seen AND witnessed.
@kcam3683
3 жыл бұрын
@@kitdriscoll1288 I appreciate that’s what you’ve experienced in dozens of cases, but in millions of cases that there will be - trauma and stress will not be the determining factors. That is a statistical impossibility. It is what you have experienced, not what all have experienced. That’s why the contributing factors are more varied and very specific - as detailed in this video and as specified by experts.
@kitdriscoll1288
3 жыл бұрын
@@kcam3683 just go with what you know. It's okay.
@lagatita1623
3 жыл бұрын
If you have constant panic attacks does that cause adrenal fatigue?
@stephaniemccord6100
2 жыл бұрын
I have suffered from CFS for years due to extremely stressful circumstances. It's terrible to feel drained all the time and doctors I've seen tell me it's just aging.
@bonniedunbar6717
2 жыл бұрын
I am older also and the last year I have been so tired! My blood work is good. I had a epidemiologist increase my Levothyroxine for sluggish thyroid. But one thing is I am always cold! Like freezing especially in my feet but BP is good. Hope you feel better soon. Life is crazy!
@stephaniemccord6100
2 жыл бұрын
@@bonniedunbar6717 thanks, you too!
@lindatannock
2 жыл бұрын
That's called gaslighting. Lots of docs tell patients with ME it's just age, just depression etc 🙄. Ticks me right off. It's inexcusable
@mikecarey1990
9 ай бұрын
I can help you.
@stephaniemccord6100
9 ай бұрын
@@mikecarey1990 No one can help me.
@alexandrav4463
2 жыл бұрын
PLEASE Do more research before your videos because cognitive behavioral therapy and exercise therapy are no longer acceptable treatments for ME/CFS. Yes CBT might help with anybody dealing with any type of anxiety from having a chronic illness. But it is not a treatment for this condition. Mainly they thought that it was in people's heads and not a physical disorder so they thought that CBT and graded exercise therapy would be something that would help. Graded exercise therapy is extremely harmful for people with CFS and makes people much worse. It is good to move when you can when you feel as though you have enough energy but you need to Pace yourself. Pacing is a good skill depending on your level of severity. If you want good information about CFS please look into the open medicine foundation
@ShoshiPlatypus
2 жыл бұрын
Very well said. Couldn’t agree more. I was very pleased with this video as I heard him describing all the physiological aspects, until the end when he trotted out the tired old mantra of CBT and GET. He mentioned nothing about pacing, which may not be a “treatment” as such (there is no treatment for ME anyway), but it is a very useful management technique on a day to day basis, to help stay within your energy envelope.
@christinedunn5709
2 жыл бұрын
Exactly and it’s disappointing that this video mentions CBT and graded exercise. It prevents it being a resource for sharing because it serves to reinforce incorrect perceptions and information, which can be much of the battle when dealing with this condition. One of the reasons those two treatments were axed from official advice was because ME sufferers were getting markedly worse, some even made bedridden. Then there’s the shaming and belittling practised by many alleged medical professionals. Continuous Professional Development doesn’t seem to be as thorough as it could be in medicine. The World Health Organisation defines it as a ‘Neurological Disease’ and that feels correct to me - almost all the symptoms I suffer from are neurology linked.
@ShoshiPlatypus
2 жыл бұрын
@@christinedunn5709 Couldn’t have said it better myself. This sort of video does nothing to improve general public and professional attitudes to what has been proved to be a neurological disease. So disappointing, because the video started out so well and seemed to clarify that this is a physiological condition and not a psychological one.
@CJ-lj9fb
2 жыл бұрын
What is interesting in all of these videos is the total lack of recognition of the role of detrimental drug side effects (ie. GI tract and microbiome damage) or nutritional deficiencies that result from a diet of ultra-processed, high sugar, high omega-6 diet, along with dairy and gluten, common issues related to this and many topics like gastric disorders.
@matthewarmstrong5558
2 жыл бұрын
OK, you have a point, but once you have repaired the damage (In my case, SIBO, SIFO (candida), Leaky gut leading to intolerance of dairy and grain.) After repairing all that, I still have fatigue. So I agree that things are worse due to the impacts of gut health, but even long after, the problems can still persist
@margaretcorfield9891
2 жыл бұрын
This may be true for some sufferers, but then it is also true for some non-sufferers. It is not a precursor or a cause of ME/CFS. I think you need to be careful when you make generalisations. People with this condition are desperate to feel better, and it's unfair to offer a solution, which at best will only be useful to a few of them
@krispi7109
10 ай бұрын
@@margaretcorfield9891a few is better than none
@Suzielougy
2 жыл бұрын
I've had this since I was a child, I have always been exhausted and needed more sleep than most. I was also diagnosed with Extreme Anxiety and Panic disorder as I got in my teen years. I am in my 50's now and the anxiety has morphed into being apart of who I am but it's not the same as it was when I was younger. My anxiety now consists with depression and isolation which is the total opposite of my teen years when I was horribly scared of being alone. Now I love being alone, I have always been weirdly sensitive and feel others emotions which causes anxiety and depression. Almost makes me LOL saying it all out. Ain't life grand!?!? LOL!!! Seriously though, I grew up in the 80's and mental health was a hush hush thing, my sleepiness made me miss a lot of school. I would be up all night with anxiety and then exhausted the next day. Horrible way to live, glad I outgrew that. Yoga and mind talk help me so much.
@JsPrittyKitty
2 жыл бұрын
Who told you the story of my life? I swear I could have written this post myself. It can feel nearly impossible but do try to stay in touch with the world, friend. The isolation is so very tempting (I know; I am actively trying to pull myself out of a spell 🙂) Life was meant to be shared. I hope that today you can find your way to the sunshine for a bit of peace and a smile.
@Suzielougy
2 жыл бұрын
@@JsPrittyKitty That was the sweetest reply, thank you! It's a daily battle to stay in society. I can't even watch the news any longer, it is just too much! You take care as well! Prayers you continue to win in your battle!!! Much love!
@dorisbaker7066
2 жыл бұрын
I can remember being so exhausted that I couldn’t lift my head off my desk. Early grade school . I also have SAD and depression among other things that go along with fibromyalgia.
@J_Willis58
2 жыл бұрын
I’m reading this with tears. I’m also in my 50s and this illness and depression has ruined a lot of my life. I’m no longer able to work although I hope to do some volunteering soon.I, too also feel others emotions and I’m annoyingly super sensitive. I feel embarrassed at times as like you I grew up in the 80s and it wasn’t a condition you shared with anyone. In fact, I felt a lot of shame and still do at times. I wish you well.
@justinbeard2024
2 жыл бұрын
Look into being an Empath, that will explain a lot
@RachelHardy
Жыл бұрын
i fell asleep watching this LOL
@dotcassilles1488
2 жыл бұрын
This video seriously needs an update... Please anyone wanting to know the latest information available, please do your research, read the comments below and ask questions of your doctors and specialists... Treatment should be tailored to your needs... GET may not help and may even harm you... This breaks that often quoted rule = FIRST DO NO HARM. Please make sure the people you ask to help you are up to date with treatments etc. Blessings, Dot
@valpurves45
2 жыл бұрын
Graded exercise therapy is now regarded as more harmful and ineffective as of 2022
@lindatannock
2 жыл бұрын
GET is not a recognised way to treat people with ME nowadays. That's outdated information. Not only is it an old fashioned way of thinking, it's extremely dangerous for their health (as is recommending yoga as a form of "rehabilitation" or exercise). Not only can it be extremely harmful, but it can also make patients' health permanently worse. It's hugely patronising towards the sufferer as well, to insinuate that if they just pushed themselves a bit more that they'd get better. Seriously? Would you tell a patient with a broken leg that they're mistaken, and if they only just push themselves they'll be able to walk on it just fine? Do you honestly believe people will lie in bed in a darkened room just for the hell of it? Give up a career they've had for decades? Also, any CBT associated with ME isn't treated like with any other chronic illness. Patients are told they can think positively to get better, whereas patients with other chronic conditions will be taught how to deal with living with a chronic debilitating condition. See the difference? I can't believe this was posted only months ago tbh. No wonder so many ME patients are still being seriously harmed by doctors who obviously have no clue how to treat people with this often serious condition.
@courtneydodds3412
2 жыл бұрын
I was diagnosed at the age of 24, I've had this since September 2019 and it still runs my life- thankfully not as bad as it used to be but I've had to limit how much I do massively. Before CFS I had two jobs, one full time and one part time, have my horse to care for and would also help friends with their horses. Have since had to accept that I only have one job (which I struggle with at times) and still care for my horse with help.. luckily I have been able to speak with a specialist but my last appointment with them is next month.. This is an illness I wouldn't wish on my enemy
@mulanimulani3483
2 жыл бұрын
How were you diagnosed? Blood test or just based off your symptoms
@courtneydodds3412
2 жыл бұрын
@@mulanimulani3483 mixture of both, lots of different tests and blood tests to rule everything else out and once they'd ran out of everything else it could have been I was diagnosed and referred to a specialist
@mulanimulani3483
2 жыл бұрын
Thank you for your response. What type of specialist do you see? They’ve ruled out all the auto immune deficiencies for me . My doctors believe I’m just lazy but in reality I’ve always ran low on energy since a child.
@courtneydodds3412
2 жыл бұрын
@@mulanimulani3483 it was a specialist for chronic fatigue, my doctor's referred me to them
@user-bx1vx8yd1q
2 жыл бұрын
I hope each new day brings you closer to a full and speedy recovery ❤️
@sallygreavesbrown1396
2 жыл бұрын
Having been a sufferer since my late 20s (now in my late 50s), in my opinion, this video is spot on. I wish more doctors would watch it.
@sallygreavesbrown1396
2 жыл бұрын
@@anstriagreenwood3365 I'm sorry things have not improved for you during all this time.
@carrols.hawkins7770
2 жыл бұрын
I totally agree with your assessment. I was finally diagnosed in my mid 30's. I am now 76 y/o. The worst thing is that I look fine, but am 100% disabled. Remember, laughter is the best medicine.
@sallygreavesbrown1396
2 жыл бұрын
@@carrols.hawkins7770 so sorry to hear that.
@Kim-ri1hg
2 жыл бұрын
Same here. I was diagnosed at 25 after having mono. I’m now 53 and it has been rediagnosed as Fibromyalgia in my 30’s and 40’s. Now I am being swept under the menopause bus. I’ve just adjusted to living in chronic pain and fatigue. Every doctor has an excuse as to what causes it. And wow when they find one thing like a bout of low iron, or allergies they blame that too. I just need someone to fix this. Over 25 years of chronic pain and fatigue and brain fog. Life is too short to feel this way.
@gumogumonopistol7491
2 жыл бұрын
@@Kim-ri1hg Are you still having those problems?
@kaykayyyyymwaa
2 жыл бұрын
Also new studies say that it is no longer considered a psychological condition or disorder. It is actually physical.
@lipsyloo
2 жыл бұрын
oh its physical...I have it and it's awful, I used to be a marketing manager, was a party girl and loving life...in 2013 I got very poorly and unfortunately mis diagnosed with a viral infection over several visits to the doctors over 6 weeks..I eventually got rushed to hospital and there I was diagnosed with meningitis, and then 2 days later I was diagnosed with glandular fever and my liver packed in..let's just say I was very ill.. ok so 6 months after recovery, I had to go back to the doctors due to feeling the same tiredness that I had experienced when my liver was down...the doctor said it may be linked to the glandular fever that went undiagnosed therefore left untreated..after another 4 years of absolute misery, I was diagnosed with M .E (chronic fatigue) I've now had it nearly 10 years and its destroyed practically everything I was before and probably what would or could have been my future. lovely to see that people are interested and giving input it really does help. The more people who know about the condition the better to help understand how to help a loved one or friend with it. Thanks for the upload 😊
@kaykayyyyymwaa
2 жыл бұрын
@@lipsyloo I feel like I lost my life as well. I unfortunately had a baby, a toddler, and teenagers too. Unfortunately they had to suffer along with me in a sense. Prayers for recovery.
@lipsyloo
2 жыл бұрын
@@kaykayyyyymwaa I'm sorry to hear that, I only had the one son who was about 7 at the time so I dread to think how hard it has been for you and the kiddies! Thank you and I hope you get more good days than bad and also sending prayers your way 😊😊 thanks for your reply Xxxx
@gardenrose264
2 жыл бұрын
Amazing how it was regarded as being something we just imagined and we should pull ourselves together. I was diagnosed 15 years ago but it took a long time to get there. Thank you for explaining ME/Fibromyalgia. Perhaps now we will be taken seriously when we are not well.
@judihart9658
2 жыл бұрын
Doubtful.nice thought though.☝️there's lots of money to be made for them 1st.😉how long has cancer been around?😎🙏💪💖✌️
@lindatannock
2 жыл бұрын
Graded Exercise Therapy is extremely outdated (yet still mentioned here). I'm sorry, but don't expect to be treated any better with ME than in the past. The medical profession still lives there, unfortunately lol
@dansmith9724
2 жыл бұрын
When you hear cbt/get as a part of a treatment plan for cfsme, turn away as fast as you can. The largest study on cbt/get by the UK on cfsme, was eventually after hard legal work to get the documentation of the study, shown to have results falsified and actually harmful to patients. If cbt/get was so good for immune disorders, why isn't it the main treatment for HIV? Because they don't want to take patients seriously even though there is plenty of physiological research to back cfsme up.
@footstol66
2 жыл бұрын
@@lindatannock yeah while I was in the best shape of my life and a personal trainer I literally had a doctor look me in the eye and tell me to fix my issues I just need to excercise and eat healthy. I was stunned.
@a.c.e7407
2 жыл бұрын
I'm done...my condition has grown so severe my body basically has no muscle left, and it's just been so hard. I've been secretly crying in my room everytime I see my body in the mirror, when I get palpitated and dizzy just by standing and my legs wobble. I don't have any hope of recovery anymore, I have lost everything because of this disease. My clothes just are too big now, and I have so much loose skin I am thinking of wrapping something around myself when I go out. I am so tired and honestly depressed because no matter what I try, no matter how positive I stay, it keeps.getting.worse. I...I have not said this to anyone except the strangers on the internet (I mean you lovely people). I have been praying for a car to hit me, or a poison in my food or pills. I am constantly wishing for death because I can't live like this. I am holding on one last strand that maybe some doctor can pull a miracle and help me, and I am giving it 4 months. After that...I rather be at peace and ask god to forgive me, than to suffer and be a burden to my family. Has anyone here, actually recovered?
@mariahjulstrom5787
2 жыл бұрын
Please update this video! The National Institute for Health and Care , NICE, (British) have published new guidelines for ME treatment. GET (graded exercise therapy) and CBT are NO LONGER RECOMMENDED!
@Jalle6673
10 ай бұрын
They recommend Graded Exercise Therapy??!!! The PACE trial done in the UK that allegedly indicated that GET and CBT were beneficial in CFS. It was found at the data had been manipulated. Unfortunately, the CBT that they used, was primarily trying to convince the patient that there was nothing wrong with them, rather than being a supportive environment that helped one adjust to their limitations. GET may help chronic fatigue, but not chronic fatigue syndrome. There is a difference. Chronic fatigue can be caused by lack of exercise causing deconditioning. So of course gradual exercise would help improve that condition. But CFS is not caused by deconditioning. They need to get their facts straight here.
@Nealiousgayus
2 жыл бұрын
Been sick pretty much all year, fibro runs in the family was diagnosed with it 2 years ago. Sleep 12-15 hours a day and am still tired, tried other ways of sleep as well. Lymph nodes always swollen, stomach always in pain and i work. I go to therapy, i take the meds, i do as told. Nothings changed. Starting to think it wont change been so tired for nearly 7 years now, nothing i try works.
@thatkidflossy2792
2 жыл бұрын
what meds do u take?
@Nealiousgayus
2 жыл бұрын
@@thatkidflossy2792 vistaril, hydroxyzine, albuterol, and now chantix daily. Been using tylonal to rid myself of some of this sickness
@thatkidflossy2792
2 жыл бұрын
@@Nealiousgayus what kinds of meds are these? anti depressants or something to do with your immune system.
@Nealiousgayus
2 жыл бұрын
@@thatkidflossy2792 anti anxiety, anti depressant, inhaler, and stop smoking agent
@redarrow7088
2 жыл бұрын
@@Nealiousgayus I don't know where you live, but there is a Dr in Las Cruces NM who has helped a lot of people using vitamins and minerals. (See Arthur Berkson) Somehow chemicals do not seem to help CFS. He does a lot of testing to determine viral loads etc. As long as you are on an antidepressant you will never feel better. It is a Dr go to when they dont know what to do....
@electraheart7745
2 жыл бұрын
I’m tired all the time and I’m not even 30 yet. I’ve been diagnosed with anxiety and depression since I was 19 I’m 25 sometimes my body hurts all the time.
@danielolugbodi6504
2 жыл бұрын
Felt that, and nobody really understands
@happysoul5556
27 күн бұрын
Get well soon
@kaykayyyyymwaa
2 жыл бұрын
I've read in many many studies that Cognitive therapy and graded exercise therapy are no longer recommend for ME/CFS. Can you make an updated video please?
@lindatannock
2 жыл бұрын
Agreed. Its very outdated!!
@gumogumonopistol7491
2 жыл бұрын
People who recover from (or at least get better) it do exercise bro. I believe further research needs to be done. No one can give exact treatment plan yet.
@saaramohamed8921
2 жыл бұрын
This is so depressing. I was training for the taekwondo Olympics but I got IBS (potentially IBD) but now I feel like I have CFS. I just cannot even stand now or do basic day to day tasks. Moreover, I feel like I don't have my previous level of intelligence or brain functions. I find it so hard to concentrate in classsss
@letsgaintogether8959
9 ай бұрын
How are u now?
@angusyates828
2 жыл бұрын
Pfizer vaccine gave me chronic fatigue. Haven't been the same since.
@jjmedicine
3 жыл бұрын
I hope you all found this lesson helpful and informative! Thank you to this lesson's sponsor, Chegg. Check out the link in the description to receive $5 off your first month of the Chegg Study Pack.
@skylinefever
2 жыл бұрын
I tried so many things. I just feel like my body has been giving me the middle finger for the past 20 years of my life. I can make it less bad, but I never get to be normal. I got mono back then, and was sick 2 years. I was never the same afterwards. I don't know why someone can't just invent a damn pill already, pharma companies make so many others.
@larryc1616
2 жыл бұрын
CBT and GET are not treatments for CFS. CBT is no use and GET makes it worse. UK's new NICE guidelines for CFS/ME has abandoned GET.
@gilliangriffiths9769
2 жыл бұрын
Yes NICE has recognised GET particularly and CBT do not help. This has now been medically agreed
@Vee_of_the_Weald
2 жыл бұрын
Thank you for this info as I was confused
@ShoshiPlatypus
2 жыл бұрын
Thank you for this. I was checking other people’s comments before adding my own regarding this - I totally agree. I was very pleased with this video until the end when he mentioned these 2 notorious “treatments.” I didn’t know NICE had abandoned GET - that is VERY good news!! I was offered this and CBT when first diagnosed back in 2007 but had a gut feeling there was something wrong with it, which was confirmed by my subsequent research, so I declined referral to one of the newly set-up special “clinics” for ME which seemed to be staffed predominantly with psychology experts. It irritates me that ME is the only physiological condition for which the front-line treatments are psychological/psychiatric. However much thinking may have moved on in the right direction over this condition, there is still the underlying implication that it’s “all in your head.” He did not mention pacing, which may not be a “treatment” as such but it is a very useful technique for managing the condition and remaining within one’s energy envelope.
@Susanc06
2 жыл бұрын
How can we do Yoga 🧘♀️ when we can’t even move?
@MarlaPo
2 жыл бұрын
Exactly. People don't seem to understand. Just getting up to get dressed is a marathon
@Susanc06
2 жыл бұрын
@@MarlaPo Exactly, I’m just trying to heal myself. Majorly impossible they think we can do Yoga 🧘♀️ We have to actually get well have normal energy before we can attempt strenuous exercise that will actually stress our adrenal glands.
@liendiep3404
2 жыл бұрын
Yup. They constantly tell me. You need to work out… and I’m like brushing my hair is like running 5 miles. But I learned to get in the tub. Getting into the tub and then stretching works
@lindatannock
2 жыл бұрын
Exactly. They mention PEM, then they say "do yoga" lol 😆. It's ludicrous
@3dholisticreport
2 жыл бұрын
May I request to check out 3D Holistic report in that case. I think it will be immensely helpful to you.
@janmcguire5268
2 жыл бұрын
You do realize GET has been disproven as beneficial and recognized as actually harmful? You need to update your information!
@philmartin7474
2 жыл бұрын
What is GET?
@janmcguire5268
2 жыл бұрын
@@philmartin7474 Graduated Exercise Therapy
@philmartin7474
2 жыл бұрын
@@janmcguire5268 Thank you🙏🏻👍
@MichelleLWhitney
Жыл бұрын
You should not be referencing GET. It’s been proven to make things worse, not better.
@annaberg1200
2 жыл бұрын
I have no help. Not from doctor or family..
@kimkillackey4384
2 жыл бұрын
Anyone have coke?. Kidding. I can sleep for 24 hours. Easily. Its frustrating
@meatybtz
2 жыл бұрын
I have CFS, it's genetic, my grandfather had it, my father had it, and I've had it at several points in my life both as a child and as a young adult then in my late 30s it hit like a mac truck. Doctors refused to diagnose it, despite now going on ten years of reduced function and decline. No one seems to understand the exertional exhaustion or the malaise. And honestly 1 day delayed recovery is "optimistic". If you exert then exert while in the exhaust phase and exert again you start to go down a functional spiral that climbing back out of can take days, even a week to return to previous levels of function and if those rest periods are interrupted by exertion.. then the clock resets. I have what is called disrupted sleep, it's clinically mapped in sleeping studies but no doctor was interested in looking further because there was no C-pap money to be made. I go through a full wake-sleep-wake cycle every 15-20 minutes a pattern that repeats all night. I do not feel rested by sleep. Still 99% of doctors don't want to diagnose it. Don't want to study it. And call it all in my head. I live with chronic ghost pain. I've had cognitive studies show declined working memory set. The loss of concentration. I do my best to regulate my life. I am least given full disability status but no one wants to say the word, cast the diagnostic. I have learned, over ten years, to manage it. But life calls on men to do lots of things, especially fathers. The results can be difficult to handle when people don't understand that I won't get better. No I am exhausted beyond all recognition. That when I get tired i lose proproception. It's awful. Not to mention the pain. The confusion. Lack of focus. Inability to "order sort" or "priority sort" tasks or duties. Nothing like going to open a door and it feels like it weighs a million tons.
@CEBGRACE
Жыл бұрын
So very sorry hold on maybe help soon
@richk322
2 жыл бұрын
I am so sick. This illness is too much for me to tolerate.
@bluesky7704
2 жыл бұрын
Get an alcat food allergies test, and avoid the foods causing you specifically problems
@beefstew4698
2 жыл бұрын
Keep the Faith my friend and stay strong 💪
@lindatannock
2 жыл бұрын
I'm with you my friend. Stay strong!
@nathankrech6203
2 жыл бұрын
Hang in there
@beefstew4698
2 жыл бұрын
God’s got you 💪🙏
@kimmariemarrero9727
2 жыл бұрын
I have fibromyalgia and chronic fatigue real tiredness all the time
@ShoshiPlatypus
2 жыл бұрын
This was a good video initially - lots of pretty sensible physiological data, but you let yourself down big-time at the end with your recommendation of CBT and GET as “treatments” - GET now debunked not only as not beneficial, but actively harmful. ME (I refuse to call it “chronic fatigue syndrome” which is an unhelpful label which perpetuated ignorance both in the medical profession and the general public) is the only physiological condition for which a psychological “treatment” (CBT) is recommended as a front-line treatment. This proves that the doctors are still confused and ignorant about it. CBT may be very helpful as an adjunct for managing the natural negative feelings anyone can experience with chronic illness, but not as a front-line treatment for a complex physiological disease. You do not mention pacing. This may not be a “treatment” as such (anyway, there is NO treatment for ME), but it is a very useful skill to help one manage the condition on a day-to-day basis, and can be beneficial not just physically as one learns to live within one’s energy envelope and avoid the dreaded “boom and bust” scenario, but also mentally, because it can give one a boost, and perhaps a sense of achievement that one has managed to do more than expected. That’s my experience, anyway. I think you need to do more research, and then edit and update this video. What you are saying is extremely confusing to a lot of people. Because of this, I feel obliged to hit the “dislike” button - not something I do lightly, or frequently. I consider this to be a serious matter.
@DrakeN-ow1im
2 жыл бұрын
"I think you need to do more research, and then edit and update this video. What you are saying is extremely confusing to a lot of people. Because of this, I feel obliged to hit the “dislike” button - not something I do lightly, or frequently. I consider this to be a serious matter." Quite so.
@kokobanana1824
Жыл бұрын
The study that showed Graded Exercise and CBT was debunked well before this video was created. No excuse for this misinformation to be included in this video.
@kaykayyyyymwaa
2 жыл бұрын
I believe my symptom onset was after being hospitalized with untreated Strep pneumococcal pneumonia that resulted in becoming septic. I was told that my organs were shutting down. This occurred during a very stressful time in my life with a new baby, a toddler, two teenagers. I was attending school full time legal studies with a 4.0 and this happened right before my last semester. Plus a long time partner (father of my two youngest children) who relapsed back into his addiction. I was attempting to obtain custody of my (step) son, his son after his mother and he both lost custody of him in a neighboring state. Needless to say not having help or seeing him until he was back in recovery. Bought a new house too big to take care of alone with a yard too big to care for working anywhere from 40-70 hours to afford my house. Needless to say it was years of constant stress from multiple directions at all times for YEARS! I have not been the same since. I feel like I'm literally dying sometimes, or just waiting to die at other times when I am unable to socialize, can barely make any appointments, plans, or obligations without trying to reschedule or cancel as I never know how bad I'll feel from day to day. I'm praying to God that he will let me recover to at least raise my youngest children and know my grandchildren. Prayers that we can all recover. Amen.
@SteenyBean
2 жыл бұрын
Praying for you ❤️
@kaykayyyyymwaa
2 жыл бұрын
@@SteenyBean thank you!
@Victoria-qk3mu
Жыл бұрын
I hope things have improved with your health and family in Jesus name
@claudias1019
Жыл бұрын
Estou orando por todos nós
@marisapaola9010
2 жыл бұрын
Vitamin deficiencies play a part, as a coeliac i found taking 10mcg folate,vit B12, multi b combination,vit c and iron helped me, I also took vit d and calcium. It helped perhaps 20per cent, helped slightly with brain fog,which was so bad I could only speak in one word replies. Swayed when I tried to walk a few metres. Find an integrated gp, a bit pricey. I also have aggressive RA, fibromyalgia, chronic fatigue and heart failure. Disabled at age 42, with no answers. Best wishes all. 🐨
@whitebird5383
2 жыл бұрын
I have had ME most of my adult life, since my early 20s. Was not diagnosed until I was 50. I am now 71 and still there is no successful treatment. Unfortunately that is just the reality.
@bernadettegreen7134
2 жыл бұрын
MorkieMom says she ate steak and recovered from cfs in 6 months. I'm like you, White Bird. I'd eat steak 2x daily if it would help. Why would I give up being a full-time real estate broker of 20 yrs., loss of income, $$ to doctors, vitamins, snake oil, can't attend a wedding w/o leaving early, same with church, & been there/still there? BUT everyone says I look grand. I appear well and wear a lovely smile. Perhaps my next career should be an actress. HA..
@lindatannock
2 жыл бұрын
@@bernadettegreen7134 yeah, let's all eat steak lol. I'm thinking it possibly wasn't ME, huh? I gave up a 40 year career. Was exercising 10 hrs a week, and I'm an ex pro athlete. Docs still try to push the "deconditioning" nonsense 🙄
@amywhitaker1862
2 жыл бұрын
I thought graded exercise therapy has been proven to not be beneficial, but instead very harmful?
@tammyvanderstarren5712
Жыл бұрын
Was a good video until you mentioned GET graded exercise therapy. This has been thrown out as a treatment and considered harmful.
@The_R-n-I_Guy
2 жыл бұрын
I don't think this is my problem. But there's definitely something wrong with me. I've always had insomnia. Depression and anxiety. But lately I've been so exhausted for no reason. I used to be able to get through work but need a nap after. Lately I've barely been able to make it through the day. I've had to sit in my car and take a nap at lunch just to get through the rest of the day. It's effecting my work, my family, and it's getting so my wife is starting to worry. I'm barely awake right now. It's hard to type.
@thatpandaz6094
Жыл бұрын
Update?
@leannemo7382
Жыл бұрын
Sounds like CFS. Update?
@drummerjosh1984
2 жыл бұрын
So how do you manage to actually get a doctor to diagnose and treat this? Have had these symptoms for years and tell me doctors everytime I talk to them and they just run some regular blood tests and tell me I’m fine
@lindatannock
2 жыл бұрын
Ger a referral to a rheumatologist. Get them to do all the tests etc. Once everything else is eliminated from your blood tests they may diagnose you with it. My doc gaslit me for years before I managed to get a referral. Insist on it! Good luck.
@Rose-zy6vv
2 жыл бұрын
My teen son developed CFS and POTs and depression after having Covid last May. We found an amazing immunologist who is the one that confirmed the diseases and I am seeking out ways to help support my son. Thank you for the information.
@merlinazz
2 жыл бұрын
Please research about DNRS ( dinamic neural retraining system) it has helped so many.
@christinedunn5709
2 жыл бұрын
Have you tried this yourself? If yes did it work? It sounds v interesting
@lindatannock
2 жыл бұрын
Do not let him do GET!! It could set him back permanently.
@MrGuitarfreak132
2 жыл бұрын
I’m 32 and have chronic fatigue. I saw an excellent alternative medicine practitioner that treated my adrenal fatigue and gut. Also had me eat clean. I let myself relapse with too much stress and too little sleep and poor diet. Now I’m trying to get back better again. Unfortunately I think once you have it you have to maintain for the rest of your life. But seriously get your son to an alternative doc. Western medicine can not help with Chronic fatigue. Drugs are not the solution.
@danielolugbodi6504
2 жыл бұрын
@@MrGuitarfreak132 what some solutions?
@opedromagico
2 жыл бұрын
Mine started at 24, my brother's at around 18 and my step-sister at 8. It's devastating.
@luvalienova6016
2 жыл бұрын
I’m just gonna rant/vent a bit here I’ve had a ton of health issues since birth, including a heart murmur when I was born and pneumonia and the like, and I’ve been struggling to be diagnosed with ANYTHING because there’s so much going on. From potentially cancerous moles (I’ve had like 4 biopsies in the past year) to severe CFS symptoms to heavy ADHD symptoms, there’s so much to sift through. I’m only 17 at the time of writing this, and it is starting to feel like I’m just... defected. I just want to function like the other kids my age, be able to do extracurricular activities without causing my immune system to go on the fritz. I want to be able to do things like travel and experience, but instead I’m confined to my fucking bed because I can’t go a normal school week and not suffer a crash. I’ve been dealing with this since middle school, and it got severely worse after quarantine. And the real kicker- the psychologist I’ve been seeing recently is trying to claim that my CFS symptoms are just my anxiety. My anxiety is not that severe to the point of crashes, headaches, and everything else. He of all people should know this. But yeah, it’s just been a game of checking off what it’s not, sifting through new medicine to see what works, etc etc. I’m tired man. I’m fucking tired.
@mellyo7262
2 жыл бұрын
♥️ hang in there…
@luvalienova6016
2 жыл бұрын
@@mellyo7262 thank you
@lindatannock
2 жыл бұрын
Yeah you know yourself it's not anxiety. Hang in there.
@nathankrech6203
2 жыл бұрын
Find god, I am in the exact same situation, I’ve lost all my friends as I simply have no energy to put into any relationship. I can’t even find the energy to send a text or hangout. All I do is go to school (barely make it through the day) sleep when I get home, watch tv then go to bed, rinse and repeat. Starting to lose hope. I’m hoping something turns around soon cause I don’t know how I am going to live like this
@KB-sv7fm
Жыл бұрын
TALK TO A DOCTOR IN INTEGRATIVE MEDICINE. Many major universities have an Integrative Medicine Department (Johns Hopkins , Duke University , University of Arizona ,etc.) You may have a Delayed reaction to the additives in processed foods. I have a delayed reaction to the Corn Protein (High Fructose Corn Syrup , Corn Starch , etc.) and Dairy Products. It wasn’t the type of problem that Mainstream medicine believes in. People can have a problem with a variety of foods. Processed foods are usually the culprit.
@juceelucee2841
3 жыл бұрын
I was diagnosed with Fibro/CFS in 2005, then found Dr. Jacob Teitlebaum, read his books then made an appt. at one of his clinics. I was pleased with the extensive testing that was done there and the answers I desperately needed to understand why I felt this way. This is a great video Thanks For Sharing!
@Vee_of_the_Weald
2 жыл бұрын
Did you find out what was wrong with you other than CFS?
@KB-sv7fm
Жыл бұрын
I accidentally found out about Hidden Food Allergies (Intolerances). I had a delayed reaction to the Corn Protein (High Fructose Corn Syrup , Corn Starch , etc.) and Dairy. People can have this problem with any food that they eat daily (like Soy additives in processed foods). Talk to a doctor in Integrative Medicine. Many major universities (Johns Hopkins , Duke University , University of Arizona , etc.) have an Integrative Medicine Department.
@lilachrysanthemum7281
2 жыл бұрын
I've been suspecting I have CFS for a while. I've chalked it up in the past to just bad sleep problems and depression and trauma lol. A lot of these symptoms are resonating with me and would explain many things happening in my life. i figured i was just lazy.
@dansmith9724
2 жыл бұрын
Post exertional malaise is a delay in symptoms. Eg you had a day where you had several activities that needed doing. The next 2 days you feel fine and then the 3rd day you are wiped out. That is post exertional malaise. Non restorative sleep, you either sleep alot like 18hrs a day which doesn't help recovery or you get very little sleep eg an hr of light sleep every few hours which can last for weeks. Most cfsme patients condition started from a viral infection. These viruses can remain present in a lytic form. Their immune systems will be dysfunctional with low natural killer cell activity as well as cd8 t cell activity. It's not uncommon to see these people have low neutrophil counts/neutropenia. Inflammatory cytokine counts have been found in many studies. The important thing is to remember it's primary issues are immune dysfunction with high levels of inflammation, severe sleep dysfunction with ongoing fatigue not necessarily tiredness. Things like anxiety and depression may not even be present but if they are, they are secondary features, who wouldn't be depressed with little sleep and energy. These mental health issues are no different to other chronic medical conditions that have them as secondary issues like heart disease or diabetes. Cfsme is difficult to treat so it's common for drs to push pts towards more of a mental health issue than an infectious/immune issues. Some pts improve on long term antivirals, so that is a treatment worth looking into. Most treatments seems to be symptomatic for sleep and pain.
@ninaromm5491
Жыл бұрын
@ Dan Smith . Thank you. Pity your post doesn't come earlier in the thread: many will miss it. Is there any way of speaking to you further about this ? Regards from South Africa
@nickturner992
2 жыл бұрын
This disease should never be called CFS, and it is a real illness effecting the brain and spine. The book below is one of the best to read about this condition. Ramsay's Disease - Myalgic Encephalomyelitis (ME) and the Unfortunate Creation of 'CFS' Kindle Edition by Leslie O. Simpson PhD (Author), Nancy Blake BA
@ShoshiPlatypus
2 жыл бұрын
Well said indeedy!! Couldn’t agree more. I NEVER call my condition “chronic fatigue syndrome” but always ME. This misnomer has done so much harm to people, and does nothing to improve the thinking of the general public or the uninformed medical profession about the true nature of the disease.
@lindatannock
2 жыл бұрын
@@ShoshiPlatypus totally agree
@NothingToSeeHere1141
2 жыл бұрын
I just think more people know the condition as CFS instead of the updated name. I'm with you though . Over time, I think CFS will get phased out as people learn the change. This is the first time I've heard it called something other than CFS, but now that I know, I will refer to it appropriately if I'm discussing it. Having said all of that, I suspect this is something I have been suffering from for a long time and can't get diagnosed. People in general (and one medical professional) literally laughed when I said exercise makes me feel like I'm sick (malaise). They just say I need to push through and it will go away. Tried that for months and it never works, just makes things worse. I have much empathy for you all who suffer from this.
@lagatita1623
3 жыл бұрын
I've heard this often goes with anciety/ depression. I've had that and I think having mono made them all worse.
@SharpPear
2 жыл бұрын
I too had mono...ever since high Epstein bar loads. And bad cfs. ....keep an eye on your Epstein bar. It's linked to serious bad disease.....get panels run when you do blood work. I have been sick w cfs for three years. Now I have an MRI for MS. Which is linked to Epstein bar. Just keep eye on these. I've been trying to get help for three years. Just started to figure out what a monster EBV is. Mold is linked to chronic fatigue. And ebv. Check your house n work spaces. Wishing you good health. Happy Holidays.
@Vee_of_the_Weald
2 жыл бұрын
Mono definitely makes it all worse
@Vilatus
2 жыл бұрын
@@Vee_of_the_Weald Do you know if there’s any studies on this? I’m trying to find out what’s wrong with me. My doctor put me on a drug to reduce mono antibodies and it doesn’t seem to be helping.
@wolfpack7871
2 жыл бұрын
@@Vilatus Epstein Barr virus is caused by mono EBV causes chronic fatigue syndrome
@lindatannock
2 жыл бұрын
The anxiety/depression is often CAUSED by the ME.
@brandyhuff8487
2 жыл бұрын
Diagnosed in 2012 😔 fibromyalgia as well. Few years later, domestic abuse caused irreparable damage to my spine and hip so throw in that and degenerating arthritis in spine as well 😭
@shubhamrc4379
2 жыл бұрын
Hope you heal and get better 💕
@juliacollinson6820
2 жыл бұрын
GET is not recommended by NICE now. Can make CFS worse!
@TinaLouise73
10 ай бұрын
Living in the uk my CFS symptoms worsen during the winter months and then in the summer its just as bad if it gets too hot! I can't win! N it insults n hurts me wen certain professionals tell ME to get excersize! Like an ex dance chreo teacher NEEDS to hear that! If i cud i wud ffusk! I WANT to be as fit and full of energy like i USE to have! But i find it so upsettn to be unfairly labelled lazy and faking my very real symptoms wen its the LAST thing I need or want!
@susanyates2500
2 жыл бұрын
I was diagnosed with cfs after a very bad case of Epstein Barr Virus. That was over 25 years ago. Drs (there were many) found that “good” sleep was the key. A nightly sleeping pill to ensure that I fell asleep and stayed asleep. Relaxation breathing and meditation. I am currently on no other medication and am able to live a normal life.
@lifesong8484
2 жыл бұрын
Wow! That's amazing & wonderful that helped so much with your healing. I guess ppl are different, as having a regular good amount of sleep has never made a difference with my own ME/CFS. This illness is much more complicated than mere sleep deprivation.
@lifesong8484
2 жыл бұрын
@@skylark5789 I wonder how/why. I've been on sleeping meds for over 10yrs & they certainly haven't helped with the CFS symptoms. In fact I'm currently trying to get off them to see if that helps at all. I think they're probably better than if the person is otherwise having almost no sleep at all, but they still do have side effects. Just mentioning so others with CFS won't just shove toxic pills down their throats in the desperate hope that they'll 'fix' things.
@lifesong8484
2 жыл бұрын
^ Also, a lot of ppl are prescribed benzo's to help with sleep, without being told of the dangers of these meds. They are highly addictive & are a nightmare to get off (takes over a yr...my Mum had to have Methadone treatment to help her body survive the detox process). Please ppl do your research.
@tnmtnmorning1178
Жыл бұрын
If only it were that simple.
@ccasey1904
2 жыл бұрын
Adrenal fatigue is interesting. It has been hard, at least for me, to get any real info on Adrenal Fatique, even from my endocrinologist.
@corinnastrouse7544
Жыл бұрын
Graded exercise therapy is no longer recommended. It is now PACE. They found GET to be harming the patients.
@kimberlydavis5034
2 жыл бұрын
Chronic fatigue syndrome is not fun. No matter if I want to stay awake sometimes I just cannot stay awake. I just have to lay down and go to sleep. I have to fight rheumatoid arthritis and osteoarthritis not counting my other medical conditions.
@Amanda395
2 жыл бұрын
So many things can be wrong with you when you have CFS. Too much to remember.
@rickylee1615
2 жыл бұрын
I've had ME for 7 years since I was 29, it's completely destroyed my life, I can't do anything,
@c.k.1530
2 жыл бұрын
Please try L Arginine am having my dad take it so far so good plus high dose vit d
@carlotta2118
6 ай бұрын
Is a strange sore throat part of the symptoms? Like I got something stuck in my throat. I have this along with severe fatigue and muscle weakness. It's only been 2 weeks. Please help
@peachescorica8750
2 жыл бұрын
I was diagnosed at 14 with CFS by my therapist. But I’ve never seen a sleep specialist. There’s like over 100 sleep disorders right?? I’m getting on my husband’s insurance, and getting a referral to a specialist. I also have a panic disorder, pcos and add. Been desperate for peace for as long as I can remember.
@janmcguire5268
10 ай бұрын
GET has been shown to be harmful in many cases and is no longer recommended. I could have told them that, duh. I’ve had ME for years, since a tubal ligation.
@shanabenjamin8945
2 жыл бұрын
My fibromyalgia got worse with the covid injection!! Barely 50 and struggling daily!!
@elsagrace3893
2 жыл бұрын
My CFIDS/fibromyalgia and sarcoidosis got better since getting the mRNA shots. 3of them so far. I have more energy with less crashes. I’ve had this 30 years. I’m still not near normal but just better.
@3dholisticreport
2 жыл бұрын
Since you are responding negatively to covid shots, take extra care of your heart. It gets really difficult with Fibromyalgia.
@Kraig5821
2 жыл бұрын
I did not take the shot, in part because my older sibling had a bad reaction to the Pfizer version. Upon getting covid it really wiped me out and I had long covid. It took about 3 months to clear.
@shawnaford5540
Жыл бұрын
Please update the diagnosis and treatment of MECFS. The worst is the damaging advice of GET and CBT. CBT might help with management but is not treatment, GET has been disproven and a more customized approach is required, depending on the systems impacted. Look forward to an updated ending to an otherwise helpful video.
@Joe-kt7zp
Жыл бұрын
People are healing autoimmune with a the Lion diet (carnivore)
@annabelakehurst1030
2 жыл бұрын
It’s taken more than 2 years to feel like I can go back to living life again but I have a really bad immune system and every time I do something slightly more than my normal routine I crash again. As a 23 year old it’s so hard like I can’t do the exercise I used to do, I can’t go out as often and no one around me truly understands it when I try to talk about it - it’s a lot of ups and downs and experimenting day to day what I can do but I’m trying to fight on and continue as much as possible
@carolinarodriguez1792
Жыл бұрын
I understand
@KB-sv7fm
Жыл бұрын
Look into Hidden Food Allergies (Intolerances). You may be sensitive to certain common ingredients in processed foods. It may trigger a delayed reaction. Talk to a Doctor in Integrative Medicine. Many major universities have an Integrative Medicine Department (Johns Hopkins , Duke University , University of Arizona , etc.)
@misskaya
2 жыл бұрын
I had fibromyalgia since I was 17, depression since 5, and severe mental health.
@carissafisher7514
2 жыл бұрын
Depression since 5? I never heard of anyone getting it so young.
@gerrimilner9448
2 жыл бұрын
graded exercise therapy has been excluded very recently (this year) as it is no longer believed it helps
@DrakeN-ow1im
2 жыл бұрын
GET was based on corrupt research and its publication as a therapy withdrawn quite some time ago.
@weeanntan5987
Жыл бұрын
I was diagnosed as chronic fatique syndrome but it was effectually found out that my problem was due to tumor in pituitary gland. Please check your cortisol hormone from the adrenal gland if you haven't done so.
@lotrhpnmask
2 жыл бұрын
i have pots, and along with that FUN 😒 diagnosis i have gastroparesis and developed swallowing issues. CFS is listed as often symptoms/part of pots also. pots also have problems with sleep, lot of symptoms cross over with pots and CFS. plus i have a Bazar immune system reaction which by few allergists i seen might have mcas which (there not clear yet) and all the reaction and body fighting things make you MORE tired. it be a real pain if i have CFS on top of all this(which is possible according to doctors) 😞
@larsiskut
2 жыл бұрын
I've had covid in nov 2020 and mono a few months after. A year later things I really started to break down. I'm unable to live life the way i'm supposed to.
@karenbarnes7456
2 жыл бұрын
Everyday is hard since getting COVID-19 from an unvaccinated child. The stress, long haul Covid.. it effected my heart, blood pressure, my right eye and my kidneys, justed passed another stone. Now I have interstitial cystitis of the bladder. Finally, DX 2018. Was sick most of my life.. I had mono as a child. So glad we can text with peers😁
@philipancell516
2 жыл бұрын
I have it along with systemic lupus. Life's a blast
@gigi.sovanny
3 жыл бұрын
Not me self diagnosing.. 😬
@WishyWashyMaybe
5 ай бұрын
Not much choice...
@gillmahoney4742
Жыл бұрын
Cfs does not involve much pain it is as its called chronic fatigue, m.e. Which i had badly once causes a lot of pain, they should not be bunched together.
@barbaraferron7994
Жыл бұрын
I had it for 10 years without pain. I started to recover by lifting weights but then it came back with pain. I stopped lifting weights but the pain didn't go away.
@3rdeye399
2 жыл бұрын
I got it around 20 years ago and diagnosed myself as having ME the doctors never confirmed this but later I discovered I had been diagnosed as having CFS but was never told personally .... which now come under the same banner... so I have to ask ...why did I know more than a Doctor and the whole medical profession. This does not inspire me to believe anything that the profession says , then and now. I did my own research even though it was difficult to think right and eventually I came to some conclusions. I came across Gulf War Syndrome , " another Syndrome " that was caused by a cocktail of Vaccines and then realised I had received 2 jabs around the time my condition began..... however the full story is more complex. I have no trust in the Medical Profession who are controlled by Corporations and Big Pharma.... and well people do not make the most profits for them........
@ManDogBearPig
2 жыл бұрын
true my condition is iatrogenic disease too biggest harm being inflicted upon society its in the food etc
@IronBos
2 жыл бұрын
3rd decade of life is 20s, not 30s
@samanthajohnston9269
2 жыл бұрын
I didn't experience the extreme fatigue I have now until after dealing with cancer and chemo. I feel like this is common among cancer survivors. I also think it's tied to my mental health because my brain feels fatigue as well
@mellyo7262
2 жыл бұрын
Same! I feel it’s almost more tiredness of my mind.. by that I mean in the way that I’ve gone through so much that I cannot face any more awful things happening… my brain is like ‘Nope… you are not doing this anymore… ‘
@judemorales4U
2 жыл бұрын
May God bless you both Samantha and Melly. Wishing you both comfort, peace and strenght. Love.
@JG216
2 жыл бұрын
I don't agree with that trauma causes this because I wasnt abused or had any trauma. When I was 25 I donated blood and my donor card came in, it said they couldnt use my blood because I had Chronic Fatigue and they werent sure whether this disease could be passed through by blood. So then I took this info to my doctor who did tests and agreed that I did have Chronic Fatigue. I also have now 3 other auto immune disorders.
@kathihjelmstad5026
2 жыл бұрын
I think they mean they it can be one reason.
@deniseharrison710
2 жыл бұрын
How can they say you had ME/CFS at the doner place, when it doesn't show up in blood.
@Joe-kt7zp
Жыл бұрын
People are healing autoimmune with a the Lion diet (carnivore)
@mamanemcakesandtreats3974
10 ай бұрын
I honestly believe this is what’s wrong with me. I have all the symptoms.
@angelarichmond1617
2 жыл бұрын
Keep moving forward ⏩⏩⏩🙂 you well over come
@Jontheinternet
11 ай бұрын
I never connected the fact that I was diagnosed with scoliosis when I was younger with chronic fatigue. It makes me wonder if we have certain problems that have not been diagnosed both in our bodies and even in our bone structure. If you have misaligned bone structure you could be in chronic pain and stress only exacerbates it.
@ip3931
10 ай бұрын
Glad it's an actual diagnosis (wish people took Fibromyalgia more seriously) .
@cynthiamarston2208
2 жыл бұрын
Oh god how i hate CBT
@elsagrace3893
2 жыл бұрын
I like it. It’s logical,makes sense , requires self reflection which is a sign of maturity and care for oneself and others. Why do you hate it?
@skylinefever
2 жыл бұрын
@@elsagrace3893 Because it doesn't work for everybody and makes some people worse.
@elsagrace3893
2 жыл бұрын
@@skylinefever I was hoping for a specific and detailed answer. Would you care to elaborate with a specific example from your personal experience?
@skylinefever
2 жыл бұрын
@@elsagrace3893 I was sent to therapy. It felt like I was getting an NPC quoting the motivational stuff. Maybe actually effective therapists exist, but after 10 NPCs, I felt burned out. I stopped looking, and I couldn't make my mind open up to treatment anyways.
@DrakeN-ow1im
2 жыл бұрын
@@elsagrace3893 ...and has been discredited as a therapy for several decades.
@ALUMADANHENRY
6 ай бұрын
Am a med student, am almost dropping out of medical school because of chronic fatigue, dome advice
@xxelxx7547
Жыл бұрын
I became ill with m.e at the age of 6 after a bout of the shingles virus, I never recovered, doctors didn’t listen and blamed my symptoms on attention seeking and a mental illness I then got forced to exercise and went through so so much neglect by ‘medical experts’ It made me so ill that I could of died. I’m now 15 and I’m mostly bedbound, need a wheelchair and need a ng tube. Myalgic encephalomyelitis is a much better term. CFS doesn’t present the severity of the illness, as it is not just fatigue that is just one symptom of this complex condition the people who first made CFS the official name have said they regret it due to those reasons. also the associated conditions include a lot much such as, MCAS, POTS, many autoimmune diseases, and much more then I can’t remember off of the tip of my tongue. the illness being falsely identified as psychogenic has caused decades harm and people continue to strengthen unacceptable stereotypes and misconceptions. It has delayed decades worth of research that could of found something vital. I’ve lost my life to m.e.
@Larsmop
2 жыл бұрын
I've heard that vacuum cupping might help with the decrease the syndromes effect, any thoughts on it? I'm thinking of trying it out, had CFS for a couple of months, It's a bit better, but still, I can't enjoy life as I used to.
@MsWarriordiva
2 жыл бұрын
I've done cupping & acupuncture. I felt they both helped my sleep & with aches from the fibro. It didn't change my fatigue though.
@missutchiha9865
5 ай бұрын
I have ADHD , and I am ALWAYS ALWAYS exhausted, am i alone?
@annebarber2368
8 ай бұрын
Coxsackie B4 virus from contaminated water. Affected brain seizures, cognitive and more, heart and each body system. 42 years later glad i didnt know year one what i know now.
@Salma-ky4bg
2 ай бұрын
I don’t have cronic fatige syndrome, but now I know that the pain and fatige I fail isn't normal, I am not just "stressed or lazy" So really really thank you .
@marydotjpeg
2 жыл бұрын
I found the parvovirus antibodies in my bloodwork and I have all the symptoms how do I get my doctor on board with believing me and finally diagnose me? I also have fibromyalgia last I brung up the fatigue he blamed it on fibro but CFS is much more than that. I feel like emailing him explaining how I'm feeling in detail and explain everything 🤷♀️ I want to know that I'm not crazy and there's a name for how I feel. Also this started right after I had covid in 2020 and now in 2021 my second round of covid with pneumonia (almost died) the fatigue etc came back much more stronger I've already been diagnosed as a long hauler but that doesn't pin point anything I want that diagnosis.
@ccasey1904
2 жыл бұрын
You might want to get your Vitamin D level checked. Level should be over 30 to be healthy; most doctors I know have usually wasted my time on testing and/or discussing correct Vitamin D levels so be forewarned. I have to take 2000 mcgs of B12 vitamin daily to help with extreme fatigue of Fibro and CFS. I also know there is something called Long Covid
@ccasey1904
2 жыл бұрын
It is my understanding that Fibromyalgia must be diagnosed by a rheumatologist. Also, this Jacob Titlebaum was the only place I ever found that knew what they were talking about when it came to FM and CFS. Oh, and also a good immunologist was helpful but too far away to get to on a regular basis. And maybe 1000 mgs daily of vitamin C may help you. Good luck to you, you are NOT ALONE and remain very proactive in your healthcare!
@creativeminds2359
2 жыл бұрын
Chronic Lyme disease will do this to you also. I never get a deep sleep or ever feel like I have slept.
@CBT5777
10 ай бұрын
I got it coming off of benzodiazepines. Messed me all up. I've lived through hell.
@georgejetson9801
7 ай бұрын
I suppose I'm curious as if a person is already doing those things, why would they get cfs and why would things like CBT work on it?
@Alcoholpad
Жыл бұрын
Some days I feel great, I ride my bike go for a nice long walk, have the energy to do all the things I used to could do. Then the next day it’s like a train hit me mutiple unexplained body aches, indigestion, headache. I just want to lay in bed all day pair that with other conditions and environmental stressors. Something’s bound to happen
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