British dad Dave Ross was diagnosed with a rare disease called Cowden Syndrome 8 years ago. Now he's helping other men like himself navigate their rare disease journeys and provide them with a safe place to talk and share their stories with other men.
“What I quickly became aware of as I reached out for support and advocacy groups in the rare disease space, was that there were all these incredible female advocates - patients, mothers, caregivers - but there seemed to be hardly any guys in that space", explained Dave. "And, sadly, a lot of men tend to suffer in silence, because they’re afraid to share what they’re going through with others. There’s a fear of the societal stigma toward men who share the difficult challenges they’re going through. And there’s a sense of shame. As a result, men just aren’t being heard.” --Men's rare disease and mental health advocate Dave Ross
Негізгі бет Conversation with rare disease and men's mental health advocate Dave Ross
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