Not sure she will see this, but Michele, you are not alone! I have lived with HOS for almost 40 years now and I have daily challenges with this disease. I have heart problems and deformed arms as well with three fingers on each hand and a thumb made out of my pointer finger. Anyway, like I said, don't know if Michele will see this, but if you do, I wanted you to know you are not alone in your struggles! Much love to you! ❤
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