I know you probably don't have time to watch all of this so here's where certain details are. Children with CF facts 0:55. Karrie's child 4:22. Details about appearing tired and going to the hospital. Cystic Fibrosis Charities 6:55. Message to CF patients with Lung transplants 8:35. Cystic Fibrosis is a lung disease. An easy way to remember the name is that it sounds like 65 roses. I'm with my friend Frank who has this disease but got a lung transplant. My passed friend Karrie also had this and I'm sure your attention would've meant a lot to her, and should also mean that much to anyone else with it. She was born March 25, 1991 and died January 12, 2018. Our goal is to raise awareness of Cystic Fibrosis. I met her in high school and she got together with my closest friend at the time and I also met other people through her. She compared the disease to rust when she first explained it to me. She did many things with her life like karaoke, attending concerts, bond fires and once she when we were at the county fair she rode a mechanical bull. I might show some pictures of her in another video sometime. She didn't do much travels which may have been associated with her CF however one of the hospitals she'd been to was in Pittsburgh, Pennsylvania. She was a friend, wife, sister and mother. Karrie also knew my sister and she was one of the best friends we ever had. I knew Frank could help raise awareness by his own experience with CF and his own perspectives as well as what people with it do to help themselves and he also gives advice for people with CF and their families. Frank knows of many charities some of which are mentioned in this video. The closest charity to us that's for Cystic Fibrosis specifically is the Cystic Fibrosis Foundation at 1775 Wehrle Drive #150 Williamsville, NY 14221. I meant every word I said in this video. 1 thing we forgot to mention is that CF patients should also not be within arm's length of each other. I first found out about Karrie's passing through a mutual friend that Chris told about it. His name is Joseph and he was also with my sister for a month. He posted a video in memory of her and also made an online fundraiser for Cystic Fibrosis. I don't have a credit card so I commented that and I'd send money to the charity which I did. At one point I asked my friend John if there was a memorial service planned for Karrie and he told me the details. I spoke to my sister about doing a video in memory of Karrie but wasn't entirely sure how to do it. My sister suggested discussing with Frank what Cystic Fibrosis is. We spent a couple weeks arranging this so we could get many details down both about Karrie herself and about Cystic Fibrosis to make more people understand what it is. This is at a Tim Hortons in Lockport, New York. Tim Hortons is a Canadian bake shop with sandwiches, doughnuts, and coffee. I do not own any of the background music or know any of the songs. At the end sounded Spanish though. When my birthday in 2015 came around some people who knew me upset Chris and Karrie. In the summer they started living together and I didn't know. In the Fall I did occasionally talk to Karrie. When Chris and Karrie had their wedding planned I asked about it and Karrie told me they had no plans for a while. I found that shortly after her birthday in 2016 she blocked me. She and our mutual friend Tim met up with me at the Tim Hortons on Niagara Falls Boulevard in North Tonawanda to explain to me that it was these other people who upset them and this was a couple days after Chris and Karrie married when I found out through Chris's sister's posts. This was also the same evening of the Presidential Primaries. I never saw her again and I started making new friends. I still cared when I found out about her passing. I want people to understand Cystic Fibrosis and hopefully soon there will be more hope for patients with it who get the help they need and lung transplants.
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Cystic Fibrosis Awareness Video in Memory of Pasesd Friend
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