This post should have millions of LIKES. Truth hurts!!!
@LeeLeeWilliams-1908
Жыл бұрын
Thank you Valerie for being an advocate for those who have been affected by cancer.
@MedEthics1
Жыл бұрын
First, I would like to thank both Dr. Grant and Valarie for shedding light on this subject. I had no idea that multiple myeloma was the most common blood cancer among Black patients in the US and that they are twice as likely to die from it than other races. From what it sounds like, this is mainly due to this population experiencing a delay in getting their diagnosis, and therefore, treatment. Patients in Dr. Grant’s study reported being dismissed by their doctors and told their symptoms were just due to old age and to come back in three months. This kind of behavior from physicians is frustrating to me as it only furthers the mistrust that the Black community has rightfully developed with medicine throughout history. When mistrust seeps into the doctor-patient relationship, only negative results can come from it. Patients may delay coming into the doctor and when they finally get there, they may withhold important information for fear of being ridiculed. To me, dismissal of patient concerns is a direct violation of both the ethical principles of beneficence and non-maleficence. Not only are physicians not acting in the best interest of the patient by ignoring their concerns, but they are indirectly causing harm to the patient by neglecting them and letting their disease progress undiagnosed. There should be some form of legal recourse for this and providers should not be allowed to go undisciplined. And even if the doctor was right in their assumption of old age or stress or anxiety, there are still ways to help the patient manage those issues in a way that they feel seen and understood. As Dr. Grant said, empathic communication and relating to patients as human beings is what can start to restore trust in the medical community. It seems like such a simple solution, but is one that is often forgotten by physicians, intentionally or not. Additionally, as Dr. Grant said, the biggest factor of patients getting into clinical trials is the doctor-patient relationship- a tarnished relationship will make it even harder for an already marginalized population to participate. The lack of diversity in clinical trials is a violation of the ethical principle of justice which demands fair, equitable, and appropriate treatment of all. Unfortunately, Black patients with multiple myeloma are often subject to systemic barriers that prevent them from receiving timely and appropriate care. Whether this is due to explicit racism or implicit bias, without fair representation in research studies and clinical trials, the benefits of medical research are not shared equally among all members of society. This limits marginalized communities’ access to cutting-edge treatments and therapies that may save lives. Again, I commend Dr. Grant and Valarie for raising awareness and fighting to make clinical trial populations more diverse. I imagine this will require policy changes and legal battles to make a significant change, but we can all help by simply continuing to raise awareness of this important topic.
@ThePatientStory
Жыл бұрын
So glad that this was helpful and your response was so thoughtful. Glad there are people like you out there we clearly care about important topics like these - ones that are so impactful to so many people. Thank you. -Stephanie
@MedEthics1
Жыл бұрын
@@ThePatientStory I appreciate the kind words! The ethical and patient-advocation components of these stories really intrigue me and are things that I think people should become more aware of. I also want to offer my thanks for all the work you do on this channel. I'm sure it takes a lot of time and effort, but the stories that are being shared and the messages that are being spread are truly inspiring. Keep up the great work!
@sevenhunt3787
Жыл бұрын
God Bless You for this information ❤
@alrahbimom
Жыл бұрын
I’m a myeloma patient thank u
@timlittle1286
Жыл бұрын
The haematologists don't really listen to questions that you ask them unless it suits them.
@timlittle1286
Жыл бұрын
When as patients will we ever really get the help that we need.I don't want to be treated for myeloma when it is too late and when the treatments will kill me.
@katamama3019
4 ай бұрын
I have mgus and sle. My 6 month fu is coming up and I'm very afraid it has progressed. I asked for a PET scan and was told I need to go through my primary.
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