When he spoke about how doctors do tests and find nothing, over and over again, until we just stop bringing it up and accept it. I just about cried.
@shannonnoseworthy
2 жыл бұрын
This man needs to be a mandatory teacher in all doctor's offices and schools around the world 🤍
@rhondaparmenter7266
6 жыл бұрын
I'm about to cry right now because of validation. I had a doctor ridicule me when I kept bringing up burning mouth syndrome! She told me there was no such thing!
@gavintobin4912
5 жыл бұрын
Possibly one of the most important videos on KZitem for any healthcare professionals to watch...not to mention sufferers.
@lukeskywalkerlucasfilm
2 жыл бұрын
My story also! 20 years, dozens of docs, years of suffering just to be told you have anxiety.
@isashisha
2 жыл бұрын
Took me 10yrs of studying this to see how much mast cell has played into symptoms ive had my entire life. I also have EDS and Dysautonomia....plus gastroparesis and pancreatitis (both from mast cells). The testing though was sooo extensive and invasive I just decided to manage it on my own. All my uti's turned out to be interstitial cystitis..from inflammation...
@zanebutler8528
The phfzier vaccine turned on my MCAS . Suffered for 2 years untill I found antihistamine. Now I finally feel normal. But still have along why to go.
@BringANickel
5 жыл бұрын
Brilliant! This should be required viewing for every specialist at minimum, and preferably every practitioner. Intellectual laziness is dangerous for some of us! I am nearly a carbon copy to the first case he presents.
@MrYorickJenkins
Жыл бұрын
There are four things I like about this doctor 1) he is specialising in what I almost certainly have and helps me to understand my health issues 2) he is modest and unassuming 3) he is easy to understand without ever being condescending 4) he looks unhealthy himself, which perhaps perversely, I find singularly reassuring.
@jovoorheescollinsmphbsnbch6245
2 жыл бұрын
Wowwwwwwwwww.
@nomebear
2 жыл бұрын
Two anaphylaxis events were clues that I was dealing with MCAS. I immediately began a Ketogenic diet, started H1 and H2 antihistamines. I began a cocktail of supplements for treating mitochondria dysfunction, and 95% of my long haul COVID-19 symptoms cleared up within hours. Later testing by a hematologist were unremarkable. He said that I did not have MCAS. Today. I'm well, I'm strong,and although I experience the occasional long haul COVID-19 symptom I am fully functional.
@alexweiss388
2 жыл бұрын
I think I have this to a lesser degree. When I was 18, I was bitten by a tick and contracted Lyme disease. I spent the next couple of years, pretty sick. It started with GI issues. Chronic constipation that was set off by a myriad of food intolerances. Severe gluten sensitivity. Soy intolerance. If I ate at a Chinese restaurant, I was sick for days after I'd eat. I eliminated gluten and changed my diet. I lost weight and started feeling better after I "recovered" (or so I thought) I'm in my mid 30's now and I'm experiencing a lot of very weird symptoms relating to MCAS. I'll have different symptoms that usually take 3-4 weeks to resolve. A couple of years ago, I started drinking a lot of Kombucha tea and eating Kimchi (both fermented and high in histamines). I was putting my body in shock. I developed globus pharyngis. It's the sensation of having a lump in your throat (though nothing's there). That finally went away, but I would notice random different parts of my body being affected by different things. There'd be times where I'd have severe insomnia which nothing I took, helped that in any way. Then I'd have periods of having really irregular heartbeat/palpitations. Then that would go away and I'd have abdominal bloating or diarrhea. Once that resolved, I might have bladder issues or skin rashes. These ailments were never at the same time. They'd move around, appear and then leave as quickly as they came. I still have severe seasonal allergies and allergies to dust mites. I'm currently dealing with random numbness and tingling in my extremities. Occasional muscle fasciculations (twitching). I've started to eliminate high histamine foods and take anti-inflammatory supplements such as Quercetin, Vitamin C, Curcumin, and Luteolin,
@melanievesters5473
2 жыл бұрын
A lot of recognition. Even the burning mouth. Life has been a living hell with no help. It s just trying to survive, it s not at all a life anymore. Nobody who takes me seriously. I wish I could try cromolyn, but I m in the Netherlands, no doc takes me seriously.
@daughterofelroi4369
2 жыл бұрын
Thank you Dr. Afrin! I wish this lecture was mandatory for every physician!
@bford3977
3 жыл бұрын
This was one of THE best talks on MCAS I've seen thus far. Kudos to Dr. Afrin. I might send this to my naturopath. I went to an immunologist and because my tryptase numbers were good, he stopped there.
@dgsmith9969
Жыл бұрын
I've had it for 60 years. I don't have decades. I'm about at the end of my rope.
@lukeskywalkerlucasfilm
2 жыл бұрын
Wow, my whole life in 1 hour...Thank you for your research Dr Afrin!
@lifewillbebetter2027
3 жыл бұрын
Excellent. Thank you.
@caroliner2029
2 жыл бұрын
A fantastic and engrossing presentation, thank you.
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