This is one of the most cruel diseases ever. Just completely heartbreaking. So sorry you’re dealing with so much Kourtney. 💜
@Learnlove51
2 жыл бұрын
I hurt for her.. God sent her here for a reason suffer in this lifetime and have happiness for eternity with God
@grobanite4ever85
2 жыл бұрын
Yes it is. Along with fibrodisplaysia ossficans progresiva
@theangrysuchomimus5163
2 жыл бұрын
@@Learnlove51 What kind of cruel god would do that?
@johnblah1040
2 жыл бұрын
@@Learnlove51 What’s wrong with you? People like you make Christians look bad
@tiazadobbs7475
2 жыл бұрын
@@theangrysuchomimus5163 Why don't you ask her if she feels God is cruel ? I won't share details but my childhood was horrible. Do I curse or blame god ? Not at all. My experiences have made me the strong old granny I am today. My experiences taught others how NOT to be. This young lady is amazing. She shows us how to live with a grateful attitude and treasure each moment. Her time is spent helping others not cursing her circumstances.
@Beesweetdannygirl
2 жыл бұрын
She looks sad…. What a strong little lady❤️❤️
@sharon5781
2 жыл бұрын
It makes me so sad to not see her smile. My heart breaks for her.
@JustSujC
2 жыл бұрын
She looks broken down from all the pain and loss of limbs. I feel sorry for her.
@lexieorozco9625
2 жыл бұрын
Yeah it is really hard
@sabrinachery983
2 жыл бұрын
It pains me that Kourtney and other people with her condition have to live a life of pain. She's so well-spoken and determined. She is inspirational. She's a boss that's using her story to help others. Talk about making a difference in the world. She deserves every blessing coming her way. Wishing her nothing but the best ❤️
@mydailylife122
2 жыл бұрын
Hello from Tokyo Japan ❤️ 👍
@mom4u412012
2 жыл бұрын
So much pain. From the day they are born
@stormygirl1704
2 жыл бұрын
Well said. I agree 100%
@celestialcircledance
2 жыл бұрын
@@SoftPico920 This is my only reason for subscribing to this channel . I do it for inspiration and curiosity and to count my blessings . I find it also desensitizes me for when I encounter people with differences in daily life .
@mandysarmcandy7748
2 жыл бұрын
Amen!
@LadyInner24
2 жыл бұрын
The deep sadness in Courtney’s eyes is heartbreaking. Praying that God will continue to give you strength.
@abullard8409
2 жыл бұрын
Amen me also.
@SadisticOtters
2 жыл бұрын
Screw God. He's the reason for this in the first place then! .I pray that SCIENCE finds a way to make her life easier.
@gladysadams7203
2 жыл бұрын
In 1968 I had an EB baby and when see this people I can’t help but be glad he didn’t live to go through this.
@kourtneykujawa818
2 жыл бұрын
Well you missed out on something very beautiful. I am sorry for your loss.
@OscarLopez-si2wg
2 жыл бұрын
Wow this is strong. God talks to me when I see and hear people like this angel.
@cheetahtfk7274
2 жыл бұрын
What a boss to create her own product aimed for people like her! I'm honestly shocked that she's older than 18 because she looks and sounds so youthful.
@lilly7549
2 жыл бұрын
God whenever I am ungrateful, please remind me that there are persons like this lovely young lady who goes through so much and yet still press on
@reneeschwendi8355
2 жыл бұрын
She is such an inspiration. I’m in awe of her strength & determination.
@juliem3987
2 жыл бұрын
My heart breaks for her.. I’m always complaining about something in my life.. I’m never going to complain again.. sending 🤗 and much love ❤️
@ZJ-kl4hu
2 жыл бұрын
Rest In Peace Kourtney. You were a light 💕
@nicole4659
3 ай бұрын
When did she pass? I'm from B.C too
@unicornmadness6286
2 жыл бұрын
Wow I was shocked when she said she had cancer at the age of 18, I thought she was 10 or 11. She's very cute, and you can tell she's a kind person. Hope she makes a channel on KZitem, I'd watch it!❤
@BRAIN-qp6jf
2 жыл бұрын
I have a chronic illness since I was born I have spent my whole life back and forth in hospitals,Behind these diseases is a world of holiness, purity and humanity that the rest of the world could never reach.
@wandabrooks2752
2 жыл бұрын
Aww Kourtney I'm so sorry you are experiencing this. I'm glad that you have a family who loves and take care of you. Prayers the pain doesn't get to bad
@szn.wrldzzzz
2 жыл бұрын
God protect this girl and bless this girl ❣even if she has EB'S she's still beautiful this even gave me shreds of tears running down my face 😢god protect his beautiful girl 💜
@savannahsslifestyle5805
2 жыл бұрын
She looks so cute. She's so strong and has a good heart that is all that matters.
@mawmawmakeup3602
2 жыл бұрын
Poor thing. Such a strong little warrior. Her percerverence.... her spirit. Sending her love light hope and prayers from London ontario canada ❤🤟
@katrinawall7758
2 жыл бұрын
Good for her! That she is preserving all through the odds of her condition.
@MrSulzerboy
2 жыл бұрын
I've no right to moan about anything. I'm so sorry you have this horrible disease. Please stay strong and you know, there is always someone worse off than you. I really admire you.
@janaebert3059
2 жыл бұрын
4:15 I agree with the first statement, but we can see she knows it never gets better. I can't imagine what she has been through.
@Amy-ix7ij
2 жыл бұрын
I can’t even express how much respect I have towards her. She is such a strong and beautiful woman!!! We love you!!!!🫀🫀🫀
@donnaadom8483
2 жыл бұрын
Thats great that they were able to get all the cancer in the one surgery/amputation. Your strength is amazing..wishing you all the best.
@amyt6254
2 жыл бұрын
It is wonderful she has developed a product to help others! She is amazing!
@PT-tw6kg
2 жыл бұрын
She's such a inspiration this is a cruel skin disorder. Brave, and what a beautiful soul. To anyone that complains about silly things shame on you.
@BriaBarrows
2 жыл бұрын
The sadness she had when her mom put on the wig broke my heart:( I could only imagine how uncomfortable it is to be in that much pain.
@nanuq83
2 жыл бұрын
I know beyond a doubt I'm a coward b/c I'd rather die than go through what she, or anyone with this disease, goes through daily. I'm strong but I know my limits and this is one of them. I don't know how you do it girl, you and everyone in your position has always and will always have my respect.
@RatGodProductions
2 жыл бұрын
my late daughter (not real daughter) had EB along with other conditions and there's not a day I don't miss her. seeing this video reminds me of cathys spirt and reminds me that despite life being hard on some more than others there's always some who see the good things in life. ill remember all the sassy comments cathy. much love kourtyney keep the strength up
@whispermcgaughy7251
2 жыл бұрын
I love her outlook and strength..😊
@barryretmanski4763
2 жыл бұрын
I suffer with depression, I struggle to even get out of bed or to do anything, don't even want to speak to people. When I see videos like this it makes me feel so guilty, I wish I could give my body to someone else. :(
@Gerrimil7
2 жыл бұрын
You are BEAUTIFUL, resilient, and FABULOUS! I can definitely hear and see your confidence. Good advise you gave to have hope, and believe that things will get better. 💕
@nabarpradnya6830
2 жыл бұрын
We indeed get frustrated from our difficulties and challenges could not accept our life, but there is someone who is going through 100 times difficulties. She is my hero for me from now on ❤️
@victoriaaish
2 жыл бұрын
She is so beautiful. She deserves the whole world.
@grimdawn9843
2 жыл бұрын
Even looking at her back made me cringe... Living with this earns my deepest respect. I wish you good luck and that your awesome strengh never runs out
@tonifitz6831
2 жыл бұрын
Awww sooo brave... It brings it home when teens worry about a pimple... Courtney Is very strong.. xx
@rcgkreations
2 жыл бұрын
Great attitude & spirit she has
@yasministryhealing
Жыл бұрын
You are an inspiration, Courtney. I don’t have your condition. I have something else. And you warm my heart young lady ❤ you have the strength of a lion.
@amandavanostrand6649
2 жыл бұрын
There's people who prosper with challenge. They're the strongest survivors. She's definitely one. Stronger than most people and she should be proud.
@matshonkoop4565
2 жыл бұрын
Such a strong person!
@sarasmilesluvsmakeup8152
2 жыл бұрын
What a beautiful soul inside and out! Now this young lady is what u would call a strong warrior!! God Bless You Kourtney❤
@missfantabulle344
2 жыл бұрын
it looks horribly painful 😢☹️ and I admire you so much Kourtney for your courage and all your dreams that you accomplish day after day... lots of love and support from Switzerland 🙋🏻♀️🇨🇭 you’re beautiful and powerful giiiiiirl 👌🏼👏🏼💋
@ellsvsp
2 жыл бұрын
It makes me feel sad that she is going through so much, but i believe in her and she can achieve everything she wants to. Stay strong, Kourtney and never give up. 💪
@FreeSoulBird
2 жыл бұрын
Wow, what a beautiful young woman! She could model with those eyes! 🥰
@winternightsky6945
2 жыл бұрын
Man all these incurable diseases that people suffer from is just sad and just makes you appreciate more having the ability to hopefully live healthier lives. It's scary though because some of the diseases can just hit anyone at any given time
@anitnelav9028
2 жыл бұрын
Many blessings to this beautiful soul.
@vicky1132
2 жыл бұрын
She is a beautiful and strong young lady.
@julierstjohn
2 жыл бұрын
Bless her, wish to be her friend 🙏 😇👸
@sonnen_blume4651
2 жыл бұрын
Rest in Peace beautiful Angel! 🤍🕊⭐️
@robindorrell963
2 жыл бұрын
Wow, Kourtney, you are an inspiration! You convey such wisdom in this interview and you started your own business to help others with the same skin condition. Pretty darn amazing! God bless you and thank you for sharing.
@foodiekr3820
2 жыл бұрын
She is still beautiful inside nd outside 🙏❤️❤️❤️❤️❤️❤️❤️❤️❤️
@justagirlontheinternet3781
2 жыл бұрын
why is it always the sweetest souls that get these terrible diseases
@philipm7783
2 жыл бұрын
What an extraordinary person!
@tamaraharris2065
2 жыл бұрын
Very Beautiful and strong. God bless you!
@mylifebydidi8077
2 жыл бұрын
We love you kourtney!🌹You are so beautiful like your mom, and your strength is magical!❤️
@missmew5240
2 жыл бұрын
This made me think of the late dear sweet Jonny Kennedy. Thanks for sharing your story Kourtney. You are so strong! Much love to you and your family ❤️
@mashakalinkina7207
2 жыл бұрын
So much love to you, girl!! 💖💖
@leenie2346
2 жыл бұрын
I would just like to say kourtney you are such a brave person I really look up to you. I have exzema and small rashes and when I see your pain I love how calm, you are. You should be proud of who you are and keep on being amazing!
@roxannelishey7253
2 жыл бұрын
God Be With Her She's So Strong Well Spoken And Here I Am Complaining Of A Fusion Operation Young Beautiful Princess Thank You For Making Me Shut My Mouth Buy Your Encouragement Blessings Prayers Love ❤
@Lisa.G412
2 жыл бұрын
She's soooooo beautiful!
@Dwainecurtis2001
2 жыл бұрын
Poor girl bless her and her family
@voniansah3997
2 жыл бұрын
Your confidence is as beautiful as you are.
@Ann-so6vl
2 жыл бұрын
I am in awe of this beautiful young woman.
@justuseloveineverything7184
2 жыл бұрын
Kourtney you are amazing Keep inspiring the world 🌎 ❤️
@joleenlubbe7958
2 жыл бұрын
So heartbreaking. Kourtney, you're so brave and beautiful! God bless you and keep you safe
@vanilla5245
2 жыл бұрын
Shes so pretty I adore her glasses and coat combo
@lingyingli1563
2 жыл бұрын
I wish everything is fine...this is just painful to see cause people like this don't deserve it...what more for her parents am sure it was so painful to know their daughter get this dangerous disease...hope she and her family live happy life,god bless them
@TLive-ji5wf
2 жыл бұрын
I HAVE NO ROOM TO COMPLAIN. ALWAYS SOMEONE GOING THROUGH MORE THAN YOURSELF. STAY STRONG KOURTNEY🧡
@NaturallyGifted77
2 жыл бұрын
Awwwww! She is so cute!
@angelaegan7511
2 жыл бұрын
What an extraordinary and beautiful young woman.
@jewelhaines8842
2 жыл бұрын
Man, I think this young lady is such an amazing woman! What a inspiring story. God bless her and her incredible family! 🙏
@AA-cm3pd
2 жыл бұрын
A real life super hero
@Kiki-yw9kc
2 жыл бұрын
It has to be the cruelest condition there is . Kourtney is a warrior princess and I wish her everything that is good , she truly is amazing 👊❤️
@chicken2967
2 жыл бұрын
I'd honestly rather die than live through that. I wouldn't be that strong.
@clairemercier3969
2 жыл бұрын
Same.
@lexieorozco9625
2 жыл бұрын
Oh. I also have EB just like that girl. I've been going through this for almost 18 years (im 17) and I am so strong and brave
@clairemercier3969
2 жыл бұрын
@@lexieorozco9625 You definitely ARE strong and brave. I admire you.
@sweetafr7820
2 жыл бұрын
She is amazing person ❤️ don't let anything stop you live your life one day at a time
@jenniferroberson3414
2 жыл бұрын
You are beautiful inside and outside. Don't let anyone tell you are different
@milkncoco1978
2 жыл бұрын
She is beautiful in every way 😍 strong 💪 girl.
@playadremingrl
2 жыл бұрын
This sweet wonderful soul. So brave ❤❤❤❤❤❤❤❤
@alliyahsgalaxy
2 жыл бұрын
This is so sad. May God bless her with guidance and Paradise for her suffering ameen.
@carmenpalacios4922
2 жыл бұрын
Praying for better days for you , so strong 🤍
@jarmillyadouglas9607
2 жыл бұрын
Prayers always see you beautiful you are one of a kind God bless......💟❤️ Like you're very strong and I love that in you
@liu.calazans
2 жыл бұрын
She managed to have a tattoo in that condition?! It must have been very painful
@BriaBarrows
2 жыл бұрын
I thought the same
@shellyortiz1977
2 жыл бұрын
I wish i could heal her ....shes a beautiful person wish her the best.
@laura-marievonderleyen4276
2 жыл бұрын
I feel so lovely for this pretty girl, so much woman make her face with operation , 😢
@deb6538
2 жыл бұрын
God bless her and her family🌹
@pixiepie3774
2 жыл бұрын
What an amazing young lady. Truly brave and inspirational. ❤️
@taijabryan1323
2 жыл бұрын
Live up girl enjoy life no matter what
@qammararshad6891
2 жыл бұрын
God bless you. Amen
@thelion2751
2 жыл бұрын
It hurt me I feel like a pain when I see her skin and not a bad thing but in the way that my own mind put my body in the pain of others because i don't want others to feel alone,I don't know why my mind do this,but aside from that she is incredible and strong just like the other kids and person who have this skin problem
@redchilli.6183
2 жыл бұрын
We are Humans, we love and help each others to build a beautiful Community. Live Your life as your Wish. Every human have problems in life.
@unkownaftons3579
2 жыл бұрын
You got our support kid
@bigman4407
2 жыл бұрын
Thank you. You are strong and inspirational.
@wings6171
2 жыл бұрын
Sweet baby girl. Bless her heart!! 💗🌹
@jacindapeters2303
2 жыл бұрын
Best wishes to her she's strong and brave.
@nevermind3520
2 жыл бұрын
What a strong wonderful woman! 💪🏼❤️
@sinyoungpark7914
2 жыл бұрын
You can do this girl! God never gives us anything we can't handle. You are so strong!
@noveltycrusade
2 жыл бұрын
I had a great joke... Arrested it about ten seconds in. Best wishes to this human. Fighting spirit.
@gemtuzumabozogamicin7274
2 жыл бұрын
Life is so painful for her and her caregivers, so sad. Rare diseases are not that rare. They should be given more importance than other common diseases. Such, patients should be given more care, by creating awareness and more research should be done on such diseases.
@BronsonP
2 жыл бұрын
God bless you Kourtney !!! you are truly an inspiration , and an amazing person . Stay strong you are a gift from god .
@deanna3069
2 жыл бұрын
God bless Kourtney.💔🙏💖
@memhisrocks45
2 жыл бұрын
I hope she knows how brave she is, and how many people she inspires to keep pushing forward.
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