And then they’re told they’re drudge seeking and given toradol….the system is awry
@cheflynne1359
Ай бұрын
*drug* darn autocorrect!
@vanessarongstad8576
Ай бұрын
Yes.
@AlbinoSalamander
Ай бұрын
Same. I live with so much pain I just had spinal fusion and onmy did okay for 6 hrs.
@Sean-te9cg
Ай бұрын
I love me some toradol.
@cheflynne1359
Ай бұрын
@@Sean-te9cg Does nothing for my pain
@jeanphillips1184
Ай бұрын
Doc's need to start listening to their patients and stop thinking we are lying or drug seeking ... EDS are more prone to dysregulation
@badeds100
Ай бұрын
Yes amen to that!
@sherlogic1256
Ай бұрын
The whole term drug seeking is a stupid thing. Of course people suffering will be seeking alleviation
@marthahutcheson5694
22 күн бұрын
VERY MUCH! Do you have documentation for this so docs will believe us? EDS patients also have trouble w/ local anesthetics. I have had a few docs/PAs listen and give me more local meds for procedures, as well as those who did not and the procedures were bad. I explain I am not asking for pain meds. Afterwards, I have told the medical person that I hope they learned something and will not torture any other patients who have CTD (connective tissue disorders).
@summertea8609
8 күн бұрын
Your comment is the comment I’ve been looking for forever 😩😩😩 I’m so sick and tired of these damn sociopathic narcissistic judgmental so called “doctors” always looking at me like I’m drug seeking!!!! I have a pretty long significant list of chronic pain and screwed up back, etc. I can’t stand those dumbasse’s!!! That’s what the pain medication is made for, is to try and alleviate the pain.
@user-ug3qq4py3i
Ай бұрын
Thank you for covering EDS! Fir so long nobody talked about it or gave EDS any worthy attention.
@mlev1111
Ай бұрын
EDS patient here! I am *extremely* sensitive to medications, especially any sort of sedatives. When I go under for surgeries, I request they give me half my BMI's worth of medicine. I also have an extremely high pain tolerance, and don't like being loaded up on painkillers because it affects my mind, and makes me extremely nauseous, but not every person listens. This is just my experience!
@AlbinoSalamander
Ай бұрын
Dame and I had genetic testing g Fone to prove my sensitivities and poor or dysregulsted metabolism of every drug class Proove labs. I had to fight for it and still I bri g my results and Dr's refuse to read them and keep prescribi g things I just cant take. You give up after decades bei g gaskit and ignored .my tedti g has been of no use when dealing g with my Dr's a d I have a dozen at anytime .they refuse to read or learn anything g new and if they have a belief they will not move off it for anything Becoming stagnant is not acceptable in the medical profession you HAVE to be always learning
@alexisteague4134
Ай бұрын
Thank you. EDS is no daily joke. Woke up twice DURING surgeries/pain.
@greengal111796
Ай бұрын
Is this why when i was woken up from wisdom tooth surgery, the first thing i felt so much pain??? 😭
@jmc8076
Ай бұрын
Awww not good. Now you know you need more pain drug pre, during, after surgery incl dental.
@kathleen88863
Ай бұрын
In my experience, doctors don't care or understand pain control. If you are suffering, too bad for you. It's horrible to know you need the surgery but are terrified to have it due to anticipating the pain.😢
@ninner196
Ай бұрын
@@kathleen88863 as someone who worked in the medical field it took 27 years to get a diagnosis. Yet I still would never say that all doctors do not care or understand pain control. Everyone is fallible, imperfect and if one walks into an office already thinking that, well they may feel less inclined to believe that someone will follow through such as an interventional pain clinic. I am straight forward with where I hurt and very specific because it is a journey together to find out what is happening and why with everyone. I have had unthinkable things done to me over those years but now, being with a group for over 10 yrs has helped and they are also overloaded with pts but it is worth the wait. If any Doctor cops an attitude in hospital or associated with a hospital, call the local hospital director or their boss and she or he will respond. If it is complete negligence go straight to your state medical board and lawyer up.
@ninner196
Ай бұрын
Dr. Kaveh the younger generation isn’t used to the play on words. Originally on every counter in pharmacies one could buy what is called “Milk of Magnesia” this contains magnesium which helped people with constipation and to sleep, side effect of magnesium. This was a coined slang phrase medical workers used for Propofol or brand name Diprovan. We used to call it a Dipdrip also. For all Generation X and Millennials, maybe even the lactose intolerant ones too. 😅
@mstreemoon8117
Ай бұрын
Unless you have EDS and are actually allergic and/or unable to tolerate to just about all opioids 🙋🏽♀️
@ninner196
Ай бұрын
Yea when one has been a guinea pig for so many surgeries one figures out real quick which ones are ineffective and even though you do your best to advocate for yourself someone else decides that they will just give you what you are allergic to anyways. It is sad indeed. Pts always know best😊
@mstreemoon8117
Ай бұрын
@@ninner196 OMG yes!! I've been forced to have psychotic episodes bc "you can't really be allergic to Benadryl" and nearly died due to the fentanyl that apparently even after going over with the anesthesiologist, Dr and 2 nurses was somehow "overlooked" .. But it was ok bc they were going to fix it, with oxycodone ... Which I'm also allergic too ... And it was happening just as I was starting my to wake up from the anesthesia.... from having an emergency d&c bc I had a missed miscarriage.. That was complicated by an allergic reaction to mifepristone (or however it's spelled) intended to help me pass the baby I just lost. And then they don't know why you have white coat syndrome despite basically living in Dr offices and hospitals your entire life.. Like hmmm🤔... Lemme think
@susaniacuone5758
Ай бұрын
Yup that's me
@ninner196
Ай бұрын
@@mstreemoon8117 I am sorry for your loss and the situation you were put in. Some have had forced meds and procedures so many times behind closed walls that I can’t even talk about it anymore. As many excellent Doctors and Nurses there are eventually we all are humbled in the face of having to turn to the same system that doesn’t show special favors in triage for anyone. Dignifying everyone means stopping and listening, verifying and responding, intervening, finally notifying and reminding again and showing compassion and humility in the face of errors. Peer reviews don’t go far. The Medical State Board is who determines the practice of each doctor and the Nursing Board for nurses. Hospitals do not call the state. Patients and/ patients and their lawyers do. That is why so many do not know who to call in those situations. Please take care.
@lauren9096
Ай бұрын
Fentanyl can be okay for some of us 🦓 Morphine is usually a no no, and creates a large histamine reaction in many of us. And also, each person is unique and different even with the same illnesses. ☺️
@jadenrhoden4709
Ай бұрын
If you are already on a high dose of pain meds for severe chonic pain (avn of 6 spots on lower extremities). I know suregons often say they have to adjust the meds, but I don't know what they mean by that. It is 75mg oxycodone/oxycontin daily. Se EDS, anxiety, ptsd, depression, pots (likely hyperadgenercic pots), suspected gateoparisis, suspected MCAS. I'm just curious about what would be changed/adjusted (I have the surgical notes, and know what I got), I'm curious about your thoughts? I have also been told by a surgeon that he can't operate on my due to total MME, but have had a different surgery already, and another scheduled. I know it's a more minor surgery compared to what the other was. Actually due to the doctor not operating soon enough, avn appearing elsewhere, now I'm at risk of losing both my legs. So I'm curious from a anesthesiologist pov, if you can make a video on patients who use opioids for chronic pain, and how that affect surgery, especially those on a higher MME, maybe going over some of the rules/regulations, becuase id like to become more educated!
@ninner196
Ай бұрын
Yes indeed. A lot of times it has to do with cardiovascular stability and some surgeons are willing to try more palliative care approaches. Oxycodone does cover a bit more in the pain receptor area than some pain meds. There are many types of blocks that can be done too so each surgeon would have to explain obviously those pros and cons if they are willing to take each case and then one hopes that they get the best qualified anesthesiologist that is thoroughly trained and competent in interventional blocks. Post surgery… yes some are considered one day surgeries when that is all the government might cover unfortunately unless a facility would do a 3 day inpatient care if being transferred to a rehabilitation center. There is usually more wiggle room with pain management but not a huge amount and one would want to be with someone to make sure that naloxolone or Narcan may be needed in that case proper breathing would be affected. A lot to consider for sure. Epidurals are nice and the normal daily dose is calculated when making adjustments too. 😊
@ninner196
Ай бұрын
Yes indeed! And yes despite the possibility of side effects from the longer acting ones, the short acting more synthetic ones at least as far as I have observed at times can cause a very uncomfortable situation for both the pts and those who closely observe their rx. Those who have lived with severe pain can’t deal with getting the minimum and it has nothing to do with lifestyle although it is worse when it hasn’t been diagnosed for those coping in a harmful way. Yet I have shockingly heard the opposite retorted by an anesthesiologist that those with EDS can handle the pain more😢Not true, it’s like running out of endorphins especially if it is multiplied with having one of the top most painful conditions right next to bone cancer but life long in most serious of cases. Thank you Dr Kaveh for saying it outright, straightforward as one could hope for! Each pt is different. I handle getting blocks all the time w/o sedation which is something that many do anyways. But asking each pt how they handled past surgeries help. Some can still have the genetics that clear Benzodiazepines slowly and that is a gene issue, others hyper metabolize them- that is aside from EDS and some have had severe PSA since being a very young child and extremely active which would help with pain at the time but cause severe joint damage and are at that point, so everyone’s genetics/ active diseases play a huge role. So yea usually that is the case and thank you for saying it again Dr Kaveh. Other things are just as important to bring up but in general that is the case with EDS😊
@badeds100
Ай бұрын
Thank you for covering EDS! I had had over 50 surgeries that were EDS related. I love your wisdom! Thank you!!!
@a.b.2850
Ай бұрын
The EDS community very much needs to know what you know. We’re so gaslight by Dr, after some yrs we end up believing we’re insane.
@jessicaroseelizabethp.7911
26 күн бұрын
I have EDS and had chosen to not use pain medication for a procedure and then afterwards experienced shock and my blood pressure had been really low, but plus side, I hadn't needed to pump and dump any breakmilk for feeding my infant at the time. I ended up being okay. Luckily I have not needed to use anesthesia a whole lot, so I am not sure, but I'd had a lot of bleeding difficult to control when my tonsils and adenoids had been removed.
@jodyljohnson8515
Ай бұрын
You're looking rather tired Dr Kaveh! I hope you're getting plenty of rest!? Love ya!💞✌️
@susanm.harris3278
Ай бұрын
I have MTHFR, Ankylosing Spondylarthritis, hyper mobility, EDS and several other things. My back has been fused 5x & my neck has c3-4 fused also.
@Rae-yv7md
Ай бұрын
Try telling that to my opiod phobic Doctor.
@djbrelinski
Ай бұрын
All dental procedures, I’ve experienced extensive pain, even with numbing. My second c-section I felt EVERY. SINGLE. STAPLE!!! Doctors won’t listen. I can’t take opiates because of severe stomach pain. I’ve so many health problems that cannot be properly treated. I just want Jesus to take me home.
@breadroomghost8764
Ай бұрын
I have hEDS, I’m not entirely sure you are correct. Given the regular dose of anesthesia has caused me to wake up mid surgery twice and I’ve heard similar anecdotes from other EDS patients
@vanessarongstad8576
Ай бұрын
Now I understand why my pain was so out of control after my surgery in 2016. It was awful.
@snowpuff22
22 күн бұрын
Glad some awareness is being brought to eds
@Teaganderry
Ай бұрын
I jave EDSh and red hair. I DO require more propofol, and opioid do NOTHING for pain. Please just give me a shot of Toradol and then some ibuprofen.
@ninner196
Ай бұрын
@@Teaganderry There are varying degrees of EDS. The most mild to well you have probably seen it. Those who have been involved in sports, gymnastics, ballet for years that required doing feats of hypertensions over years and may have something like PSA involved or not in some cases has done damage to those vulnerable areas. And if one didn’t do those things then they would have an advantage because to relieve pain many of us would do a 3 hr workout and never put our arms down- all day. I know some that have it and do not have any other involvement. It does not mean having a higher pain tolerance in fact that is what their bodies did for years and so Benzodiazepines ( versed, Ativan, Valium etc) would have less of an effect on someone who’s neurons have been repeatedly pelted by the glial cells to keep going off. That is why there are serious studies being done by Dr. Jarred Younger who is in charge of the Chronic fatigue/ ME research area and is on KZitem. He deals with inflammatory genetics, viruses, bacteria, long Covid, EDS, Gulf war syndrome, and PSA to a degree diabetes with a holistic approach and bang on research. Take care.
@susanneryding6064
Ай бұрын
Is THIS the same for cronic pain patients ? ❤
@naturegirl4074
Ай бұрын
My nervous system was/is dysregulated due to med PTSD and gaslighting o also have hEDS
@statistical-anomaly
Ай бұрын
For everyone that's come to the comments about "milk of amnesia" 1. It's a very common slang term for propofol. 2. There is no milk involved. 3. It's white because propofol is mixed into an opaque lipid emulsion. For those wondering about EDS: Ehlers-danlos syndrome is a genetic disorder resulting in a whole range of other problems, as it effects the formation of connective tissues (bones to skin and everything in-between can get messed up.) There are several types, but the most common comes with a side order of POTS, gastroparesis, MCAS, stretchy skin and dislocations/subluxations. But at least it usually makes you tall 🤷♂️
@susanm.harris3278
Ай бұрын
Could this be why I remember mostly all about my heart cath? They said I’d be awake but wouldn’t remember any of it. I remember it hurt, I was watching the screen with the doctor when he saw that my RCA was 100% blocked. I said “oh I need more music again !” Everyone laughed.
@melindaruston8456
Ай бұрын
Makes so much sense why my failed rib cage surgery and the pain was not helped by any opioid! Horrid pain! And I have to go through it again to have the surgery corrected! Oh man! I wish there was medication that worked on me
@wh6366
Ай бұрын
Do Red Heads need more anaesthetic ?
@JohnMark-bx1ks
Ай бұрын
this doctor made the name propofol a household name😂😂😂😂😂😂
@KimberandDan
Ай бұрын
Is there a way to control pain with mind and meditation? I have a pancreatic stent pains unbearable meds don’t work. What else can I do? Thank you.
@rainbowzebraunicornpegasus2962
Ай бұрын
I can verify this! I don't know an EDSer who doesn't have a dysregulated pain threshold!😢
@jenniferferguson1517
Ай бұрын
I have pots (Eds’s cousin) and every time I have had surgery, it takes me more/longer anesthesia to be knocked out, and longer to wake up. Could this be related to my POTS or am i just weird (well i know I’m weird, but….. lol)
@bread9173
Ай бұрын
I wonder if I need more propofol cause I have been under so many times. Seems like I need larger doses each time.
@taratajbakhsh5095
Ай бұрын
Thanks so so much!
@CharlesSilver-ew3ju
Ай бұрын
How is your pain threshold disregulated? Ive never heard of that term.
@stepht7508
28 күн бұрын
How about someone on high dose Methadone ( For many years).How do you guys figure the dosage?
@alexandriaarmitage9825
Ай бұрын
What about young patients with pacemakers? Anything you do different?
@alix73
Ай бұрын
And what if you are severely allergic to Opoids?
@LB_RED
Ай бұрын
What’s Eds?
@msmakos1
Ай бұрын
Ehler' danlos syndrome
@janetslicer3637
Ай бұрын
@@msmakos1Thank you for this. I also didn't know what it was. ♥️☘️
@statistical-anomaly
Ай бұрын
It's similar to UTFSE and JFGI
@susaniacuone5758
Ай бұрын
hEDS here. I burn through painkillers at the speed of light both local and GA. Unfortunately I've also had adverse reactions to almost all the opiods. A couple of times ive had a spinal but if course thats not always appropriate.😢
@vanessarongstad8576
Ай бұрын
Yes I can’t tolerate any pain medication other than dilaudid and the second I say that I’m an automatic drug seeker. They can’t seem to understand why I don’t tolerate others. Well i could try it but only under in person physician supervision so they can watch me hurl and beg to get off the ride. They thought giving me something with less Tylenol would be better and I was like, NO! You don’t understand I am not tolerating the narcotic. I get it that it doesn’t make sense but it’s real! I seriously only tolerate dilaudid.
@Crrly
Ай бұрын
I do too. Extremely tolerant to any kind of drug, it's actually scary. So we are all not the same.
@claudinehellmuth
Ай бұрын
What is you have EDS but don’t want to take opioids for fear of future addiction
@ninner196
Ай бұрын
@@claudinehellmuth What if your pain drives your blood pressure over 300? Would that then make sense as to why some in so much pain are NOT addicted but depend on pain meds so that they can have a measure of health and maybe stand up?
@cinthumurzello5925
27 күн бұрын
Thanks sir
@teresaanderson3581
Ай бұрын
My nafu is a Red Head
@willowwisp9320
Ай бұрын
Did you just say milk of amnesia
@GeofDumas
Ай бұрын
I thought that was him misspeaking but apparently that is a term for propofol
@ninner196
Ай бұрын
Many of the younger generations have never heard of “Milk of magnesia” it was an over the counter laxative/antacid so it became a play on words. It is not milk and usually is given with lidocaine because it burns veins. If one got their hands on it and used it all the time it would basically excoriate the veins, well even with lido. That is why it is done quickly and the IV is wide open until it flushes through. That is besides the fact that it isn’t for sleeping anyways and on a drip, it has to be on a pump and infused slowly ie to keep one just more settled on a ventilator. It is also called Diprovan which is a brand name so we used to say “Dipdrip for pt so and so.”😊
@hannahscott6604
Ай бұрын
Not always. I don’t.
@gl9764
Ай бұрын
Omg I will Gabe robotic partial nephrectomy
@---Biiiiiird
Ай бұрын
vEDS and PPMS here. This is true but good luck telling your medical staff here. You're labeled as a seeker here in Kansas
@theresabarreras4775
22 күн бұрын
What is EDS?
@DrkathyDavis
Ай бұрын
Propofol correct given with sugary medicine 💉 sound good 👍.
@pamkoraly8169
Ай бұрын
❤❤❤
@angelaosborn6722
21 күн бұрын
Yes but now hospitals let people suffer!
@missdonutaltaccount1380
Ай бұрын
Whats milk of amnesia, & does it taste like milk if you were to take it oral by mistake?
@MissJellybean
Ай бұрын
It's propofol. It's the drug they give you to put you to sleep for surgery. It's a milky color and so he calls it milk of amnesia because it also makes you forget what happened.
@jmc8076
Ай бұрын
@@MissJellybean Thx
@statistical-anomaly
Ай бұрын
JFGI. "Is it really milk" FFS
@missdonutaltaccount1380
Ай бұрын
@@statistical-anomaly I meant does it taste like milk, im not that dumb..
@missdonutaltaccount1380
Ай бұрын
@@MissJellybean Thank you!
@naturegirl4074
Ай бұрын
Milk of amnesia lol
@mdcoleman1999
Ай бұрын
Why is this exactly? My son (21) has EDS
@trustedroot
Ай бұрын
because we already live with so much pain every day that pain tolerance is higher
@statistical-anomaly
Ай бұрын
@@trustedrootActually, no. He said "more opioids" not less. If our pain tolerance was higher, we wouldn't perceive it as pain, thus less need for pain meds. We require more meds due to the many biological changes EDS produces
@ninner196
Ай бұрын
@@statistical-anomaly yes yes and yes that is exactly what Dr Kaveh was saying. Disabled RN and if you have other extremely painful genetic conditions, just one that I have besides this one is considered as painful as bone cancer. Not everyone with EDS needs to be one a stronger med. Please be careful with the type of sport because doing hyper extensions on purpose will effect one more so as they get older and the more surgeries.
@JulianS-xu6ff
Ай бұрын
Informing many of us that in surgery, we will be vulnerable to medication 💊 addiction.
@a.b.2850
Ай бұрын
? 🙏🏻: I get ZERO effect when I take Dilaudid p.os, even at 5-8mg, no-thing happens, it works when injected but not swallowed. But what’s that about? Why? I get those “here’s another one” looks every time I try to explain it. I’m a nurse, I usually can explain everything, but that I can’t (and I hate that!). As far as I know I get this only with Dilaudid; I take oxycodone 10mg bid (x10yrs, works marvellously, gave me my life back). Thanks 🙏🏻
@hoosierpioneer
Ай бұрын
Ok, what's EDS stand for?
@Crrly
Ай бұрын
Ehlers-Danlos Syndrome.
@simmiedavissimmiesings8185
Ай бұрын
EDS?
@sheahouck8728
Ай бұрын
EDS, POTS, IC, MCAS, CHIARI MALFORMATION.... not one Dr gives af.
@AmandaG.2020.
Ай бұрын
❤
@BushyHairedStranger
Ай бұрын
Drug seeking behavior is NORMAL when you are in pain & suffering.
@GreenTambourine1
Ай бұрын
Ok What the Hell is EDS ??
@Crrly
Ай бұрын
Ehlers-Danlos Syndrome, a connective tissue disorder
@squeakymarker6030
25 күн бұрын
Clumsy thumbsied! Accidentally disliked. Oops, I liked it back.🥰😘👌
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