I also agree living with MS and was infected with EBv 15 yrs ago . Never felt better after EBV , I feel Ebv opened the door for MS to take over .
@MStranslate1
2 жыл бұрын
Thank you for sharing your story Jennie. You may be interested in our other videos on this topic as well, where I discuss why we think EBV is involved and how it may be triggering MS (like you describe in your own experience). We will continue to monitor the clinical trials closely and will provide updates whenever they are available - Brett
@Whatintheworld2020
Жыл бұрын
Exactly what it did!
@tbone9603
2 жыл бұрын
My Mom was diagnosed with MS in 1979 and died from MS in 1982, she suffered tremendously. It’s hard to believe it’s been 40 years and still no cure. So sad! 😔
@MStranslate1
2 жыл бұрын
Hi T bone - sorry to hear about the loss of your mother. While progress is slow, we are certainly starting to find more and more of the puzzle pieces and working out how they fit together. Let's hope that this research continues to develop and provides meaningful change for people living with multiple sclerosis - Brett
@Whatintheworld2020
Жыл бұрын
Oh there is a cure but they will never give it to us. They created this virus, just like Covid. I did some research and a scientist way back had a son who had it because he used to take him to work with him. One of the other scientists told the boy we have an antidote but they will never give it to anyone.
@ramazan9857
2 жыл бұрын
When will remyelination treatment arrive?
@paul6150
2 жыл бұрын
I am ashamed to say I never heard about Michael Pender and his work. He will go one my Hero list for sure. Thanks for the video!
@MStranslate1
2 жыл бұрын
Thanks for the comment Paul. Prof Pender has been one of the biggest believers in the link between EBV and MS for a long time, even from before I started my research into multiple sclerosis more than 15 years ago. It is fantastic that his drive and commitment to this work is starting to show such encouraging results! - Brett
@johnfausett3335
2 жыл бұрын
Ever since Pasteur suggested that microbes were the sole cause of disease, we have been stuck in this microbiological ditch which has us chasing germs and attempting to eliminate them from our bodies. This approach ignores the fact that we living among and around a virtual sea of microbes which play a vital role in staying healthy. Focus on the terrain seems to be a much more practical and effective strategy . What act most quickly and effectively changes our microbiome? The food that we swallow.
@MStranslate1
2 жыл бұрын
Hi John, there is certainly some interesting links between the gut microbiome and multiple sclerosis. We have done a number of videos on this topic, which you can find by searching through our channel. In this space, diet certainly may have a role to play in shaping it in a way that is beneficial, though we still aren't clear exactly how this may work yet. In terms of EBV infection, this is something that is slightly separate and unlikely to be modified by diet. All of these puzzle pieces have an important part to play though and it's great that our understanding continues to grow - Brett
@tonyrogic5411
2 жыл бұрын
Thanks Brett, with PPMS I’ve for a long time wanted to hear where this research is going, good video ( let’s hope something comes out of it ).
@Yazzie101
2 жыл бұрын
Anyone testing for EBV needs the 4 panel not 3 .. add the early antigen to know if you have a recent infection or past! Drs usually order the 3 panel which is basically useless!
@4TheAsianDream
2 жыл бұрын
on my 4th MS year and i know i have EBV, recently got tested for it as my doctor suggests it, i feel like herpesviruses and fungal infections are crucial for developing MS and since we do already have it we should treat at least fungal infections
@rmbrugge
2 жыл бұрын
Check out Know The Cause. Doug Kauffman. You tube. Eye opener
@Yazzie101
2 жыл бұрын
Maybe by treating EBV seriously from the start, diseases like MS may not get a chance to develop.. we’ve been neglect for too long!
@user-df8xb8qu6s
2 жыл бұрын
Thank you for this video, This video completely represents what I believe about these researches. When I got the diagnosis of RRMS I was told that the research was progressing fast, now that I am a fifth year medical student I can say they were right. There will be many stages to go through before we can get to the result we hope for but I think we will succeed in the end. I do not consider myself an optimist but when I read about certain results I can only be positive. the extraordinary thing is a change in the therapeutic target, no longer inflammation but one of its possible causes. Things are starting to get interesting
@tomgarbett77
2 жыл бұрын
Completely agree with this, the progression towards researching treatments that target the cause of the disease, rather than suppressing the effects of the disease is really exciting! Having been diagnosed myself a year ago I straight away was disappointed in all the treatments as they simply suppress the immune system and reduce inflammation like you say. Hoping the research is moving as fast as you mention there!
@user-df8xb8qu6s
2 жыл бұрын
@@tomgarbett77 the treatment we have now are very good too! They can prevent the most of neuro damage! 😄
@tomgarbett77
2 жыл бұрын
@@user-df8xb8qu6s Yes agree, they still work - but I have the mindset that I want to stop the disease completely and you only get that from treating the route cause which is why these advances excite me!
@user-df8xb8qu6s
2 жыл бұрын
@@tomgarbett77 I think we are going to make it!😄❤
@quantumdecoherence1289
2 жыл бұрын
Very well put. Although most DMDs have a very modest effect on inflammation, none of the treatments currently prevent progression, only slowing it down. Unfortunately , virtually all cases of MS progress. After ten years, more than 80% of RRMS cases have turned to SPMS, characterized by fewer relapses and neurodegeneration. Studies also show that even in early RRMS and CIS, axons are directly attacked and undergo apoptosis. MS is not just a demyelinating disease as was originally thought. EBV is , in my opinion and many other researchers' opinions, the causative factor. A genetic predisposition and possible demographic factors (further away from the equator) are other variables that lead to clinically definite MS. Moderna has a EBV vaccine in Phase I trials , so figure at least 5 years assuming safety trials are passed, before we see results. Here's hoping that EBV is the key to turning the corner on this debilitating disease.
@bcviking9381
2 жыл бұрын
I have taken a antiviral/antiparasitic drug and it greatly improved my MS symptoms, coincidence maybe?.. All i know my double vision was gone within a week..
@Dddonalddduckkk
2 жыл бұрын
Which one?
@braveheart7050
2 жыл бұрын
Hello, What is the name of that drug?!
@nikkyshairades9078
2 жыл бұрын
Please help list what used?thank you
@bcviking9381
2 жыл бұрын
@@nikkyshairades9078 Ivermectin
@bcviking9381
2 жыл бұрын
@@braveheart7050 ivermectin
@viviannemerr5084
2 жыл бұрын
I don’t know how much longer we should wait. 😨😓😱
@MK-fi6mh
2 жыл бұрын
Yeah 👍🏽👍🏽👍🏽
@Durace11Bunny
2 жыл бұрын
Feels like a slow slog
@RSsboy90
2 жыл бұрын
Hi, brett! If I understand your point here correctly, T-cell immunotherapy could theoretically help clear the EBV- infection, which in turn could possibly clear the latent EBC infection, right? Now, I've read from Prof. Gavin Giovannoni that EBV ''hides'' from the immune system in B-cells. Is this proven? And could this explain why anti-cd20 therapies are so highly effective in treating the disease? Kind regards, Markus
@quantumdecoherence1289
2 жыл бұрын
This is true. Look up Atara Biotherapeutics . They are in Phase 2 study for progressive MS, a T cell therapy that targets B cells that harbor EBV. There are tantalizing early results that suggest a robust clinical benefit.
@MStranslate1
2 жыл бұрын
Hi Markus, yes that's correct on both counts. As Quantum mentions, there are a couple of trials currently looking at this approach of clearing the EBV infection in people living with MS. We are monitoring them closely and will provide updates whenever they become available. Thanks - Brett
@angelbabycards3595
Жыл бұрын
Here you go. I use my 162 I.Q. to do Internet Research. Hope this helps. :) Ask Google - People also ask: What autoimmune diseases can Epstein-Barr cause? This article looks at the link between EBV and seven autoimmune diseases. ... Here is the complete list of diseases believed to be associated with EBV: Lupus. Rheumatoid arthritis. Multiple sclerosis. Inflammatory bowel disease. Type 1 diabetes. Juvenile idiopathic arthritis. Celiac disease. About 2,370,000 results (0.53 seconds) Image result for epstein barr virus multiple sclerosis Infection with Epstein-Barr virus dramatically increased the odds of developing multiple sclerosis. The finding suggests that vaccines against the virus could help prevent multiple sclerosis.Feb 1, 2022 Gene-Eden-VIR/Novirin is a natural, broad-spectrum, antiviral treatment. The formula includes 5 ingredients: a 100 mg extract of quercetin, a 150 mg extract of green tea, a 50 mg extract of cinnamon, a 25 mg extract of licorice, and 100 µg of selenium. Clinical studies showed that Gene-Eden-VIR/Novirin is a safe and effective treatment against several viruses, including the human papillomavirus (HPV), herpes simplex virus (HSV), Epstein-Barr virus (EBV), human cytomegalovirus (HCMV), and hepatitis C virus (HCV).11-14 In another study, Polansky et al suggested that the possible broad antiviral effects of Gene-Eden-VIR/Novirin may be mediated through the treatment’s effect on the immune system.15 In the next section, we review evidence on the effects of the Gene-Eden-VIR/Novirin ingredients on the betacoronaviruses family of viruses, and specifically, the SARS-CoV virus. People also ask What is Novirin used for? Clinical studies showed that Gene-Eden-VIR/Novirin is a safe and effective treatment against several viruses, including the human papillomavirus (HPV), herpes simplex virus (HSV), Epstein-Barr virus (EBV), human cytomegalovirus (HCMV), and hepatitis C virus (HCV). www.ncbi.nlm.nih.gov/pmc/articles/PMC7303500/
@petersinclair9018
2 жыл бұрын
I’ve had MS since 2009. I had the EBV virus in 1989. I had 2 benign tumours in 2006. 2009 I had a urine infection. I think it’s an overload of the immune system.
@MStranslate1
2 жыл бұрын
Hi Peter, thanks for sharing your thoughts and story. If you haven't seen it already, you may be interesting in watching my most recent video on this topic, where I discuss some research that suggests how EBV may be playing a role in triggering multiple sclerosis. You can view that video here: kzitem.info/news/bejne/23mMtpierXaUqYY - Brett
@svenjonsson1526
2 жыл бұрын
Are any trial available for patients presenting with RRMS? I am a physician in the USA. Thanks for your response.
@MStranslate1
2 жыл бұрын
Hi Sven, thanks for your question. In terms of the Atara Biotherapeutics study mentioned in the video, they have only recruited people with progressive MS (clinicaltrials.gov/ct2/show/NCT03283826?term=ATA188&cond=Multiple+Sclerosis&cntry=US&draw=2&rank=1). I'm sure that there will be future trials for people living with RRMS, we will continue to monitor the space and provide updates whenever they are available - Brett
@SpaceshipEarth
2 жыл бұрын
the MRNA covid vaccine gave me MS... this is a HORRIBLE idea.
@arethaalston9750
2 жыл бұрын
All thanks to Dr.Auchi on KZitem for cured me completely from Multiple Sclerosis diseases, if you are there suffering from Multiple Sclerosis disease you can kind visit is KZitem channel kzitem.info/rock/6tA16t1IlKx1bY93lc2rcg for a solution✅✅
@bcviking9381
2 жыл бұрын
A new MS drug study just came out at the University of Calgary on Hydroxychloroquine is very promising .. Also Ivermectin showed a great potential to prevent inflammation and to promote nerve cell recovery remyelination in a mouse model of MS, EAE.
@braveheart7050
2 жыл бұрын
Where I can read about that?!
@bcviking9381
2 жыл бұрын
@@braveheart7050 just goggle ivermectin for ms .
@MStranslate1
2 жыл бұрын
There is still a lot of work to be done in this area. If you send me a link to a specific research paper, I would be happy to do a video summarising the results and giving my thoughts - Brett
@JeanineMannweiler
6 ай бұрын
Is there a current video/update? I was excited to watch this but realize that it is from 2022. Thank you!
@jtsays429
Жыл бұрын
Have there been any studies on MCT oil, coconut oil as cooking oils, olive oils helping with MS. Good nutrition helps a lot. My mom was diagnosed when I was ten, and after my 1st child, I was diagnosed. I'm taking a different approach than my mother and refuse to take steroids. I believe mom has been now diagnosed w EBV. It is really taking a toll on her this year. Behavioral, she's gotten real bad. I believe she's given up, but the terror she reaping on my dad is terrible.
@Iamhere12333
2 жыл бұрын
I have a question. If ebv is the driving force then why havent retrovirals been employed already? Its either 1. The treatment force has been about making money off ms or/and 2. Ill will. Either 1 or 2 must exist.
@MStranslate1
2 жыл бұрын
Hi Paradise Lost - there have definitely been studies that have looked at antiviral use in MS. The difficulty with EBV is that I don't believe the antivirals are successful in clearing the infection, just stopping reactivation. It appears from some of the data that we have that clearing the chronic infection is what might be important as a treatment approach for MS. Thanks - Brett
@Durace11Bunny
2 жыл бұрын
Do they know when people are likely infected with EBV? In an ideal world it would be good to know a vaccine was out there to give our children before infection etc.
@MStranslate1
2 жыл бұрын
Hi Richard, thanks for the question. People tend to get exposed to the virus relatively early in life. While the exact numbers differ based on the study, roughly 50% of people look to have been infected before the age of 10 and then it is around 90% by the age of 20. In terms of a vaccine strategy, it would likely need to be given to children to be effective. Thanks - Brett
@timirusmanable
2 жыл бұрын
Basically if you are rich, then autoimmune disorders aren’t a problem for you, because you have an access to biologic medicine
@dawnkos5193
2 жыл бұрын
I’ve had multiple sclerosis since I was 17 and around the age of 25 to 30 I was tested for Epstein-Barr virus and it came back negative. I am 44 now and I am wondering why it came back negative and should I be retested?
@MStranslate1
2 жыл бұрын
Hi Dawn, thanks for the question. It is possible that some of the techniques that were previously used to test weren't sensitive enough to detect the previous infection. When I started doing research, we thought it was only about 94-95% of people living with MS had been previously infected with EBV. The main reason why more recent studies have found that to be 100% is that the methods used have become more sophisticated. At this stage, there probably isn't much benefit in knowing if you have or haven't been previously infected, but it is certainly a conversation that you could have with your neurologist or healthcare professional if you are interested. Thanks - Brett
@samaelcortez1387
Жыл бұрын
Try testing for cmv
@dejaluc3579
2 жыл бұрын
#DrBalogun you are good sent to me, I use to be #herpes positive but now I'm negative with his product.
@smmcb647
2 жыл бұрын
Where can I volunteer to be in the trial for this new treatment? I’m currently on Tysabri and my MS is slowly, slowly, smouldering and getting worse. I did not get diagnosed with MS till age 57 and I believe it occurred after a particularly nasty flu infection I had 5 years ago + undiagnosed Vitamin D deficiency. I’m on the East Coast of Australia.
@MStranslate1
2 жыл бұрын
Hi SM McB - apologies for the delay in responding to your question. I don't believe the trial is currently recruiting, but stay tuned, as we will provide updates when they become available. Thanks - Brett
@Durace11Bunny
2 жыл бұрын
Also, keep up the good work we really appreciate the content.
@ernietollar407
Жыл бұрын
post non myeloablative HSCT in Mexico (cyclophosphimide and then B cell depletion with Rituxan I wonder about my EBV status - whether it is still detacable and/or could become active.
@arisarg1989
2 жыл бұрын
So if i understood well. 100% of the people who suffer ( me also ) from MS got sicked sometimes from Epstein Bar virus but probably is not the only factor causing MS ? So do i definitely have to make a n antigen test for EBV virus?
@MStranslate1
2 жыл бұрын
Thanks for the question. So based on recent research, it appears that 100% of people living with MS have been previously infected with Epstein-Barr virus (EBV). It is important to realise though that a lot of people exposed to the virus never become sick (i.e. they don't develop glandular fever). At the moment, our understanding is that it is necessary for MS to develop, but isn't sufficient (so the virus alone doesn't cause MS). At this stage, there probably isn't much benefit in knowing if you have or haven't been previously infected, but it is certainly a conversation that you could have with your neurologist or healthcare professional if you are interested. Thanks - Brett
@Jess-kn8vl
9 ай бұрын
In my opinion, it's EBV combined with chronic stress whether its emotional, physical or environmental. More so in combination.
@victoriaorsson3037
2 жыл бұрын
Treatment, big pharmas favorite word.
@annaburdziej3233
Жыл бұрын
Thank you for this video and everything you do on MS matter :-)
@MK-fi6mh
2 жыл бұрын
Thank you
@talevskablagica7540
Жыл бұрын
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