Today was a tough one. We knew this could happen. They told us from the beginning that Mason could get sick during this process, and the reality is, that means it's working. Mason is a trooper. To top it off, Mom has to fly back home.
Thank you for all the views, likes, and support- seeing this story spread has been humbling. Thank you all.
Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this KZitem channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy. Mason was recently infused with Elevidys.
What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy. HUGE THANK YOU to Sarepta (Elevidys) and Seattle Children's Hospital!!!
For our first 7 days, we will be posting one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to KZitem to help spread the message and raise awareness of this rare disease.
You can follow us here on KZitem and on Instagram @BafusFamily
#duchenne #duchennemusculardystrophy #dmd
Негізгі бет Even Miracles Have Side Effects: Mason's Challenging Day - Day 5
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