RSD 32 years. Thanks you for your help through the years.
@karindella
2 жыл бұрын
Excellent presentation
@rudykent
2 жыл бұрын
Thank you so much
@DB26423
2 жыл бұрын
It changed my life 5 years ago. I am now a shadow of my former self and as the shadow i feel invisible in society. This disease is still so grossly misunderstood or not even recognised by a number of medical professionals I have come into contact with over the years. Here in Australia it is not recognised as well as it should be. Describing this disease as a pain problem I.e CR(P)S makes this disease less relevant and urgent in this country when attempting to secure specialised medical supports. If it was recognised for the physical disabilities and bone, nerve, and muscle changes and damage it results in etc, it would be looked at differently.
@RSDSA
2 жыл бұрын
Are you looking for a new physician?
@DB26423
2 жыл бұрын
@@RSDSA whatever information you can give me I will take
@michelledcarter
2 жыл бұрын
@@DB26423 Have you received any help? In America, however have had this for many, many years and feel your pain. Have alot of knowledge.
@susannahcollingwood7395
Жыл бұрын
I’ve had it for eight years, and in England it doesn’t see to be recognised AT ALL!
@judyrollings8930
9 ай бұрын
My daughter developed CRPS after a neck fusion. She's seeing a pain doc who put her on Belbuca and is recommending a spinal cord stimulator. She's very nervous about this. She gets the pain right side, also chest, abdomen, back and extreme daytime fatigue. This disease has ruined her life. Some of the modalities mentioned here have not been tried. Thank you for your expertise in this area. You were recommended by an anesthesiologist friend.
@dorenehendricks6627
2 жыл бұрын
If it's to late there is no cure its horrible to have 18 years
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