i have mitochondrial disease i thank god every night and day for letting me live god has done a lot of things for me and i just dont know how to thank him
@mnat28
14 жыл бұрын
My niece has Mitochondrial disease-but her symptoms are completely different. She started having seizures at 5 mos that were uncontrollable-trying to find a reason for those they discovered the disease. She lives with epilepsy as a result and with very low muscle tone-which affects her walking and fine and gross motor skills. God bless your family and gives you strength.
@Barbie-gg3fx
5 жыл бұрын
That breaks my heart.... Prayers and angels to your family, I hope medicine finds a cure, or a therapy for all those out there with this...
@quadnuker6829
2 жыл бұрын
sadly, there is no cure for mitochondrial disease. Mitochondria have their own DNA and replicate separate from the cell, so genetic therapy won't affect them. All we can do is hope her kids wont have the same thing she does.
@susanfenner851
5 жыл бұрын
Thank you so much Jack Black, I know you really care for Mito sufferers, which I have. Again Jack, thank you for all the work you do for Mitochondrial patients. I would love to meet you Jack, perhaps Jack, you could come to Australia & meet us all. Best wishes to all. xx
@raminshaman
15 жыл бұрын
thanks for informing the public with your stories
@thereIsaidit123
6 ай бұрын
Im really sad to see this child suffer. In march 2023 i started to walk strange, slur speech and within 4 months i was 89% disabled, severe muscle weakness, stomach issues, inmobile, could not do anything at all. I prayed for a miracle , some days i prayed to die, other days i prayed to live. Doctors could not find diagnosis. Then they diagnosed me with mitocondrial dysfuntion, the doctor gave me 400mlg of B2 taken 3 x a day. After 9 months of being nearly paralyzed , i started to walk again, then i was able to shower on my own etc... now i am 80% cured. I am not sure if it was the B2 or the universe giving me a 2nd chance but i pray that scientist find a cure so this child can run, play and do math. God bless her supportive loving parents.
@lotusfaisal
13 жыл бұрын
emily is beautiful . i have lost 2 most precious and beautiful girls ..... life will never be same again.... i miss them with every breath,,,, sadly i was in third world where very veryvery less info was available... emily reminded me of my second daughter .. so much resemblence..... strangely as a kid i lived near atlanta and back then in 84 i collected charity for jerry lewis for MD... not knowing my kids one day will have rare disease of same family...... will pray for u always .
@yodaydyxz1752
9 жыл бұрын
She's so beautiful.I wished she finished the poem herself.
@Jeffreycox521
7 жыл бұрын
i have mitochondrial disease too i dont feel well too i cant get the right help. also other promblems so i pray for everyone out there who struggles
@TheMelmel1
14 жыл бұрын
god Bless her she is Beautiful and i no ur faqmily and u Emily will be Strong Melissa
@sallydavidcallumcaleigh
15 жыл бұрын
Thank you for sharing, as with others we have been struggling with misdiagnosis' for years and it wasn't until I have two children that are symptomatic that we found its mito. My poor husband is the only one in the family without mito!
@itme3495
6 жыл бұрын
There used to be a girl at my school who was a year ahead if me which means that she was in junior high and she had mitochondrial disease too and she also was blind and had diabetes, a couple of weeks ago she died from the disease and my teacher said that a couple of weeks ago his son's coach died from cancer at the age of 28, me and my friend think that he may have been talking about Kenely Montes (the girl who died from mitochondrial disease) but we also think that he could've been talking about his son's coach too, the funeral was yesterday and one of my friends went there bc his sister was friends with Kenely, all love goes to her and her family
@racheltheradish2682
6 жыл бұрын
My siblings and I have mitochondrial disease
@breadly3252
4 жыл бұрын
right ear, left ear. dang just choose both
@SolomonUcko
3 жыл бұрын
Yeah :/ Try enabling "mono audio" in your computer's settings.
@breadly3252
3 жыл бұрын
@@SolomonUcko I dont remember ever writing this comment lol. What does it even mean
@SolomonUcko
3 жыл бұрын
@@breadly3252 Audio only coming out on one side instead of both. Try listening to the video briefly, especially with headphones.
@breadly3252
3 жыл бұрын
@@SolomonUcko I hear it now thank you
@FullTimePatient37
11 ай бұрын
MNGIE here...
@robkim55
15 жыл бұрын
I hope for the best outcome for this situation
@nkosimitchell
7 жыл бұрын
We are fighting to crack the code, we would better understand the spectrum of disease as we elucidate more about the pathways involved
@wsdrummer06
14 жыл бұрын
My friend Maggie has Mito and there isn't a day that goes by that I don't have my UMDF braclet on.
@squisybts4317
3 жыл бұрын
Awwww that heart breaking
@prajnajewelry
15 жыл бұрын
We thought you would like to know Brianna Couture the girl in one of the video's on your site is critically ill in the ICU in Boston MA, her friend started a page on facebook, called Support Brianna Couture. please send your love and support
@seanwilliams597
8 жыл бұрын
I have mitochondrial disease it hasn't slurred my speech it stopped it completely and caused me to have a stroke at 23 I'm 27 now
@colinbrodhead37
5 жыл бұрын
Nicotinamide Riboside (Niagen; Elysium Basis, etc.) now seems to address this problem. "Effective treatment of mitochondrial myopathy by nicotinamide riboside, a vitamin B3" www.ncbi.nlm.nih.gov/pmc/articles/PMC4203351/
@notsogreen
5 жыл бұрын
Has the decrease in number of cigarette smokers worldwide cause an increase in mito diseases worldwide?
@FullTimePatient37
11 ай бұрын
I'm almost mute..I have general Dystonia..and part of it affects vocal chords throat jaw etc..
@gizmo357
14 жыл бұрын
AMAZING!
@emmamills3279
6 жыл бұрын
I have this too
@littleviolin6407
4 жыл бұрын
I hope she has a amazing life besides her disease
@playmobil806
15 күн бұрын
Muttersprachen überprüfen der betroffenen Kinder....
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