How can I get ahold of this family? I’m a mother with a 5 month old girl who is diagnosed with BBS also. MKKF Type 6. Id love to get in touch to communicate with her.
@casandraokoye7618
2 жыл бұрын
Me too I find out my son have the same diagnosis with BBS in my 6 months pregnancy and I don't no what to do I have a question to the family that have the same problem like me what can I do to keep my boy alive because this makes me cry every night finding out my boy have it pls I need help
@milamommy5759
2 жыл бұрын
@@casandraokoye7618 are you still pregnant? I didn’t have a clue of anything happening to my daughter till she was born, didn’t get diagnosed till she was 4 months old. We stayed in the NICU here in the island of Oahu. I had to go into emergency c section. It was a horrific sight to see my daughter the way she was. But today, you wouldn’t never thought she’s going thru what she is. She looks like any other baby girl. We just did her reconstruction surgery of her organs, it was a spooky one but she pulled thru like I knew she would. She’s 15 months old. Maybe we could exchange some words if your interested?
@MuhammadUsman-t4z
9 ай бұрын
@@milamommy5759 I have a son who is now 20 months old. He is also diagnosed with bbs with visual features. can you please suggest me how to take care, how to make sure that impairment is as less as possible.
Пікірлер: 4