"Some of our astute followers have noticed me slurring my words. I am not drunk but working with Brad it would be justifiable. I had 6 infected cysts removed from my mouth (noncancerous) and I have residual scar tissue and numbness. I will try to do better. Thanks Bob."
@jackiesicilian5720
2 жыл бұрын
Oh my, sorry to hear that, prayers for you 🙏
@SGTSpliffer
2 жыл бұрын
You look well...but God will fix that.
@gillhall7590
2 жыл бұрын
Wishing you well
@jabolbot9371
2 жыл бұрын
Wishing you a speedy recovery.
@pamelabrown7368
2 жыл бұрын
Love you guys! 😍
@cherylmcnutt9905
3 жыл бұрын
It’s the same for Traumatic Brain Injury (TBI) survivors. Because others can’t SEE the problems we experience, they don’t believe we have issues. As if life isn’t hard enough trying to function while having a brain injury, people dismissing our pain, brain fog, etc. makes it SO MUCH harder!
@rhianwenj7597
3 жыл бұрын
My Fibro came from a TBI. Fatigue is one of my biggest symptoms, along with thinking, I don't process things as fast. I have over 20 symptoms so you can guarantee a few are visiting daily. Best wishes and do hope you find some healing. X
@Rishy223
3 жыл бұрын
Glad you made this video. A lot of PT’s and even doctors think fibromyalgia is a joke. Thank you for bringing awareness to the condition!
@Angelface11
3 жыл бұрын
Any such people should get it themselves. It can be truly misery. And so many kill themselves over it as the pain becomes too much. Doctors can be the biggest ego maniac idiots ever- and don't like to diagnose what they can't explain.
@BobandBrad
3 жыл бұрын
Happy to help!
@wandaterry2278
3 жыл бұрын
Thank you
@jamilaaqeela2659
2 жыл бұрын
Fibromyalgia makes you CRAZY!
@lorismith5369
Жыл бұрын
Yes, thank you!
@shawnacarter946
3 жыл бұрын
I have had fibromyalgia for over 20 years this pain is no joke. I'm in the middle of a flare right now. I am in so much pain I'm glad I came across this video.
@anyascelticcreations
3 жыл бұрын
I'm right there with you. Crying as I write. Hugs.
@Blueskys1972
3 жыл бұрын
I have fibromyalgia also since 2004. Going to physical therapy right now for frozen shoulder, tennis elbow and plantar fasciitis. I really feel fibro could be the cause for these problems. What a painful mess. Does anyone else here think that maybe this fibromyalgia is a blood flow circulation problem of some sort? Sometimes when I have to get my blood drawn, the blood doesn't come out. I wanted to say for my tennis elbow I've been using something called a flex bar, starting out with the red one, least tension... you twist it with your good arm while holding the other end with your bad arm, straighten your arms out in front of you and untwist the bar slowly with your bad arm. Kind of hard to explain how you do it but it has been very helpful, much more helpful than doing stretches. Doing stretches for my shoulder to get my range of motion back. Frozen shoulder and tennis elbow on the same arm.
@anyascelticcreations
3 жыл бұрын
@@Blueskys1972 I'm the opposite when my blood is drawn or I get a shot. I don't stop bleeding for a while. Yet my legs are blue. Though the blue didn't start until I got COVID. And I was sick long before that. Since many of us feel better as long as we stay active, it could be circulation related. I also felt MUCH better when I used to use a jacuzzi at a gym. Sadly, remaining active all the time isn't sustainable. Especially since we're already exhausted and don't recover well. I finally gave up on moving. I couldn't keep it up. And now I barely can anymore. 😢
@pampixley2300
3 жыл бұрын
@@anyascelticcreations I didn’t know how awful this condition is. I’m sorry you are in such pain and I hope this video helps you in some way. Many prayers and good thoughts for you and all who suffer from this❤️
@alexisg3348
3 жыл бұрын
What do you do for the pain?
@silvermoonuk
3 жыл бұрын
I have fibromyalgia. It is nasty. I'm 37 years old and I cannot work, socialise well and enjoy life as a result of severe daily pain, fatigue, mood swings, IBS, tinnitus, dizzy spells, weight issues, etc. Fms isn't just about pain. There are hundreds of symptoms associated with this neurological disability. Doctors don't take it seriously sadly. 😒
@kayeszymanski6945
3 жыл бұрын
Silver Moon try asking your doctors to check your blood for calcium, parathyroid hormone and vitamin D in the same blood draw. Best wishes to you!!
@lalaland962
3 жыл бұрын
I was lucky enough, in 1990 (when the vast majority of doctors didn't believe it existed), that my doctor DID know it existed, but before diagnosing me, he ran several tests to make sure it wasn't RA or some other painful disease. Once he got the results of the tests, he sent me to a specialist who agreed that I had fibro.
@Angelface11
3 жыл бұрын
Yep! That's because they don't understand it- Most doctors are ego maniacs. Just work on it naturally. That works better anyway. Doctors only know meds. Meds don't really cute.
@green.monkey
3 жыл бұрын
Likewise (and I'm 38 yrs old)... I feel a lot of compassion for you Silver Moon. I can't work either, socialize well or enjoy life, exactly like you wrote. I experienced so much gaslighting from local doctors, so I did my own research and after months of trial and error (CBT and EMDR aggravated my symptoms, for example), I can tell you that so far the only therapy that's actually helping me is Somatic Experiencing. Learning about Autonomic Nervous System (ANS) dysregulation via Polyvagal Theory has changed my life in that regard... Fibromyalgia really seems to be an issue of ANS dysregulation, which also explains why we have so many horrible symptoms... When the ANS can't regulate itself, the whole system falls apart. Somatic Experiencing works really well to reprogram the responses of the ANS (which is "Autonomous", i.e., automatic, it's got nothing to do with willpower) so that "normal" life events no longer trigger survival responses from either the Sympathetic nervous system (fight or flight), or the Dorsal Vagal system (shutdown), or a combination of both (freeze), and when you do get triggered by stressful life situations, your ANS can self-regulate back to Ventral Vagal like a person without Fibromyalgia. Also, I self-medicate with CBD, it helps with anxiety. It's not enough on its own, but it's a good support while I go through my therapeutic journey. Sending a lot of love and compassion to you and everyone with FM.
@gijsbon8065
2 жыл бұрын
@@kayeszymanski6945 u cant see it in blood
@Madonna_at_Butterfly_Acres
3 жыл бұрын
It was so nice to hear Chris talk about the pain levels. I live in southern Wv and have been to Dr after Dr. No one understands. My daughter poked me with her finger and couldn't understand why I yelled. To me it felt like a knife stab.
@af5825
3 жыл бұрын
Tell her you are hypersensitive to please try and understand.
@roadrunner3232
3 жыл бұрын
My mom is the same , I understood it better as I got older . She was and is always in pain.
@anyascelticcreations
3 жыл бұрын
I'm that way, too. I love the comfort of my kitties laying on me. But if they step in just the right spots it sends me through the roof.
@lalaland962
3 жыл бұрын
Yes! My husband didn't understand until recently that it hurt when he grabbed knee. Most people it tickles, but it really hurt me, and he wasn't even doing it hard.
@Angelface11
3 жыл бұрын
Yeah it affects the nerves and nerve pain is just awful. You honestly don't know if you actually broke a bone- or it's just nerves.
@sarahr3747
2 жыл бұрын
As a nurse practitioner student I can tell you that these guys hit all the key points! Lifestyle modifications are so important and people tend to be most successful at making these changes when they “habit stack” meaning you change one thing first and once that is established you add a new habit. Sleep, diet, and exercise are key. Medications, cognitive behavioral therapy, and physical therapy round out the treatment options. Awesome presentation! This has helped me think more about how I will approach my fibromyalgia patients as a new nurse practitioner.
@sarahr3747
2 жыл бұрын
@DAVID&MARY there’s no known cure, but lifestyle changes can help a lot. You need to minimize anything causing inflammation in your body. Have you seen a rheumatologist?
@smasome
2 жыл бұрын
No, no cure but can go into remission for months or years.. I had a great day, exercise, felt strong. Next day my muscles were so sore I hardly got out of my chair. Today - no pain at all! So yes, my muscles were probably sore, but that overwhelming pain was fibromyalgia, the amplification of what was happening. Learning to live with the uncertainty is important.
@santievandermerwe
3 жыл бұрын
I was first diagnosed with fibromyalgia before it had an official name. Back then, in 1990 the rheumatologist called it muscle rheumatism. I was in my very early 20's. It sort of went away after a year or two, but came back with a vengeance when I hit my 40's when I was officially diagnosed with fibromyalgia. Now, a decade later, I have fine tuned my meds with the help of my GP and rheumatologist. I still have pain but it's not debilitating, and don't have flares as often as I used to. Dietary changes hadn't make a difference for me at all, not even cutting out sugar or gluten. What really made a difference for me is listening to my body. To eat when I am hungry and to rest when I am tired. I cut down all unnecessary activities, and learned to say no when I am not up to something. I do yoga daily, but I adjust my practice to my ability at the moment. Accepting my limitations and understanding that I am not this syndrome were the most valuable lessons I have learned.
@anyascelticcreations
3 жыл бұрын
I cut out everything bad from my diet, too. Just like everyone says. No gluten, sugar, soy, msg, you name it. If it was toxic, I didn't eat it. I worked out, too. And I still felt awful. I looked great. But I felt awful. So I gave up on everything. Now I look about how I feel and can barely move. Unfortunately, I have no medical support. I'm on my own.
@santievandermerwe
3 жыл бұрын
@@anyascelticcreations , I am sorry you are having such a hard time.
@anyascelticcreations
3 жыл бұрын
@@santievandermerwe Thank you. You did give really good advice, though. I tend to not eat until my blood sugar is crashing. And I used to push myself way too hard. Maybe I should listen to my body more. But I'm glad that you have found ways to feel a bit better. Thank you for the kind words. Hugs.
@Stephanie-hv1vn
2 жыл бұрын
what med have you found to be the most helpful?
@lenabaquedano3608
2 жыл бұрын
I was finally diagnosed with fibromyalgia in spring of 2021. I started taking Cymbalta. Within 2 months pain, brain fog, memory problem, and constantly feeling of needing to pee were mostly gone. I moved from PNW, Seattle, Washington to Mexico City. Away from a lot of stress and memories of domestic abuse. My pain was always bad with cold weather. Felt like I had ice under my skin in left shoulder, wrist and ankle. Would make me cry. And unable to focus or think. Last fall I went off Cymbalta because it was causing side affects. Feeling of vibrating in legs, sometimes abdomen. I have only had a couple of bad days when I over did it and ate wheat ( gluten). Maybe the warmer weather has helped. Usually 70 to 85 all year round. Now I feel normal which is extra special after years of feeling horrible.
@adamjacksonhughes3860
3 жыл бұрын
Thank you for posting this video. I suffer with fibromyalgia and the pain is unreal from head to toe from waking up to going to bed.
@gijsbon8065
2 жыл бұрын
have you tried serrapeptase yet? it helped me
@daughteroftheking5217
3 жыл бұрын
I found this video when looking for a way to get rid of a big knot. Y’all made me cry. Thank you for acknowledging this horrible condition and make it so others can understand.
@saya6899
3 жыл бұрын
Finally someone who understands us. I have RA and Fibromyalgia 😓 I used to be very active, and it is frustrating feeling in pain every single day. Sometimes I can't even comb my hair.
@thesaschostag3333
3 жыл бұрын
I understand. I have fibromyalgia, RA, Sjogren's, and Lupus. I don't know what it is that is causing my pain. Oh I have neuropathy also.
@cactustree505
Жыл бұрын
I got fibromyalgia after a toxic chemical exposure. It still amazes me that so many healthcare providers think if the patient is a woman it's all in her head or she is exaggerating but that same doctor will take a man with fibromyalgia seriously. 😾Time after time in support groups we hear about the differences in the time given and the treatments given by docs for their men vs women patients. Thank you for this video, it is *so* helpful and so very *needed*. BTW, support groups are not only a good place to share this video, you will help others, get help and make friends there. 💟
@krebzy9328
Жыл бұрын
I suppose it depends. When I was first diagnosed with fibromyalgia I didn't understand really what it was still (yes even after years of tests for other auto immune conditions). I was in so much pain I went to the hospital, hoping to get some kind of relief from a really bad flare. I had a female doctor come into the room and she yelled at me that everything was all in my head and that I was wasting her time and I'm a hypochondriac and she slammed the door and walked out of the room. Mind you I was still very freshly diagnosed, I didn't even know yet if fibromyalgia was even dangerous, I was just desperate for help and information. Because of that woman, I will never go to a hospital ever again in pain.
@redcyric1222
3 жыл бұрын
I have a friend who has fibromyalgia, I didn't trully understand what it was when she explained it to me but now I do, so thank you for the explanation. I'm going to show her this video and your channel too.
@lalaland962
3 жыл бұрын
I've had it since 1990 (dx in 1994) after an auto accident, and no matter what, I couldn't explain it to my husband. I think he thought I was making it up. I came across a really good article online about it and sent it to him. Now, he gets it. Your friend is lucky to have you.
@Angelface11
3 жыл бұрын
It can be like having the flu..plus being in a car wreck and being covered in electric razor wire...plus much more- And a head cold. It's not fun.
@stephaniekeller4449
2 жыл бұрын
@@lalaland962 Mine was caused from the whiplash from a semi truck hitting me in my car.
@triumph447
3 жыл бұрын
Excellent, respectful tone to this conversation. Nailed it! Truly an essential element when listening to something about FM and trying to gain more strategies for managing these health challenges. Much appreciated. Good info too.
@sadhanamoodley99
3 жыл бұрын
The empathy of this video is amazing. I thank you!
@barbarahoon9321
Жыл бұрын
So greatful for your recording. When my body is burning it feels like someone threw a bucket of acid over me or like someone putting a hot iron on me and burning me. Incredibly painful.
@mmbmbmbmb
3 жыл бұрын
Thank you for your respectful way of shedding light on the devastating/debilitating suffering of so many . . .
@AmySmith-wp5om
3 жыл бұрын
Very spot on. I've suffered with fibro for quite a few yrs and learming to be in tune with your body and what it's telling you is essential. I often tell people fibro feels like you're coming down with the flu and that feeling might be better some days, but it never entirely goes away. In this fibro journey, I had to realize that narcotics were gonna kill me and I also had to learn that I needed to do physical things on my own terms. I would often get asked from people, "Why you going hiking, you know you'll hurt terribly tomorrow." I would answer, "Because, I'm gonna live today and if I hurt tomorrow then I'll deal with it then. Today I'm doing what makes me happy." I wasn't going to let fibro make me feel like I was just waiting to die anymore. I wasn't 90 yrs old and I was no longer gonna act like it. One day at a time! Thanks for this, it's great info.
@deborahbeattie9103
3 жыл бұрын
Fybro can be a lot worse than that. Extremely worse. The people I know who have it a lot worse have a nightmare being understood. Very little contact with others, very limited communication. And many thinking they already know because they know someone who has it not so bad. Those who have it not so bad please do those who suffer worse a favour and highlight this 😊
@indigoblue4791
Жыл бұрын
@@deborahbeattie9103 Oh l agree. When l hear people describing going out to walk a trail or still working their job l am genuinely bemused. Honestly l think too myself, they haven't got fibro!!! They would struggle to get ready and into the car to even make the journey to the trail if they had!! Then l remind myself that not everyone suffers to the same degree. I would hate to minimize their pain even though it is obviously not equal to mine and many other hundreds and thousands of pain warriors on the planet. Over generalizations are incredibly unhelpful when discussing this condition. Be sensitive and compassionate to other suffers.
@lindatemple5951
Жыл бұрын
Great outlook. Fear of pain post activity is real but in all honesty fibro has a mind of its own so you can be in pain whether or not you've been active.
@mandy7469
2 жыл бұрын
I was diagnosed with fibromyalgia just over a year ago now & wanted to thank you for making this video and being so inclusive and understanding of the condition. I tried Cymbalta for about 5 months after getting diagnosed and it was horrible. I don’t remember months of my life. It’s insane. So I do agree, medication can do wonders with fibro, but can also do much harm. Make sure you find a provider you trust when making choices on medication. I was just thrown Cymbalta and was given no other real guidance. So I just want to say I truly appreciate this video and how much of an emphasis you put on lifestyle changes, rather than just medicine.
@la_baby_khalil7703
3 жыл бұрын
😟 HAVING LUPUS and FIBROMYALGIA it's a VERY miserable/bitter/depressing/anxious LIFE...THANK-YOU FOR UNDERSTANDING and ADDRESSING IT DOCTORS...AMEN!!! 🙏😔🙏
@marirod8167
3 жыл бұрын
I’m 33 years old I was diagnosed 8 years ago with lupus and now with fibro about 2 years ago. It sucks.
@la_baby_khalil7703
3 жыл бұрын
@@marirod8167 🙏😢🙏
@la_baby_khalil7703
3 жыл бұрын
@@marirod8167 🙏 GOD BLESS YOU BEAUTIFUL!!! 🙏🌹💪👑🙏 STAY STRONG Ms. Mari. PRAYER has helped me so much!!! 🙏☺🙏
@deborahbeattie9103
3 жыл бұрын
kzitem.info/news/bejne/z2eH02mucH6pmpg Dr Stash Gormack has helped me. I flagged it up here because she talks in one of her videos about additional complications and lupus was one of them. The vitamin B content she talks about is an important follow up on what she has to say about Vitamin D. Her content is relevant to insomnia, fybro, IBS/digestive issues and she mentions Lupus too. Among many other things. It's long and detailed but I pulled out the bits I needed and had someone help me
@Oliviagolden
2 жыл бұрын
#MeToo
@ragdollerae
2 жыл бұрын
It is so refreshing to see Docs talk so openly about FM, its challenges and the reality of it. Thank you for this amazing video!
@brendacullen9459
3 жыл бұрын
Thank you so much for your video…I feel HEARD and comforted.. I have had Fibromyalgia for 28 years..No joke .. It took 11 years before being diagnosed ..the pain was unbearable , flares, IBS . , Arthritic pain , aches everywhere EVERYWHERE …All kinds of tests , all I wanted was an Honest Answer..I’ve aged since, I’m 71 now ,unfortunately it has followed me over the years ..I use a walker now and try to get around the best I can ..You get so used of the pain , you learn to live with it..There are people worst of than me and I am very conscious of that and tomorrow is another day…Many thanks Bob and Brad for your Video .Much appreciated… 🕊🦋
@cathybeebe4764
3 жыл бұрын
Great job guys! I was diagnosed with fibromyalgia in '96. Very little was known. An arthritis Dr recommend I get some books out at the time on the subject. What I learned: 1. Sleep ( get the TV and radio out of the bedroom.) And check your problems at the bd door. Only stress when you are in a certain spot at home and no where else. It takes practice! 2. Reduce stress from work, toxic relationships and family as much as possible. Boy did I clean house on those toxic ppl😆. I use melatonin to help me sleep. 3 exercise. I use biofeedback exercises and walking. Good luck everyone, I feel your pain ❣️
@Nba_kevin01
2 жыл бұрын
I'll advice you recommended Dr Obinyan on KZitem, he cured my wife from fibromyalgia with his herbal supplement, my wife can now sleep peaceful with no more pains....
@suni2421
2 жыл бұрын
Hahaha I hear u on cleaning out toxic people! Vital for stress reduction. Cheers
@smasome
2 жыл бұрын
I like frequencies or listening to sleep stories on KZitem. Love Shawn Stevenson.
@08Sutapa
3 жыл бұрын
Once it flares up, it lasts for months. Every single second of my life..I am in pain. I understood that my diet and emotions cause it. I am also vitamin deficient. Yogurt, fresh fruits, lots of vegetables. I don't take any medication. Thanks for talking about it. Atleast some one recognises it. 🙏
@nanajen1953
3 жыл бұрын
Yes it does! Me too
@stephaniekeller4449
2 жыл бұрын
Fibromyalgia is not caused by your emotions or your diet. Please read into medical literature. Diet can make it worse by eating lots of sugar, too many carbs, etc…. Good Luck
@worthyisthelamb7
2 жыл бұрын
@@stephaniekeller4449 exactly!
@donnalechak6980
2 жыл бұрын
I had the worse flare up immediately after getting Pfizer shots. You are people don't understand.
@donnalechak6980
2 жыл бұрын
@@stephaniekeller4449 My start after we were hit my a school bus in 1977. I was diagnosed by 3 doctors in 2004. I have a huge flare up after Pfizer shot and reacted to other medication since the accident. Never have I been in since the Pfizer shots. Those with this painful and debilitating disease need to be very careful with new medication.
@SweetTea1011
3 жыл бұрын
Thank you! I have RA and Fibromyalgia. I've been through some very rough days.
@ashleyeldredge2714
2 жыл бұрын
This literally was a Godsend, I’ve had fibromyalgia for almost 8 years now and I’ve been so down and depressed and considered suicide because so many people don’t consider it a thing or say it’s because I’m not super skinny. And seeing professionals talk about it like it’s real just I cannot even express how much it means. Thank you😭❤️
@helleluyahatanda5886
2 жыл бұрын
Hello Get rid of your Fibromyalgia naturally with dr omo herbal medicine very good and active my Fibromyalgia are gone after 1month of using Dr Omo herbal medicine xx
Use dr Omo herbs 🌿 his KZitem channel youtube.com kzitem.info/rock/ZJJR-LpB1SVD09hQkt1-GA
@leticiagoff4488
2 жыл бұрын
I went true all that I can not be out the Prozac 40 mg and Wellbutrin 300 mg , I try to stop many time but it not work for me . Good luck.
@sheltiepeas
3 жыл бұрын
Thank you so much for this video. ❤️ It’s so nice to feel acknowledged by health professionals like you. I’m tired of being told it’s in my head.
@malikaeastonAllahfirstanfamily
3 жыл бұрын
Yes I've been suffering with fibromyalgia for 10 years my bones and muscles ache all the time. Hard to sleep restless 😬 memory loss, I'm 60 year old always in pain. Yes I 😢 alot. Hands hurt 🤕🤕🤣 people don't understand it . Yes I have osteoporosis, rheumatoid arthritis inflammation of arthritis deteriorating phones in my hands in between my fingers. And when you look at me I look like nothing wrong but my pain level 15 all the time. Thank you for making this video 📸 maybe people will understand more, when I say I hurt until you walk in my shoes 👟👟.
@af5825
3 жыл бұрын
Ask doctor about 30 mg of Cymbalta it will change your life. I fully understand just touching this tablet to type hurts me. Classical music helps too violin and light piano
@af5825
3 жыл бұрын
Linette fibromyalgia originates in the central nervous system and tells your muscles they hurt sometimes it does feel like your bones hurt, stiffness. Try taking a hot shower soaking in a tub, or a whirlpool. It will help you relax and loosen your muscles. You are not crazy. Its real but you will get better please try to lower your stress level, and don't worry if they believe you they just don't understand. It took my mother many years she would take my hand and I would say mom that hurts she never understood until she watched a tv program she said Anna fibromyalgia is real, I am sorry I didn't know.
@af5825
3 жыл бұрын
Left you a few comments
@malikaeastonAllahfirstanfamily
3 жыл бұрын
@@af5825 thank you so much
@johnatyoutube
Жыл бұрын
Thank you for acknowledging the reality of FM (and essentially CFS/ME which I'm not convinced are actually different medical issues.) Long COVID doesn't seem to be substantially different than these conditions either and it's helping to bring more light to these very challenging issues that many of us quietly live with. It's also clear that they're related to an overstimulated immune response. The big question is whether there is a continued low level viral infection or if the body just can't seem to turn off its immune response. Finally, science is exploring that and hopefully the medical community stops shaming those whose conditions they just don't understand. Let's hope the science catches up soon. If your doctor shames you, find a different doctor. They work for you! I'm also glad that you acknowledge that just practicing good sleep hygiene might not be enough for these conditions. I am concerned though that you mixed regular sleep with the needs regarding these conditions. They prevent organic sleep because the body is constantly stimulated by the immune response and inflammation. Addressing the inflammation seems to help the most and not falling into self judgement about having to take medications to help us sleep because sleep is the most essential element of healing. I've lived with this for 31 years and have thrived thanks to medications, low carb healthy whole foods nutrition, supplements (Co-Q10, NAC, quercetin, B vitamins, magnesium malate and glycinate, zinc, moderate exercise, meditation, breathing, and mild yogic and natural flexibility and strength training including barefoot training. And never giving up on life. I've also found that massage helps a lot. I have never taken an opioid and would never recommend it. And have time outs and don't feel guilty about them. Most importantly, calibrate your life and reduce your stress levels as best you can. Walking in nature is your best friend - even if it's hard at first. Enjoy the stops along the way when you need to take breaks to notice nature. But, learn what you're body will tolerate and don't push it too hard. It will improve over time as you encourage it. Enjoy and celebrate the little wins. Know that it WILL get better. Much love to all of you who are struggling with this. It will change your life, perhaps in some ways for the better. It will force you to live your life with intention. Try to see the gift in it. It amplifies your compassion for those who are ill and focuses your efforts on the things that are truly important. I am now a life coach and I know many life coaches with this condition.
@samkenyon4522
3 жыл бұрын
Thank you for this wonderful video - I’ve had fibro since I was 16 (had glandular fever and never really recovered). Took 10 years to be diagnosed and another 10 years to start the long journey towards recovery. I still experience daily pain and fatigue but my symptoms have improved greatly. In particular my sleep is vastly improved (thanks amitriptyline and physiotherapy) and flare ups don’t happen as often, aren’t as severe and only last a few days instead of months (or years) like they used to. I hope everyone suffering from this awful illness finds the right combination of medication / therapy / exercise etc for them to recover.
@ellatoler4046
3 жыл бұрын
Chris, I about lost it when you demonstrated white noise. It was useful, but priceless! Thank you for that. Brad, I finally decided to check out tictok because of you guys. Tictok, like twittter, is just irritating. I like full versions of Bob and Brad (and Chris, and the others). Plus, yesterday I found myself on the floor (without falling) and actually managed to get up again in a minute... that is totally thanks to years of Bob and Brad-ing! Thanks for all you offer everyday.
@ziecei
2 жыл бұрын
Just got my diagnosis a month ago, and this video almost made me cry 😭 Never felt so validated after being told the pain is just in my head ect....thank you guys! Especially when you said that about hitting a tenderspot on a doorknob or something.....happens way yo frequently (im a clums), and everytime it feels like my joint is going to litterally pop of, it hurts so bad 😥
@straightupkuaaina2922
3 жыл бұрын
I've been dealing with full body fibromyalgia and the pain I explain feels like gout throughout your whole body but worst with the nerves. You don't know if it last a day, weeks, months. I wouldn't be able to move or walk.
@anyascelticcreations
3 жыл бұрын
Yep. When I'm asked where I hurt I say everywhere. It's definitely worse in areas that are otherwise injured. Like my arthritic and twisted spine. But the pain is everywhere.
@Angelface11
3 жыл бұрын
Or talk!
@lll9409
3 жыл бұрын
Have you guys checked crps? Its old name was rsd, allodynia, causalgia. Stanford university video says fidromyalgia is just one form of crps, which can spread everywhere because the nerves in the spine can shortcut and affect also the nerve up and down the spine. Fast opioids and fast tramadol can help, but a lot of crps people get some help from also Noritren and other serotonin meds and gabapentine etc. of course it is always better to treat the body but if you got a nerve trap, its like a continuous irritation until that trapped nerve is being treated properly. Anyway infrared heatlamp can help, tens can help (helped me across the palms and soles 4 leads) But yea I have heard sleeping helps a lot.
@lll9409
3 жыл бұрын
@@anyascelticcreations I listened that fasting helps arthritis. It increases stemcells after a few days.
@anyascelticcreations
3 жыл бұрын
@@lll9409 I've heard good things about occasionally fasting, too. But I'm diabetic, so I can't. Thank you for the suggestion, though. 🤗
@scotishcovenanters
2 жыл бұрын
Thank you. May God bless Bob; we miss him, and thanks to the guy who is filling in.
@kathrynbaker7529
2 жыл бұрын
Fantastic video! Unfortunately, I've been suffering with FM for 12 years now. I was treated horribly by many doctors and other people before finally getting diagnosed. A couple drs told me to go see a Psychiatrist bc it was just all in my head. Thank you for the validation.
@BobandBrad
2 жыл бұрын
Sorry for you situation. Brad
@kathrynbaker7529
2 жыл бұрын
@@BobandBrad Thank you! I appreciate it.
@tb2324
3 жыл бұрын
How many men on here have Fibro? I’ve had it since I’ve been mid 30s. I don’t recall a day without pain. Going gluten free has helped quite a bit, but I still have pains. Hard to cut grass etc without hurting severely the next day.
@sleepinglioness5754
3 жыл бұрын
I now wear a brace for my shoulders (the kind you get for posture but a thicker padded one), a back brace and heavy leather garden gloves when cutting the grass. Makes a big difference because you're not injuring/straining the muscles so much...and I just do it slower than I used to! Worth a try TB.
@venkateshbayereddy8707
3 жыл бұрын
Men are very low in this case. I'm also the one with fibromyalgia from past 4 years now I'm 19
@Ryan-eu3kp
2 жыл бұрын
I've had it as long as I can remember, as I child I didn't say anything. Unable to concentrate in school, sitting it chairs was torture. Had feet surgery which helped the feet pain. 32 now. Meditation and therapy. I found the wim hof method works if your in a really bad way.
@RobZombie3344
Жыл бұрын
Yes sir, been dealing with issues for a long while but now worse in my thirties. I think I've noticed a pattern with diet and am trying a grain free diet again. Pain and sensation issues for me are mostly around my pelvis where I've had dysfunction. Physical therapy and hypnotherapy help me.
@deborahasher176
3 жыл бұрын
The doc who diagnosed me prescribed prozac and Vicodin. Big mistake and knew it so I didn't take them. Never went back. I have IBS also. Fibro is awful and it has ruined my life. Thanks guys for the tips. BTW, when you start an antidepressant, you'll put on 50 lbs before you know it.
@pookiehoney
3 жыл бұрын
The antidepressant they put me on took away all of my emotions. A family member could have died and I wouldn't have shed a tear. I literally felt like a robot only making rational decisions. After I finally got off of it and it got out of my system I was horrified. It literally stole my life for a long time.
@Sweetyhide
3 жыл бұрын
@@pookiehoney That happened to me too. I had to go through a couple of them to find the right one for me. Cymbalta was the one that actually helped, for me.
@anyascelticcreations
3 жыл бұрын
@@pookiehoney Was that Lamictol, by any chance? It was a long time ago that I took anything like that. And I'm probably spelling it wrong. But that's how I felt on it. The horror of having no emotions at all. Only I couldn't even feel the horror of it. Just a terrible void. I got off that one as fast as I could. And eventually gave up on antidepressants entirely. If I'm remembering the right drug. One gave me rage and another one took away all emotion. I remember that Lamictol was one that I tried to remember the name of so that I never took it again.
@beccadecker2018
3 жыл бұрын
I take Prozac. It does numb the emotions but I can still feel happy or sad. I’ve also lost 18lbs. It’s not the same for everyone.
@deborahbeattie9103
3 жыл бұрын
kzitem.info/news/bejne/z2eH02mucH6pmpg I have watched a few videos by this lady. If she doesn't mention vit B in this one it's important too and will be on another video. This stuff was very relevant to me. I knew part of it and can confirm what she says from my experience and I have followed through on the Vit B part. It has helped me too. As Fybro being a set of symptoms they have ruled out other causes for. I understand it could be a different (unknown) cause from one person to the next. And therefore different things work for different people. The advice this neurologist shares helped me a lot. I truly hope you find an answer that works for you 💗
@janedoe6704
3 жыл бұрын
This is the first youtube on fibro I've watched that actually gave accurate information. Thank you!
@nancyhoward7005
2 жыл бұрын
Fibromyalgia. Thank you for bringing light to this Fibromyalgia. 1. Rest. Dark. No phones ECT...blue light keeps you awake. 2. Same set time. If you are working different shifts. Oops.I changed to only working day shift. 3.Shawn Stevenson 4.red night light sleepy. 5. Blue awake. Red sleep.
@dpiroch
2 жыл бұрын
To say sleep without medicine is simplicistic; we know that's a key to the disease. Our brains have trouble getting into and maintaining deep sleep and they dont' know why. (Actually, my Dad, a physician, diagnosed me with some fibrositis, the old name, about 1984!) Your PT expertise is helpful in that we have pain but they tell us move and it won't be as bad. Today I couldn't even do a cobra stretch, I was having such a pain/stiffness day. (I don't think you addressed it, but we have a lot of stiffness.) Also stress that we have bad days and we shouldn't force exercise those days. Take our meds, move when we can, and when not, no guilt, rest and get better.
@gillhall7590
2 жыл бұрын
You are so right, sleep is difficult with this illness, because if you turn over or even move just a little whilst you are sleeping, the extreme pain will cause you to wake suddenly. It is the pain all over the body that prevents sleep even though you are exhausted and want to sleep. This also applies to exercise, which sometimes feels impossible for the same reason; how do you exercise when joints and even the bones in your feet hurt. Cutting out inflammatory food (milk products) from the diet helps. It is also difficult for others to understand, because you still look ok. Blood flow is another problem because of severe cramps. Thank you both for addressing this.
@anyascelticcreations
3 жыл бұрын
This is definitely me. I struggled with this my entire adult life. (47 in September) I pushed through so I looked healthy and fit. Most people didn't take my pain seriously because I looked fine. I couldn't even get diagnosed and was treated like a hypochondriac. I gave up this past year. I stopped moving. I gained weight and lost strength. It's impossible to hide it now. Now at least I look almost as bad as I feel.
@skinney9542
3 жыл бұрын
I hope you find some relief soon 🙏 x
@anyascelticcreations
3 жыл бұрын
@@skinney9542 Thank you very much. Hugs!
@kerryemmett2058
3 жыл бұрын
Me too. But think taking Gabapentin doesn't help with weight gain. Also have sleep apnea so super extreme tiredness was a big problem. Don't let anybody tell you you are a hypochondriac! The suffering is real. Delicate hugs my friend x
@anyascelticcreations
3 жыл бұрын
@@kerryemmett2058 Thank you! It does feel nice to talk to similar people who understand. You're right. Our suffering is real and we shouldn't let people tell us otherwise. I'm actually glad that my hair is going gray now because people finally stopped telling me that I should be able to do what they can. No longer looking fit probably stopped that, too. I didn't realize that gabapentin causes weight gain. I don't have medical coverage and quit going to the dr years ago. I take Mucinex DM, which can help with the pain. And ibuprofen and alieve. But I had considered going again someday and asking for gabapentin. My mum takes it for restless legs, which I also have. Something that works better for pain seems like a nice idea, too. I hear you on the exhaustion, too. As a lifelong insomniac I can definitely relate. Delicate hugs to you, too! 🤗
@lindamoses3697
2 жыл бұрын
Same here.
@lorihill6756
3 жыл бұрын
Thanks for this. I was recently dx with this and chronic fatigue syndrome following suffering from Covid Long Haulers Syndrome.
@anyascelticcreations
3 жыл бұрын
I feel you. I've had this for many years. But having COVID last year definitely made it worse.
@yensid4294
3 жыл бұрын
As soon as I started hearing reports about Covid Long Haulers I thought "oh no--they've got CFIDs/Fibromyalgia/ME like me" It is about so much more than just pain & fatigue.The HPA axis. It involves the endocrine system (thyroid & other hormonal dysfunction), autoimmune dysfunction, gut dysfunction (GERD, IBS, acid reflux & food sensitivies) Mast cell disregulation & proinflammatory cytokines (aka mastocytosis) Sleep disorders. It's been found through testing that people with fibro can't clear lactic acid from their muscles like normal people can after exercise & have higher indicators for systemic inflammation.
@anyascelticcreations
3 жыл бұрын
@@yensid4294 That's kind of what I thought, too. Now so many more people are going to feel like I do. Mine did get worse after getting COVID. But honestly, I'm used to feeling this way anyway. I do feel for the people who are used to being healthy and now suddenly aren't.
@pyrozyden2841
3 жыл бұрын
Good tips! My ex (fajter to my child) always complained that I always is in pain). One day he wanted my attention he poked me quite hard in the side. I lost my breath, and tears immediately started running from my eyes. Emberrasing because we were in public, but the First time he really finally grasped that it is not a choice. He used to complain for me going to the gym 5 times a week, but now he understands. I need it. I am not superficial, I just need to ”reset my bodys alarm button”. I go to gym or grouptraining - sometimes I am strong and powerful, other times I am slow and weak - the instructors know that about me and don’t push me. The best feeling in the world is tough spinning - but I need to warm up and also have space to accept and adapt to beeing ”done” for the day afterwords. I cant have a week off training, I have accepted that. The saddest part is that I don’t expect to be able to have a partner. I don’t feel anyone would stand someone who has to adapt their days the way I do. But I have my child that I focus on, and 2 cats. Cats are good because they tolerate not going for a walk a bad day. They Bring laughter when Acting funny/silly, takes my mind off the pain and when I have a flate they know instantly and give cuddles and relaxation. So my life is good, family cats, workout Books, movies and Tea is the loves of my life! ❤️❤️❤️❤️❤️
@anyascelticcreations
3 жыл бұрын
You sound a lot like me. Only I don't have a kid. And I gave up on working out when I couldn't continue anymore. But I know what you mean about thinking you'll probably not have a partner. I may not again either. It's lonely. But I have no one to justify myself to anymore. No one to criticize me. And you're right about our cats. They love us on the good days and the bad days. And they seem to understand how we're feeling at the time. My kitties go with the flow well and don't seem to mind. PS, when you said how your ex poked you hard to get your attention, I wanted to poke him hard with a screwdriver so he'd know a tiny bit of how it felt. Not that I ever would. But the thought did cross my mind. Hugs.
@jamilaaqeela2659
2 жыл бұрын
You definitely have to have a slower pace and quieter lifestyle.
@9livesmatter576
2 жыл бұрын
God bless you.
@carla2016
3 жыл бұрын
Gabapentin has been a godsend for me. My pain went from about an 8 everyday for years to about a 2 at most. But, I have also cut out the white foods and boxed stuff...hamburger helper, mac and cheese, etc., anything that has a "seasoning" packet. It should be labeled poison packet.
@michelekincaid8093
3 жыл бұрын
I feel so validated 😔 my chiropractor just started doing vagal nerve stimulation and it has been game changing for me! I have TONS of bad days still…but she helped out of an awful flare that lasted for almost 3 months. I have finally started exercising again. She also urged me to clean up my diet. My next step is starting to take sulfur crystals daily.
@YongsanMan
2 жыл бұрын
Any update?
@megansmusiccorner4666
3 жыл бұрын
So glad you guys did this video. Thank you!
@helenkilgore8296
2 жыл бұрын
I have been so ashamed to talk about my fibromyalgia symptoms now that I've listened to you there are a couple of things that I don't do however watching your podcast I'm going to talk to my doctor thank you and I'll keep watching
@rachellejeune2105
2 жыл бұрын
Tears fall as I watch this video. Both my Mom and son died within 2 months of one another last year; I had pain issues for several months, and after losing my sweet family, it really flared. I have daily pain in hips, shoulders, upper back, knees, etc...now diagnosed. Struggling with fatigue and little sleep. I press on...Thank you for this video.
@damnyourwoes
2 жыл бұрын
Aww Rachel I'm so sorry. That sounds so hard and traumatic
@gloriaradivojevic9221
Жыл бұрын
I think a very important point that wasn’t really emphasized was depression and anxiety. Stress plays a huge role in this condition. It fires up the nervous system and also symptoms. The mind is a powerful thing and can make us sick or well. People don’t get sick over night. It is an accumulation of events and attacks on our body. Environmental, physical, mental and emotional. Dr. Joe Dispenza does an amazing job of explaining how our mind can help us heal. Ultimately this condition is a result of trauma whether it be physical or emotional or both. After 12 years of having fibromyalgia, I really wish I would have spent more time focusing on the emotional…I truly believe I would have made more progress. And yes progress is possible. I believe with all of my being anything can be healed.
@anniec7
10 ай бұрын
I have had FM for decades. Luckily I had a sympathetic Dr. I have learned by myself a lot over the years but this put it all together for me once more. Thank you.
@judyweigl9604
2 жыл бұрын
So glad I came across this, because I still have issues with FM and CFS. Too bad it wasn't sooner. However, here is my story, if you don't mind. It might help someone else. My fibromyalgia (FM) diagnosis came in 1998. All my joints would swell up. I had several sized clothes to wear. I didn’t know what size shoes I would be able to wear each day. When I first put my feet on the floor in the morning, my feet felt like I was walking on small pebbles. My bed kept getting harder and I would keep putting soft toppers on it. My body felt like my finger was always in a light socket. Headaches, nausea, shooting pain were a constant threat. Now, a few months before the start of all my symptoms, I had suffered a severe case of flu where my temperature had reach 103º for about two to three days. I ended up in the ER and received three bags of fluid within 45 minutes. That was in the spring. That summer, I went for a 15 to 20 minute walk and when I got back to work, couldn’t stand up. I, again, ended up in the ER and received two bags of fluid. It was shortly after that when the problems started. By the next year, I had the diagnosis of FM and within three years, a diagnosis of Chronic Fatigue Syndrome (CFS). The initial doctor I happen to get seemed to be about finding the cause of my complaints. I went through all kinds of tests over the next month. He did not dismiss me, otherwise, I would probably be bed ridden by now. Since then it has been a struggle, but the saving grace was a diet change and knowing my limits. I became a vegetarian/vegan/raw foods’ person for over five years. However, I gained more weight, my cholesterol increased, the blood sugar problem I already had increased, the arthritis pain increased, blood pressure was beginning to be a problem, and the severity of my FM and CFS increased. So, I gave up trying a diet claimed by authorities as the IT diet and went back to my favorite food ... meat. I lost weight, cholesterol came down, blood sugar problem went away, arthritis slowed, blood pressure normal, my osteoblasts improved, and my FM and CFS calmed down. My sleep is still an issue, but I’m working on it. I’ve also found that the right massage therapist is essential. I also realized that for me, I had to give up all forms of sugar, starchy vegetables, and all grains. I still adjust my diet when necessary, but it is still mainly the carnivore way of eating. Oh, and I rarely get sick now.
@lorismith5369
Жыл бұрын
Excellent! Thank you ! I went to a PT clinic and there was not any understanding of Fibromyalgia . It was so disappointing and discouraging as I need appropriate treatment to build strength. Keep up the good work! WHERE are YOU?
@suzannebarletta82
3 жыл бұрын
Thank You for this video. I just finished physical therapy. It was helpful. I did learn some techniques that help to decrease the pain. I gave up on trying to explain this condition to people.
@sleepinglioness5754
3 жыл бұрын
There's a YT video by Fibromyalgia MasterClass "How To Explain What Fibromyalgia Feels Life" (I don't know if I can post it here) ... it's excellent. Gives you a great and simple explanation to use.
@shoeshinegirl101
3 жыл бұрын
@@leilaezz6030 they gave you the exact “wording” to look up on KZitem. 👍
@leilaezz6030
3 жыл бұрын
@@shoeshinegirl101 I saw you saying you can post it if you can that's way I wrote to you. Anyway I will go through the video again
@shoeshinegirl101
3 жыл бұрын
@@leilaezz6030 The comment above mine by sleeping Lionesse tells you exactly what to look for on KZitem. I don’t have a computer or I would post it for you. I too will be looking it up on KZitem. Type in “How to explain what fibromyalgia feels like”👈 or I will type in the channel name “fibromyalgia master class,”👈 and then look for the video “how to explain what fibermyalgia feels like.” I hope this helps you. Best wishes! 👍
@leilaezz6030
3 жыл бұрын
@@shoeshinegirl101 Tks for your advice.
@cherylmcnutt9905
3 жыл бұрын
For those of you looking for his name in the links (I couldn’t find it), it’s Adriaan Louw - that’s the correct spelling.
@mmbmbmbmb
3 жыл бұрын
Thank you!
@rosepierce9370
3 жыл бұрын
Thankyou!
@Lillian584
2 жыл бұрын
I have stage 4 fibromyalgia and I wouldn’t wish it on my worst enemy. I am disabled at this point and can’t even swallow food or sleep laying down. I never got proper treatment because doctors didn’t believe it. We now know that my primary conditions are autoimmune diseases: Scleroderma and Schogrens and secondary is fibromyalgia. My new rheumatologist says that people with fibromyalgia almost always have a more serious underlying disease. Thank you for doing this video. This is so helpful for people.
@lauriekline178
Жыл бұрын
MCAS is the underlying disease
@geethanair5803
2 жыл бұрын
I am also suffering flare up pains..so much fatigue and sprains. No one believe ,understand or empathy. The doctors hardly know about it various ,endless difficulties. Thank you so much for the effort,
@kavithagautam6876
2 жыл бұрын
physio for knots. acupuncture, acupressure, homeopathy. kottakkal manasamritham for rest . tremendous improvement but in year 13 of fm. Tc
@emarie1513
3 жыл бұрын
Re: non-restorative vs restorative sleep, not only is it important to sleep in a dark coolish room, but you need to have natural light when you wake up in the morning. I was living in a dark space with little natural light, and I would wake up literally feeling like I had never been to sleep. Then we moved to a different home, where there were more windows and some natural light would come in at dawn, and my sleep patterns totally normalized and I felt less achy.
@smasome
2 жыл бұрын
In the winter I use a gradually brightening light to help me wake up. Routine is HUGE. Trick your brain like it's your baby, beginning to shut down an hour before you need to be asleep. Mindfully SLOW down! Make a cup of tea with chamomile, valerian, lavender... Focusing on each part of the process, understanding that there is magic here that is going to help you sleep. When you wash your face and hands, do it gently, S L O W L Y. swish your hands through the water, cup your hands and pour it over your arms. Do it by candle light or nightlight. S L O W L Y.
@Sweetyhide
3 жыл бұрын
Fibro and MS sufferer here. Good sleep is almost unobtainable even with drugs. I sleep a few hours at a time. The next week I sleep 14 hours at a time. It's like trying to find your way through a house of horror. You never know what you will find around the next corner. I take Gabapentin, Baclofen, Cymbalta, Delta 8 marijuana, Kratom
@sleepinglioness5754
3 жыл бұрын
God love you Sweetyhide...you have a monumental challenge. I admire you for your strength.
@deborahbeattie9103
3 жыл бұрын
kzitem.info/news/bejne/z2eH02mucH6pmpg
@sleepinglioness5754
3 жыл бұрын
@@deborahbeattie9103 Very good...thanks Deborah. It's been years since I've been able to sleep properly. Destroys your life.
@deborahbeattie9103
3 жыл бұрын
@@sleepinglioness5754 same here I totally sympathise. 💗 I have watched a few of her videos. I can't remember if she talks about Vitamin B here. If not that's important too. She found that people being treated with vitamin D then became vitamin B deficient.( Happened to me just like she says. ) And that a couple of the B vitamins are important in sleep too. It's worth seeing too. Another important key I found was that if your sunbathing to make vit D it uses up magnesium. Magnesium also helps with relaxation and sleep.
@sleepinglioness5754
3 жыл бұрын
@@deborahbeattie9103 This is the B video. Interesting about D + affect on B and your comment on magnesium. I've always had problems with all 3! Every doctor should listen to her/this videos/talks. Maybe they wouldn't be so quick to be prescribing anti-depressants and antibiotics for everything they don't understand. Excellent video! Thanks again Deborah.
@heidipucci9078
11 ай бұрын
thank you so much foar all these great tips and for the support.
@3cardmonty602
3 жыл бұрын
Any day Bob is off is a good day. But seriously, I have fibromyalgia and my recovery from exercise takes days & days. I do find that adhering to a Keto or Carnivore Diet helps immensely. Especially avoiding inflammatory dairy products and seed oils. Try to stick to coconut oil, olive oil, butter, or lard. I’ve lost 150lbs on Keto - from 321lbs to 170lbs in 2.5 years. I’ve also found steam sauna sessions very helpful to get rid of lactic acidosis buildup post-exercise.
@EMpowered06
3 жыл бұрын
It’s so difficult and awful. What you are giving here is hope. Thank you.
@robinwalker299
3 жыл бұрын
Sleep is hard when you’re in pain… 😩
@af5825
3 жыл бұрын
Try classical music particularly a violin or piano not the music videos that use synthesizers pure instruments is very helpful
@susannahwhite7561
3 жыл бұрын
Try California Poppy extract. Don't give up. Pray.
@cherylmcnutt9905
3 жыл бұрын
@@af5825 I have a ceiling fan that helps with the “white noise” and cooler setting in the bedroom when trying to sleep.
@BobandBrad
3 жыл бұрын
That’s the truth!
@cherylmcnutt9905
3 жыл бұрын
@@af5825 I’m a musician, so while music soothes me, it also “wakes up” a large portion of my brain to hear all the nuances of the music itself, they style and timbre of the instruments being played, etc. Left to listen to music, I’m up all night. Listening to tapes of people talking quietly, meant to relax, works better for me.
@kayeszymanski6945
3 жыл бұрын
I think one of the avenues that needs to be explored is hyperparathyroidism. High calcium levels can make your muscles contract hard and ache horrifically. I had fibromyalgia(past tense) and once diagnosed with primary hyperparathyroidism, after surgery it has resolved. Fibromyalgia is never a primary diagnosis. That’s according to one of my doctors! Something else is going on in your body. It needs to be found and hopefully fixed.
@jamilaaqeela2659
2 жыл бұрын
At first I was diagnosed with Reflex Sympathetic Dystrophy Syndrome. I went through so much traumatic treatment only to years later be diagnosed with FM. Lordy Lordy! Have mercy on me and those who suffer with this crap.
@suni2421
2 жыл бұрын
Omg! WHERE is this brilliant dr plz? I totally agree however I have heard of these brilliant Dr's exist, however the out of pocket expense is a killer😔
@BrendaD72
3 жыл бұрын
Thank you for this. Shared to my FB for the many people in my life who just don’t get it.
@starrynight1329
2 жыл бұрын
My friend has fibromyalgia and it has been bad recently. We just started doing an evening aquafit class and she said that her pain disappears in the pool and she is also sleeping a bit better now.
@dvsupreme6883
2 жыл бұрын
Same here! Medically retired veteran with a life of both physical and emotionally traumatic events one after another. Before and after my military service. Whenever I go to the pool or went to Destin, Fl over the summer, I feel like a new person. Its astonishing. I cannot make sense of it.
@starrynight1329
2 жыл бұрын
@@dvsupreme6883 It really a strange one, I don't understand it at all. I'm sorry to hear that you have had such a difficult life. I hope you keep going to the pool for a happy life. 😊
@catherinebaugh-i6r
11 ай бұрын
Hi to you both I'm going through a bad patch with iit at the moment I've really enjoyed your video you know what your talking about Thank you so much ❤
@chinookvalley
3 жыл бұрын
Don't forget about GABA (NOT gabapentin, and 5-HTP). Sleep is elusive. For years doktors told me not to exercise!! To stay in bed! This hurt me so much. I was getting stiffer and stiffer. I still haven't found that "even medium" - if I don't do enough I hurt more, if I do too much I hurt more. Don't be hard on yourself, just keep trying.
@Sheerkat7
2 жыл бұрын
When I had it, I could barely walk to the mailbox the day after I went shopping. I told my Dr. and pharmacist that I was in pain. I thought it might be the Statins. They both ignored my complaints and actually UPPED my dosage. I was on "L" for 15 years. After being poisoned that long, I got off it myself and felt better in 2 weeks. Diet helps a lot - processed foods, especially wheat and sugar bring back some symptoms, but no where near as bad. No accident that F showed up at the same time statins did.
@atiqrahman7289
2 жыл бұрын
Statins cause muscle pains quite often. Anyone taking statins,and developes muscle pain,must get CPK done----- CPK is high if there is muscle damage---- Statins must be stopped. Statin-induced muscle pain is not Fibromyalgia---- it is toxic side effect of statins---rhabdomyolysis, meaning muscle damage.
@mary_asmr5
2 жыл бұрын
I have fibromyalgia and I told my husband I always feel like my skin is on fire when I have a flare up. He took a picture of my back with his thermal camera that he used at work, (he’s electrical mechanical engineer) wanted to see if any hot spots showed up on me and sure enough on the right side of my back and at my sacrum all showed up red on the picture, but only on the spots where I was hurting, not the whole back. So I thought that was pretty interesting, whether it’s nerve or muscle it was giving off heat and to me thats inflammation.
@kymbeebe3447
2 жыл бұрын
When I have a flare I say my skin feels scalded kinda like when you have a fever or the flu. And yes the heat is an inflammatory response! I had open heart surgery when I was 14 and have had fibro since. I have told my family for yrs that I thought it had to do with surgery or anesthesia because I was fine before. I’m 53 now and just got a diagnosis about 5 yrs ago. No one takes me serious including Drs. Thx for sharing about the heat gun. Interesting
@joshuamitchell5481
2 жыл бұрын
Fibromyalgia is crushing. Migraines, TMJ, GERD, IBS. Feels like the muscles are trying to rip themselves off the bone. Drugs are all we have. Heartbreaking. Nerves just scream
@janetphillips2875
Жыл бұрын
Yes, and the ppl who overdose make it hard to get it. The people who sell it make it hard to get it. The goody goody two shoes, like my 87 year old mil, who ridicules ANYONE who takes medicines of ANY KIND, calls you a drug addiction, makes it hard to be around her. People think you have to have an arm sliced off, a physical pain they can see, in order to have an illness. You know what? I dint give a shit what people think anymore. When you wake up and you feel like so.ebody beat the crap outta you every night, you finally say, wtf?
@yveclark
2 жыл бұрын
I was bedridden with fibromyalgia some years ago. I suspect it's a cluster of conditions with similar symptoms as people have such diverse experiences. Now I'm never pain free, but can do quite a lot. I have to pace myself learning that in practice is so hard as. In fibro you don't feel bad as straight away. It could be a couple of days before you feel the consequences. Keeping a diary is crucial to understanding your own condition and limits. I was not happy about pain school but when I discovered the tutor had fibro, herself, I learned so much it changed my life.
@kerrimaida2569
Жыл бұрын
Exactly. I say it’s as if my body works in slow motion
@mustangjane77
Жыл бұрын
I see many tauma patients for trauma therapy. Many suffer from autoimmune disorders, all these things you speak of plus others. Things that stimulate the Vagus Nerve seem to help. Thanks for posting this. I am going to share with sone of my therapy clients!!
@Lynn.Panadero4242
2 жыл бұрын
I appreciate this video. You show a great increase of understanding here over the first one you did. However, you need to lose the FM Workbook. It’s a response that is too simplistic for a complicated condition that we are still learning more about. @9:50 you share how we don’t want to move because it hurts. I’m going to fine tue hat statement from my perspective as a patient of FM. I am reluctant to move, hesitant to move, slow to move. I move slow. This is true because of my FM. However, I have to share emphatically that I want to move. Oh how I would love to package my symptoms in a little box and put it on a shelf. I would then move. I would be running marathons, climbing mountains. I’d be an avid skier. I’d chase pets. I’d would still be working in education. Additionally, I’ve spent years telling people that I want a nap. Until I realized that I don’t want a nap. My body expresses a need for a nap all the time, but I Don’t Want A Nap! I want to be active. I want to move. Pease don’t tell people that I don’t want to move.
@StormyCoop
Жыл бұрын
I was bite by a mosquito around 2010 I got meningitis and I almost died. I was fine no fibromyalgia before this. Once I got over the meningitis I was never the same. Around then is when my fibromyalgia started. I have noticed if I have stress is a huge trigger. I’m 53 and I’m 5 foot tall. I take care of my 34 year old daughter she is a spastic quadriplegic with Cerebral Palsy. She taller than me she like an 8 month old in a woman body.I physically have to wrestle her every day. I’m very muscular. My muscles are unfortunately rock hard and hurt. It like my muscles never relax even when I lay down to attempt to relax my muscles always feel engaged. I have osteoarthritis my knees and fingers and bone to bone. I’m struggling. I try to not complain but I can hardly take the pain. Everyone just assumes I can handle everything put on my plate. Im hanging on by a thread. The only hope I have is in Jesus. My faith keeps me going.
@mandyhayes7287
2 жыл бұрын
When I have a fybro flare up the pain brings you to tears and just a child touch and feels like a sledgehammer
@T.C.Bronart
2 жыл бұрын
Thank you for your teaching and sharing this information😀👍
@gloriaklopping8713
3 жыл бұрын
I feel like somebody invisible stabs me suddenly throughout my body! Or it feels like someone is punching you really hard everywhere! No exaggeration here! Makes me Yelp. It’s a daily fight against pain everyday! Sometimes can’t walk for a few days at a time. Big limp etc. Cuz the pain is horrendous! Deep breath now. 😍😘
@af5825
3 жыл бұрын
Talk to your doctor about Cymbalta take about 4 hrs before you want to go to bed in 3 days you will be amazed. Whoever put this medication together truly understood what fibromyalgia is. Frankly, believe God gave them wisdom. Gloria, may God heal you comfort you, give you peace and ease your pain. I truly understand how you feel, there is hope please try to stay stress free.
@gloriaklopping8713
3 жыл бұрын
@@af5825 I’m on cymbalta but I take it in the morning, so maybe I should try before going to bed. Thanks so Much 💕💜
@anyascelticcreations
3 жыл бұрын
I get those, too! The sudden stabs! I live with kitties and no humans, but when I suddenly cringe and call out in pain I imagine what a person would say. They would ask what happened and I would say that I have no idea - that it just happens sometimes. I get the constant pain and big limps, too. I can barely walk at all this week and can't at all without limping. At least I don't look "normal" anymore.
@gloriaklopping8713
3 жыл бұрын
@@anyascelticcreations this is so tough for us! so sorry. gentle hugs 🥰🙂
@anyascelticcreations
3 жыл бұрын
@@gloriaklopping8713 Yes, it is. It somehow feels a little better to know we're not alone in this, though. Gentle hugs to you, too.
@Mihanaa
2 жыл бұрын
finally someone really said it...we look normal and healthy but inside we feel miserable.Am suffering from it since i was 7-8 and now am 19...i was just diagnosised 4 month ago with it as my parents didn't believed me and delayed the treatment till i was 17.After that the doctor's thought i had this pain only my imagination where i felt real pain and undergone psychotherapy as i had major depression and PTSD but i was pissed off cz they wasn't help my pain in anyway.Finally i get fortunate that one doctor finaly said i had fibromaylgia and the pain i feel is real.I was always pissed off or more like sad cz they said my pain doesn't exists!
@leticiagoff4488
2 жыл бұрын
I have fibromyalgia 35 years ago, I was an prednisone for 5 years, every doctor I see say it was my head until I move and the doctor I see he say you can not continuously taken prednisone, it took 1 year for cutting completely off, I told my husband I will not leave like this . So he went to the doctor I was seeing , he send me to Cleveland Clinic en Ohio , finally the give a name 😢 what a relief someone’s tell me I am not crazy.the took blood a lot.everything I was normal.my best think is until depress medication , I can not be with out it. And after so many years I Lear to manage it. Because the medication for fibromyalgia never works for me .
@judyfifield6941
Жыл бұрын
Living with fibro since 1985 diagnosis. Started the ketogenic lifestyle the end of 2019 and feel much better. Also quit using any nightshade plants, high oxilate veggies and high omega six nuts. Moving easier on this plan I started. Also put. My type 2 diabetes into remission since then.
@SYRSALLY
2 жыл бұрын
Thank you so much for this video.
@badjohnnyrook
3 жыл бұрын
Diagnosed years ago with fm and chronic pain gone after almost 2 years. Still some dull aches at times. Three things helped: stretching type exercise, learning to completely relax body & mind and hot tub with really good jets for massage of back and neck
@kristinabaade2343
3 жыл бұрын
"Sleep Smarter" by Shawn Stevenson is an excellent book. Literally changed my life!
@IslandBuzzy
3 жыл бұрын
I bought an amethyst heat mat from my local Korean store...omg! Helps so much!
@Lemonpinesol
3 жыл бұрын
vitamin D3 and fish oil for nerve pain, helps a lot even at low dose if you are deficient (500 - 1000 IU)
@tooma4886
Жыл бұрын
I had a significant neck and back injury in July of 2015. I was in pain for 6 straight months and got around 15 epidurals, then had first fibromyalgia flare in January 2016. I stayed inside my condo in pain until June when I mustered up the courage and made a commitment to put my swimsuit on and go sit on the steps of the pool for 15 mins. Just sit there, and, at the very least, increase my Vitamin D level. After those 15 mins, I got all the way in the pool and gently moved my arms and legs around. Within a week, I had made it up to an hour and had gone from just moving my arms and legs to walking slowly from side to side of the pool. The pain and fatigue calmed down, I re-built muscle that I had lost and lost weight, I slept better, and the vitamin D helped my depression and anxiety. If I don't get in the pool or walk now, all my symptoms come right back.. GETTING IN THE POOL WAS A GODSEND TO ME! Don't tell yourself that you cannot exercise because exercise and movement is the most important thing you can do to eliminate the symptoms.
@gjop-xm2xe
3 жыл бұрын
I was told first it all in my head,then I got oh you have fibromyalgia, in the 80s , 2016 now being told I have M?S? good grief .. all I know I feel like crap every day
@mescobar466
2 жыл бұрын
The DOL-OWCP just sent me a letter accepting my two more disability claims, FIBROMYALGIA, & CFS that was brought upon from Covid -19 exposure, and to top it off Long Covid and two more. . This is the first time that I am hearing about your youtube show
@lauriekline178
Жыл бұрын
Covid doesn’t cause fibromyalgia. Fibromyalgia is caused by a overactive immune system.
@vickifrederick2934
2 жыл бұрын
Employ a physical therapist. Start very slowly to develop core muscle strength. And give it a good year . I am fortunate to live in a retirement community and my physical therapist is just down the hall
@joymun8132
2 жыл бұрын
Thank you so much for sharing
@migrastilnaturalmigrainesu7897
3 жыл бұрын
Definitely passing this on to folks I know that have been struggling with Fibro. Thanks!
@wendystuthers8706
2 жыл бұрын
I have fibromalgia and to my knowledge of any relative having it and one day I was talking to my cousin and found out her daughter has it. My pain is so bad at times. I finally realized that I had to get sleep. I still don't have a control on my sleep. I've tried to do everything I could be it doesn't work. Blue light does affect me so do turn off all my blue light things. I've taken noritryptiline for years but it doesn't work for me any more. I've tried many things and nothing works. So many times I only get only 2 to 3 hours sleep and that goes on many many days at a time. I can't take the meds that are used for treatment. Ty for bring this topic to the surface people need to know more about it.
@jolenereader1610
Жыл бұрын
It took 15 year’s to finally be diagnosed with fibromyalgia. It started out mild at first. I thought it was bad 10 year’s ago. It excruciating now. I still stretch and move. I can only work 15 hour’s a week now. I still think I’m doing better than most. It suck’s.
@kathleenreese5010
3 жыл бұрын
The treatments that weren't mentioned that have helped me are: massage, heat, a glass of wine, foam rolling, avoiding nightshades, pacing myself and rest.
@Valir15
2 жыл бұрын
red wine?
@kathleenreese5010
2 жыл бұрын
@@Valir15 A glass of red or white wine with dinner. It acts as a muscle relaxant.
@maryholbrook4919
2 жыл бұрын
At last someone who knows what they are talking about, thankyou
@susanlaperriere8815
9 ай бұрын
I love your Bob and Brad massager
@nature_photography_yukon
2 жыл бұрын
Very helpful video, thank you so much! Love the stretch exercises, they help lots. I find the fodmaps diet helps IBS symptoms that for me goes with the fibromyalgia.
@thomaemoxley9588
2 жыл бұрын
Wonderful subject Much needed to be talked about and educate people What is going on without pills in big farm
@cheriestl
3 жыл бұрын
Someone needs to invent a standing pool for one person that I can put in my basement.
@JeJe11
3 жыл бұрын
Check out swim spas. Can fit in the space of a car in a garage .... not sure about basements.
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