I am sure that every answer researches get about ME/CFS will have strong impact on medical science in general.
@maxnits9556
4 жыл бұрын
There is high probability in Nobel Prize in this area as well once mechanism is properly understood. And sadly all that without necessary government funding.
@igelkasten
5 жыл бұрын
Thank you so much for your engagement and your dedicated work!!! In Germany neither Government nor health insurance or professional societies care about ME/CFS patients. There is no public funding, but lots of doctors stigmatising patients with ME/CFS. After 15 years of suffering and being severely ill, i am near to giving it all up. I am very grateful for your giving me back some hope!
@velkoz1323
5 жыл бұрын
Also have it since 2012 , my life is a diffrent since than. Also from Germany
@danashannon8234
4 жыл бұрын
Wish you could come to the united states. This dr is great here but most are not, they tell me to lose weight and exercise. Most are clueless and label as drug seekers.
@jackienaiditch7965
5 жыл бұрын
Thank you so much for this interview. I've had ME/CFS for over 20 years, and Ron Davis gives me hope that a biomarker and some kind of treatment or cure will be found. Also, thanks to Llewellyn King for his advocacy on behalf of those of us who have this horrible illness. I watch and appreciate all his interviews.
@Mynsinger
4 жыл бұрын
Massive thank you to Llewellyn, Deborah and everyone involved in these alerts and updates, they really do give hope
@beverlyreeves9773
5 жыл бұрын
i would like to personally thank mr. davis for his work to find an accurate diagnosis, a treatment, as well as a potential cure. his work i feel, is largely responsible for opening the dialogue for ME/CFS as a legitimate illness. it will be a momentous occasion when his son get's his life back, as well as all the other's who suffer this debilitating illness.keeping hope alive is very difficult for most ME/CFS patients. mr. davis does exactly that!
@karifaller9284
5 жыл бұрын
Thank you Ronald, you are our hero! Keeping hope alive xo
@lindabailey1828
5 жыл бұрын
I have suffered with ME CFIDS for 25 years.Dr Davis is an answer to our prayers! We had despair,,now we have hopeHe gives us light in our darkness.Thank You Dr Davis,You are God sent!
@JaneSmith0709
5 жыл бұрын
Awesome video, thank you so much. Ron Davis, you give me such hope, thank you for your hard work and determination!
@willowithywindle
5 жыл бұрын
Thank you all
@bodulica3
5 жыл бұрын
Let's hope. One thing must be changed: At their medical schools future doctors are told that the role of medicine is not curing but "Improving the patient's quality of life". Ask any doctor or a nurse. And Dr. Ronald Davis is talking about figuring out what is the primary cause of the disease. Thank you!
@imrobie5758
5 жыл бұрын
2 of my favorite ME Allies! Great info - thank you 🙏🙏
@MB-tt9gb
5 жыл бұрын
Thank you both and everyone working so hard on ME CFS! Is it possible to make an a4 paper for docters/ specialists which disciribes the disease in bulletpoints. To start believing, get them to feel responsible for their patients and maybe want to get them into action. The a4 paper for patients or anyone to download and give it to their docter? So they can be educated in a first stap way? ( easy and fast way to reach a lot of docters)Here in Holland the doctor say's to me when I tell her about me in a crash, perhaps you can not go to bed! They realy do not understand at all and the only thing all the doctors say: I cannot do anything!!!!
@jamesoutwest
5 жыл бұрын
The U.S. ME/CFS Clinical Coalition (a group of the top doctors who treat ME/CFS patients on a day to day basis) has a six page handout for doctors that summarizes the diagnosis and treatment of ME/CFS. A link to the document is provided in this announcement by the OMF. Hopefully it can help your doctor understand ME/CFS better so that you can get better treatment. www.omf.ngo/2019/09/01/new-guidelines-for-diagnosing-and-treating-me-cfs/
@MB-tt9gb
5 жыл бұрын
@@jamesoutwest thank you!! Hope a european version is soon ready!
@KJ-kv9up
5 жыл бұрын
barryUK SMEG Thank you so much James. I help run a self help group for patients in the UK. The new guidelines to which you draw attention to are so helpful and I will be sharing these with colleagues. We are always struggling against the ignorance of medical professionals and administrators and await with great interest developments from the OMF. The OMF seems to offer the best hope for the future.
@KidCity1985
5 жыл бұрын
My two favorite superheroes!
@kathleenm.carson6937
5 жыл бұрын
Thank both of you so much for all the work you're doing on ME/CFS! It is very important to me as a patient (about 25 years; my onset was insidious, so I can't pinpoint my date of onset accurately) to hear about what's going on in ME/CFS research. Both of you have such passion and commitment. I'm so grateful. ❤️
@lokee7
5 жыл бұрын
Thank you, gentlemen!
@spiderish1291
5 жыл бұрын
This makes me reminisce about exciting days in many fields Ron mentioned. I do hope researchers know the Google foundation arm offers yearly million dollar donations. At least that's how it was several years ago. It's probably higher amounts now. I would also take their volunteer help in big data software and machine learning.
@papercup2517
5 жыл бұрын
I don't know if it's my hearing/concentration going, or if Ron's mumbling more than usual, or it's this loan laptop's lousy speakers, or maybe a combination of all three - but I''m struggling to make out more than a few words here and there of this interview. If anyone has time/ is up to doing a transcript it would be very much appreciated. ETA: I can hear it better today - Woo-hoo! It's a good discussion with a good interviewer, even for those of us already well versed in the current state of ME research. Many thanks to all involved.
@raymondgilmour1533
5 жыл бұрын
Thank you...so sad. Hope a treatment comes soon 👍❤️🙏🏼
@caitlinacacia7070
4 жыл бұрын
Thank you so much for conducting and sharing this interview. Is it possible for you to invest in a new microphone? As someone with ME/CFS it was very difficult to listen to this interview because of the background hissing. A clearer sound would make this more accessible to people in this community.
@ellesam3348
5 жыл бұрын
Please find a way to get us better!
@janetld
5 жыл бұрын
Any chance you could fix the title? His name is Ronald Davis! And it was recorded on the eve of the Stanford ME/CFS Community Symposium, at Stanford Univ, funded by OMF. Thanks! Great interview.
@MissCBwasadancer3
5 жыл бұрын
Hi Janet, is there a transcript for this interview available anywhere? This is fantastic but struggling to absorb the information & understand American accent. Much love to you & Whitney - I think of you all every single day. Xx
@MECFSAlert
5 жыл бұрын
Janet, I cannot see where his name is misspelled. Can you point out where we got it wrong? Thank you
@MECFSAlert
5 жыл бұрын
@@MissCBwasadancer3 If you click the [CC] button on the lower right of the video, you can access KZitem's auto captions.
@DDumbrille
5 жыл бұрын
Janet, isn't it true that Rituximab made Whitney much worse? I hope no one is considering that drug anymore...
@69birdboy
5 жыл бұрын
Ron is a gent as is this advocate
@libraryfiles4470
4 жыл бұрын
Check IGF1 in all ME/CFS sufferers. This is an important bio marker!
@slovokia
5 жыл бұрын
Maybe what we need is a competitor to the NIH. Without competition the NIH has little incentive to change it’s ways or become more accountable to the Americans it ultimately serves.
@goodlux777
5 жыл бұрын
Hello! I just watched this, and I think I can help with the problems of forming common language and communication between the various camps of researchers and scientists. Who can I contact to discuss more? Thank you so much Llewellyn for this video and Ron, thank you so much for your efforts and giving HOPE. I want to help!
@Lawmusic1
5 жыл бұрын
If you go to www.omf.ngo there are multiple email addresses listed. Janet may be able to give you the best out of that group. Thanks!
@youknowcrimedontpay9257
3 жыл бұрын
Muscle wasting is also found in Narcolepsy and cataplexy. I feel there is a connection to nonrestorative sleep.
@larryd6143
4 жыл бұрын
Has the blood test been duplicated in another lab? After the XMRV debacle I am reluctant to accept any findings without verification from another independent lab. Also is there a site we can visit to see what drugs have shown promise with the blood test? And of course a million thanks to Ron Davis.
@daniellecurtis5
4 жыл бұрын
Praying for a cure! 🙏🏽
@mypuritanicalopinion3332
4 жыл бұрын
This is informative and intelligent. Please work on the audio for future videos.
@giovannifiorello3659
4 жыл бұрын
16:23 "It's going to require a special drug treatment" Welp so much for being a quick and easy fix, hello 10 years of FDA clinical trials and no end of this hell in sight 😭.
@danashannon8234
4 жыл бұрын
This is so true. Sadly. We don't know what it is & if we ever do will have to find a med then phase 1 2 and 3 clinical trials. He's a great man but I hope he lives to see something come of all his work.
@tkermi
4 жыл бұрын
What is the syndrome mentioned after lyme disease at 12.23? I mean how do you write it, please?
@michaelw9781
4 жыл бұрын
DR. Davis-See Ampligen in Wikipedia and at AIM Immunotech for the only Cure
@andyb5370
5 жыл бұрын
According to Microbiologist Dr.Tom Grier[5-6], who is an expert in Borrelia and earlier in 1978,had some health problems, was mistakenly diagnosed with MS in 1990, finally proven to have “Lyme Encephalitis “ in 1991. MS is only one symptom of Lyme disease, not a disease in itself! Since then, he has been working on Lyme disease and writing books. One of the world's leading Lyme disease specialists and Associate professor of applied Neurobiology, Dr Dietrich Klinghardt MD PhD, states, 'We never had in the last five years a single Multiple Sclerosis, ALS (Motor neuron disease) or Parkinson's patient who did not test positive for Borrelia burgdorferi. Not a single one" FREQUENCY OF BORRELIA BURGDORFERI WESTERN BLOT AND LTT POSITIVITY AMONG MULTIPLE SCLEROSIS PATIENTS FROM TURKEY ejbps, 2019, Volume 6, Issue 4, 27-32
@papercup2517
5 жыл бұрын
This video and thread are about ME/CFS research, not Multiple Sclerosis or Lyme Disease. But, as Dr Davis said, if Lyme patients are able to contribute the funding, as ME patients have done for study of ME, they would be interested in incorporating Lyme and other apparently related conditions like Gulf War Syndrome into their ME/CFS research.
@yarox3632
5 жыл бұрын
What does Davis say at 19:59 ??
@lynneellis600
5 жыл бұрын
They want to have hypotheses and they want to have publications.
@papercup2517
5 жыл бұрын
@@lynneellis600 Can you translate 18:15 - 'Our plan however is to put this whole pathway into....[bakers juice??!]....'
@Martin-delta
5 жыл бұрын
PaperCup bakers yeast.
@papercup2517
5 жыл бұрын
@@Martin-delta Is that some sort of joke? Or a metaphor? They want it to expand/rise? Sorry, it might be a bit beyond me at the moment..
@lorrainedettbarn9384
4 жыл бұрын
Gamma with lidocaine and magnesium in the butt got me out of bed out of wheelchair almost 5years later 10 years later normal. 20years later adult Daughter died got it again baby Daughter had mononucleosis in high school been sick 3years now.
@shmiglo5030
5 жыл бұрын
Dear dr. Ron Davis, did you asked medical medium whats happening with your son?
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