This global resource is for all peroxisomal disorders and will provide
participant-centered data for researchers to use to advance drug development
and treatment options to help improve peroxisomal disorders patient care.
Key Takeaways:
Uncover how this registry will enhance the patient's voice and disseminate
information on all types of peroxisomal disorders.
Find out how to participate and share your experiences.
Observe as the presenter shares their screen to demonstrate the steps involved in creating an account to get started as a participant.
Learn how this will provide participant-centered data for researchers to use to advance drug development and treatment options.
Introduction 00:00
How to register: 17:33
Recorded July 18, 2024
Негізгі бет GFPD | Patient Registry for Peroxisomal Disorders - How to Webinar - July 2024
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