My child has just been diagnosed with mosaic DS, but still grateful for I know that he is God's gift to me and to my husband. Praying for all parents of children with special needs... Love from the Philippines.
@robinsmith3987
5 жыл бұрын
She is perfect. Cute and curious all at the same time. Bless you for all you are doing for her and others parents.
@Sassy8528
15 жыл бұрын
What an adorable little girl......but hard work i imagine. It's great to see you, as a parent, being proactive and providing support advice and information to other parent's. As a professional working with disabled children, I have come to appreciate that the parent knows the child best and is in the ideal position to offer support to other parent's in the same or similar situations.Best wishes for the future and good luck with the MDS association. (UK)
@cthult7856
Жыл бұрын
I wonder how the family and child is now, thanks for the informative video, it provides so much insight even 14 yrs later
@eilissmith8591
8 жыл бұрын
She is beautiful. How is she now? You are fab people doing great work. All the very best to you all.
@robertjospehhill1508
Жыл бұрын
Aww she's so cute we have just adopted a little girl & she's be here very soon & she's nearly 13 months & she's has Mosaic DS & we called her Belle Rosie Hill we can't wait & thank you so much for educationing us on this it really helpful & my wife loves your videos they so educational thanks again lol 😆 P.S we live in Uk
@SantaBarbaraDianne
15 жыл бұрын
This is the first video I have watched on Mosaic Downs Syndrome. I did a search while listening to a segment on this condition on "This American Life" by Chicago Radio (you can queue the archives via their website) because I wanted to learn a little more about it. BTW, your little girl is absolutely adorable! I hope you treasure all these precious moments so that, in your mind, they at least overshadow any bad days.
@lilybrass9yearsago264
Жыл бұрын
Casual 15 year old video with 20 comments recommended to me
@onesyphorus
Жыл бұрын
i searched this up well.. u lucky mofo
@s3rwer
Жыл бұрын
Please share an update, how is she now?
@palabrajot505
4 жыл бұрын
Can the surface characteristics be undetected with Mosaic Down Syndrome, since the chromosomal structure varies from cell to cell? For example, could the epicanthic folds be understated or is it possible to have hands without the single transverse palmar crease? Just curious, this is a fascinating topic to me. No disrespect intended.
@robokill387
11 ай бұрын
Well, there are some women with mosaic down syndrome who don't find out until they are having children and a disproportionate number of their pregnancies have down syndrome.
@annamurillo717
3 жыл бұрын
I believe that my granddaughter has MDS. How do we go about getting her a diagnosis. She is already 11, still no diagnosis. It's so frustrating because we can clearly see that she is dealing with something, but don't know what it is. She's not getting the help she needs with no diagnosis. My daughter is very dismissive about it. I want answers. It's funny because my grandaughter looks a lot like your beautiful little girl and seems to have the same fun personality.
@laurenanderson7330
2 жыл бұрын
Which country are you in?
@Aria-o5u
2 жыл бұрын
1:04 Her smile oh my!!!
@jeannieves6275
2 жыл бұрын
Precious Angel 😇
@bigdesignspop
3 жыл бұрын
Hard to hear
@Luther574
12 жыл бұрын
I have mosaic down's syndrome aparently I only have memory and patern problums but when I was 5 I threw things in the toilet and flushed them down but other then that I was a good child I was vary shy I still am haha
@jakemcnamee9417
2 жыл бұрын
Lots of kids do naughty shit like that. I've just had a daughter, who's been diagnosed. I'm not sure if she has mosaic as we need future testing. But she doesn't have all the physical attributes and is developing faster than normal babies my wife says
@jakemcnamee9417
2 жыл бұрын
Is there any advice you can give me? I think I want to keep her away from special needs stuff and school. I went through that with dyslexia, and I wouldn't want her to go through the same with the special needs stuff they force on us
@BlackJeepConvertible
10 ай бұрын
@@jakemcnamee9417why is special needs school bad for dyslexia?
@gigicats6
5 жыл бұрын
Can't hear this at all.
@SpecialCare
3 жыл бұрын
So cute
@Valentine3e
3 ай бұрын
♥️🙏🏼♥️
@emilyrhoades311
Жыл бұрын
I agree with everything but not the end we not affected all down syndrome is Born this way You don’t get it from someone they come from god for a good reason
@naegling3
13 жыл бұрын
damned failure of chromosomes pairs to separate properly in preconception gametes
@prathapyadav3517
2 жыл бұрын
Madam is there any choice to cure?
@janellcrews3999
8 жыл бұрын
my baby has down syndrome how do you know is they have mosaic down syndrome or not whats the diffrents how do you know.
@mohamadalloui3386
3 жыл бұрын
َاطفال. الفسيفساا. العرب
@mohamadalloui3386
3 жыл бұрын
شكل. الطفل. المزاييك
@shadrach6299
3 жыл бұрын
Genetic test
@awooga17
2 жыл бұрын
this is an old comment but if anyone wants to know, you can obviously get a genetic test to be absolutely sure, but really they are different enough to be able to tell based on looks and speech capability. mosaic Down syndrome people have much less noticeable features that are associated with Down syndrome, however they are still there. people with this also have a much higher intelligence level than someone with the kind of Down syndrome we are all familiar with, but still not to the level of someone without any cognitive disabilities, aka, your typical person.
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