Your a strong man Seb, I love you for all your positive thoughts. Put your self before anything else that is so much more important than work, although I understand I to am trying to work up the courage to tell my work about my Ms. I have been practicing by telling customers at my job and everybody's response is so positive and uplifting it really feels like I'm taking some of the weight off my shoulders. You are more important than any job Seb if one day you are not feeling well don't be afraid to miss a day or two of work or show up late if you need some more rest, letting them know you have Ms would really help them understand why every now and then you might have to miss. I think we are both going to be surprised how supportive and understanding our jobs will be about it. Love you Seb get some rest you will be feeling Much better In no time☺💗💗💗
@rdallas81
Жыл бұрын
Put God first.
@LifeofSebMS
11 ай бұрын
Thank you so much for this very supportive comment 🤗🧡
@thomaskeets3194
5 жыл бұрын
I encourage you to go on a ketogenic diet. It may significantly help you with your symptoms. Ketones makes the brain respond differently. It was used to treat epilepsy in the past but is also effective for any neurological conditions.
@metaspencer
6 жыл бұрын
Sorry to hear, man. I hope you can get that inflammation down soon. Also, I know that stress is a danger for us, but at the same time I don't think blaming yourself makes total sense. Some attacks may just happen no matter what. Anyway: be strong and rest up.
@LifeofSebMS
6 жыл бұрын
Very true my friend! I do have a tendency to try to explain everything with rationale, but we all know that MS is far from following logics :)
@cha07able
2 жыл бұрын
I broke down into tears while I was watching this videos, i exactly know this feeling is because Im in the same situation with a new job but with more symptoms. I worked for 6 to 7 months later couldn’t manage told the authorities asked for no pay leaves but dint show back yet. I know I wanted to be working right now but I culdnt act the same on daily basis getting new symptoms each day, I’m new to this diseases not yet fully diagnosed, reported as having demyelination it’s so stressful, lot of questions running in my head don’t know how to cope.
@desiderata333
6 жыл бұрын
Hi Seb. I’m sorry you’re having an attack. They are sooo annoying. I was diagnosed with MS in 2001 and now I get attacks very often. I recently had 6 days of solumedrol (similar to prednisone) steroid infusions and they made me very ill. I am a little better but am still having a lot of symptoms. You must get copies of all your MRIs, as they belong to you. Just request them with every MRI and they will give you a disc. They should be free of charge. I understand the guilt factor. For years I felt guilty for all the things I could no longer do. Surrender has been a real struggle for me! However, I have turned the guilt into gratitude. I’m grateful for all the things I can still do, even if I do them much slower and needs tons of rest all the time. Aww you are a beautiful with or without a beard. It is wise you’re being safe and not shaving right now. Sending you love and prayers that you feel better soon.
@LifeofSebMS
6 жыл бұрын
Awww Cynthia, thank you so much for your loving words of wisdom
@terraaversa1001
5 жыл бұрын
Thank you so much for posting this. I'm currently experiencing a similar situation and it's nice to know I'm not alone in the feelings of guilt about my new job and such. Stay strong.
@romanxkostan
5 ай бұрын
Going through the same thing right now, I appreciate the video.
@michelles8510
3 жыл бұрын
My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!
@JohnSmith-vb7zx
3 жыл бұрын
Bless your little girl!
@LifeofSebMS
2 жыл бұрын
I wish you both all the best 🧡🙏🏻
@jazzabezza1836
5 жыл бұрын
Sorry to hear you're not good at the moment Seb. Stay cool (not over heated), rest as much as you can & drink plenty water. If you let work know of your condition you may feel a weight lifted. Hiding it may only increase your stress. BIG HUG xxxx
@maxpowersbigfoothunter3825
6 жыл бұрын
I am fairly new to the whole MS thing, I am an artist that started dropping his brushes. No one caught on until my color vision left. My latest bout with MS started with the intense heat that the summer brought on. Longer, brighter days brought on intense photophobia, but also this feeling of someone reaching their fingers into my head, next to the bridge of my nose, and pushing each eye outward. It has affected my balance, my fine motor skill, and my visual perspective. I got a pair of migraine glasses with FL-41 lenses and it has helped a bit. My doctors just sent me for an EEG and next week I'm going in for an MRI of my visual cortex which is where the latest brain lesion showed on my last MRI. They've taken me off Aubagio (Which sounds more like an Italian restaurant than an MS drug) and are going to start me on Tysabri in the next few weeks. I am really interested in hearing about how this works out for you. Best of luck, and please keep us posted.
@streetlegalone
5 жыл бұрын
You are an inspiration. I have been lashing out at the world since I was diagnosed with peripheral neuropathy. I hope to gain some of equanimity in life . . .
@marcellecattach3655
3 жыл бұрын
Thankyou so much Seb for your insightful, measured and down to earth way you delivered your words / description of what an MS attack feels like for you. I know what it's like to feel that you get back up just to fall down again and can wholeheartedly relate ( I was diagnosed with aggressive Relapsing Remitting MS in 2014 but according to old scans have had MS for over 22 yrs). I finally have a great MS team in Melbourne Australia. It's a bloody hard journey . Getting the message out there to help others understand from an MSer's perspective is so important
@LifeofSebMS
2 жыл бұрын
It’s so important 😌 important to help you get back up. Stay strong! 💪🏻
@Musineer19
6 жыл бұрын
So sorry for you. I send you as much strength as I can. You are in my thoughts. (Please do not apologize for your beard. Even if I also prefer when it is trimmed, you don't look bad with it !)
@andriivasyliev2443
5 жыл бұрын
How are you, man? It would be great to get some update. Had an attack two month ago, at the same time as you. Now everything is almost ok. Hope you are feeling good too! Cheers from Ukraine!
@clairejohnson6522
2 жыл бұрын
If you are from the Ukraine i really hope you are ok what with the current situation you find yourself subjected too.Please stay safe.Much love to all Ukrainian people and I hope peace comes soon.Love from U.K.
@matth464
6 жыл бұрын
Hi Seb, glad to see you back!
@LifeofSebMS
6 жыл бұрын
Hiiiiii :D
@melissatulley5354
2 жыл бұрын
Thank you so so much for this video I seen a neurologist last July and have a couple of 'non specific white matter hypertensities' they said you are ok it's only migraine damage, I've cried too many times begging for help but now I am reffered back to neurologist due to these eye pulling attacks, electric shock sensation left side of head and 3 seizures to date, I also have a weak spine and constant trapped nerves in my neck, I got diagnosed with a lesion at the back of my eye in 2015 too so it's probably started since then, I'm convinced I've got Ms now but feel at peace I'm not going crazy . I hope you are doing OK lovely man x
@pabackyardhomesteading6709
5 жыл бұрын
I am sorry for what you are going through. I hope if you tell your employer they will understand. Stay strong 😀
@isabelsoares149
6 жыл бұрын
I'm so sorry to hear that :( Unfortunately, this year is not being kind to some of us suffering from MS. Since March I have been felling an acute brain fog, dizziness and vision-related symptoms. In one of those symptomatic episodes, I woke up and as I was putting my glasses on I was unable to correct my vision, I continued to see everything blurry and a strange pool-like effect in my left eye. I went to a neuro-ophthalmologist and there he saw that I had a bit of damage on my optic nerve due to the illness... This summer has been awful to me! I hope you get better soon. Take care!
@anonymousgirl799
5 жыл бұрын
Seb, look into ordering an EMT pendant to combat radiation that may be coming from your computer, and affecting MS symptoms. You have alot on your mind; having a new job, living in a new place may have triggered stress, and you sound like a perfectionist. Im glad you are living with supportive friends. Please dont be hard on yourself, and get plenty rest. Your symptoms sound like an MS optical flare with vertigo. I experienced the same when I worked.
@blurryface5723
6 жыл бұрын
Its so hard to feel motivated with MS that sometimes you just say fuck it to diet and exercising but once you fix that mindset you become able to get yourself back. I guess the worst part is when you pressure yourself to perform the way you want to and suddenly MS kicks in:( hang in there! 🌈❤️❤️
@kevinmacaroni2524
3 жыл бұрын
Keep Hope Alive! I’ve MS. Diagnosis October 2000. Multiple Sclerosis presented via optic neurosis. Injection medication initially. Then kidney cancer. Stopped injections. Cannibas helps with vitamin D supplements. Rest when you can. Healthy diet. Rinse and repeat. Oh yeah,thanks!
@nuttersnut2000
6 жыл бұрын
When I first had double vision a few weeks before I felt something was wrong with my eyes. I mentioned this as my left eye would twitch a lot and of I turned too quickly my eye would feel weird like it was stuck in place. I used to cover that eye and try and give it rest in case it was working double time. My doctor basically said "let's wait and see", sure enough 3 days after he said that I was experiencing double vision. My double vision was weird though because when I'd cover one eye or the other I could see fine but together they just didn't match up. A lot of neurologists do this test and it scared the crap out of me a few times. They ask you to close your eyes and put your hands straight out in front of you. Then with your eyes still closed they have you touch your nose. They took my statement of "my eyes feel weird" more seriously when I couldn't find my nose. Now when I'm feeling off I test this out on my own. Seems weird I'm sure but for some reason it calms me down when I'm able to do this.
@sanjaykumar6599
Жыл бұрын
How are u now
@bitethebullet8213
5 жыл бұрын
hang in there through this difficult time......keep the future in mind.
@mrfjuze4826
Жыл бұрын
Very helpfull. thank you! I'm studying to be a nurse, and this will help me on the exam! Hope your doing well, bless your soul
@LifeofSebMS
Жыл бұрын
Glad this helped you! 🤗🧡
@Kaiwaza
6 жыл бұрын
Never had vision issues, but I have had problems with articulations and having to think how to pronounce each word. I’ve asked my friends when this is happening and no one seems to be able to tell anything is going on. I most often have ms attacks when just getting over a cold, when I’ve been overheated for a prolonged period, or if I’m markedly stressed out.
@nlzardo
6 жыл бұрын
stay strong! it really is a bummer when a attack comes. hopefully they will stay away for another long time for me. but as you see in the video they will come as a surprise. i am always honest about mt MS, but is always a difficult thing to tell. and i have a job that embraces it and when i need a time off it is not a problem, but i have not had a attack in a year :)
@StephanieSoutherland9
11 ай бұрын
You helped me realize why i was having sudden attacks of the feeling like something was pulling my eyes outward sometimes they felt crossed. Worse when driving. I would have to pull over as my vision would be double and i would also see strobing flashing sometimes even neon double helix 🧬 dna in my peripheral vision sometimes it was like i was seeing a holographic image. I would even ask my kids if my eyes were crossed. Apparently my pupils would always be dilated when it happened. Miracle this popped up in my recommendations out of the blue and i decided to watch it. Did your ms develop after receiving 💉? Mine did.
@LifeofSebMS
11 ай бұрын
Hey Stephanie! Glad you found answers with this video! 🙏🏻🧡
@koolboy8600
2 жыл бұрын
My mental state is exactly just like you today, I’m just waiting for MRI and the attack seems to die off atm. I think my numbness will be here forever once again just because MRI line is too long
@NightAngels
5 жыл бұрын
Hi, im 6 years with ms, started with high dose vitamin d3 treatment (50.000iu/day my dose) right after my first atack and since then i never had any relapse..no other drugs taken..ever. The sooner you start the better. You cand give me a private message if you want to know more
@Thisbook2022
5 жыл бұрын
Hi man, please tell me more
@NightAngels
5 жыл бұрын
@@Thisbook2022 hi, its called the Coimbra protocol, the initial dose is 1000 iu d3/ kg, so lets say you weight 70 kg, your dose will be 70.000 iu of d3, after 3 months you must get your d3 blood test and pth test, your pth must be close to lower limit of normal, based on that you will up your d3 dose or down until your pth is closest to lower limit of normal, it must be unde doctor supervision, and restrict all foods with calcium because of that hight dose of vit d. Also you must take maknesium every day and vit b2 because d3 depends of that to be absorbet well
@kirantariq2228
2 жыл бұрын
I hope your doing better now. I suspect I have ms as I have alot of similar symptoms to yours. Stay strong and take care of yourself. I have an appointment with a neurologist next week. Wish me luck 😬
@LifeofSebMS
2 жыл бұрын
Best wishes 💪🏻🧡
@sanjaykumar6599
Жыл бұрын
How are u now
@user-ps7lf9sl1c
6 жыл бұрын
Good to see u .. I get scared when i have to shave. My hand shakes 😅 . Go to bed and relax ur self a bit. Dont look on something that needs u to be focu.. Listen to music or audio books and the felling will go gradually 💓
@LifeofSebMS
6 жыл бұрын
Hahahaha yeah, the handshakes! I get them too and that's why I keep my shaving to a minimum :D
@user-ps7lf9sl1c
6 жыл бұрын
Life of Seb lndeed 😊
@elijahclydedeguzman896
8 ай бұрын
Hi! Been following you for years now. Do you alsoever experienced eye pain when that dizziness occur? I have the same symptoms as yours this past few days. My attacks have been on and off as well. Hope to hear from you.
@LifeofSebMS
8 ай бұрын
Hey there, no that has never happened to me 😕🧡
@elijahclydedeguzman896
8 ай бұрын
Oh! I guess it’s true at every MS patient have different kind of attack or flare-ups.
@tiawebber9507
2 жыл бұрын
You’re not alone in your guilt this is what I struggle with like I’m disappointing everyone because I’m not well 😔but we know we have to take care of ourselves
@LifeofSebMS
2 жыл бұрын
Indeed 🙏🏻🧡
@swf6262
Жыл бұрын
This is one I have been getting lately. it feels like what I imagine a facelift might but in one 'triangle' of cheek and eye on up to the temple. The screen, over stimulation, sensory overload and eye blur is horrible. Feels like a broken rubix cube. Diagnosed 1 month ago- Ocrevus starts this week.
@LifeofSebMS
Жыл бұрын
Wow, I hope Ocrevus has helped you with this 🙏🏻🧡
@nathanxbond
2 жыл бұрын
It's so hard for me to call out of work when I'm having symptoms. No one can tell I'm hurting so I always think they're going to think I'm lying
@LifeofSebMS
2 жыл бұрын
It’s terrible, I know..,
@user-xy4ff5yp7b
5 жыл бұрын
Seb could you do a video on MS and sex/ relationships? Thanks :)
@louielucero7649
2 жыл бұрын
Thanknuou for this Seb. Just having some symptoms but my neurologist thought was fibromyalgia but now I need to undergo MRI test. Still hoping I don’t have MS.
@LifeofSebMS
2 жыл бұрын
Best of luck!! 💪🏻🧡
@sanjaykumar6599
Жыл бұрын
How are u now
@fatimaadas7181
5 жыл бұрын
What is ms medication you take recently? Sorry to hear about new symptoms.
@omimanasser4450
Жыл бұрын
with every attack i get my face numb, feel dizzy and starting to experience dystonia and trouble with breathing
@LifeofSebMS
Жыл бұрын
Sorry to hear that. Are these symptoms you have from previous attacks?
@person6117
5 жыл бұрын
Hey man quick question When you first got your MS symptoms (from tingling to eye problems etc)..how long did the tingling last for? And how long did you have those that before you started getting new symptoms? I’m getting tingling in random places and I’ve had that for a about 1 and a half weeks but nothing else yet. The tingling lasts only a minute or less usually but concerned that it’s going to get worse. Please give me some more details on your personal experience :)
@sanjaykumar6599
Жыл бұрын
How are u nkw
@chrmng1
5 жыл бұрын
I was diagnosed in 2003. I recently started living a healthy lifestyle a year ago. I recently had an exacerbation went numb with muscle weakness on right side of whole body and face and blurred vision. My doctor thinks maybe because we were sick 4 times with like colds or stomach bug in 3 months. I have been on rebif injections for 7 years and before that I was on betaseron injections. Doctor thinks I should switch medication now.
@metak71
5 жыл бұрын
Go on disability pleaseee. It's hard enuf for us to deal w ms. U will feel so much more at ease. Blessings
@lisaborsch8933
2 жыл бұрын
I hope that you told them. If the disability advocates don't understand then they're not right for you!
@lauracarlson9260
4 жыл бұрын
This posting made me think of "why I have MS?" There is theory that we live many lives and we need to learn something from each one to improve ourselves. Until we have learned all our lessons we keep getting sent back for another life ;-0 So- What would MS teach me and overall what personality flaws do I have? likely a control issue...I guess MS will teach me that I really don't control anything and to just let go...still working on it ;-0
@oscarrioslopez6166
4 жыл бұрын
Woww i couldn't avoid to read your post, I read a similar post somewhere else, and made me think about it, can you imagine if this theory is truth? Ms is a mysterious issue... Virus.. stress, Spiritual thing... Who knows
@shahilagh
5 жыл бұрын
When you get stressed you don’t look at the screen ..... me too .... I understand .........Please tell me how you handle telling your employer about MS ? I know companies have equality rules but in reality who do they react?? .... of course ... immune system reaction .... seriously don’t have gluten or dairy stuff that influence inflammation
@Rainorshine004
5 жыл бұрын
Its easy to fall off the wagon when it comes to eating right, taking proper supplements, etc. You just have to get on the wagon again ! Im not supposed to eat gluten, for example.ive been bad. I enjoyed your video on Aryveda. I think im a mix between all doshas but mostly Vata. Which one are you? Also, someone in the comments mentioned vitamin d3. Its amazing how it affects our digestive symptoms for so many auto immune conditions. When im gluten free , take selenium, and vitamin d supplement, multi vitamin, q10, i do a lot better. I dont think anyone with an auto immune condition should eat gluten. I have wanted to go raw vegan to cleanse, but can be possibly exspensive. I have Hashimotos. But sometimes i feel likei might be getting ms symptoms. For example, im having trouble emplying my bladder all at once. Lately i have been getting dizzy. Its hard to tell if its a heart issue , getti g dizzy, or something else. Its been going on for awhile. My grandmother had both, Hashis and Ms. One youtuber had MS and Hashimotos, and she tried an all fruit diet, frutarian i suppose? And shes doing great now. Like you said there is more than onepath to health. I would like to do an aryvedic consultation to see what they would say for me. I would like to see an update on how youare doing. Much thanks
@joelgastelum3478
5 жыл бұрын
What are some good diets to go on with MS? It seems hard to stay on track not knowing what's good or bad at times . Thanks
@__Wanderer
2 жыл бұрын
From what I've read a heavy plant based diet with some fatty fish is best (plenty of Omega 3s). Red meat has been associated with higher inflammation in general / cancer etc - Mediterranean diet essentially - I suppose there is a reason Italians / Japanese have the highest life expectancies in the world :)
@Traceyi1000
5 жыл бұрын
Have you kept a written diary? I am starting to jot down just a few words when I'm feeling crappy.
@upendrasinghchauhan9768
5 жыл бұрын
Hello Seb, Can you please share your experience with Yoga because I think yoga and pranayam (breathing exercise) have some amazing results I was diagnosed with MS this month and started modern medications due to blurry vision in one eye now I have to take two months medication, as soon I discharged from hospital I started yoga and now I am also taking ayurvedic medications (my ayurvedic doctor said there is No side effect) I have to follow a strict ayurvedic diet (no red chilli, Tea, Coffee, Potato, Non Veg and many more) for now I don't have any other MS symptoms so I just want to stop this at first stage, you also please try ayurveda and you can take ayurvedic medication with modern medications, in India many incurable disease cured by ayurveda including cancer.
@JayWest14
2 жыл бұрын
I recently had an MRI because of similar spells of double vision, trouble talking, biting the inside of my mouth, and constantly dropping things. They found some damaged areas in the brain, and cysts. How did the illness affect your ability to work or operate motor vehicles?
@LifeofSebMS
2 жыл бұрын
I chose not to even get a driver’s license for fear of hurting myself or others. My extremities shake way too much to be safe.
@bmdjk
Жыл бұрын
Well do you think it might be related to screenwork? I am retired and since that I spend a lot of time in front of screen and I experience the same symptoms. Maybe it is the EMF radiation after all?
@LifeofSebMS
Жыл бұрын
I don’t think so… I have that fat even when I’m on holidays and people had MS before screens existed 🙏🏻🧡
@trelosdoc484
6 жыл бұрын
Maybe it's a good idea to trim your beard with some help of your boyfriends. I'm guessing that the sensation examination on ur face will be easier. Anyway, I don't know exactly how your eye feels like but I think that this may be a psychosomatic symptom, as well. Of course neurologists will examine you, but maybe u should visit an ophthalmologist too, just in case. Maybe, optic neuritis or problem of the ophalmokinetic nerves could cause such a feeling, I guess. Take care and don't let anything make you unhappy or more anxious! (I know, it's easy to say but hard to do). Extra tip, try to cover your eye and notice if things are more comfortable
@michelles8510
3 жыл бұрын
Hi All, thanks for all your amazing prayers and unconditional love. Praise Abba our Heavenly Father and Christ Jesus always and forever. Glory be to God in the Most High 💪💝🙌🙏 Best news of the day is… my daughter's report came back from US and she got negative autoimmune MS!!!!! 👏🏼👏🏼👏🏼 And she finished her lunch today…. Literally finished everything…porridge, chicken vege and fruit puree another good news, she has been transferred to the rehab ward for her speech and physio therapies..all these good news came on my 49th 🎂 birthday..that's on 28th June..Thank you Jesus for healing my daughter and giving her back to me in one piece. It's a miracle of God. I rejoice for all the tears and pain I went through since April😄😅😆🎉🎊💖💝❤
@LifeofSebMS
2 жыл бұрын
🧡
@veraivakic
2 жыл бұрын
Can you pray for me sister?
@michelles8510
2 жыл бұрын
@@veraivakic I will pray for you and lifting you up to our Lord Jesus Christ. Read Psalm 23, Proverbs 6 and Deuteronomy 28:1-14. All is well 💪👍🙏🔥
@Seashellgamesyt
2 жыл бұрын
Hi im 21 and have been having shoulder pain.. and its been with me for weeks and I have that burning feeling or like ice rubbed on my skin that comes in waves on my ribs and back can I have your opinion on this?
@Seashellgamesyt
2 жыл бұрын
Also my vision is dimmed and ive a fever and I feel really weak
@audiosounddoctor5834
Жыл бұрын
I had brain mri and I have 6 brain lesions but they told me they are not caused from ms.....can they know that from mri?
@LifeofSebMS
Жыл бұрын
Not sure! That sounds weird, but who am I to know 🤷🏼🧡
@chadkirtland3087
5 жыл бұрын
Have you found that your MS is affecting your breathing at all?
@LifeofSebMS
4 жыл бұрын
Hey Chad, Yeah! Although I think that is often caused by anxiety...
@Lucifrs_kpr
3 жыл бұрын
Did you have normal mris at first?
@LifeofSebMS
2 жыл бұрын
Nope, never
@notime84
Жыл бұрын
You have spasticity in your eye
@notime84
Жыл бұрын
I haven't ms I have been dealing with it since 2009
@LifeofSebMS
Жыл бұрын
I do? 😅🧡
@gabes738
Жыл бұрын
Are you on a dmt
@LifeofSebMS
Жыл бұрын
Yes I am! Have been since 2013 🙏🏻🧡
@gabes738
Жыл бұрын
@@LifeofSebMS which one? if you don't mind me asking, why are you still having attacks?
@LifeofSebMS
Жыл бұрын
I was on Gilenya back then and I was put on Ocrevus instead because an attack is a sign that something isn’t working 🙏🏻🧡
@gabes738
Жыл бұрын
@@LifeofSebMS orcrevus is where it’s at
@LifeofSebMS
Жыл бұрын
🙏🏻🧡
@idraculaa
3 жыл бұрын
Feeels.
@AceKinG2024
5 жыл бұрын
Stop wasting time and Fast to beat MS. Go do it now
@Thisbook2022
5 жыл бұрын
Please elaborate
@AceKinG2024
5 жыл бұрын
@@Thisbook2022 MS is an autoimmune disease that can be reversed by Fasting. He should start doing a fasting protocol to beat MS
@sahirygnobehi6448
6 жыл бұрын
You're losing weight. Is that a side effect✌
@LifeofSebMS
6 жыл бұрын
Yeeeees, an unwanted one :( Unfortunately the dizziness makes me lose my appetite!
@sahirygnobehi6448
6 жыл бұрын
Life of Seb ... I knew not of these effects. Thanks for sharing 😊
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