Kyle, you asked and I am going to tell you. I've been a Registered Nurse for 33 years. I have over a decade of experience in Hospice/Palliative Care. Aside from the hundreds, possibly thousands, of end stage patients that I have cared for, I was my father's direct caregiver until he passed away in 2012 from NSCLC with mets to his bones and soft tissue. I was my sister's direct caregiver at the end stage of her disease until she passed away in 2017 from Metastatic Breast Cancer with mets to her lungs and brain. Right now you are seeking curative/life prolonging treatment and as long as there are treatment options and Jenny can tolerate it, then I believe you are doing the right thing. With that being said, Jenny is following the usual course, or usual progression, for stage IV NSCLC. Even though every person's journey can be a little different, there is still an expected course. The one thing that I can tell you is that nothing is going to stay the same, ever. As the disease progresses, medications, treatments, and routines will be constantly adjusted, altered, added, and removed,. Just when you think you have everything under control there are new symptoms or worsening symptoms. But it can be managed. From the caregiver side, the best advice that I can give you is to take care of you and do not be afraid to set boundaries. You can't take care of Jenny and those precious children if your reserves are depleted. Make yourself a priority and accept help from others. Your family and friends have the absolute best of intentions but they will show up and ring that door bell or the phone will ring just when Jenny has finally gotten comfortable or you finally get an opportunity to close your eyes. You will have to learn to say no and not right now. They WILL understand. You need to take breaks and just get away for a little while and decompress. You have to take care of your physical, mental, and emotional health first, Kyle. It wouldn't be a bad idea to go ahead and start making those plans with those people who you can count on to help you sit with or actually provide care for Jenny, help with household chores and running errands, and also to help to take care of the children. If you have it all planned out already and everyone knows what their role is then it wont be as overwhelming should you need to implement those plans.
@lisasharf1442
Жыл бұрын
Retired nurse here. I wholeheartedly agree. YOU must make YOU a priority! Maybe it’s time for a home health aide or housekeeper to take a little of the responsibility off your shoulders. I would also suggest a cancer caregiver support group. I know you’re in therapy, but it’s such a help to talk to people who are struggling with the same thing you are. There are support groups online if you want, and I’m sure CoH has them. And if you just need a few minutes away to clear the cobwebs, go for a bike ride! Use that awesome e-bike! Remember that you have all of us, too, just like Jenny does. Hugs and prayers from Ohio.
@annkarpinskireddog
Жыл бұрын
All u can do is put all your trust in God it's devastating I know keep pushing and pushing and pushing it's a very hard test the devil is a liar
@patriciajames9446
Жыл бұрын
THAT WAS PRRFECTLY SAID HE DOES NEED TO DECOMPRESS AT TIMES HE WILL BE NO GOOD TO HIS GORGEOUS COURAGEOUS WIFE IF HE IS NOT MENTAL SND PHYSICALLY OK. HE NEEDS DOWN TIME TO WETHER IT BE A WALK, NAP WHEN ABLE, MAYBE A RIDE ON HIS LOVELY MOTORIZED BIKE JENNY BOUGHT FOR HIM ON FATHERS DAY HE WILL NOT BE GOOD TO THE BEAUTIFUL FAMILY IF HE DOES NOT TAKE CARE OF HIMSELF TO. HE AND THE KIDS SHOULD ALSO SPEND AS MUCH TIME TOGETHER ASOSSIBLE HENCE BAD NEWS. MAKE MEMORIES, WATCH MOVIES, READ TO THE SWEET KIDLETS. JUST ENJOY EVERY MINUTE YOU HAVE WITH THEM, AND HAVE FAMILY FRIENDS AND SUCH IN ORDER SHOULD THEY NEED A PLAN IS SER I,PORTANT. I REALLY LOVED WHAT YOU SAID.. ITS PRRFECTLY SAID GOD BLESS YOUR BEAUTIFUL HEART.. LOTS OF LOVE FROM PATRICIA JAMES IN CALGARY ALBERTA CANADA 🇨🇦 ❤ 💙 ♥ 💕 💖 🇨🇦 ❤ 💙 ♥ 💕 💖 🇨🇦 ❤ 💙 ♥ 💕 💖 🇨🇦 ❤ 💙 ♥ 💕 💖 🇨🇦 ❤ 💙 ♥ 💕 💖 🇨🇦 ❤ 💙
@anaferguson5135
Жыл бұрын
Best advice I've heard so far!
@sharonjames4661
Жыл бұрын
Beautiful information ..
@tomekproductions79
Жыл бұрын
Former oncologist here: I would foremost advice to „accept“. Accept the stage of the disease and it’s prognosis. Switch from fight mode to „live the best day possible“ and „show each other your love“ mode. Don‘t try to be the „super-husband“. A nurse can drain the pleura catheter - it doesn’t have to be you. Call a hospice team and you concentrate on more important issues: being with your loved wife, and also doing something good for yourself. Join a self-help group for relatives of cancer patients - I can imagine it helps even more than individual therapy since those people go through the same difficulties and you don‘t feel alone. Much love and strength to you, your wife and family! ❤
@j.s.173
Жыл бұрын
Just an appreciation comment to an oncologist.
@Braapcity
Жыл бұрын
Just like i said above. I've been through this too and i think it would be best for them to make the gime they have now count if they don't Kyle will regret it. Make it count, take care of her but accept reality. Her time is coming. Wish i was wrong but i've been following their story and i can see the changes. Kyle is doing amazing but the inevitable for poor Jenny is coming and it will come quick when ut does lije a theif in the night.
@kimmathias3591
Жыл бұрын
Hard one for Kyle to hear but hope he hears what you are saying.
@ritastutler1470
Жыл бұрын
I think Jenny is excepting if it happens and telling Kyle to be there for his kids. We all want a happy ending, but family kept telling my siscand brother my mom would be all right. In our case it v was a time when all the treatments were not available. My brother could not cope, because people lied to him. He was a teenager and should have been told the truth . I want a miracle and believe in them, but we don't always get our miracle. We didn't with my mom.
@Nightfawn555
Жыл бұрын
@ritastutler1470 I felt your comment and it hit close to home. I'm a full grown 30+ adult, but I have a trauma of loosing my grandpa at age 7 and since then I can't cope very good with loss and grief, so since I live in another country, my family doesn't tell me everything or when it's too late (THE call) just to not upset or worry me for them because I have a life here.I lost my Godfather due to end stage lung cancer and metastatic bone cancer ,except his brain ,everything was full mith cancer .... but He didn't tell anyone, that he's incurable and only hast few months to live ... he started chemotherapy before last year Christmas and died end of March ... Then I got THE call .... I screamed at my boyfriend that he should bring the effin phone away and repeating no,no,no,not now and still keeping myself together to first get the pan with frying oil off from the stove and then I broke down ,becaus3 I thought he's gonna be okay and heal .... It broke me,he was only 55 ... 3yrs ago lost our grandma due to cancer and 11 years ago my Aunt (his oldersister)almost the same age as him,leaving a son behind, who was only 21 at the time 😭
@heatherjalbert7406
9 ай бұрын
In honor of Jenny I am putting Jenny's chanel on my TV and letting it play from start to finish even if it's in background today. ❤ Sending everyone prayers love and light. Remember what Jenny leaves here is going to spread faster than cancer. R.I.P. Dearest Jenny no more suffering ❤🙏🌈🙏🌈🙏❤️🌈🙏🌈❤️🙏
@sherryschloemer4406
Жыл бұрын
Hi Kyle....as I watch your video, it takes me back many years ago. I found myself in a very similar situation as you and I can literally feel your pain as I watch you talking about the love of your life. My husband and I had only been married 4 years when we found out that he had terminal kidney cancer. Being in my 20s, I could not believe that this was happening to us. We were so happy together and just getting started with our life journey. I literally felt like I couldn't go on without him. One day while we were having some very difficult conversations, he said to me, "I think we should have a baby." I was in shock and disbelief and asked him why he would say such a thing at a time like this. His response was, "So you have a reason to go on without me." That was the hardest decision that we had to make as a couple and I wasn't even sure if we could have children because he had received mass doses of radiation and chemo at this point. Miraculously, I was soon pregnant with our one and only child. When we announced the pregnancy to his oncologist, the doctor's cold-hearted response was, "I'm sorry but you probably won't live to see your child be born." My husband was determined to see his child and so he did! Our son, Billy, was born on February 24th and my husband passed 3 weeks later. My husband, Ray, fought a hard 15-month battle with cancer. Looking back on the experience of losing my soul mate, I think about the things we did right. For example, we had some very hard conversations about his final arrangements. We talked about my future and our son's future. His biggest concern was not for him but for me and our child. Ray just wanted us to be happy and it brought him a sense of peace when I promised him that I would not close the door to love in the future. He did not want us to be alone. Another thing we did together is we took short trips and enjoyed watching the sunrise and sunset every single day. As time went on and he became weaker, we enjoyed the sunrises and sunsets from our bedroom window. We learned to appreciate every day as a gift and we learned to never take anything for granted. As odd as it may sound, I cherish the opportunity to live out Ray's final days by his side. I'm a different person because of the experience. When our son reached major milestones in his life (ie. high school and college graduations, wedding), it was very difficult to not have Ray with me but I could certainly feel his presence and knew he was watching proudly from above. I would like to say that you are an amazing caregiver and husband to your beautiful wife, Jenny. You are also a tremendous father to your two beautiful children. The love you have for your family is evident and you are a superhuman! You must be patient with yourself and allow yourself to grieve. Don't be afraid to ask for help from your family and friends. They want to help but sometimes don't know what to do. Also, it's ok to let Jenny see you in your darkest moments. It will help her to be there for you and let her feel like she can still support you as your wife. A mother must also know that her children will be taken care of and you have demonstrated that many times. Your support systems are crucial right now and I know that you want to spend every single minute with Jenny. I remember not wanting to sleep because I wanted to be with Ray every waking second. Please remember you must take care of yourself, both physically and mentally, in order to be there for Jenny. Please know that you and your precious family are in my thoughts and prayers daily. You are not alone and even though it might not feel like it at times, God is always by your side. Enjoy every day and every minute and if Jenny improves, then you have nothing to lose and so much to gain! We are on this Earth only for a short time but will be together in Heaven eternally. Much love and prayers Sherry
@kariay50
Жыл бұрын
🙏🏻💗
@timanderson9466
Жыл бұрын
Your husband sounded like quite a good man. All he wanted was your happiness when he left. Wonderful and uplifting post in shade of such sadness and heartbreak.
@misskathleen490
Жыл бұрын
Were you also scamming people for there lifesavings?
@sobregastronify
Жыл бұрын
What?@@misskathleen490
@sobregastronify
Жыл бұрын
Do you think she was with Ray because of the savings?@@misskathleen490
@fransa6
Жыл бұрын
Dear Kyle, you can’t do this on your own, no one can. At this point I think you need to delegate the clinical care giving, the management of the meds and pain relief, the oxygen etc, to someone else for instance a hospice nurse who can come to your home everyday. At this point you should be able to be the husband and friend so that you can be fully present during this precious time. You can’t also be the doctor, nurse and caregiver - and the housekeeper, cook and father. That’s just too much for anyone. Strange as it sounds you must look after yourself first and foremost. If your tank is drained you won’t have anything left for Jen. My heart goes out to you, and it just sucks that you and your family are having to go through this. Reach out for all the practical help you can get. Nothing can ease the pain you are going through but know that you are loved and admired by so many of us. ❤❤
@annestep6741
Жыл бұрын
yes ask about home health assistance. I don't think she would qualify for hospice, she isn't thank God in that place. We do forget that you are carrying this heavy burden and it is hard, worse than hard. Hopefully she can start the new trial soon and she will start feeling better.
@sauzzielumpkin
Жыл бұрын
I totally agree at this point. 😢
@user-yj1jt8bw6s
Жыл бұрын
Perfectly said.❤
@courtneymaree7522
Жыл бұрын
Well said
@rachelmercado1750
Жыл бұрын
I agree 💯 percent
@robblackman4255
Жыл бұрын
Kyle I've been in your position. Lost my wife to Lung cancer after her 1.5 year battle. We were married for 30 years. I'm most concerned about you. Please reach out to me and provide means of contact. You cannot go through this alone. I look forward to hearing from you my friend. Blessings to both you and Jen. Bob B ❤
@robblackman4255
Жыл бұрын
Kyle I just saw your last update. My heart goes out to you both I'm so sorry to hear this news. You asked about plans going forward. Jen will need a living will which you may need for Hospice should the situation arise. You will need to have an attorney to probate the will once the time comes. There is a lot of legalize so let the attorney handle. Once again reach out to me with your particulars so I can guide you. Stay strong my brother. Bob B
@melissagreen6319
Жыл бұрын
@@robblackman4255❤
@melthegreat24
Жыл бұрын
So good of you to want to help this family they really need all the help they can get , may God help them through it all, and may God bless everyone supporting them 🙏❤️
@kenniepennie9668
Жыл бұрын
@@robblackman4255what in the world would she need a will for?? It’s THEIR stuff. Anything left behind finances kids etc stays with Kyle. And putting a will in probate makes things so much harder. You have to go through the courts for everything. Why make it so hard on yourself or him!?
@m_r---123
Жыл бұрын
@@kenniepennie9668Check out what a living will is!!
@sharon2764
Жыл бұрын
I was a caregiver respite volunteer working with hospice. I would sit with the patient while the caregiver could get away and relax, take the kids and enjoy some time away. I was free with no payment involved. We had background checks, classes and other instructional information.
@MarissaNye
Жыл бұрын
@@LittleJoessuch a selfless thing to do. That’s truly wonderful you where there for people who truly need some support.
@stephaniedavis6531
Жыл бұрын
Your children can't witness both parents going down with the ship. Don't wait for a break. MAKE THE BREAK YOU NEED. Talk with your care team to bring in HELP.
@st2826
Жыл бұрын
Hospice/palliative care is the way to go Kyle, its not admitting defeat, its not "the end" for Jenny, its giving you the breathing room to be Kyle the husband, dad, son etc not Kyle the nurse. Letting somebody else take over those duties will allow your strength to return to help Jenny keep battling, one less thing for her to worry about. ❤❤❤
@christinestraw5795
Жыл бұрын
I absolutely agree with you..The Hospice and Staff are wonderful people...
@kathyneichoy9384
Жыл бұрын
I am surprised that with a drain and oxygen that Home Health is not involved in some way.
@chasethefle
Жыл бұрын
Hospice is needed If her tests come back rotten! Give her the opportunity to help you and those babies,don't stop,just take a break a few days......let her make a new friend who isn't biased,a hospice nurse can be a friend
@barbkamesko3329
Жыл бұрын
Hospice means end of life. This will discourage her too much and whole family. Can’t professional care givers come home to her? I m from EU and things here are much more different over here.
@chasethefle
Жыл бұрын
My mother was very close with her nurse,my sister and I had a little break,we both had kids!
@springfling2511
Жыл бұрын
I went to the ocean this past week. It's the place where I feel closest to God. I just wanted you to know that while I stood in the water I spoke aloud to God and prayed for you, Jenny and the kids. I prayed for the POG family and Paul in Perth. I prayed aloud for healing..physical and emotional. I prayed for strength. I prayed for peace of mind. I wish I had words of wisdom, but I don't, so I spoke to the ONE who does. God bless you all.
@jensheedy
Жыл бұрын
I am talking to God about all those same families! It's amazing how much you can care and ache for people you've never met. Oh how I look forward to the day when we all stand in glory and redemption is complete.
@bbgirl6741
Жыл бұрын
What is POG family & Paul in Perth ? 🤔
@ritastutler1470
Жыл бұрын
I so agree.. He is our strength. We have nothing without God. I have not c seen my mom except in dreams. She died ar forty nine from cancer, but I will see her again and she will be whole and happy..no more cancer.
@janetm356
Жыл бұрын
@@bbgirl6741 both have YT channels…both are dealing with Stage IV cancer, and Sarah at POG is now on hospice care. Paul’s journey is also moving and he appreciates support. Worth taking a look; their sharing with us is a real gift!
@danielleewing6405
Жыл бұрын
Palliative care I believe would be best for your family
@ronniecupstid9955
Жыл бұрын
Hello Kyle. I was in your shoes for three years. People ask me how I got through three years as my wife’s caregiver. It was the love of God and exercise. Exercise and prayers helped me get through mentally. If I could live the last year over with her again, then I would have stopped all the treatments and brought her home. I prayed many prayers for God to heal my wife, but there at the end I prayed that if he wasn’t gonna heal her, then to take her to heaven. I couldn’t take seeing her suffer every day. Even the morphine pills didn’t even work. I’m praying for you buddy. Hang in there and God Bless you and your decision 🙏🙏🙏
@motherofthreeb6337
Жыл бұрын
I agree with ending the treatments; "quality" over trying to gain "quantity", which is not guaranteed.
@SaidhbhinAisling
Жыл бұрын
Dear Kyle, Palliative Care, at this stage, is more for the benefit of you and the children. It doesn't mean giving up on anything. It means giving you the support you need so you can be the healthiest husband, father and provider your family needs you to be. You need the assistance both mentally and physically. God puts answers before us, but we have to be willing to surrender ourselves to His wisdom rather than our own. The hardest thing I ever had to learn in my life was to ask for help. I'm 67. I always thought asking for help means admitting weakness and/or defeat - but quite the contrary, my dear. Asking for help is a sign of strength! You are doing everything right. I am keeping you, Jenny and your precious children in my thoughts and prayers. Galatians 6:2: “Carry each other’s burdens, and in this way you will fulfill the law of Christ.”
@Spicytots5
Жыл бұрын
Yes to palliative care!!! Such a big misconception that palliative care = hospice care. Palliative care is there to provide help, resources, and a resource. Highly recommend!!
@lorichastain2896
Жыл бұрын
Many prayers
@hotmessmomvlogs
Жыл бұрын
Don't fall victim to toxic positivity! You're allowed to go through all the feelings no matter what they are like.
@ljbsc60
Жыл бұрын
Amen to that 🙏
@whitelightthrifter9906
Жыл бұрын
I love that, “toxic positivity”. My brother and his wife just went through this cancer battle. They were stuck on being “positive” It really made things more difficult than need be and communication became stilted. Moments were missed.
@Aristotle2000
Жыл бұрын
Agreed. It's also toxic to think that if I just "fight cancer" hard enough, things will get better.
@cristinmccloud1980
Жыл бұрын
Sounds like it’s time to get real and throw out the toxic positivity. It’s okay to admit everything sucks and you can’t see the light at the end of the tunnel. Day by day. That’s all you can do.
@marybeth23
Жыл бұрын
As a hospice worker, hospice is not an option so long as the patient is being treated. Hospice referral happens when all treatment by physicians are no longer an option and the disease is progressing. There are several other ways to get help in the home to relieve the caregiver of alot of the stress we all can see Kyle is going through. I pray he asks medical professionals for some help with this. In so many ways it's much more difficult for the caregiver than the patient. Praying for you Kyle.
@krystynajohnston6194
Жыл бұрын
Hi K,yle I am losing my husband to stage 4 cancer for the intestines lungs and liver and he is now in the last months/weeks of his life with me and it is crushing me every single day. The dark days are soul destroying and the good days okay. You cannot make this better or go away so Kyle its okay to let go get angry and cry. We have no children and I would say to you that your little blessings will be what gets you through that and the prayers of others to. At this time my hubby is having pain management and assistance to sleep. You will be exhausted Physicaly, Mentaly and spiritualy. I and others get this to that are going through same situation. Treatment support changes in a heart beat. Kyle I cannot find the words to help you I wish I could but I and my hubby Joe are praying for you and your family. Embrace the good times that peek through the mist. I just wish I could express myself better to you all I can say is I understand and get it Cancer is a Bas---d. Love and blessings for you friends in Scotland.
@bonniecreighton4163
Жыл бұрын
Retired Register Nurse here Kyle. Spent 47 years in my profession, with a specialty in Oncology. As others have already shared....you have reached a turning point in this journey where it's time to consider that Jenny's needs are now surpassing your single ability to meet them. There's an expression we sometimes hear in conversations that goes like this: "this is all above my pay grade"....I don't say that to be flippant about what you are going through but to describe where you are right now. It is impossible to be the husband, father, "nurse/doctor", bread-winner, chauffeur, counselor, manager of the household, ...and so much more, in your circumstances. If you don't take care of YOU (FIRST, now) - you will have no strength to be there for Jenny and the kids. We used to partner with facilities in our area (nursing homes, rehab centers, hospice facilities, etc.)....who would take in the patient for a week or two stay (out of the home) to allow the caregiver some "respite time"...to recover, "recharge", rest and recuperate mentally, emotionally, physically, spiritually along the way. Maybe contacting Social Services could help arrange such a strategy for you. It seems a place like City of Hope would have this kind of service available. She may not need actual "hospitalization", but does need the 24/hr. attention of professionals in this discipline. We also introduced Home Care Nursing Services in many situations, which I'm sure you have thought of or even considered. But it is critical now that YOU, take care of YOU. I agree 100% with the others who have shared the same concern. You have been "micro-managing" a situation that is beyond a single person's ability to do so for a long time now. I have so often said to myself...."Jenny and Kyle, and the two of them are the most incredible examples of what LOVE truly means...in a world that has all but lost the meaning of that word." God will show you the steps you need to take now....we all are praying that help is on the way. Much love, many prayers from Minnesota....and keep us informed so we know how to keep praying.
@jerryspianobar
Жыл бұрын
Excellent advice, and very well stated.
@susanadamson7977
Жыл бұрын
Again, wonderful advice. Thank you xxx
@dimcguffinhudson498
Жыл бұрын
Beautiful advice.
@lzal9204
Жыл бұрын
I’m an RN too and this is solid advice.
@terri5757
Жыл бұрын
Wonderful advice. I really loved when you asked Kyle to keep us informed about Jenny’s condition and needs so we would know how to pray. I so agree with that request. When people have health conditions or other serious matters going on, things and needs can often change quickly. It really helps to know what we should be praying for at the moment.
@lucyfritz3232
Жыл бұрын
Dear Kyle, as a hospice social worker for over 22 years I commend you for communicating your thoughts and feelings and articulating them so well. This is painful and no amount of positive thinking takes that away. It’s okay to feel sad, angry, disappointed, confused. The trajectory of decline is an unknown entity. Fighting is exhausting for both of you and putting on happy smiles when you feel scared and helpless is also depleting. This unfortunately is a disease of waiting and seeing, treating or not treating. Constant changes and adjustments. It is the roller coaster ride you can’t get off or take a break from. The hills and twists can seem bigger and longer and it takes a toll. Good boundaries are important. Having a plan in place for changes-specific duties done by specific people. You are blessed to be a teacher and have time off during the summer….but you still need time for you. Riding your new bike. If that means someone is with Jenny so you feel you can do that without worrying if she will be safe-ask someone. People want to help and many times don’t know what to do. This is one example of you being able to take care of yourself too. If you cry the whole time you’re on the bike-it’s okay. Pretending that something isn’t real doesn’t make the reality go away. I’m not suggesting that positivity and prayers don’t help-because they do. The reality is this disease is an unfair monster. You have great medical professionals to guide you. Ask the hard reality questions-what would they do in this situation-or if it was their loved one? You are one heck of a husband and father Kyle. Seeing your family in pain and struggling-while you also feel such pain and helplessness-is a testament to the love and devotion you have. I applaud you for asking for help. Keeping you in prayer for strength and comfort. 🤍🙏🤍🙏
@terrapurcell2284
Жыл бұрын
I second everything you have said. Your an incredible communicator and spouse and parent. I’ve been in healthcare for 30+ yrs and you guys are one of the best couples I’ve seen with connecting and communicating with each other. It’s essential to keep going to have what you 2 have. Breath and keep moving forward. ❤️🙏
@CindyKinney
Жыл бұрын
Hi Lucy. Wow, an amazing, eloquent, and informative comment you have given Kyle. Thank you for your service in this field.
@marthainsalaco9266
Жыл бұрын
So beautifully said ..Kyle This is all so hard and scary.You are truly a great beat Friend to Jenny and the greatest Dad❤ What you both are going through is no Joke ,But Like these many comments that are left,You do have to have your own space just to decompress cry yell!!! So much love for you all Kyle and princess Jenny ❤
@sarahholbrook3636
Жыл бұрын
🙏🙏🙏🙏❤️
@claranielsen3382
Жыл бұрын
Well said!
@theNihilisticEngineer
Жыл бұрын
Paul in Perth is terminal with cancer and he made you and Jenny a great video giving a list of things to do to help make sure everything is taken care of ❤. I’m so sorry y’all are in this boat
@uteschmid-jonesisresidenti9582
Жыл бұрын
Tomorrow is not promised to any of us in this strange planet earth world we live in. My sister works as a nurse in a pediatric hospital, holding the hands of many young children as they transition to the other side. The intimacy that this disease journey has brought into your relationship as two loving adults; encompasses a kind of maturity rarely seen in couples so young. This journey is forcing wisdom into both of your lives. I believe that we come to this earth to be students, to navigate through sacred contracts established in communication with our creator, and then to move on to the next adventure when this one is complete. You cannot live Jenny's life and sacred contracts for her, nor can she do that for you. What you have co-created together during this experience is incredibly valuable. We live in a world where many will never learn the meaning of unconditional love; and both you and Jenny LIVE unconditional love right here and right now. Now is the time to reach out and be carried by others who have walked this path before you. We will hold space for you. We will intend grace and light for you both. Someday, it will be your turn to do so for another. I'm grateful to have learned your story through the internet. Your integrity; respect and resilience even in these moments when the heart that lives outside of your body is struggling to beat and breath touches all of us deeply. May you observe beauty in these challenging moments together.
@traciebryant162
Жыл бұрын
Hospice is really helpful at this stage, too. Hospice or Comfort Care/Pall Only nurses are fantastic. That kind of care can be really scary for people, but it's truly care for her diagnosis because she's stage 4. It doesn't mean she has such & such time left. It means her diagnosis is technically pall only, so she can receive these benefits even while on treatment for clinical trial, etc... However, if you're not comfortable with it, that's 100% okay, too. It's just another resource option that has help benefits, etc...
@traciebryant162
Жыл бұрын
@zoraspeak I hear you. I worked in oncology for 7 years with an amazing doctor who now leads at City of Hope. Everyone has different needs. My own mother passed away from cancer when I was a child, and we used hospice for a short time. There were families that had other support, or had other reasons why hospice wouldn't have benefitted them. They didn't need to try it. Respecting everyone choices and their why is really important. Offering advice is always welcome as long as all advice is welcome from everyone.
@traciebryant162
Жыл бұрын
Yes, Pall Only absolutely. Thank you for explaining. Your comments are helpful, too. Yes, I'm cousin Tracie ❤
@j3d354
Жыл бұрын
😪 Hi Kyle. I went thru this with my husband, he had a lung cancer. I have 2 suggestions. 1) do not try and control the situation. Wake up each day, focus on the day, and let it be. 2). Take time for yourself. I would take walks on the beach. I joined a hiking group and went on Saturday morning hikes, yes when spouse was so sick. It helped alot. 🦋
@nickywilks7928
Жыл бұрын
Great advice from someone who knows.
@valeriejohnson1043
Жыл бұрын
I am reminded of a poem I take no credit for and maybe you’ve heard it: “Cancer is so limited…it can not cripple love. It can not shatter hope. It can not corrode faith. It can not eat away peace. It can not destroy confidence. It can not kill friendship. It can not shut out memories. It can not quench the spirit. It can not silence courage. It can not reduce eternal life.” Praying for you all!
@vickiep713
Жыл бұрын
Hi Kyle I live in San Diego and have an extra room in my house I would love to open to you and Jenny while you are here for her therapy. I would love to help you guys in any way that I can!
@aquamarineblue8690
Жыл бұрын
I’m a daughter of a mother who passed away from cancer. It’s going to be ok. Only live in the moment. That’s my advise. ❤
@jollyjime2560
Жыл бұрын
Yes. It’s the time you have. Don’t let worry rob you of it.
@janemarbach2549
Жыл бұрын
I think this video was maybe a little bit overdue you've been carrying the weight of your whole family without skipping a beat! You are a true inspiration and Jenny deserves that. But you deserve a break too! You both hàve been brave enough to share this journey with all of us and I'm so grateful because it has taught me a lot about myself, alot about the disease. I too have a family member that's going through cancer but hopefully her disease remains what it is at this point and doesn't progress. Praying for good results. Praying you get to grow old together. Your story it's just means so much to me! 🙏🙏🙏🙏🙏🙏🙏🙏👌👌👌👌👌👌👌
@leslienuss163
Жыл бұрын
My daughter in law died at 31 from stage 4 breast cancer after her third baby. Pictures, videos, it makes a difference. Nothing else matters. Memories now matters!
@speakingtruths
9 ай бұрын
I know I'll probably have the unpopular opinion and I'm ok with that, but as a single parent, i think it's FAR more important to be a present & caring parent, than a partner. Your kids are going to hopefully live a full and wonderful life, after this cancer journey is over and THEY need you, the most. Pour yourself into them, always. You are the most caring man I've ever seen and I just hope & pray you find another partner, who is there for you and the kiddos. None of you deserve to be alone and you shouldn't be! Lots of love and big tight hugs, to all of you 🤍
@janetm356
Жыл бұрын
I love so much that Josh at POG Family has opened his heart to you. Many of us are also walking along with Josh and our beautiful Sarah, who is coming to the end of her journey. They are remarkable, as are you and Jenny.
@bowiegirl5662
Жыл бұрын
I think Josh may be a great supporter.
@Sapphio
Жыл бұрын
That’s good news
@Danilucaa
Жыл бұрын
Josh is exploiting his wife at this point.
@mlbrown1068
Жыл бұрын
@@DanilucaaNo he is not. Shame on you and your ignorance.
@janetm356
Жыл бұрын
@@Danilucaa that's a judgment you have no business making.
@Raven24444
Жыл бұрын
Hi Kyle I am a registered nurse going on 35 years. I follow both you and Jenny. Sometimes it's ok to let go. Release your grip on the wheel of trying to control the outcome. If Jenny is tired of fighting, stop fighting. Focus on palliative care. Keep her comfortable and enjoy the time you have left❤️
@valerienelson3296
Жыл бұрын
I got a reply like this from someone and was furious it felt like giving up, I couldn't have been more wrong and always wonder if I pushed to far and didn't allow us the time to just be. I just came off a 7 year journey and am so lost as to who I am & what to do now. I am sending you much love & support. ❤❤❤
@flowersandcandyflowersandc9093
Жыл бұрын
I disagree with you, it's not time to let go just yet Jenny still has an appetite, and has no problem swallowing holding food down so it's not time just yet .
@valerienelson3296
Жыл бұрын
@@flowersandcandyflowersandc9093 I only meant in my case. I think anything or treatment option that eases pain is great. Also it's the person's call who is going through it. You can never say she didn't put up 1 H of a fight so far. I never ever gave up hope, but as I look back the meaning of Hope just changed a bit 💗💗💗
@grammichal6759
Жыл бұрын
@@valerienelson3296 Your final line is intriguing. Thank you.
@grammichal6759
Жыл бұрын
@@valerienelson3296 “For I know the plans I have for you says the Lord. Plans for your welfare not for calamity to give you hope & a future.” Jeremiah 29:11 “I set before you life & death…choose life that you may live.” Deuteronomy 30:19 The last scripture is a challenge to me personally. I need to embrace it to help me out of my depression especially since my son took his life by drowning two years ago.
@DebraAlexander-br7io
11 ай бұрын
I took Care of Father who was Diagnosed with Dementia and Of course it went into Alzheimer's Disease 24/7 Care! Watching Your Loved One Deteriorating right in front of You! It was a strenuous, I fell on The steps and broke My Neck, Broke a vertebrae in my back, While caring for him! I was in Trauma Unit for both! Doctors Told me I had to take care of Me in order to take care of Him! I wouldn't ask for help 2 weeks Before he passed away! Hospice Came to the Condo and a Nurse & A aide twice a week! I was dead tired handling My Father, Cleaning and cooking, laundry, Grocery shopping! It was a hard Time but I wouldn't want it other Way! The Nurse couldn't believe He went so quickly!
@loridelafuente2548
Жыл бұрын
Pallative care team is a great suggestion and I agree housekeeper would alleviate some responsibility.
@ReadingswithLinda
Жыл бұрын
Michelle is right. You need to take care of yourself. You need respite help. If you and Jenny see that as giving up, that is not the case. You need a break once in a while. That does not mean that you have given up, but this is the reality of your circumstances. Even if you can have time to go to the GYm, or go out for coffee with your buddies. A respite person can be a great boost for Jenny as well. Palliative care prolongs life, but might be a solution for your family. I'm praying for you and holding you close.
@msauc3637
Жыл бұрын
What a super human you are! Currently going through a tough spot with my wife. She is only 32 and we have 2 children under 7. The last couple of months have been dominated by biopsies, scans, medication and the unknown. We've had those dark conversations and whilst I can't offer you any advice, I can say that you are not alone in what you are going through. I've drawn strength from your vlogs ❤
@TMama_
Жыл бұрын
♥️
@pearlgirl611
Жыл бұрын
❤
@cathymorris9855
Жыл бұрын
❤❤❤
@Debb40
Жыл бұрын
❤❤❤❤
@cindybell673
Жыл бұрын
❤️❤️
@cherylmcneil9278
Жыл бұрын
My 25 daughter battled cancer for almost 5 years. Sadly she lost her battle. Friends, family and health care workers gave us incredible help and were there for us. I find comfort knowing cancer did not win - love did. I know how scary this is Kyle and you are so brave to share your struggles and feelings. My thoughts are with you, Jenni and your sweet children.
@MTknitter22
Жыл бұрын
Cheryl, you said it well. Hard hard things happen to all of us. It’s how we rise above them that causes the hard things never to triumph really. Love gives us the strength to get through them and onto the other side. Love never fails. 💕💕
@onemuckypup9823
Жыл бұрын
Much love to you also. Huge hugs from Australia
@janetbartell7433
Жыл бұрын
Hi , I sympathize with you, my 59 year old husband on June 1st was helping me put up a swimming pool, he was having back pain and had a few tests done. On June 3 he was at work when the doctor called and told him he has cancer, A week later after oncologist did biopsies we were told that he has matastatic stage 4 pancreatic cancer that spread to his liver and stomach and on top of that bone cancer. He has been my life and safe place for 37 years and he has a few weeks left. I have watched him in the past weeks drop 60 pounds and is bedridden and not eating, I try to be strong for my family but it is hard. I am up all night with him and don’t leave his side because I know my time is running out with him. My heart goes out to you
@user-gy7ym3ik8x
Жыл бұрын
So very sorry , sending 🙏🙏🙏
@brightpurpleviking
Жыл бұрын
My daughter had cancer. I spent 7,000 hours on a plastic bench in one year as she fought it. One thing people forget is that the cancer patient is often medicated, asleep, out of it… but the caregiver isn’t. We are awake, sharp, aware, absorbing it all. Make sure you are eating, resting, and pushing away the things or voices that dont help you all get to the light at the end of this horrible tunnel. When the fight is over, please watch yourself at about six weeks post because that is when the caregiver crashes mentally and physically. The oncologist told us this and she was right. Then the patient crashes about three or four months past, if they are in remission. Accept help from non drama people. The drama people love to suck the drama and stir it all up. Surround yourself with strong, peaceful people. I will pray for you all!
@pam7500
Жыл бұрын
Kyle, I am new to commenting, so here goes. I was the care giver to my daughter through all her hospital stays, ER visits, blood transfusions feeding tube, etc. It's hard, but your love for her is so strong, and I believe you will stay strong. I agree with everyone that you need to take care of yourself. It helps me to read Psalms; then, in her illness, and now with my husband who has had cancer three times. God's word is strong and comforting. God bless you, Jennie, and your precious children. I will continue to pray for ya'll. So very many people are praying for you, and care for you.❤
@CGH250
Жыл бұрын
Dear Kyle - as an RN of 26 years I can tell you that it’s ultimately important for you to take care of you. What you are going through shakes a soul to its core. It’s daunting! I pray each day for you and Jenny and the children. Just face each day as it comes. You’re a wonderful husband and dad and Jenny knows this. You have a special bond and an amazing marriage. You have been such an example to many people. The scariest part of life is the unknown and feeling you have little control. You are so strong and whatever is coming, God will be walking through it with you. You guys are so loved and your YT family are here for you. ❤️🙏✝️
@CindyKinney
Жыл бұрын
Well said, Cheryl. Thank you for your service for so many years in the medical industry.
@ames6416
Жыл бұрын
I just posted and totally FORGOT to suggest asking to speak with the oncology social worker at City of Hope.🤦🏻♀️I am sure they have a great one. I'm an oncology social worker and have so many times thought it mighy be helpful to talk to one at COH. ONC SW'ERS have practical resources that could be super helpful. Again....doesn't make the pain go away, but it might turn the volume down a bit. So many supportive programs for your sweet kids, and you & Jenny.
@stephanieedwards3341
Жыл бұрын
Kyle, I just want to say that you are love by so many out here who have gone through all that you are currently going through. My husband was 55 n the cancer went everwhere in just months. The biggest blessing for me was I lay next to him on the bed at home and spoke into his ear of love ,Gods love, my love, family love. I am so proud of you, as if you were my son. You are not alone in this. Heres a Bible verse I cling to. " God Is the everlasting God,and underneath are His everlasting arms" Fall into them. He loves you and so do I.
@eddraper
Жыл бұрын
Hi Kyle - I am in the same position. My wife has been battling stage 4 colon cancer for over six years. Lately, it has become chemo resistant, and she has had all the radio therapy she can handle. We’re at the end of the line in terms of treatment options. All we can do now is manage pain. We’re trying to get a cryro ablation procedure done on her bone mets, but the insurance company is pushing back. We both think the next step is reaching out to a hospice and having them assume the day-to-day management of symptoms. Keeping her pain free and in a controlled environment will be a priority. We both know that this is not going to end well and we can’t control that fact. However, we can control her environment. Being at home, with our dogs and friends and family will go a long way rather than a hospital bed and all the associated anxiety.
@lclark715
Жыл бұрын
Sending prayers your way.
@barbaraanderson8391
Жыл бұрын
Sensible thinking is required but isn’t what you hope for! Reality hits hard and forces change.
@user-wd3po8sd7k
Жыл бұрын
❤
@tracyd693
Жыл бұрын
You should get in touch with the Pog Family dad, Josh. His wife is on hospice currently and it was a very fast change and he handling it with as much grace and love as he can. He's such a beautiful human being. I think he could be a good example for you Kyle.
@miademons1306
Жыл бұрын
My mom had cancer her whole life until June and I'll help all I can Mr Apple
@shawnanderson8699
Жыл бұрын
Dear Kyle and Jenny- I lost my Dad, Sister and brother to Cancer, and now I have breast cancer. God is so good and so strong! Lean on him, talk to him, pray and cry to him, you will see and feel his love. Make him your Father and friend. He hears you. I pray for you and all the young couples (with children) in this battle. I believe in miracles. ❤
@valarnone5747
Жыл бұрын
Shawn..what a great messenger you are! I am so glad and blessed to have read your thoughts and beliefs. Love and peace ❤✌to you. Val
@shadow03clb
Жыл бұрын
Of all the comments, yours hit me the hardest. I have a very advanced stage of multiple sclerosis. I am bedbound, cannot bathe myself, dress myself, feed myself. I am only 43 years old and I haven't been able to walk in about 7 years now. I have to rely on everyone to take care of me. I only have limited use of my left arm. Both my legs and my right arm are paralyzed. I keep wondering if God hears me when I get mad, frustrated , and I'm brokenhearted. I have caregivers doing their best, but I feel like such a burden, especially on my loved ones. I keep wondering what the purpose is, what my purpose is. I know I'm going to end up in a nursing home and it's going to be a rough rest of my life. I have a hard time breathing, a hard time swallowing. And I am a Christian, but I feel so far away from God. Thank you for your words. Thank you for reminding me that it's okay to cry to God.
@amyhenningsgard8618
Жыл бұрын
@@shadow03clb God bless you!❤️💐
@deirdrekiely6187
Жыл бұрын
How is God good to make people suffer so horribly?
@Jerseyboondocks
Жыл бұрын
@@deirdrekiely6187Yeah, I don't want to be a bummer, but how is that great or good? (to create humans and earth, only to watch them suffer) I was told growing up in a religious household that God knows everything ahead of time- so he must have known this was going to happen, but still created us anyway:/ again, I just don't see anything good or great with that, but other people will disagree and that's fine
@barbaraanderson3532
Жыл бұрын
This just wrecked me. I wanted so badly to reach out and hug you, Kyle. I pray everyday for Jenny and your beautiful little family. I will never stop.
@elizshultz6602
Жыл бұрын
I lost my husband to cancer a few years back. We had been together since we were 16 he passed 1 month before he turned 50. You need at sometime to step back and breath. Our doctor made Dr. appts. For me to just sit in his office and watch his fish in the dark. I could cry and ask God why? It is hard and she knows it. You are not alone but you need to also take care of you. The kids are helpful in keeping you going. You can be honest with them and let them know they are helping you as you are helping their mom. You let the kids know you will always be with them in their heart. Prayers for your whole family during this time.❤
@sheliafarmer
10 ай бұрын
I lost my only son at 10 year old from cancer, brain tumor, in 1993, seems like yesterday, you never get over it you just learn to deal with it, love life more, it's hard, hold on lean on Jesus and family friends. Enjoy her moment by moment one day she will be a precious memory
@jalinah7319
Жыл бұрын
As a retired RN and older person who has had family members with cancer, I can say with confidence that cancer sucks! Dealing with cancer, sucks! Watching your loved one deal with cancer, SUCKS! I do understand the push to be positive, but toxic positivity can be detrimental. Acknowledging your feelings of despair, fear, and fatigue is ok. Sometimes you have to buck up, I get that, but letting down your guard and being sad and scared does not make cancer worse....it manages to do that all on its own. Continue to reach out and support your lovely wife and precious kids as you already do, while honoring your grief, anger, and fear. All the feelings are valid and necessary. I wish the very best for all of you and although it is said to be bad to have hate in your heart, I have to say that I hate this wretched disease with all of my being. Bless you.
@sallyostling
Жыл бұрын
100% this!!
@mariabergstrom346
Жыл бұрын
Best advice ever, be sad, be mad, be happy.
@christinechristine3848
Жыл бұрын
❤❤❤ You're such a superman. Even Superman needs support. Hope you see your therapist every week & let your guard down even for 50 minutes. One day or minute at a time. ❤❤
@dianedavis3704
Жыл бұрын
100 percent agree with this advice.
@AussieWalkabout74
Жыл бұрын
IT’S OK TO NOT BE OK. Hold tight to Jesus. Hold tight to each other. Celebrate your love, even amidst the sorrow and trials. So many are praying with you 🙏
@sadieb7307
Жыл бұрын
Kyle : One hour at a time. Laugh and live like it is your last hour together!
@stephenrafter1980
Жыл бұрын
What a lovely husband you are. I said a prayer for you and your family. The treatment will work. God is good.
@alicegonyar8631
Жыл бұрын
I have never wanted to reach into my computer and hug someone so bad in my life! Sending love and prayers to you all! Nurse Nana in Vermont
@nancydrugan6137
Жыл бұрын
Kyle, I lost a very dear friend and Coworker to Stage 4 lung cancer last year. She lived 2 months after diagnosis, and I was crushed! You have been given some excellent advice by many caregivers and those in the medical field. I pray that you will follow the advice of asking for help in your daily care for Jenny. I'm sure City of Hope can put you in touch with good resources. You did a good thing by coming on to talk to us all and ask for help. You are an amazing husband and father, and both you and Jenny are in my prayers every day!
@DebraAlexander-br7io
11 ай бұрын
Being a Caregiver for a loved one, it's a 24/7 job! I lost a lot of weight and mind deteriorating experience! I took care of My Father for two years at home! Seeing him deteriorate before Your eyes! I have slept in a lazy boy chair in the living room for Over two years! Seeing Your Father who has always been there for me! Since his disease I have fell down the stairs and broke my neck, broken a vertebrae a in my back, and broken pelvis with no family to help out! So I did ask for Hospice before the last 2 weeks of his life! Hearing him fall out of His hospital bed in the middle of The night having to call EMS to. pick him up and place him back In bed! I was sleep deprived and Worrying constantly wishing I could a good day with day with. Dad! I promised my Dad I wouldn't put him in a Nursing Home and I NEVER did! He died In the hospital bed! I woke up that Sunday🤔😢knowing he was gone!❤❤❤❤❤❤❤
@joellbury2834
Жыл бұрын
I will pray for God to heal your wife he is the only answer she needs a miracle
@suelashomb2922
Жыл бұрын
I am also a caregiver and I know EXACTLY how you feel. People don’t realize the stress a caregiver is under!! God Bless, Kyle. 🙏🏻🙏🏻
@sweetangiegirl1
Жыл бұрын
You are so right. I was a caregiver for 14 years. My mom passed in 2016 and 7 years later, I'm still struggling. It's SUPER important to take care of yourself. I wish I had know this.
@nonnieharvey295
Жыл бұрын
I am a caregiver also! So many of us out here! My husband has thyroid cancer that is bmp in the last stages. I watch him struggle especially when he gets pneumonia every two weeks!
@Sandra-pm3it
Жыл бұрын
@@nonnieharvey295 🙏
@maviewavie2326
Жыл бұрын
Kyle, I am currently being treated for breast cancer. I asked my husband if on our wedding day we could have EVER imagined what we are going through now! I dare say we did not! You and Jenny got a real bad deal dealing with this so young. IT IS NOT FAIR. You need help. Perhaps the care team at City of Hope can guide you to any resources available. It is good you let this out. Sometimes the patient will resist help from outside, but you need to be honest if that happens. You and Jenny are in my prayers multiple times a day.
@mamarobyn
Жыл бұрын
You are a rockstar !! I watched an old video, the one where it was Jenny's dad's retirement and everyone went around saying what he had taught them. And she said about how her father had taught her what to look for in a man. I cried like a baby. And I was like, oh Jen you had no idea at that time what an amazing partner God sent you. Even though I don't think you guys have shared your love story with us, it's pretty apparent... Soulmates ❤
@nancederholm6341
Жыл бұрын
As hospice rn our dr stated try to manage just 20 minutes at at time. You are living her cancer journey on your shoulder. I would reach out to the grief counselor for her and you. I would meet with him separately when my partner was dying. You are amazing
@tauck1612
Жыл бұрын
We had to give up control of all medical care to the hospice nurse so we could enjoy my dad and not his cancer needs. It's not easy for anyone in this situation questioning your own decisions. Sending prayers
@ralex3697
Жыл бұрын
Good decision
@mitsusales1276
Жыл бұрын
Dearest Kyle, you can look into getting a HHA to assist you. They work 4 to 8 hrs a day. They can look after Jenny so you can have time during the day for other activities. It would give you time for the children and yourself. Your an amazing person. I can tell you there is so much power in prayer, a delay is never a denial. I will continue to pray for Jenny, I’ll ask Jesus Christ to give you continued strength to persevere. Remember the 2 footprints in the sand. Your not alone. In the midst of the struggles you will see a break through. This I can promise you. I’m living proof that God honors prayers. Don’t stop believing.
@sherriveazey3795
Жыл бұрын
I watched my husband go from a strong Military man in 6 months down to oxygen and wheelchair. I was his caregiver till he passed this past February we were together 28 yrs. Married 27. I cried only in the shower I was tired and scared. But I did not let anyone see it. I am a nurse and I have seen many go it’s not easy. But to loose your soulmate is completely different. Depend on friends and family to help you. Spend movie nights with her and the kids. Make videos for you and the kids to remember the fun times in her end of times. I saw prayers for you and your family.
@DJ-nk4dq
Жыл бұрын
I lost my daughter to glioblastoma, brain cancer, in a very sudden and traumatic way. Think about quality vs quantity of time. Accept palliative and hospice care and focus on loving your wife and children, and yourself, in these last moments. Much love and strength to the whole family.
@bethcallis9801
Жыл бұрын
Kyle, I lost my oldest son to colon cancer in 2015 after a three year two months battle. It is so hard to take care of someone that is so sick and endure constant bad news. Many prayed for him and our family. I know that those prayers and my faith in God is what kept me strong and without it I couldn't have made it. As others have suggested ask for help, prayer, or anything you need when you need or want it. I know I felt at one time if I asked for help that somehow I was letting my son down but in reality it was a relief for him as he worried about us.He never shared this worry with me or my husband but he did share it with his brother and my husband's sister. I had very dark days and felt so helpless when he continually got worse. When I reflect on this time in my life I'm sure I made it with Gods's help and all of those prayers. My pastor gave me some very good advice and I followed that advice as much as humanly possible. He said to sleep when it's time to sleep, eat when it's time to eat, and most importantly don't ask why. You can't take care of Jenny if you don't take care of yourself mentally and/or physically. Continued prayers for you, Jenny, and your family. 🙏❤
@elainehockley1440
Жыл бұрын
I met my best friend late in life. I never imagined I would have this kind of love as a middle aged woman with teenaged boys. We had 21 years together and each day was a joy. Pancreatic cancer was his diagnosis and his choices were different than yours because he was at a different stage in his life. He chose no treatment or chemo. We lived each day as if it was our last. He got 9 months because I am a nurse and could modify diet and do dressings etc. he chose to have nephrostomy tubes and had a gallbladder drain so we lived a constant whirlwind of doctors and hospital visits. He too had to have several blood transfusions. My story has to do with my grandsons grief after his beloved grandpa died because at 6 he wanted to help. I remember he was quite frantic one day because he wanted to help me stop crying and didn’t know how to “Help”. I explained to him that my heart was just so full of sadness and the only way I could get some of the sadness out was to cry it out. Once I cried all the sadness out it would leave a little room for happiness. All he could do was wait for me to cry and then come and give me a hug so I could fill my heart with some happiness and love again. He has never forgotten that and now at 15 he will still do that for me as well as his younger siblings. Your kids will want to help.
@kathryn2483
Жыл бұрын
My heart broke to hear about your grandson's experience.❤
@rebeccak-d5748
Жыл бұрын
It is amazing that you are here asking for help and you have just helped so many people with your words, honesty, insight, kindness and unconditional love. I am a 20+ year Inflammatory Breast Cancer survivor…I only had an 18% chance…and here I am. I will put my energy, positive thoughts and love directed straight to you and your whole family.
@talatuyohanna6469
Жыл бұрын
Thank God for your life, pls are you now on any special diet?
@carmenirizarry7632
Жыл бұрын
Remember the kids are resilient. They know and understand more than you think. Take care of yourself and your kids. Your wife is being taken care of. Who’s taking care of you?
@aliciasapp1156
Жыл бұрын
Kyle, I usually don’t comment, but I feel led to pour into you so that you can continue to pour into your precious family. I am a Registered Nurse, and I have had the pleasure of caring for oncology patients. I’ve seen the journey, and there is no other way to say that it is tough to watch. And I’m sure it is equally as tough to go through this with a loved one. It has been a privilege to watch your family’s journey. I admire the strength you have shown as a caregiver, husband and daddy to those precious babies of yours. I’m not sure what your beliefs are, but after watching I believe that you all serve the same God as I do. One thing I can tell you is that God’s timing is always perfect. He has designed our lives so intricately and his word says that he knew us before we were formed in our mother’s wounds. I think we can all say that this life is tough , really tough, and at times it feels like we can’t go on another day. Remember that God strengthens us by allowing us to face challenging times. What we go through in this life is not always for us. We go through trials so that when it’s all said and done God will get all the glory, which will in turn lead others to him. Continue to be that strength for your family and know that God’s grace is sufficient, and he will give you exactly what you need to make it through this difficult time. Continue therapy and make it a point to take time for yourself so that you can continue to pour into your family. I will continue to keep you and your family in my prayers. The Bible says “Remain steadfast in well doing, for In due season we will reap if we faint not.” Hang in there Kyle, you got this!
@Truth1561
Жыл бұрын
Sometimes you have to look back at God's faithfulness in order to move forward. Remember how God brought you through before, and trust that He will do it again. You have all our prayers, you are doing a great job Kyle. As a two-time survivor of cancer I can say that I wish I had been supported by someone like you. Jenny is very lucky to have you- but you are very lucky to have each other . Love and prayers 🙏x
@dianaorcutt2442
Жыл бұрын
I was my husbands only care giver while he fought his battle against cancer. We also had a seven year old son, I know the struggle of being spread to thin and not being able to give each person what I thought they needed. All while depleating myself to the point of exhaustion. If i could give you any advice it would be to ask for help from family and friends to help with housework, yardwork, meal prep. Laundry. Maybe to watch Jenny while you take the kids out, trust me you will be glad you did. Just breathe and pray, pray as a family. It helps. It is a hard journey you both are on. Cancer sucks! Keeping you all in my prayers!
@HannibalTLC
Жыл бұрын
Sound advice here. It is essential to ask for help from family, friends…this group. Is it possible to ask family to help with laundry, yard work, cleaning, or for family to schedule quality time with Jenny and/or the kids so that you can step away for a few hours. Knowing you have an hour or even a few minutes to take care of yourself can help you through the tough times. It is natural to want to spend every minute with Jenny but also important that you can recharge so that you can be 100% present when you are there. I also hear you saying that this isn’t the way it was supposed to be. And you are right. It’s hard and can feel so very unfair, and grieving the loss of what you imagined for your future is normal. It’s OK to feel like you aren’t OK. Sending love. ❤
@lynngauthier8994
Жыл бұрын
Kyle, Cancer took my son 15 months ago at 47. I understand how helpless and hurt you are feeling. You are very strong and that's what we have to be. Make her days as bright with memories as you can. Keep her mind active with the children. My situation being mother and son is different but the Cancer is the same. My son was gone 2months after diagnosis.i am currently being torn apart. We had no time, so make your time with her as special as you can. Please Kyle also take care of yourself and release your feelings. Please reach out for help..love Lynn from Massachusetts
@donbarbaraphillipson6285
Жыл бұрын
As a former Hospice nurse, now is the time to bring in those resources. It can make a huge difference.😔
@iSheree
Жыл бұрын
I have cancer and I have to remind my partner that it is out of his control. We need to live in the present moment and right now we are breathing so we are OK. You are not responsible for any of this, just be there for Jenny and thats all you need to do. If it all becomes too much, then maybe consider some outside help like hospice. It's not giving up, people can come off hospice if they don't need it anymore. Whatever you decide is going to be the right decision for you, Jenny and your family. Thinking of you guys!! (Edit: BTW keep doing these talking videos, it may be therapeutic for you and may help others.)
@Catfluff521
Жыл бұрын
She would have to stop treatment to go on hospice and if she does that, there will be no coming off of hospice for her. They are not at that point at the present time.
@iSheree
Жыл бұрын
@@Catfluff521 oh I did not know that. In my country we can still have treatments to stop the growth or shrink the cancer while on palliative care/hospice.
@Rnjeepshoelver
Жыл бұрын
Kyle , I am also an RN ( oncology lots of years ) Michelle the palliative care RN has given great advice . The cancer road never seems straight or clear so many twists and turns … you are asking for advise but from my view , you are doing everything exactly correct… you prioritize your beautiful wife and children , you have had the ‘serious’ talks , and you are making memories as a family . You are a loving husband and father , I am sorry that you may not achieve your rocking chair visions , it is cruel and sad. I am happy that you have a therapist , and of course we are all here to listen . As RN Michelle advised , schedules are important and enlisting help now ..no one is meant to go it alone .. creating memories like you are doing , maybe having Jenny make more cards that can be opened in the future , even wrapping future gifts have helped some patients .. if I lived near you , I would be glad to assist , but I don’t ! You and Jenny are right to be shocked , so young for lung cancer stage 4 , no wonder you got a caregiver award … some of the spouses I have dealt with in the oncology world 🤦♀️, but that’s an entirely different subject … You may not believe it , but I think you are doing the BEST job , thrown into a situation that you know nothing about , how frightening ! You and Jenny are the sweetest couple and such great parents . Hugs, prayers to all of you ❤ ..
@francinegoodson9676
Жыл бұрын
"i just needed to.. talk with you guys a little bit...It's good for my mental health." Amen! We applaud you. Kyle, your being so open an vulnerable and asking for help is a gift to us all. Thank you for showing us how to let pride go and reach out with an open and hurting heart. You are heard. You are being held. Just as you are holding your beloved, Jenny.
@pamelcakes04
Жыл бұрын
Cancer took my mom at 41. My grandmother had 9 cancers. We have whats called Lynch syndrome. We have a predisposition to many cancers. Its scary and you feel like a ticking time bomb. But you keep trying without the brave face. You feel these feelings and the doubts but you can't succumb to that. Hope is resilient and you are an amazing husband. I am pulling for you all. Praying for you all.
@Sandra-pm3it
Жыл бұрын
Kyle, my heart goes out to you and your precious family. I have you all in my prayers constantly. Cancer is awful. I am watching my husband battle this too. It is heartbreaking. He is starting palliative care next week. His cancer is under control with the immunotherapy but he is a shell of the man he was. We have been together 49 years, married 44. Our kids are grown. This was supposed to be our golden years, watching the grandchildren grow up. This isnt fair to anyone. Sometimes I break down and think I cant go on but he needs me. I cant imagine life without him. I am scared. I know you are too. All we can do is love them and care for them. You couldnt be a more loving and supportive husband and daddy. Just know you arent alone. You are surrounded with love and prayers from people all over the world. ❤❤❤❤🙏🙏🙏🙏❤❤❤❤ Much love and prayers for the four of you always.
@Sandra-pm3it
Жыл бұрын
@@Meowch-vq2xq I am so sorry you are both going through this. My husband has Squamous Cell Head and Neck. He will never be cured as it always comes back. His treatment was very aggressive and included immuno therapy, which he will be on for the rest of his life or until it stops working. Then we go to plan B. cancer is so horrible. As I sit in the waiting room while he gets his infusions I look around and pray for each cancer patient and their weary caregivers. I pray GOD heals them and give the caregivers strength to take care of them. There are SO many. All ages. It’s heartbreaking. You and your husband are in my prayers. Take care. ❤
@paperandtwine
Жыл бұрын
You don’t have to be ok with it, Kyle, it is ok to scream and shout and cry and kick and bite. You are an amazing family, please know there are thousands of people with you and you are doing an incredible job supporting Jenny and your kids. I have had cancer twice and know it was harder for my family than it was for me. Sending huge hugs from the UK 🇬🇧
@vanessahinds8320
Жыл бұрын
Exactly what I was going to say!!!
@dona4him942
Жыл бұрын
Crying is ok. But scream, shout, kick and bite?! The cops might be over for that. They have 2 little ones, so be careful what you recommend 😅
@paperandtwine
Жыл бұрын
@@dona4him942 😱 I did write the comment very late at night, didn’t mean to cause offence
@LauraPerez-es8jr
Жыл бұрын
I barely coment on youtube video but this time i have to say I'm in awe at how much strength and love you have shown, dont forget to take care of yourself.
@mindyyoutue
Жыл бұрын
Also a Registered Nurse here. I've been able to tell for a while that you are really struggling. This is something you've heard too many times.......Life Is So Unfair. I wish I were close enough to help all of you. My best advice is to take any help that is offered. Lawn, groceries, laundry, car washes, oil changes, housework, anything that is offered - accept. If a trusted friend or relative wants to take the kids to a movie, ice skating, the zoo, let them go. It'll give you time alone with Jenny, and give the kids a break. Take up the offer to connect with the Pog Family husband. Nobody can relate as much as he could. Although I'm a surgery nurse, I have previous oncology & general surgeon office background, and I agree you are at a fork in the road. Only time will tell the future, but a direction is coming sooner than later. Nobody could compare to the awesome job you are doing. Reach out, seek & accept help. Enjoy every day as best as you can.
@virginiadavis2933
Жыл бұрын
Kyle, I know you have had so much on you. You are doing everything you can for Jenny. Maybe it is time to asked the City of Hope for help from Hospice. It by no means says it is the end but it will give you the chance to get away and clear your head. You have a good family that helps with the children. Kyle, you need someone to talk to other than your counselor. And it is ok to get away and get mad and cry we have had prayers for you also
@memyself7956
Жыл бұрын
As someone who has been bedridden since February & on oxygen 24/7 for the last two years, the ONLY thing that has gotten me through this is prayer. Having hope in better days. I lean on God's word. His promises. If I didn't have my faith in HIM, I don't know where I would be. I'm a single parent of a 4 & 5 yr old & my 5 yo is autistic. My biggest fear in life is the thought of them growing up without me. I don't know how anyone would be able to love them as much as I do. And it makes me really sad. You are doing everything you should be doing, Kyle. You are an amazing husband & father. Ask God to guide you. To search your heart. He will let you know what Jenny needs & what YOU need. So, make sure you take care of you. Sending loving energy your way.
@cindybarger964
Жыл бұрын
I went down that road 36 yrs ago. Be honest with each other. Don't know ages of children, but a video letting each child know how special they are, how loved they are. Mention fun, silly things done together. It's a tough road. Talk to kids, ask how they're doing. Be honest with them about your feelings. It's difficult and you focus on children. Prayers for you and family
@sheilabundren2037
Жыл бұрын
It is overwhelming. I totally understand. My mom survived breast and lung cancer, diagnosed with MS at the same time. Took 11 yrs that MS slowly took her. You will never regret taking care of her. I was fortunate I could work from home at her house to be there with her 24/7. I'm so lost without her. She passed away in December and I was holding her hand. I feel your pain. Get a lightweight transporter chair. Very small wheelchair from Walgreens. Praying for you.
@lc991
Жыл бұрын
Kyle. I give you credit for being such a rock for Jenny and the kids. There is another channel, POG Family, that is going through a really rough time right now. Sarah, the mom, has a really aggressive form of cancer that unfortunately has spread to her brain and her husband Josh has had to make some really hard decisions and like you has been by her side throughout this long battle. He posts regularly about the struggles, good and bad, and what it’s like watching your spouse suffer. Unfortunately there is nothing the doctors can do for Sarah because her cancer is so aggressive. They have young kids as well and I bring this up not to compare situations or anything but so that maybe you could reach out to him and you could both support each other during these hard times. Sarah like Jenny is a kind soul and no one should have to deal with this in their lifetime. I see there are many helpful comments posted by caregivers but having another male/husband with young kids like yourself to talk to may be beneficial for both of you really. Your family is in my prayers and I admire you for asking for help. Stay strong!
@elintilia2790
Жыл бұрын
I remember Sarah posting on her own space to encourage viewers to support Jenny. Weird to think that back then I thought Sarah had a less aggressive version of the disease because she seemed to be doing relatively well. Goes to show once again how unpredictable this monster is
@jensheedy
Жыл бұрын
Yes! I agree Josh and Kyle might find themselves in a sacred friendship if they got connected.
@missmariemorales
Жыл бұрын
On so shocked at how fast and aggressive Sarah cancer has progressed. It's simply devastating and a reality of how fragile life can be
@2ndChanceCrafting
Жыл бұрын
This was my thought also - reach out to other husbands/parents/caregiver that is going through it also. He is so kind and so loving, like you and their kids are young also, one is 3 years old. I am also a big believer in living in the moment. Josh was just talking about how he was stressing out because of what might happen in future and said he realized being in the moment is where he needs to be right now. You are amazing and know that you are. Prayers are daily for you and your family.
@lonsangel
Жыл бұрын
I thought of Josh immediately. Kyle & Josh have been such wonderful husbands through this whole ordeal. I am so glad Sarah and Jenny have such kind husbands that love them so much.
@jigglytofu5267
Жыл бұрын
hey man, im just a random kid who is currently following along your and jenny's cancer journey. i may not personally relate or understand the pain your family is suffering, all i can tell you guys is, even though times are hard and all you want to do is tell yourself to remain positive, sometimes it is better to feel your feelings, like you've said. remaining positive is helpful in pushing everyone forward, but sometimes when all you want to do is feel down, you need to really sit in your feelings to release them because constant positivity will bottle up your negative emotions. cry it out, scream, whatever heals you. positivity is good, but it can become more of a distraction to push away the necessary feelings that you need to process. now, im not saying to stop being positive, but i am saying to keep a balance. i agree, this is unfair and rough, and you all don't deserve any of this. i'm not really sure what advice to give, but to look our for your mental wellbeing. i'm glad the kids are helping your mental health tho :) and i wish you and jenny and your kids good luck in fighting this evil disease.
@KY-jb4vd
Жыл бұрын
Agree and you are very wise for a kid!
@retiredcatlady
Жыл бұрын
I was a Hospice director for 10 yrs. You must carve time for YOU.
@emmaramos615
Жыл бұрын
Have the 4 of you in my Prayers every day. 🙏🙏🙏
@colettesutter2261
Жыл бұрын
Kyle, I am not a nurse but I am a caretaker and I am a person who has been by the side of my mother, father, 3 sisters, and 1 brother, best friends young and old through cancer's journey. My heart is with you and your family💞 It is so hard to stay focused on the patient sometimes when our hearts are breaking but I believe with all my being that God has a plan for you and your family and while I know first hand how hard it is to trust, to have faith, to and to put your heart in the "hands of God" but it really does help. I'm not a Bible thumper but I do believe in God and I know when I give my burdens over, I am SO much better able to move forward. Kyle, as much as you want to fulfill the needs of Jen and the kids, you must take care of yourself, as well. It's so very important for you to clear your head, take a few hours away to meditate, to be still and to regain some of your own sanity. Heavily lean on family and friends who offer to come and help. They are offering help to help themselves cope. There is no sense in bearing all the pain and frustration alone when you have these other people to help you. Let them help. I wish I lived closer than 3000 miles away, I would help in the drop of a hat. I'm so sad for you all but especially you as the main caretaker. You and Jen are so lucky to have each other. You have been such a saving grace to Jen and I know through the videos how much you love each other. You are both warriors! Love and prayers to you all from Parma, Ohio.❤
@brendabolin7178
Жыл бұрын
I'm so glad that Josh reached out to you. He understands what you are going through with his wife Sarah. Reach back out to him. 🙏❤️🙏 prayers for you both
@Msfifisquarepantz
Жыл бұрын
That is true. In the US, You can enter hospice care if you qualify with a 6 month or less prognosis and you can leave hospice level of care and go back to regular treatment at any time. I just wanted to answer that question.
@Msfifisquarepantz
10 ай бұрын
Hospice is an incredible resource. Even just to get some systems in place. Lots of people go in and out of hospice care. There are no set times you can use hospice. Please. Think about it . There is no risk.
@donnafowler7848
11 ай бұрын
My husband has been fighting cancer for 22 years he was given a 5 percent chance of living 5 years we have fought this cancer half of our marriage it is hard never give up I have been where you are what helped me was knowing somewhere somebody was worse than my husband he can get up drive watched his kids grow up some people don't get to do that never give up
@ga6589
Жыл бұрын
Hello, Kyle! I'm a senior citizen caring for my husband who is stage 4 and cannot fathom going through this when we were a young couple with small children. The only thing I can think of that comes close to it is water-boarding, the relentless struggle for air, brief relief, and then right back into it. Seeing a therapist is great, but I would also suggest a cancer support group where you can connect with people face-to-face who are going through similar struggles. (At my age, a good share of my close friends are caregivers, so we lean on each other!) Palliative care could be an option for Jenny. Unlike hospice, you can still continue with curative-type treatments. They can help relieve some of the caregiving load for you- organize medications, provide pain relief and comfort, as well as help with diet and meal prep. I won't tell you to hang in there, because I know you will. Just remember that it's okay for your kids to see you vulnerable and sad sometimes, as these are entirely normal human emotions and reactions to overwhelming circumstances. Know that you have a whole team of KZitem family sending you and your family all the positive energy and prayers we can muster!
@Teddypup08
Жыл бұрын
YES! Ask about palliative care help- don't need to go straight to hospice, but can help with caregiver being overwhelmed. Sending love and hugs.
@heathersiegler6837
Жыл бұрын
Hi Kyle. I was the caregiver to my husband from the day he was diagnosed with terminal cancer from day 1 from Soft Tissue Sarcoma, high grade MPNST. 1% of all the sarcomas. At that time there were limited options but he tried them all. Our children were in 5th and 6th grade. It changed our entire world as cancer does. We had to be gone long periods of time so he could be treated at Massachusetts General where they specialize in Sarcomas. I took it on all by myself until hospice nurses came in at the end to help. I made the mistake of not accepting the help from friends and family. I never took "a break". If he couldn't, then I couldn't. I don't suggest that. There is nothing more you can do than what you're doing. Be there, listen, cry with her. Allow her to speak all the hard things she has to tell you. I also made the mistake of thinking i would be prepared for the end. I wasn't. You cannot be. My children were my saving grace as was my faith because I thought I could just not live without him. We started dating at 18 and I lost him at 49. My whole life as I knew it was over. For me one of the most difficult things was stopping talking about our future, our plans for growing old. Those conversations stopped because even though we had time we knew that would end when treatments ran out. I know you probably don't want to hear this but I wish I had been informed of what hospice really looks like. I honored his wishes to die in our bed. But I was not prepared for what the end really required of me. After he died I read a book about it and realized there was so much helpful information I wish i had been told. Simple things I could have done or not done to keep him feeling safe and as comfortable as possible. I did my besr but i could have done better. I can't recall the name of the book and I gave it to my sister in law when she was caring for my mother in law. I do suggest you get it. The tips would have been so so helpful. My heart breaks for you and I pray you get a miracle. But as a realist it's better to be prepared. You are doing a wonderful job. Besides the one going thru cancer the caregiver has the most painful job. I pray for you Kyle. I'm so sorry this cancer invaded your life. I'm praying for your family every night. God bless you. Hang on to your faith.
@carolynhill7726
Жыл бұрын
My Mom had cancer when I was 9. My stepmother had cancer when I was 15 and I took care of my Dad as an adult for 3 years when he had Alzheimer’s as a caregiver. What helped me was talking it out and taking regular time for myself as a caregiver. A book called, “Writing through the Darkness” by Elizabeth Maynard Schaefer was hugely helpful in processing my feelings as well. Talking it out and not denying your feelings is one of the best things you can do. You are a wonderful husband and father.
@lindapulizzi6494
Жыл бұрын
Kyle, I have had all my family members have had Cancer. I have not. But have been a caregiver for all of them. So many dark days. You both need to go to God. I survived it it all only knowing God was walking right beside me. You both may not get the answers you want, but God will get you through the dark days. You have so many strings on your heart, with your little ones. But their love will give you strength. Please don't forget God, he is in control and with you both. Prayers are being said for all of your family. GOD BLESS!
@juliasmith5646
Жыл бұрын
Hello Kyle. I was the caregiver for both of my parents and, while I am not in the medical field, I learned from their guidance that Hospice care is NOT just for end-of-life care. You get a referral from Jenny’s Oncologist and they will advise you which Hospice Services are right for Jenny. You make an appointment with them and an RN should come to your home and do a full assessment to determine all the services that you and Jenny can benefit from. Bathing, arranging medicine monitoring and equipment, taking vitals, regular assessments that help you know you’re doing all the right things, and a schedule that accommodates you and Jenny. They also offer Respite Care for you, Kyle and as the RN advised, it is important for you to take care of yourself. Hospice , to many, sounds like giving up and that is NOT at all what you are doing. It is a resource to help you manage your journey with assistance. I had them for 7 months with my Dad, who passed away from Lung Cancer. I pray for you and Jenny and your children and families daily. Much love to you all. ❤
@susancrounse7030
Жыл бұрын
I think that you should have care for Jenny and some of the errands inside the house along with outside up keep,give yourself some grace from being a superhero continue w your therapy and maybe go to the gym have a steam room to unwind yourself relax cry scream what ever while in the steam room it will pick you up so you can be there w Jenny and kids without stressed tight muscles,one hour a day for you is not too much for you to have to yourself and if you have hospice there anything Jenny needs or the kids will be met ! Make sure all documents are in order anything that needs to be signed are done know what Jenny wants when the time comes do it today don’t wait til tomorrow where when what who if you have insurance be sure to know exactly what folder you need to grab it and call ,I realize you are both believing positive ,that is important but knowing what each of you want at the time you die is very important,what happens to the children if both you and Jenny are gone ,these are important even for couples to do that don’t have a fatal illness my prayers are with you ,I’m about to start my journey w lung cancer 3b squamous invasive left lung airway to lung tumor blocking use of that lung and lymph nodes of my chest ,I don’t know how to post it for utube but I will doc it anyway prayers for me as well 🙏🙏✝️🇺🇸❤️
@ourcorrectopinions6824
Жыл бұрын
Dearest Kyle... you're pedalling furiously just to stay afloat, and you know something has to change. Whilst you're one of the greatest caregivers I've ever witnessed remotely, you *do* need real, tangible help in the form of respite care or palliative care that will come to your home and take many tasks off your plate. It will make life less dark despite how frightening it can sound. Please have a serious discussion with the oncology team -- on your own -- asking what they would do in this stage and under your circumstances, to allow you both to breathe, have the ability to enjoy your moments together and live fully as possible with the kids. I'm not sure about the U.S. rules of hospice care, but here, you can enter and leave if and when you're no longer needing their services; hospice doesn't mean you're giving up, but it provides much-needed relief and, if Jenny's ineligible due to pursuing more treatment, at least give palliative care a go. You can always stop if you want to, but it will only make your lives easier. The hardest part is mentally accepting that you need it (and having Jenny accept it as well); this is where a COH social worker or palliative care nurse can explain what it means - that's it's not about "quitting" or "accepting the worst"; on the contrary, it's most likely the exact help you need. You need to be safe in your own skin to be there for your family. If the powers that be (fate, god, luck) won't cut you a break, you have to take charge of making that happen. I believe in you, Kyle, that you can do it. Your way with words, your sensitivity and amiability, all prime you to have these conversations about in-home care with Jenny and not feel guilty or "negative" for doing so. My heart goes out to you and I wouldn't give such specific advice unless I were absolutely certain it was the right thing at this point. Sending love to all your family. 🍏
@beverlyt.5526
Жыл бұрын
In the US to be on Hospice you have to be told you have 6 months or less to live and not receiving life saving treatments.
@Msfifisquarepantz
Жыл бұрын
This is the best most thorough synopsis of hospice and palliative care I’ve read. Excellent! Really important information.
@Michelemybelle1986
Жыл бұрын
My dad was on hospice. They said the same its not giving up. We can get on and off. He was in multisystem organ failure so he didnt come back off 😢
@ninastine7609
Жыл бұрын
Agree with hospice or palliative care. Had it with both inlaws and it took so much off me. They would set 7p med boxes get the durable medical treatment set up helped with pain meds and shower bath twice a week. I'm sure I forgot something and you can be admitted to the hospital on hospice and go 9ff and in I'd you wish. Prayers for your lovely family. Cancer is a family disease and you also need rest qnd time esp for your kiddos. Love from Missouri
@valerienelson3296
Жыл бұрын
Amazing Advice, couldn't have said it better 👏 I can see this has touched so many hearts that have opened to share their stories. We grew so fond of our caregivers and because the caregiver was not family my loved one was able to open up with her caregiver with things that he couldn't talk to me about, probably for fear of scaring me. If things head in that direction many care givers are trained in answering question and relieving ones fears about leaving this earth. Also if their is something Jenny wants from you, she won't feel that your already so overwhelmed with everything else, she is hesitant to ask. It may actually bring her relief not to see you so tired and she will worry less, that's a gift in itself. It was also nice for me to have the caretaker to calm Me when my fears started to show, bounce things off of and feel supported myself.
@gailcerelli2224
Жыл бұрын
Kyle, If haven't done so already, look into palliative care. It is my understanding that this can come befire hospice. With palliative care you can continue treatments, can go to the hospital, receive mrdication, etc. Most of these things cannot be done once you are in hospice care. Hope this helps. Praying for your family and for peace and strength for all of you.
@Catfluff521
Жыл бұрын
Also, good to know that people can sign out of hospice and back in as circumstances may require.
@athomewithdonna9880
Жыл бұрын
I am so sorry that this has happened to your wife and to you the husband and children and family. I have been sick for a long time and my husband takes care of so much for me. Give yourself grace as the giver and try to enjoy the little moments with her and rest yourself. Watch a movie to get your mind off of all you are going through. Get take out and have a bed picnic. Do a art contest. Have her draw you a picture and you the same picture to place in an frame or album for later. Have the kids and you make ice cream sundae bar. Paint your wife's fingernails.give each other facials. Just small bonding moments you will cherish and enjoy. Write down 5 things you love about her and have her write 5 things she loves about you. Do handprint art. I pray for God's peace for you and your wife. I will be praying for you all. Always remember God has your whole family in his hands.
@ilb735
Жыл бұрын
Our precious creation are so often the best medicine / teachers ! Bless you all again 💞💝💞🥰💞👊💞
Пікірлер: 6 М.