She's trying to hide in the corner bless her it breaks my heart for this young child. She is the light of this world
@tinahauser8864
10 ай бұрын
I loved how her lucky arm was going to the beat of the toy Chris was using. She has good rhythm ❤
@Freyasluckyarm
10 ай бұрын
She does! It was so cute
@jennifergragg1850
9 ай бұрын
I loved that too! 💜💜
@marydiaz6205
10 ай бұрын
Hi Marcy. I have had Freya on my mind since you shared that Freya has seizure activity. One of my children started having seizures years ago. I got sick over it, I developed a nervous stomach, couldn't eat or sleep until we found out what was the cause. In our case it was a mix of thyroid and low blood sugar that were part of the problem. Doctor prescribed phenol barbital for the seizures and appropriate meds for the thyroid and lbs diagnosis. I can certainly empathize when I see your tears and sadness! There will be a solution Marcy. Chris and you are a team and you support each other through all the unknowns of Freya's syndrome. We only have life one moment at a time, don't foresee, or think about negative outcomes. I love how you always pace yourself and do live one day at a time. Celebrating Freya's life after the ECC is wise! My thoughts and prayers are always with all of your family. Hang in there things will be alright❤️❤️❤️❤️❤️🌹🌹🌹🌹🌹🌹
@Freyasluckyarm
10 ай бұрын
Thank you so much. Seizures are so scary but we will get through this. Just like we have done every day before.
@marydiaz6205
10 ай бұрын
I was so concerned about the seizures and how worrisome they can be that I forgot to wish sweet sweet Freya's a Happy Birthday! Watching the video was so neat. Freya was happy as were her siblings family and friends. Hugs and well wishes to Freya and her worried beautiful mom❤️🌹❤️🌹❤️🌹and of course Chris and siblings ❤️❤️❤️❤️
@carriejames5038
2 ай бұрын
I have three types of seizures and half of my brain is abnormal. And to this day my Drs and specialists are still unsure what's causing them or the abnormal for the half of my brain
@beckylongoni4881
10 ай бұрын
Chris has a soothing voice. He sounds like Mr. Rogers😊
@Freyasluckyarm
10 ай бұрын
😂 I will tell him. He is definitely a calming force in the house
@juliawhite9977
10 ай бұрын
It was nice to see Chris and Freya playing. You are doing a great job Marci. I hope you all have a great birthday with Freya and she enjoys some cake 🎂
@Freyasluckyarm
10 ай бұрын
They have such a special relationship
@ThewaughCW
10 ай бұрын
Hang in there Marcie, Chris, Freya and family. God is with you all.
@paulined4190
10 ай бұрын
Such a beautiful comment.. you are a caring soul ❤❤❤
@ThewaughCW
10 ай бұрын
@@paulined4190 aww thank you so much. I have cerebral palsy, scoliosis and a bunch of medical diagnoses so I know how hard it is to deal with some medical issues and how sometimes you just want a break from them. 💕💕💕🙏🙏🙏
@flossyflue4305
10 ай бұрын
She’s smart, so determined to fit through the small gap, plus her tempo to the music with both arms. I feel that she understands most of what you say. I love watching her! Mainly because I love children but watching Freya with all of her challenges makes my life challenges barely nothing if I were to compare!
@carriejames5038
2 ай бұрын
She is very very determined that's for sure . Trying to figure stuff out etc etc
@colleenford5398
10 ай бұрын
Really liked the video with Chris keeping Freya awake...and watching her figure out the chair and the doorway! He said he didn't know what to do? BAH! LOL! Watching you tear up Marci...ugh! As I said in my last comment: we are collectively hugging you and just letting you cry your heart out if you need to. Thank you sooo much for bringing us along for the EEG. Please let Chris know what great job he did...anytime I can watch Freya figure out stuff is just awesome! She's a smart lil girl Momma! I know I don't have to tell you that! Much love to all! ❤❤❤❤❤❤😊😊😊😊😊😊
@flossyflue4305
10 ай бұрын
I agree with viewers Chris was great keeping Freya awake, going outside great ideas all round. Love to you all I sincerely hope all is well! X
@toyamack9290
10 ай бұрын
Mommy you had me tearing with you😢but I can see that Freya definitely is a trooper! Surrounded by so much Love and Support I wouldn't imagine her any other way🙌
@Danielleb723
10 ай бұрын
Freya is probably like mom and dad are loosing their minds keeping me awake. She is a cutie pie.
@tracyfinch918
10 ай бұрын
Cheeky bugger made it past the door blocker!! 😂❤I love Freya's laugh!💕💯
@patriciaharkin1571
10 ай бұрын
I can sense your sadness Marci so I'm sending you BIG HUGS. Freya did so good for her EEG and watching her with her dad was priceless. Chris is saying "you can't get out there" and I'm thinking, "just watch this determined little lady get out there" 😂😂 but he did a great job of keeping her awake and she was so happy to be outdoors playing with the rocks. 🥰🥰
@donnahart823
10 ай бұрын
Happy Birthday Princess, we all love you❤️ Marci, sending big hugs to you.
@GeeBeeSchreiner
10 ай бұрын
I just read part of an article that referenced Utah as one of the states which will pay parents who care for a child with special needs. The article was by Kamer Power. Read over the this article & those around it. You might find some support!! I hope so.😊
@Freyasluckyarm
10 ай бұрын
They do it is about $100 a month. And you have to be off a long waitlist in order to get that service
@debrawake1023
10 ай бұрын
Bless you momma! Be sure to take care of yourself too! ❤
@bettydanico2959
10 ай бұрын
Your husband is a good playmate. He sounds like Mr Rogers😍
@Freyasluckyarm
10 ай бұрын
You are the second person to say this 😂
@antjeneumann17
9 ай бұрын
Oh, I love Freyas smiles! So cute...❤
@tracyfinch918
10 ай бұрын
I love the Little People Train!😂❤ My sisters and I grew up with the original sets.
@beckylindvall5801
10 ай бұрын
She was so determined to get past that chair. She’s hilarious. I loved her keeping the best as Chris hit the head of the Little People figure. Freya you are so loved and so cared for. Have a great birthday.
@susancohen3398
10 ай бұрын
I hope all Freya‘s test come out great. I love her smile when I am down and depressed I look for your videos and I wait for her smile and her giggles. It was so so precious. I’m so glad you’re videotaping them. Can’t wait to see her birthday video, wish you many many many more birthdays to come. God bless you all bye for now.
@betsybabf748
10 ай бұрын
Glad she did well for the EEG.
@Angela-zp2gy
10 ай бұрын
Shes so good letting the techs put stuff in her hair. Good girl! Lets pray she is fine❤❤❤❤ Happy Birthday Freya!
@Freyasluckyarm
10 ай бұрын
She did amazing
@lisarigging1722
10 ай бұрын
Hope everything goes well with her EEG, she is so precious.
@priscillasaravia
10 ай бұрын
Happy birthday Tomorrow sweet girl! You are celebrated every day! You are so precious and strong, and will get through this🤍🌸🦢
@DevonLass
10 ай бұрын
Aaaaawwwww Marcie… big hugs from England 🥹🥹❤️🏴
@annedugan7618
10 ай бұрын
Wow! I'm impressed, Freya, you really figured out how to engineer your way through the obstacle your daddy constructed! 😮🥰
@Freyasluckyarm
10 ай бұрын
She is determines
@janabrown6608
10 ай бұрын
Happy Birthday, Freya! It was great seeing Chris interacting with Freya. Have fun celebrating!
@DesMowadeng
10 ай бұрын
I know Freya doesn't like/love cold things so ice cream cake isn't really an option but I had a friend of mine make a pretzel cake for me once. I don't have the recipe but it was mostly pretzels and pudding/whip cream, which might be an option or banana cream pie with the round vanilla cookies she likes. Not sure about cheesecake but that might be an option. Neither will guarantee that she eats any of them but it could be something unique to Freya thats the equilivant of a birthday cake.
@kaizma88
9 ай бұрын
Sorry to say, been there done that with these sleep deprived EEG's, they usually tell you nothing. Seizures are hard to figure out, we've been at it for over 30 years with my daughter... She had 150 electrodes put into her brain recently for 3 weeks and we still don't know any more than we did at the beginning. It's frustrating. Patience is a virtue with seizures.
@charlieoglesby3468
10 ай бұрын
Don't cry sweetie. It will be better once you get some sleep. I love sweets too but can't have them. Have a great evening and go to bed early. Prayers and love for you all. #fanforlife❤
@wendystephan35
10 ай бұрын
Most of the things I watch on you tube I notice the length before I start them. I fast forward them when they are long. But Marcy, you're vlogs I "fall into" like some movies. I am unaware of my surrounding and listen with rapt attention. And it's not just Freya. I adore watching all of you. Anyways, good vlog!! Happy Birthday to the sweetest girl I know!🎉🧁🍦🍭🍧🤹🏻🦄🧚🏻♀️
@Freyasluckyarm
10 ай бұрын
Thank you so much
@user-rg2nh4xv1y
10 ай бұрын
Γλυκιά μου Freya σου εύχομαι μέσα από την καρδιά μου να τα εκατοστήσεις, να είσαι πάντα γελαστή δυνατής και υγιής και να έχεις πάντα κοντά σου όλους όσους σε αγαπάνε και κυρίως την καταπληκτική μανούλα σου. Να την χαιρεστε❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
@toyamack9290
10 ай бұрын
Oh My Goodness...so many smiles for Daddy with the train play!! I LOVE it. Now back to the vlog🙂
@lindaavery8586
10 ай бұрын
Freya's determintion will get her to reach her goal in life.
@christahodge6023
10 ай бұрын
I’m so sorry y’all are having to deal with this, prayers you get some answers.
@carolynholcomb8105
10 ай бұрын
Thank you for your openness. Loved the chair challenge. Good job little girl. Bless you. Take the day off. Birthdays are special
@lifeoflw84
10 ай бұрын
She’s such an angel!
@ileencapone3288
10 ай бұрын
Happy Birthday Freya🧁. LOL Chris gave Freya a “I’ll show you moment” with the chair.
@paulabarton9493
10 ай бұрын
Happy birthday Freya girl. Try and have a great birthday sweet girl. Marcy and Cris hang in there it will get better. Things will work out. Sau hi to the other kiddos for me please. Hang in there . Love your family lots your in my thoughts and prayers.
@cindysutton9194
10 ай бұрын
Happy birthday Freya!!!!!!🎉😊🦋❤️🎊🙏🏾
@bonniemeyer1301
10 ай бұрын
Freya totally outsmarted you on moving the chair, Chris! Hoping the results of the EEG is good news.
@Freyasluckyarm
10 ай бұрын
She is a determined wee thing
@AshleynCollins
10 ай бұрын
Chris is the best! It’s nice seeing record
@Freyasluckyarm
10 ай бұрын
He is the best dad.
@andreaparker1057
10 ай бұрын
She was so good through all that! Bless her heart! Hang in there! ❤❤❤
@kellyrobbins2376
10 ай бұрын
Freya kept perfect time to the train beeping with both arms❤
@Freyasluckyarm
10 ай бұрын
She has good rhythm
@cynthiacarter9336
10 ай бұрын
I love your little Freya 🥰
@jillipepper5353
10 ай бұрын
Well done Freya and Happy, happy birthday big girl🎂🥰. As stubborn as she can be ….maybe hearing that not eating solids was a lost skill she decided to prove you wrong.😂🤣 or just candy pumpkins are yummy. Whichever is good to see her eating. Hopefully that was just temporary. I would wonder, if it was my child so just my thought, if the episodes where she was sleeping for long times might have been the after effects of seizures. Those ones where she was teething. Also I think I’d want our doc to do a stool sample because she puts so many things in her mouth it would be very easy for her to pick up intestinal parasites which could cause strange symptoms. We’re going through finding out my adult daughter has a weird bacterial condition that has been causing health problems off and on her whole life , possibly caused by something she picked up as a baby when our well went dry and the source of the water the fire dept used to fill the well ended up being a boggy lake . Long story, we boiled all the water and she was breast fed so didn’t drink the water but bathed in it I guess. Who knows, but when I think of all the times she was writhing in pain and taken to emergency and all the different answers we got that were obviously wrong. You never know what can cause health problems, even seizures. I sure hope they can find what will help her the most and soon so she doesn’t suffer more seizures. Take care, be safe and well. 🥰🙋🏼♀️
@dzenanzenovic-fl4bw
10 ай бұрын
I LOVE YOU PRINCESS FREYA💝💖💖💖💖💖
@SandraBugler-vq6co
10 ай бұрын
Freya is just like the energizer bunny! When she crashes mama try to lay down yourself. Is she a September girl? We're fierce!!!
@dawnrex3712
10 ай бұрын
Marci, you and your husband did a great job keeping Freya awake. I was getting sleepy just watching her. She's like ok, if I have to stay awake, I'm going to explore. Here's a drawer I know I can open that, lets see what's in here. Hmm dad set up a road block but I think I can get through there. I'm going to try it. YAY I'm out I did it. She seemed content just trying everything that came along. I have a feeling she's going to get back to solid food pretty well. The way she was chewing on the rocks! She is such a sweet heart. She may not be able to talk right now, but she certainly can tell you exactly what she wants or doesn't want. I think it's time for a nap for everyone. You look way over the top tired. Praying for good results on Freya's tests. 🙏❤🙏❤🙏
@tammyadkins3537
10 ай бұрын
Such a sweet video of Freya playing with Chris ❤
@IBELIEVEINME3
10 ай бұрын
❤ You are doing such a great job! ❤
@TCU1
10 ай бұрын
Precious little mama! I’m SOO proud of you!!!!
@amandamaynard3514
10 ай бұрын
I'm so proud of Freya, great job! It will be fine Marci❤ You all will have a fun celebration for Freyas birthday 🎉🎉
@countrygrl531
10 ай бұрын
She looked so sweet sleeping during the EEG. ❤ Happy Birthday Freya!! Hope you have a super special day!!!
@kellyburnett1833
10 ай бұрын
She is just so adorable, she has such a personality !! All of your subscribers just love your family. I am always sending good thoughts to all !! 💗
@dollfactory
10 ай бұрын
Awwww what a great video❤ Freya's lucky arm is so cute!!! Have a wonderful birthday party Ya' !!!😊😊😊😊
@jenxstv1067
10 ай бұрын
Aw I just absolutely adore Freya 🤗 she's such a unique little angel 😇 thank you for starting my day off with positivity and a smiling face 😊, it's been a rough week!! HAPPY BIRTHDAY 🎂 FREYA WE LUV YOU ❤
@DianeLee-je7jm
10 ай бұрын
Sending so much love, healing energy and thoughts your way 🙏🏾 exhaustion makes all more difficult. Hoping you all rest well and soundly tonight. Ya’s birthday will be as Magical
@suemuster9826
10 ай бұрын
Happy Birthday Freya, you are so adorable and growing up so fast.❤❤❤❤
@kathryndomer2109
10 ай бұрын
She is the sweetest baby girl. Daddy is going strong with his Daughter. He’s doing a great job keeping her awake. She looks so cute with her clean hair style. I had that test, I hated the goop. She is such a little trooper. God bless that the test results comeback great. Here is a big hug for you. I hope you felt it.Happy Birthday Freya. See you tomorrow. Love, me 💋💗💕🙋🏼❤️
@lisarhodes3206
10 ай бұрын
OMG, she's so precious!!! She's like a living doll! Happy Birthday Beautiful!!! You've stolen my heart!!!❤❤❤⛪⛪⛪❤❤❤
@cynthiawilliamson5905
9 ай бұрын
She’s beautiful!!
@tinas2597
10 ай бұрын
Happy Birthday precious one! It was great seeing you with your Daddy! Your strong will is one of your many wonderful traits! Praying for you, Sweet Girl ... and your family! ♥
@sherryblankenbeker5730
10 ай бұрын
Happy Birthday Freya ‼️🎉🎂🍦🍧💜🩷💜🩷 You were such a big girl while having your EEG sweetheart. My heart loves you sweet baby girl Also, a fantastic job to Dad and mom for keeping you awake. That is truly a labor of love for your child 🩷 Gods blessings to all of you
@DorothyCrews0809
4 ай бұрын
I just love her❤❤. She is having such a ball!! As always. So my name is Dorothy and my Granddaughter Kaylee has CDLS and will be Sweet 16 this this Wednesday. She is nonverbal, tube fed, yet still refuses to walk!! Lol We are both so blessed to have such a little angel living amongst us! So I have seen Freya playing with one of her toys that lights up that looks to me like maybe a toy boom box maybe. Could you please let me know what it is?? Thank you.
@Freyasluckyarm
4 ай бұрын
So amazing! Our kids are stubborn if nothing else 😂 I’m not sure which toy you are talking about. How big is it
@104Margie
10 ай бұрын
Freya is such an absolutely beautiful child and did so well for the EEG!!! Sending positive thoughts all will be fine!!!!❤
@Freyasluckyarm
10 ай бұрын
She was so good!
@barbhelle5481
10 ай бұрын
Happy Birthday Freya 🎂 🥳 🎉 🎈 🎁 🎊 She did great. My kids were older when they had EEG's. My oldest daughter has learning disabilities and at age 9 she started having seizures.
@karenligus8224
10 ай бұрын
Happy Birthday to Freya!! I'm glad her testing went well. Freya and Chris interacting was so sweet. I love how she worked her way out that door. She's so smart. I know how emotional things are right now until you have answers but try to enjoy Freya's Birthday. She's such a sweetheart. I'm sure her siblings are waiting to celebrate with her. My prayers are with you for answers and strength. ❤
@donnathomson4048
10 ай бұрын
Prayers for everyone. Freya is such a brave n beautiful little one. I wish I could be there n hug you ❤
@jennifer_duncan
10 ай бұрын
I loved Chris’s video and narration. 😊 I’m so glad that Freya did so well. Such a very long, exhausting day for you all! I hope everyone gets some rest. Happy Birthday to sweet Freya! Have a wonderful time celebrating together! 🎂🎈🎁💜 (Brach’s candy corn pumpkins are the BEST!)
@suzybausch8587
10 ай бұрын
Good job, Mom and Dad! Such great team work. 👏
@Freyasluckyarm
10 ай бұрын
Thank you so much!
@dawnedwall5419
10 ай бұрын
Marci God bless you. I feel so bad for you feeling sad. I’m sending you a big virtual hug . Loved watching Freya with daddy. I’m praying for all of you that all the results are good. 🙏❤️
@lindakucinski8949
10 ай бұрын
Happy birthday Freya!🎉
@crystalIzed333
10 ай бұрын
She is so smart! She worked it out, literally out! Great job Freya 👏 ❤! It's like her brain and body reverted back to the NICU..she looked very comfortable. Marcy I believe she heard you talking about that skill and her brain clicked back like "Oh yeah huh and there is candy".
@Freyasluckyarm
10 ай бұрын
I think so too!
@jetcitygrljewels9719
10 ай бұрын
Hi Marci! Chris is such a good daddy! I love watching all of your family, but this was a special treat! I am so sorry that you are going through such a tough time. I hope that you get some answers quickly. I cannot wait to watch you celebrate Ya's birthday! My family is a big birthday family as well. I am an August baby too. I turned 57 on the 30th. 💕💕
@paulined4190
10 ай бұрын
Happy birthday. Hope the year ahead brings many blessings your way🎉🎉🎉
@Freyasluckyarm
10 ай бұрын
It was extra special treat for me. Chris took those videos without me asking. He just sent them to me in the morning.
@jetcitygrljewels9719
10 ай бұрын
@@Freyasluckyarm that's awesome!
@CWengrovius1420
10 ай бұрын
I hope you guys get good results of Freyas seizure activity whether it’s a small one or not & can be controlled by medicine for her! Hope she can sleep tonight!
@amyb2646
10 ай бұрын
Happy Birthday to Freya! 🎂🎈🎁 I hope you have a wonderful celebration. That was cute footage of Chris keeping Freya awake, he did a good job! You’re such an awesome Mom, Marci, I pray that all goes well with Freya. She did great during the EEG. I’m glad to see her eating the candy at the end, I know that was a great relief to you! Sending you all my love and hugs, and prayers in Jesus’s Name. God bless you all 🤗❤️🙏🏻🥰
@Freyasluckyarm
10 ай бұрын
Thank you so much!!
@amyb2646
10 ай бұрын
@@Freyasluckyarm You’re so welcome! 🤗❤️🥰
@biddiemutter3481
10 ай бұрын
Happy Birthday 🎉Gorgeous girl
@DianeLee-je7jm
10 ай бұрын
…..as Magical as she is 🔆
@Jennifer-qo4kz
10 ай бұрын
HAPPY BIRTHDAY FREYA! 💐🎂🧁 Marcie, even though it was about miss Freya’s EEG, this video was so sweet and heartwarming. Your dear husband had such good video of keeping missy up 😊👍🏻 Praying that all is well for you all.
@Freyasluckyarm
10 ай бұрын
Thank you so much!!
@sabrina19ization
27 күн бұрын
Happy birthday ❤and prayers
@patriciaanzelc5386
10 ай бұрын
I’m always surprised how Freya puts such small things in her mouth but knows not to swallow them.
@RebornHuggles
10 ай бұрын
Happy birthday fraya!!❤🎉
@reneecote7187
6 ай бұрын
What a champ way to go❤
@cindysutton9194
10 ай бұрын
Keep up the great job mom !!!!!!!!!❤
@Freyasluckyarm
10 ай бұрын
Thank you!!
@donnasexton716
10 ай бұрын
Thank you so much on the update & including us in on her procedure. She did did great by the way! I hope they can give you some answers because I know it scares you & your family & little Freya herself when she has a seizure, there’s just so many unknowns with seizures. I absolutely love watching your videos it makes my heart smile and it smiles even bigger when Miss Freya laughs & giggles ❤ Can’t wait to see how her birthday party goes, I hope you all have a great day with baby girl and I hope she really enjoys it!! Ps. I loved the cute throw back pic of her as a baby sleeping and her at her procedure sleeping 🥰 still sleeps the same.
@Freyasluckyarm
10 ай бұрын
It instantly brought me back
@donnasexton716
10 ай бұрын
@@Freyasluckyarm 🥰
@smokindragon04
10 ай бұрын
What a great dad I know Freya is thinking what is going on lol
@junehulbert2885
10 ай бұрын
Happy Birthday 🎂 to Freya ! I’m with Freya, candy corn pumpkins are the best ! Now I need to go buy some. 😊
@Freyasluckyarm
10 ай бұрын
They are so good!
@paulagrant1073
10 ай бұрын
Happy Birthday Freya. 🎂🎁🎈❤️🐇🥰
@iringoszabo6020
10 ай бұрын
Happy birthday Freya 🎉🎉🎉❤❤❤❤😘😘😘
@rosalothrop4098
10 ай бұрын
Happy late birthday freya! If you could try first cheese puffs my granddaughter love it🎈 thank you for sharing🙏🏼
@jswmjswm6715
10 ай бұрын
Freya the little nite owl 🦉❤Happy Birthday Freya 🎊 🎉🎂
@deb60862
10 ай бұрын
Happy Birthday🎂
@lisakingsley6515
10 ай бұрын
Happy birthday beautiful girl.💗💗💗💗💗💗💗💗💗💗🍡🍨🍬🍭🎂🍰
@toniavasseur9574
10 ай бұрын
I’ve had like sleep deprived EEGs had EEGs at my house
@Freyasluckyarm
10 ай бұрын
That’s nice that they came to your house
@toniavasseur9574
10 ай бұрын
@@Freyasluckyarm Yes they did an in-home one of the set up cameras and they hooked me up to that thing with my head and the neck and I also did the EEG to sleep deprived in their office. Cause I was hit by a car on my bicycle and I did several but the one of the house they have cameras in the living room and they were watching me and if I had a headache and push a button
@susie934
10 ай бұрын
It would be difficult to determine whether she lost a skill due to health reasons or Freya just being Freya.
@yvonnemascoll356
10 ай бұрын
Happy Birthday Freay🎉❤🎉🎈🎁❤️🎊
@kimcheek8027
10 ай бұрын
Chris is having too much fun with the Little People. 😅😉😘
@Freyasluckyarm
10 ай бұрын
They are so fun to play with.
@kimcheek8027
10 ай бұрын
@@Freyasluckyarm I agree! My two little granddaughters 1 & 3 are in love with all their little people! ❤️🥰😉
@kimcheek8027
10 ай бұрын
@@Freyasluckyarm I agree! My two little granddaughters 1 & 3 are in love with all their little people! ❤️🥰😉
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