I lost my husband from multiple myeloma almost 20 years ago. he went through chemo & bone mellow transplant. Not manyt people know this scary cancer. He may be have a longer improved life if he diagnose recent years. stay strong I believe there's excellent care for this cancer now.
@venusserafico1161
2 ай бұрын
Is bone marrow translant diff with stem cell transplant or just the same?
@Cosmos-ze1oz
2 ай бұрын
I believe stem cell transplant is much better outcome. Too bad that he didnt have a chance to get the stem cell transplant (didnt have at that time). Good luck! Ive heard it has a better treatment now& it would improve your life much better now. @venusserafico1161
@oliverv291
2 жыл бұрын
So true, and many of these doctors offices today are so disorganized, from rude and clueless office staff at the front desk, and other workers rushing you through tests..doctors not remembering which tests they gave you and giving you misinformation about your condition..this our health its not like working in a retail store....scary on all fronts !
@colinheaton6934
Жыл бұрын
Very very true
@Groovygal2026
Жыл бұрын
My doctor forgot about a mass that she found incidentally on ultrasound. And when I tried to remind her that it’s time to do the 1 year follow up, she told me there no evidence you have a thyroid mass. So I printed it out and brought it to my appointment, she said “what’s this?” “Who ordered this?” . I said “you did.”
@carolemoore8505
6 ай бұрын
You have no hope if you rely on the nhs in Uk!!!
@kevinwellwrought2024
2 жыл бұрын
So many misdiagnoses prove we cannot rely on doctors that much and need to use our common sense more
@ThePatientStory
2 жыл бұрын
Kevin, you make a great point in the need for us to advocate for ourselves. Thank you for watching.
@kevinwellwrought2024
2 жыл бұрын
@@ThePatientStory Thank you to you. 99% of doctors may think it is your back muscles, spine, kidney or arthritis, it never occurs to them it might be multiple myeloma because they cannot remember it from their medical textbooks. One small example, almost all doctos think protein in urine is due to chronic kidney diseaes and would never even know it might be the M protein. Believe me a slipped rib can confuse doctors for ever; taking it for colitis, kidney disease, arthritis and spine and back problem. Only luck and God can save us from these doctors! We are our own best doctors!
@felixcobarrubias
Жыл бұрын
I was diagnosed with MM in December 18, 2013 stage 3B. For 8 years i am receivingchemotheraphy. I drink Amazing Pure Organic Barley for 5 months. August 19, 2021 my cancer went in complete remission. No more chemotheraphy since August 2021.
@rodneythompson5248
Жыл бұрын
Do you incorporate alot of organic in your diet? I was diagnosed a couple years ago doing good ...
@NkNk-vg8fc
Жыл бұрын
@@rodneythompson5248 how were you diagnosed? What were the tests that were run? Thank you
@felixcobarrubias
Жыл бұрын
@@rodneythompson5248 I don't eat organic food when I was still on chemotheraphy for 8 years. The only organic, I am taking up to now is Amazing Pure Organic Barley. I started dringking Barley March 2021. August 19, 2021 my stage 3B Multiple Myeloma went in complete remission. No more chemotheraphy, Zometa, after that day. I am continuously dringking Amazing Pure Organic Barley up to now. I see my Oncologist every 6 months now.
@rodneythompson5248
Жыл бұрын
@@NkNk-vg8fc I fractured a vertebrae in my back had surgery about 3 months post surgery . I was having bad pain on my left rib cage . They ran blood test after that I was referred to an oncologist. To confirm I had a bone marrow biopsy..
@rodneythompson5248
Жыл бұрын
Where do you purchase your drink. I see it online I haven't found it in the grocery store. Whole Foods,New Seasons etc...
@darylandcat
Жыл бұрын
I’ve been on a downhill path with health issues since July 2022. What started as a roller coaster of feeling fine for a few weeks into a week of practically being crippled, it spiraled out of control in January 2023. The whole body pain is unreal. Severe pain in my lower back, stabbing pain in my right kidney that spreads to the left. Chest pains. Shortness of breath. The fatigue and exhaustion is unlike anything I have been through. I went to the hospital Feb 6 2023 because I thought my kidneys had failed. I had stabbing pains in my flank, foamy urine (looks like soapy water), stabbing chest pains, labored breathing. It was almost like going into “shock”. They shipped me out on discharge with “nothing wrong”. My concern grows stronger each passing day. What I’ve got going on is not “nothing wrong”. No one seems to be listening to me, or they seem to be brushing me off as a “healthy 40 year old male”. I have been terrified that it is cancer.
@colinheaton6934
Жыл бұрын
Bloody useless the doctors daryl..how can they not take your pain serious. My wife luckily isn't riddled with pain like you to that degree and she's suffering. Must be awful stay strong if you can a Cure isn't many years off..
@mijumaru97
Жыл бұрын
if possible, get diagnostic tests done like an MRI, CT scan, etc. Er hospital tried to diagnose my mother with a UTI but she had lacterations on her ribs and spine.
@burnguybassfishing3755
Жыл бұрын
Daryl could we speak I have the exact same issues you do. 40 yrs old male. Excruciating lower back pain. In to my upper femour. Pain in flank kidney area. Dark foamy urine. Stomach and pain under right lung.
@darylandcat
Жыл бұрын
@@burnguybassfishing3755 absolutely. I am currently dealing with a big neurologist facility in my area and getting closer to some answers.
@darylandcat
Жыл бұрын
@@burnguybassfishing3755 to follow up, I recently had a round of MRIs and a Lumbar Puncture. LP test popped with 100% lymphocytes, and a bunch of inflammatory markers. GAD65 anti-body positive. Seems as though they are looking at this now as "autoimmune encephalomyelitis". I am starting IVIG treatments this month and going for the next 3 months. I would recommend seeing a neurologist. I have a Discord server, and a way for you to message me if you are still in need of bouncing ideas off me.
@tigerspiritjourney
2 жыл бұрын
How is Elise doing now?
@NewAccountWhoDis
11 ай бұрын
My sister got really sick and went in for routine bloodwork. She was so low on iron that she needed a transfusion. They suspect this. Now I will begin to find out on the 26th of September if I have it.
@ryantuttle7551
5 ай бұрын
How did it go for you?
@destinyterrell9785
Жыл бұрын
My daughter is 16 and we have been searching for assets for 5 years now. As of now we have has 2 sets of blood panels done and my daughter has high monocytes at 10.1% and low ferritin of 6, factor 8 assay of 173, and high VWF at 173. I’m getting scared 😢
@puregold1725
Жыл бұрын
Wow. I had a hip biopsy for myeloma and it was no big deal.
@amyjenkins9187
Ай бұрын
What did your blood work look like?
@Bambotb
2 жыл бұрын
The imaging should've been done by at least the chiropractor, this is malpractice
@ThePatientStory
2 жыл бұрын
We're glad Elise was okay after those sessions. Thank you for your message!
@wendyeesue
2 ай бұрын
Plasma Cells???? Thats what I was told. .BUT Does not make sense to me to say its Cancer. We all have Plasma cells. I use to donate Plasma in my early days..I just do not understand alot of this..
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