Naiyak ako sa episode nato. Ngayon lang ako nakarinig ng ganto. Yung co-warrior mo na same ang feeling. :
@julsvenida
11 ай бұрын
More hugs, Elyyyn! 😭 laban lang!!! Naiiyak din ako dyan 😭
@zai1341
Жыл бұрын
3:17 Our sickness is something we can't see in a naked eye. We don't look sick but we feel it. 😭😭😭 struck me a lot!
@julsvenida
Жыл бұрын
Hi Zai! I feel you! I hope you are feeling well today! Sending you lots of positive energy and prayers !🙏🫶
@maiaclara08
2 жыл бұрын
I don’t know why, but I just cried watching this. 😭 I just got diagnosed with SLE with Nephritis late October last year, it’s super hard 😔. A lot of changes physically, mentally, and the adjustments I (and the people around me) had to make. Experienced a lot of breakdowns and felt that no one understands what I’m going through. Thank you for uploading this 🥺 now I know that I’m not alone. ❤️
@julsvenida
2 жыл бұрын
Hi Maia! I'm so happy you reached out here in the comments. You got this! You can always talk to me if you need to talk to someone who understands. 🤗 I get what you mean when you and the people around you adjusted because you got lupus. Me and my family were also shaken when we first learned about it. But now we're okay. I'm okay. And I hope you are, too! 🦋🙏 Keep fighting!
@cooktorialschannel5058
2 жыл бұрын
I was diagnosed 9 years ago with what you have Maia. We’ll get through
@julsvenida
2 жыл бұрын
I also have SLE with nephritis. But we're strong! Keep fighting! 🦋💪
@cooktorialschannel5058
2 жыл бұрын
@@julsvenida I’m watching your video again. Can I suggest that you try plant based diet? My tests were clean when I did it. Instead of white rice too I was having quinoa and adlai. I feel you when you talked about hair loss,about handing your PWD ID and about the stress. I’m really glad I found your channel,Juls. Just hang on!
@julsvenida
2 жыл бұрын
Hi! Would love it if I can know your name. 😊 Thank you so much for your thoughts and suggestions! But I love food too much to sacrifice it for a plant-based diet. I don't know if I can do it. 🥺 I'm happy that you can relate to what I'm saying. Someone understands me. If ever you need someone to talk to, I'm here! Keep fighting! 🦋
@loiseclores7007
2 жыл бұрын
Pinakastress ako ngayon sa timbang ko, hanggang ngayon di ko pa din matanggap na majubis na ko. From 46kg ngayon 55kgs. Nag ddiet naman ako pero isang pound hirap na hirap ako mabawasan. Kinasal ako di ko magawa magpost kase natatabaan ako sa sarili ko. Ngayon naman tinatry ko sya iembrace kase naniniwala ako na babalik din ako sa dati once matanggal si steroids. Goal this year yan! Fighting satin! Thank you sa video na to! 💕
@julsvenida
2 жыл бұрын
Kaya mo yan, Loys! 🤗 Be proud kahit mataba tayo, meron tayo excuse. 😉 Post mo na photos mo! I'm sure matutuwa ka parin at mga taong nagmamahal sayo pag nakita ka nakangiti sa pics. 😁 Thank you so much for always watching the videos! 🤗 Always fighting!!! 🦋💪
@grachellegallardo1877
2 жыл бұрын
Hello fellow warrior 👋🏻💜 Just want to say thank you for making this video. I was diagnosed with Lupus last month and this really helps me a lot. To feel that i am not alone in this journey. That God has a purpose on this. Keep safe always!
@julsvenida
2 жыл бұрын
Hi Grachelle! Sending warm hugs. I know the start of the journey is one of the hardest parts. I hope you are doing well! I'm always here if you need someone to talk to. Just reach out anytime. Praying for you! 🙏🦋 Keep fighting!
@periwinkle6054
3 ай бұрын
I so feel you 🥹🥺 hugsss
@julsvenida
3 ай бұрын
Huuugs 🤗🤗🤗
@angelitocastillo3238
2 жыл бұрын
Thank you Jen and Juls for sharing your experiences with regards to SLE and God bless and sty safe and as healthy as possible.
@julsvenida
2 жыл бұрын
Thank you for supporting our channel! 💙 God bless you and your family as well! 🙏
@heyday179
8 ай бұрын
i wish i could hear more about how you have tried to control this disease with medicine and diet. that would be more interesting than all your feelings. we are all here because we feel this was and are suffering with this disease but i don't know what do with all of this yet.
@aarances3269
2 жыл бұрын
Hugs to all lupus warriors 💖💖💖💖 love you, Juls!!! 💖
@julsvenida
2 жыл бұрын
Thank you, Aa! 🥺 Love youuu!!! 🤗🤗🤗
@mikkoayala14
Жыл бұрын
Hello Fellow warrior THank you for this. I'm currently struggling with my mental health but no one understands
@julsvenida
Жыл бұрын
The lupus community and I are here for you! 🤗 Laban lang! 💪
@janetehrke588
Жыл бұрын
Thank you for being so honest! You have helped me a lot!
@julsvenida
Жыл бұрын
Hi Janet! Glad I could help you out. 😊 Keep fighting! 🦋
@janetehrke588
Жыл бұрын
@@julsvenida I’m on my first day of steroids because of an flare and I can’t sleep but I feel better.
@julsvenida
Жыл бұрын
Hi Janet! Sorry for the late reply! I hope you are doing better now! 🙏🤗 And I hope you're getting lots of sleep. 😴
@cyyiiieeee
Жыл бұрын
Sobrang relate ako kc lahat yan ganyan tlga nararamdaman ko minsan ntatawa nlng ako kc loading ako minsan ultimo spelling ng simple word nacoconfuse ako kya sinisearch ko at minsan kunwari gabi iniisip ko ano b ulam nmin kninang lunch hndi ko maalala tlga kya need ko p itanong.. tpos ung sa PWD ID naexperience ko pa n msabihan bkit nkapila ako para sa priority lane rereklamo pa & pati cashier ung itsura ung alam mo na prang naghihinala bkit may ID ka. At ung mga moments na hndi ka okay kaya hndi ka nkkapunta sa ganito ganyan like bonding iniisip ko pa bka isipin nla di ka marunong mkisama ganyan. At ung moments na para bng iniisip nila na nagdadahilan ka lang sa mga bagay bagay. And about sa weight & hairloss till now yan problem ko sobrang nakakababa tlga ng self-esteem lalo na babae tayo. Ung iba mo png mga sinabi ganon din tlga ung pkiramdam ko 😢 hugsss 💕
@julsvenida
Жыл бұрын
I feel you!!! Sending you much hugs! 🤗🤗🤗 I'm praying for your physical, mental, and emotional health! 🙏 Message mo lang ako kung kailangan mo ng kausap. 😊
@jamilleolano7971
2 жыл бұрын
Sending hugs. Stay strong and keep on fighting sis! 💜
@julsvenida
2 жыл бұрын
Sending hugs back! 🤗🤗🤗 Thanks Jamille! 🦋
@AngelaJonesPoetryStoriesArt
2 жыл бұрын
Good topic. Mental health is so important.
@julsvenida
2 жыл бұрын
Thanks for sharing your thoughts, Angie! Hope you are doing well! 🦋
@kuyaadonisvlogs-jeepneydri6540
2 жыл бұрын
mag iingat po kayo lagi❤❤❤ keep safe po 🙏🙏🙏
@julsvenida
2 жыл бұрын
Maraming salamat Kuya Adonis! God bless po!
@TheAdministratrix
2 жыл бұрын
Love you, Juls! 💙🧡🦋🌻
@julsvenida
2 жыл бұрын
Love you!!! And thank you for always watching my videos. 🥺🤗
@mikkoayala14
Жыл бұрын
Umiiyak ako habang pinapanood ko to. Akala ko ako lang yung ganito. Wala kaseng nakakaintindi sakin :(
@julsvenida
Жыл бұрын
Super sorry to hear that 😭 madami tayo ganito. Sumali ka ba sa FB groups?
@mikkoayala14
Жыл бұрын
Now I understand. I have Lupus Fog :(
@julsvenida
Жыл бұрын
You can watch the whole Lupus Diaries playlist to better understand lupus symptoms. 😊
@patrickaquino7213
2 жыл бұрын
Same po tayo 😭😭 Nakaka paranoid po ano pwede kainin .Please help po😭
@julsvenida
2 жыл бұрын
Hello! Nakita ko napanood mo na ito kzitem.info/news/bejne/zHifn2aMqKxegpw . Nandyan lahat ng mga pwede at bawal kainin base sa research ko. 😊
@patrickaquino7213
2 жыл бұрын
Good Morning . Ask ko lang pwede pa rin ba tayong kumain nang mga kakanin? like puto cheese ,biko, spaghetti pwede ba? Thank you so much sa responsw po❤️❤️❤️
@julsvenida
2 жыл бұрын
Hi Emily! Pwede naman kakanin. 😁 Wag lang masyado ang cheese. Tsaka mga pagkain na may food coloring, masama sa kidneys. 😊
@mikkoayala14
Жыл бұрын
Pilipino ka pala :( I hope I can talk to you soon :(
@julsvenida
Жыл бұрын
Hi Miks! You can always dm me through my socmed accounts. 🤗
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