In this panel discussion Katie Couric, Tania Simoncelli, Jennifer Canvasser, Nasha Fitter, and Monkol Lek discuss how patients are driving transformative science in rare disease.
As many as 10,000 rare diseases affect over 300 million people globally, but many rare disease patients have never met anyone else with their condition. So how do patients connect and drive research in their communities?
Tania Simoncelli, VP of Science in Society at CZI; Jennifer Canvasser, Founder and Executive Director of the NEC Society; Nasha Fitter, Co-Founder of the FOXG1 Research Foundation; and Monkol Lek, Assistant Professor of Genetics at Yale School of Medicine and rare disease patient, join Katie Couric to discuss how patients and researchers are partnering to transform the research ecosystem and advance treatments and cures for their communities.
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Негізгі бет Ойын-сауық How patients are driving transformative science in rare disease
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