Come with us on INFUSION DAY!
Every other week we spend the day at Children's Hospital so that Damian can get infused with a drug that helps fight ASMD in Damian's liver, spleen, lungs, and more (pretty much everywhere but his brain).
There was a lot of drama and a lot of fighting to get him on this drug in the first place, and I'm so SO GRATEFUL we are able to do this because in the past year we have seen so much improvement in terms of his liver size and health, his ability to eat more, and his growth!
Hope you appreciate this little look into our lives! Thank you so much for being here!!
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💙ABOUT DAMIAN💙
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to raise the $3 million needed to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story and considering a small donation! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 PLEASE HELP 💙
GoFundMe: gofund.me/24dc...
Blog & More: www.SaveDamian...
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💙 AS SEEN IN THIS VIDEO 💙
NEW! SaveDamian Car Magnet! www.savedamian...
Stacking Rings Toy: amzn.to/44WHzSq
Counting Koala Toy: amzn.to/3PxmibT
Негізгі бет 💉 INFUSION DAY VLOG 💉 Our Rare Disease Life
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