At the end of my last film, I promised I'd be talking about what I think is causing Long Covid. Well, it made sense to cover this rather hot new topic at the same time - microclotting.
What is it? Why is it happening? What symptoms happen as a result? And how can we stop it?
Well, I've spoken to my good friend, Dr Asad Khan - who's out in Germany at the moment undergoing HELP Apheresis, to learn more about it.
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The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
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Contents:
0:00 Introduction
0:32 What's Causing Long Covid?
4:19 The Proposed Pathophysiology
7:14 What is HELP Apheresis?
10:00 The Mechanism for PEM
12:08 Dr Khan's experience with HELP
15:25 Do all Long Haulers have Microclots?
18:20 Testing / Why are clotting results normal?
21:53 Venous Oxygen Saturations
25:44 Where is HELP Apheresis available?
27:53 What %age does HELP help?
29:42 What Research is Happening?
33:50 What can LHers discuss with their doctors?
38:14 Further Questions?
39:34 Conclusion
References/Resources:
To sign up to HELP Apheresis waiting list
apheresisassociation.org/
FB group
/ 659008718403141
Dr Beate Jaeger’s website (in German)
beatejaeger.com/
Drs Jaeger & Khan BBC interview
• BBC News - Dr Beate Ja...
The Pretorius papers
www.resiapretorius.net/
twitter.com/resiapretorius/st...
Other interesting papers on microthrombi:
www.biorxiv.org/content/10.11...
www.mdpi.com/1999-4915/13/10/...
Delphi consensus guideline on management of Long Covid by 33 doctors (29 with the illness including myself)
bjgp.org/content/bjgp/71/712/...
CDC guidance on management of Long Covid
www.cdc.gov/coronavirus/2019-...
World Physio briefing paper
world.physio/sites/default/fi...
POTS U.K. website- valuable info on self testing, nonpharmacological measures, specialists
www.potsuk.org/
Long COVID Physio
longcovid.physio/
Royal College of Occupational Therapists Resources on Long COVId
www.rcot.co.uk/post-covid-syn...
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