I had severe aplastic anemia in 1998 and had a bone marrow transplant. I survived and am doing well.
@JohnsHopkinsMedicine
7 жыл бұрын
Thank you for sharing your story with us, Colleen. We are glad to hear you are doing well!
@ShahidAli-xg6hf
5 жыл бұрын
Great
@danishsunproperties2392
5 жыл бұрын
MP
@mcpealert6207
5 жыл бұрын
I might have to get a bonemarrow transplant they said u had to be in the hospital for a month AND be in the same room with your doner
@henrysh6280
5 жыл бұрын
well,happy to hear that,my sister did bone marrow transplant last year and after 2 days she lost her kidney and became unconscious,after a month she passed away 😞
@Groucho1980
14 жыл бұрын
My mother has this disease and it's horrible. She is going to get treatment very soon, maybe next week and I hope and pray that it works as it's supposed to as explained in this video. Very good vid.
@adil14912
11 ай бұрын
Hello sad to here... Bt is she cured now
@monicalfonzo
8 ай бұрын
Is your mom okay? Healthy?
@PrimordialOops
10 ай бұрын
Sadly I lost a good friend to this only a few days ago. Here to try and piece this together to cope. To those that have lost loved ones to this, human to human I’m so very sorry.
@Bastikovski99
8 ай бұрын
My wife has this or something similar after taking the Moderna vax. I’m guessing your friend had the vax too? I think it’s messing up a lot of people’s immune systems
@ratihastrianie6486
10 жыл бұрын
my lil sist has this too.. i'm crying when hear that. God Bless for my lil sist..
@hanoufabdulrahman7863
10 жыл бұрын
I'm sorry for your lil sis :(!
@RahulSharma-hy3qy
4 жыл бұрын
Hows she now?
@gooddayvlogs3994
3 жыл бұрын
Please answer how is she now
@abdullakc
3 жыл бұрын
Go for natural treatments rather than regular doctors doctors are crap
@bantog4686
3 жыл бұрын
My son diagnosed this Jan aplastic anemia, he's Dr. Recommended for bone marrow transplant, it's too expensive. I don't know what to do now.
@ashleyxoxo5063
10 жыл бұрын
My brother has this... I hate it. Anyone else who has or knows someone with this, god bless you
@proudsonofalgeria8837
4 жыл бұрын
I have this too....
@vinujassy6241
5 жыл бұрын
My daughter has sevear aplastic anaemia she is taking treatment of atg injection today is her 2nd day of treatment please pray for Jessica
@firstnamelastname...
5 жыл бұрын
May Almighty bless your daughter with good health and fast recovery. Give her very good diet, especially mutton soups, keep her room ,washroom everything clean. Don't let her catch any infection. Everything will be fine ,stay blessed. Be strong.
@praiseadeayo
3 жыл бұрын
It is well with her in Jesus name AMEN
@kannalemiamia7348
3 жыл бұрын
How is she now?
@Historical_hiker
3 жыл бұрын
God will perfect his work in her life
@annetsei715
5 ай бұрын
How is she doing now?
@shrillcoolman33
11 жыл бұрын
i went through this and it is very hard. i was in the hospital for six weeks and recieved a bone marrow transplant from my brother and today a half year later im still alive and i am very greatful
@jountirose6045
5 жыл бұрын
Was it easy to have that transplantation done?
@awsd211
7 жыл бұрын
this disease made me miss all of high school but i survived thanks to bone marrow transplant im glad that part of my life is over
@JohnsHopkinsMedicine
7 жыл бұрын
We are glad to hear this is passed you as well!
@Shortyjored88
6 жыл бұрын
Glad to hear. I hope you more blessing!
@marymanzo2177
6 жыл бұрын
awsd211 who was compatible to be ur doner
@factsuniverse1537
4 жыл бұрын
How much does it costs you for transplant??
@rn4d191
7 жыл бұрын
By friend has it. God Bless her soul. She is still alive I pray
@yourer
4 жыл бұрын
Great visuals and easy to understand! I wish there were more medical study materials like this.Thank you!
@hquiroz8
6 жыл бұрын
My Dad went thru a treatment where he got horses' antibodies, he takes medication every day he has been able to live almost a normal life so far. I just hope someone finds a cause for this rare illness.
@alahaundraocean1831
4 жыл бұрын
We know the cause, but it doesn't have a genetic cure. The only way is through HiCy , cyclophosphamide or bone marrow transplantation.
@kiloton1920
2 жыл бұрын
Vaccines are the cause
@furio2333
Жыл бұрын
May i ask how long did your father use cisclosporin sandimmum. Is he still take drugs now? Thank you
@dheerajduggi8069
Жыл бұрын
Hello I have medicine for these contact me urgently my contact number is mine DP pic call me in watsup
@margadg5183
8 жыл бұрын
well but hey I could have died because my hemoglobin was 4 when we went for a appointment they immediately sent me to emergency room ... but I'm still here fighting. I just hope it doesn't relapse as a leukemia
@linuxterm7622
5 жыл бұрын
Are you still alive
@Misss546
Жыл бұрын
@@linuxterm7622 bro😳
@ayaan6624
Жыл бұрын
Wtf , are you fine bro
@daze383
3 жыл бұрын
I had a plastic anaemia in 2009 I was lucky enough to have a Donor come forward with 100% match I’m happy to say I’m fully recovered even though I had to have both my hips replaced because they give me too much steroid. Reason for me getting it was the fact that I was a heavy drug user. My haematology doctor told me it may have something to do with benzene which I believe is sometimes used in cocaine.I should be on an anti-drug poster. Don’t use drugs kids!
@kamalalove6083
2 жыл бұрын
So, so well done. Just the information I was looking for with beautiful animation work to help explain. Thank you.
@dawnkotowski7533
5 жыл бұрын
Video was easy to understand and scary. My husband was diagnosed in August 2018 with ITP , MDS-RS-MLD , and then AA. His blood counts are all very low. At 65 and with kidney disease I don't believe he would be a transplant candidate.
@ShahidAli-xg6hf
5 жыл бұрын
John Hopkins You made it very easy to understand for us. Thank you
@Voxguitarsrock
3 жыл бұрын
My best friend in the world died from this recently. 😭 I miss her terribly every day.
@ak-2007
5 жыл бұрын
I have aplastic Anemia but luckily for me it was discovered very early. I had problems with platelets and hemoglobin. Platelets were usually around 5 and hemoglobin was usually around 7.5. I am going to have a bone marrow transplant next month.
@arindammondal9479
4 жыл бұрын
How are you now?
@lahariadabala394
3 жыл бұрын
How are you now??
@ak-2007
3 жыл бұрын
@@lahariadabala394 not dead lmao. doing well. still on a lot of meds but they're gonna be stopping soon. i'm now in the recovery process.
@ak-2007
Жыл бұрын
@SarCastic GameR I'm well. I'm now past the recovery process, but just on one preventative lifetime drug, amoxicillin. Better than the 14 daily meds I was on three or so years ago.
@Pararjvaun
2 ай бұрын
Blood counts please@@ak-2007
@areebajameel2907
4 жыл бұрын
Thanks for the video it's an excellent explanation within few minutes
@darkamity1399
6 жыл бұрын
My aunt had this, it took her a year before finally succumbing to the disease, I remember every 2 weeks she undergoes blood transfusion
@JohnsHopkinsMedicine
6 жыл бұрын
We are sorry for your loss, kes min.
@mihretkifle6239
2 жыл бұрын
My freind died yesterday from this disease, i guess i just wanted to know what happened to her...this helped me understand it
@proudsonofalgeria8837
4 жыл бұрын
I've been living with this disease for almost 6 years so far... my life is going very well after I have been prescribed the medication.
@factsuniverse1537
4 жыл бұрын
Which medicines are you taking? I have severe Aplastic Anemia for two years now.
@ChiTrilla
2 жыл бұрын
@@factsuniverse1537 hi do you still have anemia if you don’t mind me asking
@factsuniverse1537
2 жыл бұрын
@@ChiTrilla yes, I still have it
@Mychannel-ek5ih
2 жыл бұрын
What are these medicines.i also needed
@sadrudeanschoeman570
9 ай бұрын
Good day what tipe of meds are you on???
@rahuljethani8769
8 жыл бұрын
thanks for letting me understand easily
@hamzasumter6740
7 жыл бұрын
visual effects are perfect. thanks.( I.... doctor of internal medicine)
@jhontrigosomixan193
8 жыл бұрын
excellent!! thanks you for the information. hugs from Perú
@_auggie8
3 жыл бұрын
I recently got diagnosed with AA. My body received ATG treatment well and now taking cyclosporine to treat. Almost going on 2 months but glad I'm still here and okay.
@md.rasheduzzamanrashed9944
3 жыл бұрын
My brother are suffering severe aplastic anaemia from april 2019, he taken ATG but not response, still need platelet transfusion every 3 days
@dheerajduggi8069
Жыл бұрын
@@md.rasheduzzamanrashed9944 hello I have medicine only one month course call me my number is mine DP pic
@dheerajduggi8069
Жыл бұрын
@@md.rasheduzzamanrashed9944 hello I have medicine only one month course call me my number is mine DP pic
@maddoggydizzle
12 жыл бұрын
Wow the human body is so crazy!
@CarolineJDillard
14 жыл бұрын
Easy to understand. Nursing Student
@raquelitahinkerstoodle8672
11 жыл бұрын
That was a great video. Thank you.
@celinascleaning
10 жыл бұрын
Wow, this video is great! Thank you!!
@pramilaghimire6280
6 жыл бұрын
thanks but she is no more today it has been 7days ... she left me alone
@JohnsHopkinsMedicine
6 жыл бұрын
We are sorry for your loss, Pramila.
@areebajameel2907
4 жыл бұрын
😔 we are very sorry for you
@ydiebaque
13 жыл бұрын
my younger is diagnosed with this disease. from month of April up to this august of this year, we brought him to the hospital. monthly, he is attacked. please tell me what are the best drug for his medication.
@margadg5183
8 жыл бұрын
5 months ago i was diagnosed with severe plastic anemia . 2 Months ago we started the ATG and it sucks. I am now taking cyclosporine. My blood cells began to go up but now stopped . Life sucks
@codythomas8394
8 жыл бұрын
I was diagnosed when I was 8 and have done the things which you are doing now I still continue to take cyclosporine keep on fighting
@Shortyjored88
6 жыл бұрын
I hope you are doing well.
@susana6917
4 жыл бұрын
Can u say more please.. what is it that "sucks"... Need info for older person about to go on both ATG & Cyclosporine. Thx.
@m2ym2y99
3 жыл бұрын
@@susana6917 Susan, there is Facebook group for people that are dealing with or have dealt with Aplastic Anemia. I am a member. Had hAtg, Promacta, and Cyclosporine because I was too old for a bone marrow transplant. I hope your treatment has gone well. Hang in there, it gets better. 💛
@_auggie8
3 жыл бұрын
I'm in the same situation, but luckily my body reacted well to the ATG treatment. Numbers are slowly going up with cyclosporine and Promacta. Hope is all well!
@laraemonet
7 жыл бұрын
Great video!
@Florcita379
11 жыл бұрын
wow, excellent video!!
@drhamdaankhan3691
6 жыл бұрын
very cool presentation..
@DaxAxeOffical
Жыл бұрын
i have this condition, i hope i get better soon.
@diamondp4521
3 жыл бұрын
Thankyou , my final exam will cover this topic .
@EMUGILANR
3 жыл бұрын
😣My father died with aplastic anamia with affect every part of body by blood leak includes brain only bone marrow transplant can cure it 😣
@shivampandey2363
5 жыл бұрын
Are you tell that how to cure Aplastic Anemia without surgery. Because Surgery charge is very high. my younger brother is facing with this when he was of 8 year old And now he is 13 year old . But we haven't much money for surgery . So plz tell me are any things are possible for curing . Other than allopathy example Homeopathy, ayurveda etc
@5Rays
3 ай бұрын
Does anyone know about the milder form of this disease?
@pramilaghimire6280
6 жыл бұрын
m watching this video my grand mom is also suffuring from this diseases please give me idea so that i could take step for treatmrnt m from nepal
@JohnsHopkinsMedicine
6 жыл бұрын
Hi Pramila, your family is in our thoughts. You can find more information on treatment here: www.hopkinsmedicine.org/kimmel_cancer_center/types_cancer/aplastic_anemia.html
@pathanscientist4488
6 жыл бұрын
I have a good treatment of aplastic anemia . 8795144073.
@jkingz58
4 жыл бұрын
pathan scientist do you ?
@yaima1394
3 жыл бұрын
I am currently going through treatment for a plastic anemia and I hate it so much
@dheerajduggi8069
Жыл бұрын
Hello please ping me i will help you urgently i have medicine
@drJOORI
13 жыл бұрын
thank you very much . this video is very helpful =)
@praiseiamjudah8572
4 жыл бұрын
Thank u for this vid
@baylorman2015
3 жыл бұрын
Hi , I'm working on a story about aplastic anemia. May I use this video in my story?
@JohnsHopkinsMedicine
3 жыл бұрын
Please email jhmedia@jhmi.edu
@mmeIodie
4 жыл бұрын
I- I was diagnosed with anemia but idk which type
@noahswift361
10 жыл бұрын
Very Nice
@shunt5001
2 жыл бұрын
This sounds horrible to experience 😢
@WildJhinIsHere
5 жыл бұрын
I’m still affected by severe aplastic anemia
@gooddayvlogs3994
3 жыл бұрын
Are you ok bro
@dheerajduggi8069
Жыл бұрын
Hello please ping me i will help you urgently i have medicine.
@dheerajduggi8069
Жыл бұрын
@@gooddayvlogs3994 Hello please ping me i will help you urgently i have medicine
@tickyul
13 жыл бұрын
@kimfeilgood Yeah, I think my bone marrow was damaged from exposure to Toulene and Xylene when I was painting my car. Have had low red and white blood cells for a long time.
@gary77777778888888
14 жыл бұрын
@Groucho1980 So how is she doing now? I hope it went well
@eLouisearnoldandSchubert
8 жыл бұрын
I recently got diagnosed with aplastic anemia and it's been a hard time just learning to manage my delayed brain activity (or so it seems from my perspective, as well as friends who keep commenting how illogical I am being). Are there easy exercises I can do to keep neurons moving while circulation is low?
@JohnsHopkinsMedicine
8 жыл бұрын
+liz arnold Thank you for reaching out to us. Because each person's medical situation is so different, we unfortunately cannot give specific recommendations or second opinions via this form of communication. Your physicians can make recommendations on how to best manage your symptoms. If you would like to request a second opinion through one of our hospitals, please call the appropriate phone number listed here: ow.ly/IJKqR Our medical concierges can arrange consultations, remote medical second opinions or treatment plans. Thank you again for reaching out and we wish you well.
@lynnfoohomegmail9121
8 жыл бұрын
I have met people who recovered totally from AA without having to go thru any bone marrow transplant. There is a natural way to make the autoimmune system function naturally.
@codythomas8394
8 жыл бұрын
+lynn foo how is that?
@rain5727
8 жыл бұрын
+Cody Thomas I can send u testimonial of our friend who recovered by wearing Japanese high tech negative ions clothings invented 60 yrs ago. My family have similarly been wearing these and have recovered from what are deemed incurable. U can email me at thimberwolf101@yahoo.com.sg. Cheers,
@rain5727
8 жыл бұрын
+Cody Thomas I can send u testimonial of our friend who recovered by wearing Japanese high tech negative ions clothings invented 60 yrs ago. My family have similarly been wearing these and have recovered from what are deemed incurable. U can email me at thimberwolf101@yahoo.com.sg. Cheers,
@alanisbernabel1021
4 жыл бұрын
i have anemia and i hate it, it feels horrible i feel weak and i just want to know how to get rid of it
@JohnsHopkinsMedicine
4 жыл бұрын
Hi Alanis, thank you for reaching out to us. Unfortunately, because each person's medical situation is different, we are unable to provide treatment recommendations via this form of communication. We encourage you to reach out to your primary healthcare provider.
@dheerajduggi8069
Жыл бұрын
Hello please ping me i will help you urgently i have medicine
@Zander101084
13 жыл бұрын
@sohamhar what about his insurance?
@عباس-ه8ل7ك
4 жыл бұрын
ماهوعلاج فشل نخاع العضم
@sangio3800
3 жыл бұрын
That back ground music is really annoying
@amtr301091
11 жыл бұрын
alguien puede traducirme lo que dice en el video por favor
@daisymeeley5954
8 жыл бұрын
I wad only 5 when I had it know im 10 I know how I got it when I coffed up bload until I met my doner mark randomly all the medication they gave me failed when they first gave it to me then I merocosly I made it and this helped why I had to have part of my vains removed
@kerlinjohnson7466
5 жыл бұрын
Low in iron just eat a peanut butter and grape jelly sandwich ....good for blood making
@buddistjejus5825
3 жыл бұрын
00:01 1:00 2:00
@paulalynn8415
8 жыл бұрын
is anemia different for this one? I have it life is just unfair😷
@lynnfoohomegmail9121
8 жыл бұрын
I have met people who recovered totally from AA without having to go thru any bone marrow transplant. There is a natural way to make the autoimmune system function naturally. I can share more if you are keen to know.
@michellecommodore4473
7 жыл бұрын
let me know
@lykanaga8327
7 жыл бұрын
+lynn foo how pls help
@ronyrony2961
5 жыл бұрын
Hindi language
@DwiRatnawati-l5n
11 ай бұрын
please translate in indonesian
@Zander101084
13 жыл бұрын
a twelve digit number?
@akbardr297
Жыл бұрын
👍
@zanygee
7 жыл бұрын
lol what is that dinosaur that just sniffed the rbc
@adambrecker2600
7 жыл бұрын
Zunaira Ghaffar that would be bacteria or a virus cell attacking the red blood cell
@tahag_k18
3 жыл бұрын
من ایرانی هم
@poupi18
11 жыл бұрын
and some people don't believe in God. That's even crazier!
@PrimordialOops
10 ай бұрын
It’s a faith based religion. You choose to believe that it’s true in lack of any tangible evidence, that’s what faith means. Calling others crazy because they do not believe in something that is not based in fact but rather faith is ignorant. I could just as easily dismantle your religion and you would not be able to defend it. Thus faith is required.
@notindentified-pv7le
6 жыл бұрын
my 3 year old son has it. i was hoping it was me not my son. i felt God not fair.
@khalidaldossary5501
3 жыл бұрын
My lil boy have it to , did your son have treatment?!
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