I have this disease and I got it severe.i went into the rarer gene group and they get it more severe I had to take so much medicine and I could hardly do anything I couldn’t walk ,get out of bed,or eat/drink anything I was in the hospital for 4 months and am still currently taking medicine I am 11 and it hurts me to think that some kids have it even worse than how I did and some of them could be like 1-4 it must be terrible..
@tunestareasypiano2079
3 жыл бұрын
@Mr. Awesomehiii how are you doing now
@tunestareasypiano2079
3 жыл бұрын
@Mr. Awesome I am glad you are normal now I got this last year and m 28...do you got your all strength back?
@jaladelaney6440
2 жыл бұрын
I was also in the hospital for 4 months and in and out of icu I was severe as well and even had to take chemotherapy and have an ng tube It’s so crazy to think that people could have it worse
@anoukpovel
2 жыл бұрын
What about 'rare' adults having JDM? Is there some information about recognizing flares and the use of medication to get into remission again?
@saravanans-tu2py
Жыл бұрын
Mam pls request msm iam tamilnsdu writting my daughter jdm disease 5 years cheenai ramachandra hospital treatment why years cure
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