You keep advocating for your kids, mama. As a mom of a child with cerebral palsy, I have been advocating for my kiddo since day one. He’s 19 and a freshman in college and we do what we do for our kiddos. Someone has to speak for them. ❤❤❤❤Sending strong mama hugs
@annettefertitta6868
3 ай бұрын
Many kits coordinate very well with
@karen.b.e
3 ай бұрын
Tcmc emotis are the cutest ❤
@PlanningLifeWithErin
3 ай бұрын
They really are 😍
@amyalphabet722
2 ай бұрын
Love mixing and matching to use all the things! such great news that Weston gets more EA support, great advocating by you and your hubs!!!
@PlanningLifeWithErin
2 ай бұрын
Me too! So fun! Love being creative with them and use the stickers 😍😍 Thank you Amy 💕💕 hope all is well with you 😊
@annettefertitta6868
3 ай бұрын
A record is a great idea! Also maybe a gift card for a fun outing, tickets to an upcoming festival/ concert
@PlanningLifeWithErin
2 ай бұрын
Yes! I did a record and some shirts for work. But we decided to treat ourselves to a festival this summer not sure what yet though
@annettefertitta6868
3 ай бұрын
Weston actually described it perfectly- it’s hard for him to keep self talk inside… we all comment in our heads. He probably thinks he said it to himself (but he can’t self-monitor well enough).
@PlanningLifeWithErin
2 ай бұрын
I’ve never thought about that Annette! Maybe he is thinking he is saying it inside. He says it quietly but sometimes loud enough other kids can hear it. Right he is struggling with self monitoring. Add it to list of things we are working on. But he is smart and loves to learn he will get there. Patience and understanding on his road until he gets there is important.
@spideyvenus
3 ай бұрын
I also hate when people say that autism isn’t an excuse (obviously there’s exceptions) because most of the time it can be an explanation or a reason why someone acts a certain way. The reason it’s considered a disability is because it’s disabling, it’s going to affect our every day lives and you can’t make the comparison to people who aren’t autistic because they don’t have these struggles. I really admire your parenting and i love seeing how much of an advocate you are for weston!
@PlanningLifeWithErin
2 ай бұрын
Yes me too. We often get he is just like everyone else in the class and we are like yeah but he’s not. I don’t even talk about the disregulated part of things. I always say well ok he is doing 8th grade algebra is that like the other kids? It isn’t just negative that sets him apart it’s positive things as well. I get so frustrated with teachers at times. It’s such a rigid way of thinking. A lot of times I find myself thinking how do these adults have such high expectations of these kids about things that even adults can’t do.
@annettefertitta6868
3 ай бұрын
High performing Autistic children often struggle (or at least feel more anxious) with the more abstract/subjective subjects which are often language rich. It may not seem like a language issue but the the pragmatic and underlying aspects of language, hidden meanings, double entendres, etc. so glad that disregulation is now used to describe feeling “off”.
@PlanningLifeWithErin
2 ай бұрын
Yes! It’s so nice that you understand all this 💕
@PlanningLifeWithErin
2 ай бұрын
So important to use the right terms. I never liked it when they said freak outs or meltdowns when he was in elementary school.
@hereforit2581
3 ай бұрын
I can totally relate with your story about your son. My son has adhd and it’s been such a struggle with the iep and school system.
@PlanningLifeWithErin
3 ай бұрын
I’m sorry you have to go through all of this too. Hugs to you! It’s so hard but we’ve got to fight for what’s right for our kids 💕
@moniquedeguia-jones5570
3 ай бұрын
You are such a good advocate for children everywhere.
@PlanningLifeWithErin
3 ай бұрын
Thank you 🙏 💕 I wish I had more power then I do so I could do something about the broken system
@annettefertitta6868
3 ай бұрын
Lots of people don’t think that high level autistic kids, or post traumatic head injury, asthma, ADHD, dyslexia,mild seizures, etc aren’t really a thing - but they are! Almost like hidden disabilities because they can be so hidden until the individual gets overwhelmed. Great idea to rotate the TA. When you don’t and someone is out it can be disastrous. You described it so well, children with hidden disabilities hold it together so well until they can’t and they may act out with inappropriate behavior.
@annettefertitta6868
3 ай бұрын
As sad as they are, Wakes and funerals are for the living and help start the healing process.
@PlanningLifeWithErin
2 ай бұрын
Yes 😢
@annettefertitta6868
3 ай бұрын
Curse words are considered “automatic-reactive speech”. One way to explain it is if you accidentally hit you finger/thumb with a hammer - you don’t say wow, that hurt… The other children do need to be educated and so do the teachers.:. I’ve often volunteered to explain it in a faculty meeting but usually wasn’t asked to
@PlanningLifeWithErin
2 ай бұрын
Yes! That’s what was happening. He was little and doesn’t do that anymore. Others words are in that place. Right! You don’t have to share personal info but education should be given to teachers and students. These kids are integrated into the classrooms and then segregated one way or another it’s not right.
@plan.withlisa
2 ай бұрын
Hey Erin new to your channel but loving your videos and can totally understand where your coming from I have 2 sons ( 9 and 6) they both have autism and it's so hard to get school and other people to understand ( we live in the UK) so little different to you but I totally understand having to fight for your child hope you have a great week 🥰🥰
@PlanningLifeWithErin
2 ай бұрын
Hi Lisa! Thank you so much! So glad you are here with us 💕 I wish it wasn’t as hard as it is to get what are kiddos need. Doesn’t seem right. Hugs 🤗 to you!
@40isfab87
2 ай бұрын
When you are not allowed to tell the other kids in the class why your son is acting the way he is due to HIPAA laws, the other kids just think he is being favored. Remember the other kids have issues too, but they don't get a pass if they say the F word. Unless you give permission to the teacher to share that your son has autism, she can't tell the other kids why he's not getting in trouble. It's illegal to do so. So the other kids are going to act out and their parents will get mad when they get in trouble and your kid didn't, and she can't tell those kids parents why either due to HIPAA. The only thing the teacher can do is treat them all the same. Please keep this in mind. Also, I have a special needs child and under no circumstances are saying things like the F word ok.
@PlanningLifeWithErin
2 ай бұрын
I understand that they can’t share private information. I know that there are not allowed to share confidential information. However I do believe that if there are Connaught classrooms then there should information shared about different types of disabilities so parents and children are aware that there are all sorts of children that are integrated into classrooms in schools. My son does not say the F word anymore it was brought on by trauma from an incident that was occurring daily in kindergarten. He should never be made into an example for any reason. Currently he is being kicked out of classrooms for saying things out of turn or something he has trouble keeping inside ie a sigh of frustration, saying something is stupid (to himself but out loud ) we are working with him diligently to help him understand that he needs to say these things inside not out loud. I have always advocated for all children not just mine. However there needs to be a level of education of special needs for children and parents and that doesn’t mean sharing personal information. There are 1 in 36 children born with autism I just truly believe there needs to be more education and acceptance within school communities. We have had a tough road with some teachers and parents that do not believe autism is a thing. They believe it’s an excuse for bad behavior and bad parenting. My son is a good kid. More respectful and kind and empathetic than most kids his age. My issue is with teachers that don’t want to deal with it and think it is unfair to the majority. I will always advocate for my son. They can not treat them all the same they are all different.
@annettefertitta6868
3 ай бұрын
He can still get held from any of the special ed teachers! What determines whether his considered resource is the percentage of time he is in inclusion or resource. His perspective would be that he was kicked out… I was often the person that kids would come to when they needed regulate… the sped teacher would make sure I was in the room and find out when I needed to get a different group of kids. It’s tricky because I could not be perceived as a reward nor a punishment. The students knew that if they had a question they could ask politely (if they were calmed enough to work on schoolwork. Weston’s “mental health” should not have ever been mentioned in front of him! 😡
@PlanningLifeWithErin
2 ай бұрын
Yes it sure is. I hate that he has to deal with that. That is a major stressor for him. Like I have to keep it together so I don’t get kicked out leads to stress and anxiety and then it happens. So hard to navigate all this at times with different teachers and their perspective on this.
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