My niece Kiera Collins had CDKL5 as well. Stay connected to the groups. They will be a God send. Praying for your family.
@margaretcooper797
2 жыл бұрын
What courage these parents have,just young people whose child has a devastating disability,my heart and my respect goes out to them.
@yakazulukayakfishing9473
Жыл бұрын
I really feel for you, we lost my son Marley to CDKL5 5 years ago. Man what a battle these young kids and families go through. Marley was a blessing to us, in reality it made us stronger as a family, we miss him dearly and would not give up the time we had with him for anything. Stay strong!!!
@susanwills4723
2 жыл бұрын
God bless you and your family love 💕 to you both from Australia
@shrutyabhalla1122
2 жыл бұрын
Such a brave father and family. Love you Tanner. You are in my prayers from now on.
@elizabethbass5322
5 жыл бұрын
My daughter Skyler will be 2 in August and she has CDKL5
@Amaankhan45200
Жыл бұрын
Hey, my daughter who is 5 months old has also been diagnosed with CDKL5. Any advise or treatment from your side will be helpful
@marlboroughsounds9710
4 жыл бұрын
To this amazing couple you are not alone. To all families with children affected by any type of challenges, look after yourselves emotionally, spiritually and mentally.
@Familylawgroup
8 ай бұрын
Would a seizure trained service dog, who is trained to alert of an incoming seizure, be helpful for this type of epilepsy.
@oscarcontreras3247
2 жыл бұрын
I take care of my little sister who has angelman syndrome. I feel your pain man. It's very stressful. You guys are awesome.
@user-rm5fj7rx6j
3 жыл бұрын
Очень буду благодарна, если будут русские субтитры!
@upstartsquire2375
4 жыл бұрын
How much has Ovid helped with managing and treating CDKL5? Are their medications alleviating the seizures?
@mily20-05
2 жыл бұрын
My daugther has CDKL5. She has 4 years old
@MicalSimpson13
2 жыл бұрын
My daughter also has CDKL5 and she is also 4 as of January 8th
@jerryandme
2 жыл бұрын
My daughter has just been diagnosed. Does your daughter speak?
@nadiafarooq3883
2 жыл бұрын
@@MicalSimpson13 what is her condition presently
@nadiafarooq3883
2 жыл бұрын
@@jerryandme what is her condition right now
@MicalSimpson13
2 жыл бұрын
@@nadiafarooq3883 still the same, she’s on oxygen now
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